Faith and palliative care: a partnership of care in low- and middle-income countries

References

• Clark, D., M. Wright, J. Hunt, and T. Lynch. 2007. “Hospice and Palliative Care Development in Africa: A Multi-Method Review of Services and Experiences.” Journal of Pain and Symptom Management 33 (6): 698–710. doi: 10.1016/j.jpainsymman.2006.09.033
   PubMed Web of Science ®Google Scholar
• Connor, S. R., and M. C. Sepulveda Bermedo, eds. 2014. Global Atlas of Palliative Care at the End of Life. London: Worldwide Palliative Care Alliance and World Health Organisation.
   Google Scholar
• Downing, J., E. Grant, M. Leng, and E. Namukwaya. 2015. “Understanding Models of Palliative Care Delivery in Sub-Saharan Africa: Learning From Programs in Kenya and Malawi.” Journal of Pain and Symptom Management 50 (3): 362–370. doi: 10.1016/j.jpainsymman.2015.03.017
   PubMed Web of Science ®Google Scholar
• Downing, J. D., J. Marston, C. Selwyn, and L. Ross-Gakava. 2013. “Developing Children's Palliative Care in Africa Through Beacon Centres: Lessons Learnt.” BMC Palliative Care 12: 8. doi: 10.1186/1472-684X-12-8
   PubMed Web of Science ®Google Scholar
• Featherstone, A. 2015. “ Keeping the Faith: The Role of Faith Leaders in the Ebola Response.” Christian Aid, CAFOD, Tearfund, and Islamic Relief. Accessed January 8, 2017. http://reliefweb.int/sites/reliefweb.int/files/resources/Keeping%20the%20Faith%20-%20the%20role%20of%20faith%20leaders%20in%20the%20Ebola%20response.pdf.
   Google Scholar
• Frank, A.W. 1995. The Wounded Storyteller. Chicago: University of Chicago Press.
   Google Scholar
• Goswami, D., M. Leng, D. Munday, C. Venkateswaran, G. Purewal, and G. Kivumbi. 2015. “Evaluating palliative Care Services in a District Hospital in Rural Asam.” Paper presented at 22nd International Conference of Indian Association of Palliative Care, Hyderabad, India, February 13–15.
   Google Scholar
• Grant, E, J. Downing, E. Namukwaya, M. Leng, and S.A. Murray. 2011. “Palliative Care in Africa Since 2005: Good Progress but Much Further To Go.” BMJ Supportive & Palliative Care 1 (2): 118–122. doi: 10.1136/bmjspcare-2011-000057
   PubMedGoogle Scholar
• Grant, E., S. A. Murray, and A. Sheikh. 2010. “Spiritual Dimensions of Dying in Pluralist Societies.” BMJ 341: c4859. doi: 10.1136/bmj.c4859
   PubMed Web of Science ®Google Scholar
• Grant, E., S. A. Murray, M. Kendall, K. Boyd, S. Tilley, and D. Ryan. 2004. “Spiritual Issues and Needs: Perspectives From Patients with Advanced Cancer and Nonmalignant Disease. A Qualitative Study.” Palliative and Supportive Care 2 (4): 371–378. doi: 10.1017/S1478951504040490
   PubMedGoogle Scholar
• Hunt, S. 2000. “Winning Ways': Globalisation and the Impact of the Health and Wealth Gospel.” Journal of Contemporary Religion 15 (3): 331–347. doi: 10.1080/713676038
   Google Scholar
• IARC (International Agency for Research on Cancer). 2012 “Estimated Cancer Incidence, Mortality and Prevalence Worldwide in 2012.” WHO: GLOBOCAN. Accessed January 6, 2017. http://globocan.iarc.fr/Pages/fact_sheets_population.aspx.
   Google Scholar
• Jackson, K. “Palliative Care and the Global Goal for Health.” World Hospice and Palliative Care Association, International Association for Hospice and Palliative Care, and International Children’s Palliative Care Network. Accessed January 6, 2017. www.virtualhospice.ca/Assets/PC-and-the-Global-Goal-for-Health-Report-Final_HR_20151222123952.pdf.
   Google Scholar
• Kimani, K. N., S. A. Murray, and E. Grant. 2016. “Spiritual Issues of People Living and Dying with Advanced Heart Failure in Kenya: A Qualitative Serial Interview Study.” BMJ Global Health 1 (3): e000077. doi: 10.1136/bmjgh-2016-000077
   PubMedGoogle Scholar
• Kimani, K., E. Namukwaya, E. Grant, and S. A. Murray. 2017. “What Is Known About Heart Failure in Sub-Saharan Africa: A Scoping Review of the English Literature.” BMJ Supportive and Palliative Care 7: 122–127.
   PubMedGoogle Scholar
• Krikorian, A., and J. T. Limonero. 2012. “An Integrated View of Suffering in Palliative Care." Journal of Palliative Care 28 (1): 41–9.
   PubMed Web of Science ®Google Scholar
• Leggett, I. 2001. Uganda. Kampala: Fountain Publishers.
   Google Scholar
• Loike, J., M. Gillick, S. Mayer, K. Prager, J. R. Simon, A. Steinberg, M. D. Tendler, et al. 2010. “The Critical Role of Religion: Caring for the Dying Patient From an Orthodox Jewish Perspective." Journal of Palliative Medicine 13 (10): 1267–1271. doi: 10.1089/jpm.2010.0088
   PubMed Web of Science ®Google Scholar
• Lorenz, K. A., R. D. Hays, M. F. Shapiro, P. D. Cleary, S. M. Asch, and N. S. Wenger. 2005. “Religiousness and Spirituality among HIV-Infected Americans.” Journal of Palliative Medicine 8 (4): 774–781. doi: 10.1089/jpm.2005.8.774
   PubMedGoogle Scholar
• Marshall, K., and S. Smith. 2015. “Religion and Ebola: Learning From Experience.” The Lancet 386 (10005): e24–e25. doi: 10.1016/S0140-6736(15)61082-0
   PubMed Web of Science ®Google Scholar
• Mildmay 2007. “Mildmay: Our History.” Accessed January 9, 2017. https://www.mildmay.org/about-us/our-history/.
   Google Scholar
• Miller, D. K., J. T. Chibnall, S. D. Videen, and P. N. Duckro. 2005. “Supportive-Affective Group Experience for Persons with Life-Threatening Illness: Reducing Spiritual, Psychological, and Death-Related Distress in Dying Patients.” Journal of Palliative Medicine 8 (2): 333–343. doi: 10.1089/jpm.2005.8.333
   PubMedGoogle Scholar
• Namukwaya, E. 2016. “Understanding the Experiences and Multi-Dimensional Needs of Uganda Patients with Advanced Heart Failure.” PhD diss., University of Edinburgh.
   Google Scholar
• Namukwaya, E., S. A. Murray, M. Leng, J. Downing, and E. Grant. 2014. “Experience of Living with Advanced Heart Failure in Uganda.” BMJ Supportive and Palliative Care 4 (suppl 1): A82–A82. doi: 10.1136/bmjspcare-2014-000654.234
   Google Scholar
• Onapito, I. 2016. “Narratives as a form of spiritual support to patients with life-limiting illnesses within Mulago National Referral Hospital.” Paper presented at the Spiritual Care and Palliative Care Conference, Salzburg, December 17.
   Google Scholar
• Phelps, A. C., P. K. Maciejewski, M. Nilsson, T. A. Balboni, A. A. Wright, M. E. Paulk, E. Trice, D. et al. 2009. “Religious Coping and Use of Intensive Life-Prolonging Care Near Death in Patients with Advanced Cancer.” Jama 301 (11): 1140–1147. doi: 10.1001/jama.2009.341
   PubMed Web of Science ®Google Scholar
• Posey, D. A., ed. 1999. Cultural and Spiritual Values of Biodiversity. London: Intermediate Technology Publications on behalf of the United Nations Environment Programme.
   Google Scholar
• Rajagopal, M. R., and G. Palat. 2002. “Kerala, India: Status of Cancer Pain Relief and Palliative Care.” Journal of Pain and Symptom Management 24 (2): 191–193. doi: 10.1016/S0885-3924(02)00441-4
   PubMed Web of Science ®Google Scholar
• Saunders, C. 1976. “Care of the Dying-1. The Problem of Euthanasia.” Nursing Times 72 (26): 1003–1005.
   PubMedGoogle Scholar
• Sulmasy, D. P. 2001. “A Biophysical-Spiritual Model for the Care of Patients at the End of Life.” Gerontologist 42 (Suppl. 3): 24–33.
   Google Scholar
• Tanyi, R. A. 2002. “Towards Clarification of the Meaning of Spirituality.” Journal of Advanced Nursing 39 (5): 500–509. doi: 10.1046/j.1365-2648.2002.02315.x
   PubMed Web of Science ®Google Scholar
• Tearfund. 2011. I Was Sick and You Cared for Me: A Church-Based Response to Palliative Care in Tanzania. Teddington: Tearfund.
   Google Scholar
• Thyle, A. 2016. “Household Poverty Reduction through Palliative Care – A Pilot Study in Rural North India.” E-Hospice March 04. Accessed January 6, 2017. www.ehospice.com/articleview/tabid/10686/articleid/18607/language/en-gb/household-poverty-reduction-through-palliative-care-a-pilot-study-in-rural-north-india.aspx?utm_campaign=website&utm_source=sendgrid.com&utm_medium=email.
   Google Scholar
• Uganda Bureau of Statistics. 2014. “National Population and Housing Census Report.” UBOS, UKAid, UNFPA and UNICEF. Accessed November 12, 2016. www.ubos.org/onlinefiles/uploads/ubos/NPHC/2014%20National%20Census%20Main%20Report.pdf.
   Google Scholar
• Van Wyngaard, A. 2013. “Addressing the Spiritual Needs of People Infected with and Affected by HIV and AIDS in Swaziland.” Journal of Social Work in End-of-Life and Palliative Care 9 (2/3): 226–240. doi: 10.1080/15524256.2013.794064
   PubMedGoogle Scholar
• Wasner, M., C. Longaker, M. Johannes Fegg, and G. Domenico Borasio. 2005. “Effects of Spiritual Care Training for Palliative Care Professionals.” Palliative Medicine 19 (2): 99–104. doi: 10.1191/0269216305pm995oa
   PubMed Web of Science ®Google Scholar
• WHA (World Health Assembly). 2014. “Strengthening of palliative care as a component of integrated treatment within the continuum of care.” 134th Session of the World Health Assembly. Accessed November 12, 2016. http://apps.who.int/gb/ebwha/pdf_files/WHA67/A67_31-en.pdf.
   Google Scholar
• WHO (World Health Organization). 2014. “Field Situation: How to Conduct Safe and Dignified Burial of a Patient who has Died from Suspected or Confirmed Ebola Virus Disease.” Geneva: World Health Organization. Accessed January 6, 2017. www.who.int/iris/handle/10665/137379.
   Google Scholar
• WHO. 2015a. “Palliative Care: Fact Sheet No 402.” Accessed December 12, 2016. www.who.int/mediacentre/factsheets/fs402/en.
   Google Scholar
• WHO. 2015b. “Life Expectancy: Global Health Observatory Data.” Accessed November 12 2016. www.who.int/gho/mortality_burden_disease/life_tables/en/.
   Google Scholar