461
Views
1
CrossRef citations to date
0
Altmetric
Articles

Survey on the experiences, attitudes, and training needs of Australian healthcare professionals related to sexuality and service delivery in individuals with acquired brain injury

ORCID Icon, ORCID Icon & ORCID Icon
Pages 2248-2268 | Received 25 Jan 2021, Accepted 20 May 2021, Published online: 28 May 2021

References

  • Aloni, R., & Katz, S. (2003). Sexual difficulties after traumatic brain injury and ways to deal with it. Charles C Thomas Publisher.
  • Arango-lasprilla, J., Olabarrieta-landa, L., Ertl, M. M., Stevens, L. F., Morlett-paredes, A., Andelic, N., & Zasler, N. (2017b). Survey on international health professional training and attitudes on sexuality after traumatic brain injury. Sexuality and Disability, 35(4), 473–484. https://doi.org/10.1007/s11195-017-9503-y
  • Arango-Lasprilla, J. C., Olabarrieta-Landa, L., Ertl, M. M., Stevens, L. F., Morlett-Paredes, A., Andelic, N., & Zasler, N. (2017a). Provider perceptions of the assessment and rehabilitation of sexual functioning after traumatic brain injury. Brain Injury, 31(12), 1605–1611. https://doi.org/10.1080/02699052.2017.1332784
  • Baker, M., & Shears, S. (2010). Sexuality training for health and social care professionals working with people with an acquired brain injury. Social Care and Neurodisability, 1(3), 4–12. https://doi.org/10.5042/scn.2010.0597
  • Barrett, C. (2011). Auditing organisational capacity to promote the sexual health of older people. E-Journal of Applied Psychology, 7(1), 31–36. https://doi.org/10.7790/ejap.v7i1.233
  • Barrett, C., & Whyte, C. (2014). Sexuality after stroke: SOX guidelines for interdisciplinary practice. Australian Research Centre in Sex, Health and Society, La Trobe University.
  • Better Health Channel. (2018). Brain injury and sexual issues. https://www.betterhealth.vic.gov.au/health/ConditionsAndTreatments/brain-injury-and-sexual-issues#bhc-content
  • Bezeau, S. C., Bogod, N. M., & Mateer, C. A. (2004). Sexually intrusive behaviour following brain injury: Approaches to assessment and rehabilitation. Brain Injury, 18(3), 299–313. https://doi.org/10.1080/02699050310001617398
  • Brainline. (2008). Sexual dysfunction following injury: Time for enlightenment and understanding. https://www.brainline.org/article/sexual-dysfunction-following-injury-time-enlightenment-and-understanding
  • Calabrò, R. S., Cacciola, A., Bruschetta, D., Milardi, D., Quattrini, F., Sciarrone, F., Rosa, G., Bramanti, P., & Anastasi, G. (2019). Neuroanatomy and function of human sexual behavior: A neglected or unknown issue? Brain and Behavior, 9(12), 1–17. https://doi.org/10.1002/brb3.1389
  • Cellek, S., & Giraldi, A. (2012). Challenges in sexual medicine. Nature Reviews Urology, 9(9), 537–542. https://doi.org/10.1038/nrurol.2012.134
  • Chambon, X. (2011). Testimony on the sexuality of post-stroke hemiplegic patients. Sexologies, 20(2), 102–105. https://doi.org/10.1016/j.sexol.2010.10.005
  • Connell, K. M., Coates, R., & Wood, F. M. (2014). Sexuality following trauma injury: A literature review. Burns & Trauma, 2(2), 61. https://doi.org/10.4103/2321-3868.130189
  • Cronbach, L. J. (1951). Coefficient alpha and the internal structure of tests. Psychometrics, 16(3), 297–334. https://doi.org/10.1007/BF02310555
  • Deschênes, P. M., Lamontagne, M. E., Gagnon, M. P., & Moreno, J. A. (2019). Talking about sexuality in the context of rehabilitation following traumatic brain injury: An integrative review of operational aspects. Sexuality and Disability, 37(3), 297–314. https://doi.org/10.1007/s11195-019-09576-5
  • Dogan, S., Demir, B., Eker, E., & Karim, S. (2008). Knowledge and attitudes of doctors toward the sexuality of older people in Turkey. International Psychogeriatrics, 20((05|5)), 1019–1027. https://doi.org/10.1017/S1041610208007229
  • Downing, M. G., Stolwyk, R., & Ponsford, J. L. (2013). Sexual changes in individuals with traumatic brain injury: A control comparison. Journal of Head Trauma Rehabilitation, 28(3), 171–178. https://doi.org/10.1097/HTR.0b013e31828b4f63
  • Dyer, K., & das Nair, R. (2014). Talking about sex after traumatic brain injury: Perceptions and experiences of multidisciplinary rehabilitation professionals. Disability & Rehabilitation, 36(17), 1431–1438. https://doi.org/10.3109/09638288.2013.859747
  • Eisenberg, N. W., Andreski, S. R., & Mona, L. R. (2015). Sexuality and physical disability: A disability-affirmative approach to assessment and intervention within health care. Current Sexual Health Reports, 7(1), 19–29. https://doi.org/10.1007/s11930-014-0037-3
  • Forbat, L., White, I., Marshall-Lucette, S., & Kelly, D. (2012). Discussing the sexual consequences of treatment in radiotherapy and urology consultations with couples affected by prostate cancer. BJU International, 109(1), 98–103. https://doi.org/10.1111/j.1464-410X.2011.10257.x
  • Fraser, E. E., Downing, M. G., & Ponsford, J. L. (2020). Understanding the multidimensional nature of sexuality after traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 101(12), 2080–2086. https://doi.org/10.1016/j.apmr.2020.06.028
  • Fronek, P., Booth, S., Kendall, M., Miller, D., & Geraghty, T. (2005). The effectiveness of a sexuality training program for the interdisciplinary spinal cord injury rehabilitation team. Sexuality and Disability, 23(2), 51–63. https://doi.org/10.1007/s11195-005-4669-0
  • Gill, C. J., Sander, A. M., Robins, N., Mazzei, D., & Struchen, M. A. (2011). Exploring experiences of intimacy from the viewpoint of individuals with traumatic brain injury and their partners. Journal of Head Trauma Rehabilitation, 26(1), 56–68. https://doi.org/10.1097/HTR.0b013e3182048ee9
  • Haesler, E., Bauer, M., & Fetherstonhaugh, D. (2016). Sexuality, sexual health and older people: A systematic review of research on the knowledge and attitudes of health professionals. Nurse Education Today, 40, 57–71. https://doi.org/10.1016/j.nedt.2016.02.012
  • Headway – The Brain Injury Association. (2017). Sex and Sexuality after brain injury. https://www.headway.org.uk/media/4995/sex-and-sexuality-after-brain-injury-e-booklet.pdf
  • Katz, S., & Aloni, R. (1999). Sexual dysfunction of persons after traumatic brain injury: Perceptions of professionals. International Journal of Rehabilitation Research, 22(1), 45–54. https://doi.org/10.1097/00004356-199903000-00006
  • Kimura, M., Murata, Y., Shimoda, K., & Robinson, R. G. (2001). Sexual dysfunction following stroke. Comprehensive Psychiatry, 42(3), 217–222. https://doi.org/10.1053/comp.2001.23141
  • Magnan, M. E., Reynolds, K. E., & Galvin, E. A. (2005). Barriers to addressing patient sexuality in nursing practice. Medsurg Nursing, 14, 282-289. https://journals.lww.com/cns-journal/Fulltext/2006/11000/Barriers_to_Addressing_Patient_Sexuality_Concerns.9.aspx
  • Marwick, C. (1999). Survey says patients expect little physician help on sex. JAMA: The Journal of the American Medical Association, 281(23), 2173–2174. https://doi.org/10.1001/jama.281.23.2173
  • Mayring, P. (2004). Qualitative content analysis. In U. Flick, E. von Kardorff, & I. Steinke (Eds.), A Companion to qualitative research (1st ed., pp. 166). Sage Publications.
  • Mcgrath, M., Lever, S., Mccluskey, A., & Power, E. (2019). Developing interventions to address sexuality after stroke: Findings from a four-panel modified Delphi study. Journal of Rehabilitation Medicine, 51(5), 352–360. https://doi.org/10.2340/16501977-2548
  • McLaughlin, J., & Cregan, A. (2005). Sexuality in stroke care: A neglected quality of life issue in stroke rehabilitation? A pilot study. Sexuality and Disability, 23(4), 213–226. https://doi.org/10.1007/s11195-005-8929-9
  • Mellor, R. M., Greenfield, S. M., Dowswell, G., Sheppard, J. P., Quinn, T., & McManus, R. J. (2013). Health care professionals’ views on discussing sexual wellbeing with patients who have had a stroke: A qualitative study. PLoS One, 8(10), 1–9. https://doi.org/10.1371/journal.pone.0078802
  • Model Systems Knowledge Translation Center. (2011). Sexuality after traumatic brain injury. http://uwmsktc.washington.edu/sites/uwmsktc/files/files/TBI_sexuality.pdf
  • Moreno, A., Gan, C., Zasler, N., & McKerral, M. (2015). Experiences, attitudes, and needs related to sexuality and service delivery in individuals with traumatic brain injury. NeuroRehabilitation, 37(1), 99–116. https://doi.org/10.3233/NRE-151243
  • National Stroke Foundation. (2013). Sex and relationships after stroke. https://strokefoundation.org.au/-/media/0D9E86AD13244763A9C3AAB35D9E389D.ashx?la=en
  • Ng, L., Sansom, J., Zhang, N., Amatya, B., & Khan, F. (2015). Let’s talk about sex: A pilot randomised controlled trial of a structured sexual rehabilitation programme in an Australian stroke cohort. International Journal of Therapy and Rehabilitation, 22(1), 21–29. https://doi.org/10.12968/ijtr.2015.22.1.21
  • Northcott, R., & Chard, G. (2000). Sexual aspects of rehabilitation: The client’s perspective. British Journal of Occupational Therapy, 63(9), 412–418. https://doi.org/10.1177/030802260006300902
  • Overall, C. (2006). Old age and ageism, impairment and ableism: Exploring the conceptual and material connections. nwsa Journal, 18(1), 126–137. https://doi.org/10.2979/NWS.2006.18.1.126
  • Post, M. W., Gianotten, W. L., Heijnen, L., Lambers, E. J. H. R., & Willems, M. (2008). Sexological competence of different rehabilitation disciplines and effects of a discipline-specific sexological training. Sexuality and Disability, 26(1), 3–14. https://doi.org/10.1007/s11195-007-9068-2
  • Prior, S., Reeves, N., Peterson, G., Jaffray, L., & Campbell, S. (2019). Addressing the gaps in post-stroke sexual activity rehabilitation: Patient perspectives. Healthcare, 7, 1–7. https://doi.org/10.3390/healthcare7010025
  • Rees, P. M., Fowler, C. J., & Maas, C. P. (2007). Sexual function in men and women with neurological disorders. The Lancet, 369(9560), 512–525. https://doi.org/10.1016/S0140-6736(07)60238-4
  • Reynolds, K. E., & Magnan, M. A. (2005). Nursing attitudes and beliefs toward human sexuality: Collaborative research promoting evidence-based practice. Clinical Nurse Specialist, 19(5), 255–259. https://doi.org/10.1097/00002800-200509000-00009
  • Richards, A., Dean, R., Burgess, G. H., & Caird, H. (2016). Sexuality after stroke: An exploration of current professional approaches, barriers to providing support and future directions. Disability and Rehabilitation, 38(15), 1471–1482. https://doi.org/10.3109/09638288.2015.1106595
  • Royal College of Physicians [UK] National clinical guidelines for stroke. (2016). [cited 2020 Dec 21]. Available from: http://www.rcplondon.ac.uk/resources/stroke
  • Russell, E. B. (2012). Sexual health attitudes, knowledge, and clinical behaviors: Implications for counseling. The Family Journal, 20(1), 94–101. https://doi.org/10.1177/1066480711430196
  • Sander, A. M., Maestas, K. L., Pappadis, M. R., Sherer, M., Hammond, F. M., Hanks, R., & NIDRR Traumatic Brain Injury Model Systems Module Project on Sexuality after TBI. (2012). Sexual functioning 1 year after traumatic brain injury: Findings from a prospective traumatic brain injury model systems collaborative study. Archives of Physical Medicine and Rehabilitation, 93(8), 1331–1337. https://doi.org/10.1016/j.apmr.2012.03.037
  • Sander, A. M., Moessner, A. M., Kendall, K. S., Pappadis, M. R., Hammond, F. M., & Cyborski, C. M. (2011). Sexual functioning and satisfaction after traumatic brain injury: An Educational manual. https://www.biausa.org/wp-content/uploads/Sexual-Functioning-and-Satisfaction-after-Traumatic-Brain-Injury-.pdf
  • Schmitz, M. A., & Finkelstein, M. (2010). Perspectives on Poststroke sexual issues and rehabilitation needs. Topics in Stroke Rehabilitation: Poststroke Pain, 17(3), 204–213. https://doi.org/10.1310/tsr1703-204
  • Simpson, G. (1999a). You and me: A guide to sex and sexuality after traumatic brain injury. South West Sydney Area Health.
  • Simpson, G. (1999b). You and me: An educational programme about sex and sexuality after traumatic brain injury. South West Sydney Area Health.
  • Simpson, G. (2001). Addressing the sexual concerns of persons with traumatic brain injury in rehabilitation settings: A framework for action. Brain Impairment, 2(2), 97–108. https://doi.org/10.1375/brim.2.2.97
  • Simpson, G., Anwar, S., Wilson, J., & Bertapelle, T. (2006). Improving the rehabilitative management of client sexual health concerns after neurological disability: Evaluation of a staff sexuality training programme in New Zealand. Clinical Rehabilitation, 20(10), 847–859. https://doi.org/10.1177/0269215506072180
  • Smyth, J. D., & Pearson, J. E. (2011). Internet survey methods: A review of strengths, weaknesses, and innovations. In M. Das, P. Ester, & L. Kaczmirek (Eds.), Social and behavioral research and the internet: Advances in applied methods and research strategies (pp. 11–44). Routledge.
  • Spector, R. E. (2004). Cultural diversity in health and illness (6th ed). Prentice Hall Health.
  • Stroke Association. (2021). Sex and intimate relationships after stroke. https://www.stroke.org.uk/sites/default/files/publications/sex_and_intimate_relationships_after_a_stroke.pdf
  • Synapse - Australia’s Brain Injury Association. (n.d.). Effects of brain injury: Sexual changes. https://synapse.org.au/wp-content/uploads/2020/02/2.2.2.8-Sexual-changes.pdf
  • Vikan, J. K., Nilsson, M. I., Bushnik, T., Deng, W., Elessi, K., Frost-Bareket, Y., … Fugl-Meyer, K. S. (2019). Sexual health policies in stroke rehabilitation: A multi national study. Journal of Rehabilitation Medicine, 51(5), 361–368. https://doi.org/10.2340/16501977-2552
  • World Health Organization. (2006). Defining Sexual Health. Report of a Technical Consultation on Sexual Health (28–31 January 2002) World Health Organization, Geneva http://www.who.int/reproductivehealth/publications/sexual_health/defining_sexual_health.pdf.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.