The least worst option: user experiences of antipsychotic medication and lack of involvement in medication decisions in a UK community sample

References

• Angermeyer MC, Loffler W, Muller P, et al. (2001). Patients' and relatives' assessment of clozapine treatment. Psychol Med, 31, 509–17
   PubMed Web of Science ®Google Scholar
• Barbui C, Nose M, Bindman J, et al. (2005). Sex differences in the subjective tolerability of antipsychotic drugs. J Clin Psychopharmacol, 25, 521–6
   PubMed Web of Science ®Google Scholar
• Barry CA, Britten N, Barber N, et al. (1999). Using reflexivity to optimize teamwork in qualitative research. Qual Health Res, 9, 26–44
   PubMed Web of Science ®Google Scholar
• Bebbington PE, Angermeyer M, Azorin JM, et al. (2009). Side-effects of antipsychotic medication and health-related quality of life in schizophrenia. Acta Psychiatr Scand Suppl, 438, 22–8
   Google Scholar
• Bjornestad J, Davidson L, Joa I, et al. (2017). Antipsychotic treatment: Experiences of fully recovered service users. Int J Ment Health, 26, 264–70
   Google Scholar
• Braun V, Clark V. (2006). Using thematic analysis in psychology. Qual Res Psychol 3, 77–101
   Google Scholar
• Bulow P, Andersson G, Denhov A, Topor A. (2016). Experience of psychotropic medication -an interview study of persons with psychosis issues. Ment Health Nurs, 37, 820–8
   PubMed Web of Science ®Google Scholar
• Carrick R, Mitchell A, Powell RA, Lloyd K. (2004). The quest for well-being: A qualitative study of the experience of taking antipsychotic medication. Psycho. Psychother, 77, 19–33
   Google Scholar
• Charles C, Gafni A, Whelan T. (1997). Shared decision-making in the medical encounter: What does it mean? (or it takes at least two to tango). Soc Sci Med, 44, 681–92
   PubMed Web of Science ®Google Scholar
• Cooper C, Bebbington P, King M, et al. (2007). Why people do not take their psychotropic drugs as prescribed: Results of the 2000 National Psychiatric Morbidity Survey. Acta Psychiatr Scand, 116, 47–53
   PubMed Web of Science ®Google Scholar
• Donovan JL, Blake DR. (1992). Patient non-compliance: Deviance or reasoned decision-making? Soc Sci Med, 34, 507–13
   PubMed Web of Science ®Google Scholar
• Finn SE, Bailey JM, Schultz RT, Faber R. (1990). Subjective utility ratings of neuroleptics in treating schizophrenia. Psychol Med , 20, 843–8
   PubMed Web of Science ®Google Scholar
• Gillard S, Simons L, Turner K, et al. (2012). Patient and public involvement in the coproduction of knowledge: Reflection on the analysis of qualitative data in a mental health study. Qual Health Res, 22, 1126–37
   PubMed Web of Science ®Google Scholar
• Goss C, Moretti F, Mazzi MA, et al. (2008). Involving patients in decisions during psychiatric consultations. Br J Psychiatry, 193, 416–21
   PubMed Web of Science ®Google Scholar
• Gray R, Deane K. (2016). What is it like to take antipsychotic medication? A qualitative study of patients with first-episode psychosis. J Psychiatr Ment Health Nurs, 23, 108–15
   PubMed Web of Science ®Google Scholar
• Hofer A, Kemmler G, Eder U, et al. (2004). Quality of life in schizophrenia: The impact of psychopathology, attitude toward medication, and side effects. J Clin Psychiatry, 65, 932–9
   PubMed Web of Science ®Google Scholar
• Hogman G, Sandamas G. (2000). A question of choice. London: Rethink Publications
   Google Scholar
• Karp DA. (1993). Taking anti-depressant medications: Resistance, trial committment, conversion, disenchantment. Qual Sociol, 16, 337–59
   Google Scholar
• Leucht S, Arbter D, Engel RR, et al. (2009). How effective are second-generation antipsychotic drugs? A meta-analysis of placebo-controlled trials. Mol Psychiatry, 14, 429–47
   PubMed Web of Science ®Google Scholar
• Leucht S, Tardy M, Komossa K, et al. (2012). Antipsychotic drugs versus placebo for relapse prevention in schizophrenia: A systematic review and meta-analysis. Lancet, 379, 2063–71
   PubMed Web of Science ®Google Scholar
• Mahadun PN, Marshall M. (2008). Insight and treatment attitude in schizophrenia: Comparison of patients on depot and atypical antipsychotics. Psychiatr Bull, 32, 53–6
   Google Scholar
• Moncrieff J, Cohen D, Mason JP. (2009). The subjective experience of taking antipsychotic medication: A content analysis of internet data. Acta Psychiatr Scand, 120, 102–11
   PubMed Web of Science ®Google Scholar
• Morant N, Kaminskiy E, Ramon S. (2016). Shared decision making for psychiatric medication management: Beyond the micro-social. Health Expect, 19, 1002–14
   PubMed Web of Science ®Google Scholar
• National Institute for Health and Care Excellence. (2014). Psychosis and schizophrenia in adults: Treatment and management, London: NICE
   Google Scholar
• Norvoll R, Pedersen R. (2016). Exploring the views of people with mental health problems' on the concept of coercion: Towards a broader socio-ethical perspective. Soc Sci Med, 156, 204–11
   PubMed Web of Science ®Google Scholar
• Olofinjana B, Taylor D. (2005). Antipsychotic drugs- information and choice; a patient survey. Psychiatr Bull, 29, 369–71
   Google Scholar
• Pound P, Britten N, Morgan M, et al. (2005). Resisting medicines: A synthesis of qualitative studies of medicine taking. Soc Sci Med, 61, 133–55
   PubMed Web of Science ®Google Scholar
• Priebe S, McCabe R, Bullenkamp J, et al. (2007). Structured patient-clinician communication and 1-year outcome in community mental healthcare: Cluster randomised controlled trial. Br J Psychiatry, 191, 420–6
   PubMed Web of Science ®Google Scholar
• Priebe S, Yeeles K, Bremner S, et al. (2013). Effectiveness of financial incentives to improve adherence to maintenance treatment with antipsychotics: Cluster randomised controlled trial. BMJ, 347, f5847
   PubMedGoogle Scholar
• Rettenbacher MA, Burns T, Kemmler G, Fleischhacker WW. (2004). Schizophrenia: Attitudes of patients and professional carers towards the illness and antipsychotic medication. Pharmacopsychiatry, 37, 103–9
   PubMed Web of Science ®Google Scholar
• Rogers A, Day JC, Williams B, et al. (1998). The meaning and management of neuroleptic medication: A study of patients with a diagnosis of schizophrenia. Soc Sci Med, 47, 1313–23
   PubMed Web of Science ®Google Scholar
• Szasz T. (1970). Ideology and insanity; essays on the psychiatric dehumanization of man. New york: Anchor Books
   Google Scholar
• The Schizophrenia Commission. (2012). The abandoned illness: a report from the Schizophrenia Commission. London: Rethink Mental Illness
   Google Scholar
• Usher K. (2001). Taking neuroleptic medications as the treatment for schizophrenia: A phenomenological study. Aust N Z J Ment Health Nurs, 10, 145–55
   PubMedGoogle Scholar
• Venn S, Arber S. (2012). Understanding older peoples' decisions about the use of sleeping medication: Issues of control and autonomy. Sociol Health Illn, 34, 1215–29
   PubMed Web of Science ®Google Scholar
• Wunderink L, Nieboer RM, Wiersma D, et al. (2013). Recovery in remitted first-episode psychosis at 7 Years of follow-up of an early dose reduction/discontinuation or maintenance treatment strategy: Long-term follow-up of a 2-year randomized clinical trial. JAMA Psychiatry, 70, 913–20
   PubMed Web of Science ®Google Scholar
• Wykes T, Evans J, Paton C, et al. (2017). What side effects are problematic for patients prescribed antipsychotic medication? The maudsley side effects (MSE) measure for antipsychotic medication. Psychol Med, [Epub ahead of print]. doi:10.1017/S0033291717000903
   Web of Science ®Google Scholar
• Zhou A. (2016). The uncertainty of treatment: Women's use of HIV treatment as prevention in Malawi. Soc Sci Med, 158, 52–60
   PubMed Web of Science ®Google Scholar