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Articles

Individuals’ perceptions of health and well-being in the context of stereotactic radiosurgery for benign brain tumour: A longitudinal qualitative investigation

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Pages 244-267 | Received 28 Aug 2022, Accepted 10 Feb 2023, Published online: 17 Mar 2023

References

  • Antonovsky, A. (1987). Unraveling the mystery of health: How people manage stress and stay well. Jossey-bass.
  • Antonovsky, A. (1996). The salutogenic model as a theory to guide health promotion. Health Promotion International, 11(1), 11–18. https://doi.org/10.1093/heapro/11.1.11
  • Armstrong. (2003). Symptoms experience: A concept analysis. Oncology Nursing Forum, 30(4), 601–606. https://doi.org/10.1188/03.onf.601-606
  • Barnholtz-Sloan, J. S., Ostrom, Q. T., & Cote, D. (2018). Epidemiology of brain tumors. Neurologic Clinics, 36(3), 395–419. https://doi.org/10.1016/j.ncl.2018.04.001
  • Bloch, O., Kaur, G., Jian, B. J., Parsa, A. T., & Barani, I. J. (2012). Stereotactic radiosurgery for benign meningiomas. Journal of Neuro-Oncology, 107(1), 13–20. https://doi.org/10.1007/s11060-011-0720-4
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. SAGE.
  • Byrne, D. (2022). A worked example of Braun and Clarke’s approach to reflexive thematic analysis. Quality and Quantity, 56(3), 1391–1412. https://doi.org/10.1007/s11135-021-01182-y
  • Carver, C. S., Scheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56(2), 267. https://doi.org/10.1037//0022-3514.56.2.267
  • Chilcot, J., & Moss-Morris, R. (2013). Changes in illness-related cognitions rather than distress mediate improvements in irritable bowel syndrome (IBS) symptoms and disability following a brief cognitive behavioural therapy intervention. Behaviour Research and Therapy, 51(10), 690–695. https://doi.org/10.1016/j.brat.2013.07.007
  • Clifford, W., Sharpe, H., Khu, K. J., Cusimano, M., Knifed, E., & Bernstein, M. (2009). Gamma knife patients’ experience: Lessons learned from a qualitative study. Journal of Neuro-Oncology, 92(3), 387–392. https://doi.org/10.1007/s11060-009-9830-7
  • Dropcho, E. J. (2010). Neurotoxicity of radiation therapy. Neurologic Clinics, 28(1), 217–234. https://doi.org/10.1016/j.ncl.2009.09.008
  • Epstein, R. M., & Street, R. L. (2011). The values and value of patient-centered care. The Annals of Family Medicine 9, 100–103. https://doi.org/10.1370/afm.1239
  • Evers, A. W., Kraaimaat, F. W., van Lankveld, W., Jongen, P. J., Jacobs, J. W., & Bijlsma, J. W. (2001). Beyond unfavorable thinking: The illness cognition questionnaire for chronic diseases. Journal of Consulting and Clinical Psychology, 69(6), 1026. https://doi.org/10.1037/0022-006X.69.6.1026
  • Folkman, S., & Greer, S. (2000). Promoting psychological well-being in the face of serious illness: When theory, research and practice inform each other. Psycho-Oncology, 9(1), 9.<11::AID-PON424>3.0.CO;2-Z
  • George, E. S., Kudhail, J., Perks, J., & Plowman, P. N. (2002). Acute symptoms after gamma knife radiosurgery. Journal of Neurosurgery, 97(Supplement 5), 631–634. https://doi.org/10.3171/jns.2002.97.supplement
  • Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough? An experiment with data saturation and variability. Field Methods, 18(1), 59–82. https://doi.org/10.1177/1525822X05279903
  • Hagger, M. S., & Orbell, S. (2021). The common sense model of illness self-regulation: A conceptual review and proposed extended model. Health Psychology Review, 1–31. https://doi.org/10.1080/17437199.2021.1878050
  • Heijmans, M., & de Ridder, D. (1998). Assessing illness representations of chronic illness: Explorations of their disease-specific nature. Journal of Behavioral Medicine, 21(5), 485–503. https://doi.org/10.1023/a:1018788427100
  • Hudson, J. L., Bundy, C., Coventry, P. A., & Dickens, C. (2014). Exploring the relationship between cognitive illness representations and poor emotional health and their combined association with diabetes self-care. A systematic review with meta-analysis. Journal of Psychosomatic Research, 76(4), 265–274. https://doi.org/10.1016/j.jpsychores.2014.02.004
  • Kondziolka, D., Lunsford, L. D., & Flickinger, J. C. (2008). The application of stereotactic radiosurgery to disorders of the brain. Neurosurgery, 62(Suppl 2), 707–719; discussion 719–720. https://doi.org/10.1227/01.neu.0000316275.12962.0e
  • Kshettry, V. R., Hsieh, J. K., Ostrom, Q. T., Kruchko, C., & Barnholtz-Sloan, J. S. (2015). Incidence of vestibular schwannomas in the United States. Journal of Neuro-Oncology, 124(2), 223–228. https://doi.org/10.1007/s11060-015-1827-9
  • Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Springer Publishing Company.
  • Lemée, J. M., Corniola, M. V., Da Broi, M., Schaller, K., & Meling, T. R. (2019). Early postoperative complications in meningioma: Predictive factors and impact on outcome. World Neurosurgery, 128, e851–e858. https://doi.org/10.1016/j.wneu.2019.05.010
  • Leventhal, H., & Cleary, P. D. (1980). The smoking problem: A review of the research and theory in behavioral risk modification. Psychological Bulletin, 88(2), 370. https://doi.org/10.1037/0033-2909.88.2.370
  • Levivier, M., Gevaert, T., & Negretti, L. (2011). Gamma knife, CyberKnife, TomoTherapy: Gadgets or useful tools? Current Opinion in Neurology, 24(6), 616–625. https://doi.org/10.1097/WCO.0b013e32834cd4df
  • Lim, M., Hsu, W., Rigamonti, D., & Hsu, W. (2013). Handbook of radiosurgery in CNS disease. Demos Medical Publishing.
  • Lunsford, L. D., & Sheehan, J. (2011). Intracranial stereotactic radiosurgery. Thieme.
  • Maniakas, A., & Saliba, I. (2012). Microsurgery versus stereotactic radiation for small vestibular schwannomas: A meta-analysis of patients with more than 5 years’ follow-up. Otology & Neurotology, 33(9), 1611–1620. https://doi.org/10.1097/MAO.0b013e31826dbd02
  • Mellado-Calvo, N., & Fleminger, S. (2009). Lishman’s organic psychiatry: A textbook of neuropsychiatry, 281–308.
  • Menkes, D. B., Davison, M. P., Costello, S. A., & Jaye, C. (2005). Stereotactic radiosurgery: The patient’s experience. Social Science and Medicine, 60(11), 2561–2573. https://doi.org/10.1016/j.socscimed.2004.11.021
  • Murphy, E. S., Barnett, G. H., Vogelbaum, M. A., Neyman, G., Stevens, G. H. J., Cohen, B. H., Elson, P., Vassil, A. D., & Suh, J. H. (2011). Long-term outcomes of Gamma Knife radiosurgery in patients with vestibular schwannomas. Journal of Neurosurgery, 114(2), 432–440. https://doi.org/10.3171/2009.12.JNS091339
  • Myrseth, E., Møller, P., Pedersen, P. H., Vassbotn, F. S., Wentzel-Larsen, T., & Lund-Johansen, M. (2005). Vestibular schwannomas: Clinical results and quality of life after microsurgery or gamma knife radiosurgery. Neurosurgery, 56(5), 927–935. https://doi.org/10.1055/s-2005-916493
  • Ostrom, Q. T., Cioffi, G., Gittleman, H., Patil, N., Waite, K., Kruchko, C., & Barnholtz-Sloan, J. S. (2019). CBTRUS statistical report: Primary brain and other central nervous system tumors diagnosed in the United States in 2012–2016. Neuro-Oncology, 21(Supplement_5), v1–v100. https://doi.org/10.1093/neuonc/noz150
  • Ownsworth, T. (2016). Coping with the unthinkable: Psychosocial advances in the management of primary brain tumour. Brain Impairment, 17(3), 265–272. https://doi.org/10.1017/BrImp.2016.19
  • Ownsworth, T., Chambers, S., Damborg, E., Casey, L., Walker, D. G., & Shum, D. H. (2015). Evaluation of the making sense of brain tumor program: A randomized controlled trial of a home-based psychosocial intervention. Psycho-Oncology, 24(5), 540–547. https://doi.org/10.1002/pon.3687
  • Ownsworth, T., Chambers, S., Hawkes, A., Walker, D. G., & Shum, D. (2011). Making sense of brain tumour: A qualitative investigation of personal and social processes of adjustment. Neuropsychological Rehabilitation, 21(1), 117–137. https://doi.org/10.1080/09602011.2010.537073
  • Ownsworth, T., & Nash, K. (2015). Existential well-being and meaning making in the context of primary brain tumor: Conceptualization and implications for intervention. Frontiers in Oncology, 5, 96. https://doi.org/10.3389/fonc.2015.00096
  • Ruzevick, J., & Lim, M. (2013). Technology and techniques of cranial radiosurgery. Handbook of Radiosurgery in CNS Disease, 13.
  • Stieber, V. W., Bourland, J. D., Tomé, W. A., & Mehta, M. P. (2003). Gentlemen (and ladies), choose your weapons: Gamma Knife vs. Linear Accelerator radiosurgery. Technology in Cancer Research and Treatment, 2(2), 79–85. https://doi.org/10.1177/153303460300200202
  • Strang, S., & Strang, P. (2001). Spiritual thoughts, coping and ‘sense of coherence’ in brain tumour patients and their spouses. Palliative Medicine, 15(2), 127–134. https://doi.org/10.1191/026921601670322085
  • Tinetti, M. E., Naik, A. D., & Dodson, J. A. (2016). Moving from disease-centered to patient goals–directed care for patients with multiple chronic conditions: Patient value-based care. JAMA Cardiology, 1(1), 9–10. https://doi.org/10.1001/jamacardio.2015.0248
  • Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
  • Van Der Eijk, M., Nijhuis, F. A., Faber, M. J., & Bloem, B. R. (2013). Moving from physician-centered care towards patient-centered care for Parkinson’s disease patients. Parkinsonism and Related Disorders, 19(11), 923–927. https://doi.org/10.1016/j.parkreldis.2013.04.022
  • Vermeulen, S., & Kim, E. (2014). The stereotactic radiosurgical treatment of common benign brain tumors: Pituitary adenomas, vestibular schwannoma and meningiomas. Translational Cancer Research, 3(4), 391–398. https://doi.org/10.3978/j.issn.2218-676X.2014.07.04