Stroke survivors’ expectations and post-intervention perceptions of mindfulness training: A qualitative study

References

• Astrom, M. (1996). Generalized anxiety disorder in stroke patients: A 3-year longitudinal study. Stroke, 27(2), 270–275. https://doi.org/10.1161/01.STR.27.2.270
   PubMed Web of Science ®Google Scholar
• Aström, M., Adolfsson, R., & Asplund, K. (1993). Major depression in stroke patients. A 3-year longitudinal study. Stroke, 24(7), 976–982. https://doi.org/10.1161/01.STR.24.7.976
   PubMed Web of Science ®Google Scholar
• Ayerbe, L., Ayis, S., Crichton, S., Wolfe, C. D. A., & Rudd, A. G. (2014). The long-term outcomes of depression up to 10 years after stroke; the South London Stroke Register. Journal of Neurology, Neurosurgery & Psychiatry, 85(5), 514–521. https://doi.org/10.1136/jnnp-2013-306448
   PubMed Web of Science ®Google Scholar
• Baer, R. A. (2003). Mindfulness training as a clinical intervention: A conceptual and empirical review. Clinical Psychology: Science and Practice, 10(2), 125–143. https://doi.org/10.1093/clipsy.bpg015
   Web of Science ®Google Scholar
• Barker-Collo, S. L. (2007). Depression and anxiety 3 months post stroke: Prevalence and correlates. Archives of Clinical Neuropsychology, 22(4), 519–531. https://doi.org/10.1016/j.acn.2007.03.002
   PubMed Web of Science ®Google Scholar
• Bartoli, F., Lillia, N., Lax, A., Crocamo, C., Mantero, V., Carrà, G., Agostoni, E., & Clerici, M. (2013). Depression after stroke and risk of mortality: A systematic review and meta-analysis. Stroke Research and Treatment, 862978. https://doi.org/10.1155/2013/862978
   Google Scholar
• Bawa, F. L. M., Mercer, S. W., Atherton, R. J., Clague, F., Keen, A., Scott, N. W., & Bond, C. M. (2015). Does mindfulness improve outcomes in patients with chronic pain? Systematic review and meta-analysis. British Journal of General Practice, 65(635), e387–e400. https://doi.org/10.3399/bjgp15X685297
   PubMed Web of Science ®Google Scholar
• Beck, A., Steer, R., & Brown, G. (1996). Beck Depression Inventory manual (2nd ed). Psychological Corporation.
   Google Scholar
• Best Practice Advocacy Centre New Zealand. (2010). Care of stroke survivors. Best Practice Journal, 27, 42–51. https://bpac.org.nz/BPJ/2010/April/docs/bpj_27_stroke_pages_42-51.pdf
   Google Scholar
• Castillo, C. S., Starkstein, S. E., Fedoroff, J. P., Price, T. R., & Robinson, R. G. (1993). Generalized anxiety disorder after stroke. Journal of Nervous and Mental Disease, 181(2), 100–106. https://doi.org/10.1097/00005053-199302000-00005
   PubMed Web of Science ®Google Scholar
• Cohen-Katz, J., Wiley, S., Capuano, T., Baker, D. M., Deitrick, L., & Shapiro, S. (2005). The effects of mindfulness-based stress reduction on nurse stress and burnout: A qualitative and quantitative study, part III. Holistic Nursing Practice, 19(2), 78–86. https://doi.org/10.1097/00004650-200503000-00009
   PubMedGoogle Scholar
• Corbin, J., & Strauss, A. (1985). Managing chronic illness at home: Three lines of work. Qualitative Sociology, 8(3), 224–247. https://doi.org/10.1007/BF00989485
   Google Scholar
• Crichton, S. L., Bray, B. D., McKevitt, C., Rudd, A. G., & Wolfe, C. D. A. (2016). Patient outcomes up to 15 years after stroke: Survival, disability, quality of life, cognition and mental health. Journal of Neurology, Neurosurgery & Psychiatry, 87(10), 1091–1098. https://doi.org/10.1136/jnnp-2016-313361
   PubMed Web of Science ®Google Scholar
• Fernández, A., Haro, J. M., Martinez-Alonso, M., Demyttenaere, K., Brugha, T. S., Autonell, J., De Girolamo, G., Bernert, S., Lépine, J. P., & Alonso, J. (2018). Treatment adequacy for anxiety and depressive disorders in six European countries. British Journal of Psychiatry, 190(2), 172–173. https://doi.org/10.1192/bjp.bp.106.023507
   Google Scholar
• Gommans, J., Barber, A., McNaughton, H., Hanger, C., Bennett, P., Spriggs, D, & Baskett, J. (2003). Stroke rehabilitation services in New Zealand. The New Zealand Medical Journal (Online), 116(1174).
   Google Scholar
• Goodwin, R. D., & Devanand, D. P. (2008). Stroke, depression, and functional health outcomes among adults in the community. Journal of Geriatric Psychiatry and Neurology, 21(1), 41–46. https://doi.org/10.1177/0891988707311041
   PubMed Web of Science ®Google Scholar
• Green, G., & Maddula, M. (2018). New Zealand stroke rehabilitation: A strategy. Stroke Foundation New Zealand.
   Google Scholar
• Grossman, P., Niemann, L., Schmidt, S., & Walach, H. (2004). Mindfulness-based stress reduction and health benefits: A meta-analysis. Journal of Psychosomatic Research, 57(1), 35–43. https://doi.org/10.1016/S0022-3999(03)00573-7
   PubMed Web of Science ®Google Scholar
• Hackett, M. L., Anderson, C. S., House, A., & Xia, J. (2008). Interventions for treating depression after stroke. Cochrane Database of Systematic Reviews, 4, 1–74. https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003437.pub3/full
   Google Scholar
• Hackett, M. L., & Pickles, K. (2014). Part I: Frequency of depression after stroke: An updated systematic review and meta-analysis of observational studies. International Journal of Stroke, 9(8), 1017–1025. https://doi.org/10.1111/ijs.12357
   PubMed Web of Science ®Google Scholar
• Hall, A. M., Ferreira, P. H., Maher, C. G., Latimer, J., & Ferreira, M. L. (2010). The influence of the therapist-patient relationship on treatment outcome in physical rehabilitation: A systematic review. Physical Therapy, 90(8), 1099–1110. https://doi.org/10.2522/ptj.20090245
   PubMed Web of Science ®Google Scholar
• Hilton, L., Hempel, S., Ewing, B. A., Apaydin, E., Xenakis, L., Newberry, S., Colaiaco, B., Maher, A. R., Shanman, R. M., Sorbero, M. E., & Maglione, M. A. (2017). Mindfulness meditation for chronic pain: Systematic review and meta-analysis. Annals of Behavioral Medicine, 51(2), 199–213. https://doi.org/10.1007/s12160-016-9844-2
   PubMed Web of Science ®Google Scholar
• Hofmann, S. G., Sawyer, A. T., Witt, A. A., & Oh, D. (2010). The effect of mindfulness-based therapy on anxiety and depression: A meta-analytic review. Journal of Consulting and Clinical Psychology, 78(2), 169–183. https://doi.org/10.1037/a0018555
   PubMed Web of Science ®Google Scholar
• Hogan, S., & Siddharth, P. (2018). The social and economic costs of stroke in New Zealand. New Zealand Institute of Economic Research.
   Google Scholar
• Howarth, A., Smith, J. G., Perkins-Porras, L., & Ussher, M. (2019). Effects of brief mindfulness-based interventions on health-related outcomes: A systematic review. Mindfulness, 10, 1957–1968. https://doi.org/10.1007/s12671-019-01163-1
   Web of Science ®Google Scholar
• Hsieh, H.-F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. https://doi.org/10.1177/1049732305276687
   PubMed Web of Science ®Google Scholar
• Intercollegiate Stroke Working Party. (2012). National clinical guideline for stroke. Citeseer.
   Google Scholar
• Jani, B. D., Simpson, R., Lawrence, M., Simpson, S., & Mercer, S. W. (2018). Acceptability of mindfulness from the perspective of stroke survivors and caregivers: A qualitative study. Pilot and Feasibility Studies, 4(1), 57. https://doi.org/10.1186/s40814-018-0244-1
   PubMedGoogle Scholar
• Jaseja, H. (2006). Meditation potentially capable of increasing susceptibility to epilepsy–a follow-up hypothesis. Medical Hypotheses, 66(5), 925–928. https://doi.org/10.1016/j.mehy.2005.11.043
   PubMed Web of Science ®Google Scholar
• Johansson, B., Bjuhr, H., & Rönnbäck, L. (2015). Evaluation of an advanced mindfulness program following a mindfulness-based stress reduction program for participants suffering from mental fatigue after acquired brain injury. Mindfulness, 6(2), 227–233. https://doi.org/10.1007/s12671-013-0249-z
   Web of Science ®Google Scholar
• Kabat-Zinn, J. (1982). An outpatient program in behavioral medicine for chronic pain patients based on the practice of mindfulness meditation: Theoretical considerations and preliminary results. General Hospital Psychiatry, 4(1), 33–47. https://doi.org/10.1016/0163-8343(82)90026-3
   PubMed Web of Science ®Google Scholar
• Kabat-Zinn, J., Lipworth, L., & Burney, R. (1985). The clinical use of mindfulness meditation for the self-regulation of chronic pain. Journal of Behavioral Medicine, 8(2), 163–190. https://doi.org/10.1007/BF00845519
   PubMed Web of Science ®Google Scholar
• Knapp, P., Campbell Burton, C. A., Holmes, J., Murray, J., Gillespie, D., Lightbody, C. E., Watkins, C. L., Chun, H-Y. Y., & Lewis, S. R. (2017). Interventions for treating anxiety after stroke. Cochrane Database of Systematic Reviews, 5, CD008860. https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD008860.pub3/full
   PubMedGoogle Scholar
• Lawrence, M., Booth, J., Mercer, S., & Crawford, E. (2013). A systematic review of the benefits of mindfulness-based interventions following transient ischemic attack and stroke. International Journal of Stroke, 8(6), 465–474. https://doi.org/10.1111/ijs.12135
   PubMed Web of Science ®Google Scholar
• Mapel, T., & Simpson, J. (2011). Mindfulness-based stress reduction research in Aotearoa New Zealand. New Zealand Journal of Counselling, 31(2), 21–34.
   Google Scholar
• Mars, T. S., & Abbey, H. (2010). Mindfulness meditation practise as a healthcare intervention: A systematic review. International Journal of Osteopathic Medicine, 13(2), 56–66. https://doi.org/10.1016/j.ijosm.2009.07.005
   Web of Science ®Google Scholar
• McKevitt, C., Fudge, N., Redfern, J., Sheldenkar, A., Crichton, S., Rudd, A. R., Forster, A., Young, J., Nazareth, I., Silver, L. E., Rothwell, P. M., & Wolfe, C. D. A. (2011). Self-reported long-term needs after stroke. Stroke, 42(5), 1398–1403. https://doi.org/10.1161/STROKEAHA.110.598839
   PubMed Web of Science ®Google Scholar
• McNaughton, H., McRae, A., Green, G., Abernethy, G., & Gommans, J. (2014). Stroke rehabilitation services in New Zealand: A survey of service configuration, capacity and guideline adherence. New Zealand Medical Journal, 127(1402), 10–19.
   PubMedGoogle Scholar
• Niraj, S., Wright, S., & Powell, T. (2018). A qualitative study exploring the experiences of mindfulness training in people with acquired brain injury. Neuropsychological Rehabilitation, 30(4), 731–752. https://doi.org/10.1080/09602011.2018.1515086
   PubMed Web of Science ®Google Scholar
• Pohjasvaara, T., Vataja, R., Leppavuori, A., Kaste, M., & Erkinjuntti, T. (2001). Depression is an independent predictor of poor long-term functional outcome post-stroke. European Journal of Neurology, 8(4), 315–319. https://doi.org/10.1046/j.1468-1331.2001.00182.x
   PubMed Web of Science ®Google Scholar
• Rusch, H. L., Rosario, M., Levison, L. M., Olivera, A., Livingston, W. S., Wu, T., & Gill, J. M. (2019). The effect of mindfulness meditation on sleep quality: A systematic review and meta-analysis of randomized controlled trials. Annals of the New York Academy of Sciences, 1445(1), 5–16. https://doi.org/10.1111/nyas.13996
   PubMed Web of Science ®Google Scholar
• Sagen, U., Finset, A., Moum, T., Mørland, T., Vik, T. G., Nagy, T., & Dammen, T. (2010). Early detection of patients at risk for anxiety, depression and apathy after stroke. General Hospital Psychiatry, 32(1), 80–85. https://doi.org/10.1016/j.genhosppsych.2009.10.001
   PubMed Web of Science ®Google Scholar
• Smith, B. (2018). Generalizability in qualitative research: Misunderstandings, opportunities and recommendations for the sport and exercise sciences. Qualitative Research in Sport, Exercise and Health, 10(1), 137–149. https://doi.org/10.1080/2159676X.2017.1393221
   Web of Science ®Google Scholar
• Sumsion, T., & Law, M. (2006). A review of evidence on the conceptual elements informing client-centred practice. Canadian Journal of Occupational Therapy, 73(3), 153–162. https://doi.org/10.1177/000841740607300303
   PubMedGoogle Scholar
• Ulrichsen, K. M., Kaufmann, T., Dørum, E. S., Kolskår, K. K., Richard, G., Alnæs, D., Arneberg, T. J., Westlye, L. T., & Nordvik, J. E. (2016). Clinical utility of mindfulness training in the treatment of fatigue after stroke, traumatic brain injury and multiple sclerosis: A systematic literature review and meta-analysis. Frontiers in Psychology, 7, 912. https://doi.org/10.3389/fpsyg.2016.00912
   PubMed Web of Science ®Google Scholar
• Vaismoradi, M., Turunen, H., & Bondas, T. (2013). Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. Nursing & Health Sciences, 15(3), 398–405. https://doi.org/10.1111/nhs.12048
   PubMed Web of Science ®Google Scholar
• Wang, X., Smith, C., Ashley, L., & Hyland, M. E. (2019). Tailoring self-help mindfulness and relaxation techniques for stroke survivors: Examining preferences, feasibility and acceptability. Frontiers in Psychology, 10(391). https://doi.org/10.3389/fpsyg.2019.00391
   Google Scholar
• Wrapson, W., Dorrestein, M., Wrapson, J., Theadom, A., Kayes, N. M., Snell, D. L., Rutherford, S., Roche, M., Babbage, D. R., Taylor, S., & Siegert, R. J. (2021). A feasibility study of a one-to-one mindfulness-based intervention for improving mood in stroke survivors. Mindfulness, 12(5), 1148–1158. https://doi.org/10.1007/s12671-020-01583-4
   Web of Science ®Google Scholar
• Zou, L., Sasaki, J. E., Zeng, N., Wang, C., & Sun, L. (2018). A systematic review with meta-analysis of mindful exercises on rehabilitative outcomes among poststroke patients. Archives of Physical Medicine and Rehabilitation, 99(11), 2355–2364. https://doi.org/10.1016/j.apmr.2018.04.010
   PubMed Web of Science ®Google Scholar