3,217
Views
38
CrossRef citations to date
0
Altmetric
Original Articles

Barriers and enablers to meaningful youth participation in mental health research: qualitative interviews with youth mental health researchers

, , &
Pages 56-63 | Received 01 Dec 2017, Accepted 19 May 2018, Published online: 24 Oct 2018

References

  • Bennetts, W., Cross, W., & Bloomer, M. (2011). Understanding consumer participation in mental health: Issues of power and change. International Journal of Mental Health Nursing, 20(3), 155. doi:10.1111/j.1447-0349.2010.00719.x
  • Beresford, P. (2007). User involvement, research and health inequalities: Developing new directions. Health & Social Care in the Community, 15(4), 306. doi:10.1111/j.1365-2524.2007.00688.x
  • Boote, J. (2011). Patient and public involvement in health and social care research: A bibliography. NIHR Research Design Service for Yorkshire and the Humber. doi:10.13140/2.1.4084.4322
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi:10.1191/1478088706qp063oa
  • Checkoway, B. (2011). What is youth participation?. Children and Youth Services Review, 33(2), 340–345. doi:10.1016/j.childyouth.2010.09.017
  • CMHDARN (2015). Ask the experts: A CMHDARN best practice guide to enabling consumer and carer leadership in research and evaluation. Retrieved from http://cmhdaresearchnetwork.com.au/wp-content/uploads/2016/11/BPG-CCPIR-FINAL-201512011.pdf
  • Coldham, T. (2012). A review of Avon and Wiltshire Mental Health Partnership NHS Trust’s approach to involvement. London: NSUN.
  • Commonwealth of Australia. (2010). National Standards for Mental Health Services. Canberra. Retrieved from http://www.health.gov.au/internet/main/publishing.nsf/Content/CFA833CB8C1AA178CA257BF0001E7520/$File/servst10v2.pdf.
  • Creswell, J. W., & Miller, D. L. (2000). Determining validity in qualitative inquiry. Theory into Practice, 39(3), 124–130. doi:10.1207/s15430421tip3903_2
  • Davidson, L., Shaw, J., Welborn, S., Mahon, B., Sirota, M., Gilbo, P., … Pelletier, J.-F. (2010). “I don't know how to find my way in the world”: Contributions of user-led research to transforming mental health practice. Psychiatry: Interpersonal and Biological Processes, 73(2), 101–113. doi:10.1521/psyc.2010.73.2.101
  • Delman, J. (2012). Participatory action research and young adults with psychiatric disabilities. Psychiatric Rehabilitation Journal, 35(3), 231 doi:10.2975/35.3.2012.231.234
  • Farthing, R. (2012). Why youth participation? Some justifications and critiques of youth participation using New Labour’s youth policies as a case study. Youth & Policy, 109, 71–97.
  • Gillard, S., Borschmann, R., Turner, K., Goodrich‐Purnell, N., Lovell, K., & Chambers, M. (2010). ‘What difference does it make?’Finding evidence of the impact of mental health service user researchers on research into the experiences of detained psychiatric patients. Health Expectations, 13(2), 185–194. doi:10.1111/j.1369-7625.2010.00596.x
  • James, A. M. (2007). Principles of youth participation in mental health services. Medical Journal of Australia, 187(7), 57–59.
  • Kara, H. (2013). Mental health service user involvement in research: where have we come from, where are we going?. Journal of Public Mental Health, 12(3), 122–135. doi:10.1108/JPMH-01-2013-0001
  • Kavanagh, D., Daly, M., Harper, M., Davidson, G., & Campbell, J. (2012). Mental health service users and carers as researchers: reflections on a qualitative study of citizen's experiences of compulsory mental health laws in Northern Ireland. In L. Goodson & J. Phillimore (Eds.), Community Research for Participation. Bristol: The Policy Press, University of Bristol.
  • Kvale, S. (2008). Doing interviews. London: Sage.
  • Lincoln, A. K., Wallace, L., Kaminski, M. S., Lindeman, K., Aulier, L., & Delman, J. (2016). Developing a community-based participatory research approach to understanding of the repeat use of psychiatric emergency services. Community Mental Health Journal, 52(8), 1015–1021. doi:10.1007/s10597-016-9989-2
  • Mawn, L., Welsh, P., Kirkpatrick, L., Webster, L. A., & Stain, H. J. (2015). Getting it right! Enhancing youth involvement in mental health research. Health Expectations, 19(4), 908–919. doi:10.1111/hex.12386
  • McCartan, C., Burns, S., & Schubotz, D. (2012). Recruitment and capacity-building challenges in participatory research involving young people in Northern Ireland. In L. Goodson & J. Phillimore (Eds.), Community Research for Participation. Bristol: The Policy Press, University of Bristol.
  • Michie, S., Johnston, M., Abraham, C., Lawton, R., Parker, D., & Walker, A. (2005). Making psychological theory useful for implementing evidence based practice: A consensus approach. Quality and Safety in Health Care, 14(1), 26–33. doi:10.1136/qshc.2004.011155
  • Muir, K., Powell, A., & McDermott, S. (2012). ‘They don’t treat you like a virus’: youth-friendly lessons from the Australian National Youth Mental Health Foundation. Health & Social Care in the Community, 20(2), 181–189. doi:10.1111/j.1365-2524.2011.01029.x
  • Orlowski, S. K., Lawn, S., Venning, A., Winsall, M., Jones, G. M., Wyld, K., … Bidargaddi, N. (2015). Participatory research as one piece of the puzzle: A systematic review of consumer involvement in design of technology-based youth mental health and well-being interventions. JMIR Human Factors, 2(2), e12. doi:10.2196/humanfactors.4361
  • Petrakis, M., Brophy, L., Lewis, J., Stylianou, M., Scott, M., Cocks, N., … Halloran, K. (2014). Consumer measures and research co-production: A pilot study evaluating the recovery orientation of a mental health program collaboration. Asia Pacific Journal of Social Work and Development, 24(1–2), 94–108. doi:10.1080/02185385.2014.885212
  • Rise, M. B., & Steinsbekk, A. (2016). Long term effect on professionals’ knowledge, practice and attitudes towards user involvement four years after implementing an organisational development plan: A controlled study. PLoS One, 11(3), e0150742. doi:10.1371/journal.pone.0150742
  • Roche, B., Flicker, S., & Guta, A. (2010). Peer research in action I: Models of practice. Toronto: Wellesley Institute.
  • Rose, D. (2008). Service user produced knowledge. Journal of Mental Health, 17(5), 447–451. doi:10.1080/09638230802453682
  • Rose, D., Thornicroft, G., & Slade, M. (2006). Who decides what evidence is? Developing a multiple perspectives paradigm in mental health. Acta Psychiatrica Scandinavica, 113(s429), 109–114. doi:10.1111/j.1600-0447.2005.00727.x
  • Simpson, A., Jones, J., Barlow, S., & Cox, L. (2013). Adding SUGAR: Service user and carer collaboration in mental health nursing research. Journal Of Psychosocial Nursing and Mental Health Services, 52(1), 22–30. doi:10.3928/02793695-20131126-04
  • Smith, L., & Bailey, D. (2010). What are the barriers and support systems for service user-led research? Implications for practice. The Journal of Mental Health Training, Education and Practice, 5(1), 35–44. doi:10.5042/jmhtep.2010.0218
  • Staley, K. (2012). An evaluation of service user involvement in studies adopted by the Mental Health Research Network. Retrieved from http://www.twocanassociates.co.uk/perch/resources/files/MHRNService_user_involvement_evaluation.pdf
  • Staley, K., Kabir, T., & Szmukler, G. (2013). Service users as collaborators in mental health research: Less stick, more carrot. Psychological Medicine, 43(06), 1121–1125. doi:10.1017/S0033291712001663
  • Thomas, D. R. (2006). A general inductive approach for analyzing qualitative evaluation data. American Journal of Evaluation, 27(2), 237–246. doi:10.1177/1098214005283748
  • Vale, C. L., Thompson, L. C., Murphy, C., Forcat, S., & Hanley, B. (2012). Involvement of consumers in studies run by the Medical Research Council Clinical Trials Unit: Results of a survey. Trials, 13(1), 9. doi:10.1186/1745-6215-13-9
  • Ward, P. R., Thompson, J., Barber, R., Armitage, C. J., Boote, J. D., Cooper, C. L., & Jones, G. L. (2010). Critical perspectives on ‘consumer involvement’in health research epistemological dissonance and the know-do gap. Journal of Sociology, 46(1), 63–82. doi:10.1177/1440783309351771
  • World Health Organisation (2009). Improving health systems and services for mental health. Retrieved from http://apps.who.int/iris/bitstream/10665/44219/1/9789241598774_eng.pdf

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.