The lived experience of psychosis in Nicaragua: a qualitative examination of the views of service users

References

• Asher, L., Fekadu, A., & Hanlon, C. (2018). Global mental health and schizophrenia. Current Opinion in Psychiatry, 31(3), 193–199. https://doi.org/https://doi.org/10.1097/YCO.0000000000000404
   PubMed Web of Science ®Google Scholar
• Asher, L., Patel, V., & De Silva, M. J. (2017). Community-based psychosocial interventions for people with schizophrenia in low and middle-income countries: Systematic review and meta-analysis. BMC Psychiatry, 17(1), 355 https://doi.org/https://doi.org/10.1186/s12888-017-1516-7
   PubMed Web of Science ®Google Scholar
• Ayazi, T., Swartz, L., Eide, A. H., Lien, L., & Hauff, E. (2016). Psychotic-like experiences in a conflict-affected population: A cross-sectional study in South Sudan. Social Psychiatry and Psychiatric Epidemiology, 51(7), 971–979. https://doi.org/https://doi.org/10.1007/s00127-016-1243-2
   PubMed Web of Science ®Google Scholar
• Bracken, P., Giller, J., & Summerfield, D. (2016). Primum non nocere. The case for a critical approach to global mental health. Epidemiology and Psychiatric Sciences, 25(6), 506–510. https://doi.org/https://doi.org/10.1017/S2045796016000494
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2018). Using thematic analysis in counselling and psychotherapy research: A critical reflection. Counselling and Psychotherapy Research, 18(2), 107–110.
   Web of Science ®Google Scholar
• Brooks, H., Irmansyah, I., Susanti, H., Utomo, B., Prawira, B., Iskandar, L., Colucci, E., Keliat, B.-A., James, K., Bee, P., Bell, V., & Lovell, K. (2019). Evaluating the acceptability of a co-produced and co-delivered mental health public engagement festival: Mental Health Matters, Jakarta, Indonesia. Research Involvement and Engagement, 5, 25. https://doi.org/https://doi.org/10.1186/s40900-019-0161-3
   PubMedGoogle Scholar
• Burns, J. K. (2015). Why searching for psychosis in diverse settings is important for global research and mental health systems development. Social Psychiatry and Psychiatric Epidemiology, 50(6), 895–897. https://doi.org/https://doi.org/10.1007/s00127-015-1056-8
   PubMed Web of Science ®Google Scholar
• Caqueo-Urízar, A., Boyer, L., Baumstarck, K., & Gilman, S. E. (2015). The relationships between patients’ and caregivers’ beliefs about the causes of schizophrenia and clinical outcomes in Latin American countries. Psychiatry Research, 229(1–2), 440–446. https://doi.org/https://doi.org/10.1016/j.psychres.2015.06.033
   PubMed Web of Science ®Google Scholar
• Carter, L., Read, J., Pyle, M., & Morrison, A. (2018). “I believe i know better even than the psychiatrists what caused it”: Exploring the development of causal beliefs in people experiencing psychosis. Community Mental Health Journal, 54(6), 805–813. https://doi.org/https://doi.org/10.1007/s10597-017-0219-3
   PubMed Web of Science ®Google Scholar
• Censo De Población. (2005). http://www.inide.gob.ni/censos2005/ResumenCensal/Resumen2.pdf
   Google Scholar
• Central Intelligence Agency (2019). The World Factbook: Nicaragua. https://www.cia.gov/library/publications/the-world-factbook/geos/nu.html.
   Google Scholar
• Corrigan, P. (2004). How stigma interferes with mental health care. The American Psychologist, 59(7), 614–625. https://doi.org/https://doi.org/10.1037/0003-066X.59.7.614
   PubMed Web of Science ®Google Scholar
• Cosgrove, L., Mills, C., Karter, J. M., Mehta, A., & Kalathil, J. (2019). A critical review of the Lancet Commission on global mental health and sustainable development: Time for a paradigm change. Critical Public Health. Advance online publication. https://doi.org/https://doi.org/10.1080/09581596.2019.1667488
   Google Scholar
• Croft, J., Heron, J., Teufel, C., Cannon, M., Wolke, D., Thompson, A., Houtepen, L., & Zammit, S. (2019). Association of trauma type, age of exposure, and frequency in childhood and adolescence with psychotic experiences in early adulthood. JAMA Psychiatry, 76(1), 79–86. https://doi.org/https://doi.org/10.1001/jamapsychiatry.2018.3155
   PubMed Web of Science ®Google Scholar
• De Vylder, J. E., Koyanagi, A., Unick, J., Oh, H., Nam, B., & Stickley, A. (2016). Stress sensitivity and psychotic experiences in 39 low-and middle-income countries. Schizophrenia Bulletin, 42(6), 1353–1362.
   PubMed Web of Science ®Google Scholar
• Gillard, S. (2019). Peer support in mental health services: Where is the research taking us, and do we want to go there? Journal of Mental Health (Abingdon, England), 28(4), 341–344. https://doi.org/https://doi.org/10.1080/09638237.2019.1608935
   PubMed Web of Science ®Google Scholar
• Gómez-de-Regil, L. (2014). Causal attribution and illness perception: A cross-sectional study in Mexican patients with psychosis. The Scientific World Journal, 2014, 1–7.
   Google Scholar
• Hodges, D. C. (1986). Intellectual foundations of the Nicaraguan revolution. https://search-ebscohost-com.liverpool.idm.oclc.org/login.aspx?direct=true&db=cat00003a&AN=lvp.b1477864&site=eds-live&scope=site
   Google Scholar
• Hsieh, H., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.
   PubMed Web of Science ®Google Scholar
• Irfan, M., Stone, L., Husain, N., & Phiri, P. (2016). Brief intervention models in psychosis for developing Countries (Asia and Africa). In Brief interventions for psychosis (pp. 191–204). Springer.
   Google Scholar
• Johnson, V., & Stanley, J. (2007). Capturing the contribution of community arts to health and well-being. International Journal of Mental Health Promotion, 9(2), 28–35. https://doi.org/https://doi.org/10.1080/14623730.2007.9721836
   Google Scholar
• Jones, N., & Shattell, M. (2016). Not what the textbooks describe: Challenging clinical conventions about psychosis. Issues in Mental Health Nursing, 37(10), 769–772. https://doi.org/https://doi.org/10.1080/01612840.2016.1180725
   PubMed Web of Science ®Google Scholar
• Keraite, A., Sumathipala, A., Siriwardhana, C., Morgan, C., & Reininghaus, U. (2016). Exposure to conflict and disaster: A national survey on the prevalence of psychotic experiences in Sri Lanka. Schizophrenia Research, 171(1–3), 79–85. https://doi.org/https://doi.org/10.1016/j.schres.2016.01.026
   PubMed Web of Science ®Google Scholar
• Kohrt, B., Asher, L., Bhardwaj, A., Fazel, M., Jordans, M., Mutamba, B., Nadkarni, A., Pedersen, G., Singla, D., & Patel, V. (2018). The role of communities in mental health care in low-and middle-income countries: A meta-review of components and competencies. International Journal of Environmental Research and Public Health, 15(6), 1279. https://doi.org/https://doi.org/10.3390/ijerph15061279
   PubMed Web of Science ®Google Scholar
• Lal, S., Ungar, M., Leggo, C., Malla, A., Frankish, J., & Suto, M. J. (2013). Well-being and engagement in valued activities: Experiences of young people with psychosis. OTJR : Occupation, Participation and Health, 33(4), 190–197. https://doi.org/https://doi.org/10.3928/15394492-20130912-02
   PubMed Web of Science ®Google Scholar
• Larøi, F., Luhrmann, T. M., Bell, V., Christian, W. A., Jr, Deshpande, S., Fernyhough, C., Jenkins, J., & Woods, A. (2014). Culture and hallucinations: Overview and future directions. Schizophrenia Bulletin, 40(Suppl_4), S213–S220.
   PubMed Web of Science ®Google Scholar
• Luhrmann, T. M., Padmavati, R., Tharoor, H., & Osei, A. (2015). Hearing voices in different cultures: A social kindling hypothesis. Topics in Cognitive Science, 7(4), 646–663. https://doi.org/https://doi.org/10.1111/tops.12158
   PubMed Web of Science ®Google Scholar
• Lund, C., Breen, A., Flisher, A. J., Kakuma, R., Corrigall, J., Joska, J. A., Swartz, L., & Patel, V. (2010). Poverty and common mental disorders in low and middle income countries: A systematic review. Social Science & Medicine (1982), 71(3), 517–528. https://doi.org/https://doi.org/10.1016/j.socscimed.2010.04.027
   PubMed Web of Science ®Google Scholar
• Mayo, D., Corey, S., Kelly, L. H., Yohannes, S., Youngquist, A. L., Stuart, B. K., Niendam, T. A., & Loewy, R. L. (2017). The role of trauma and stressful life events among individuals at clinical high risk for psychosis: A review. Frontiers in Psychiatry, 8, 55. https://doi.org/https://doi.org/10.3389/fpsyt.2017.00055
   PubMed Web of Science ®Google Scholar
• Nickels, S. V., Arvaiza, N. A. F., & Valle, M. S. R. (2016). A qualitative exploration of a family self-help mental health program in El Salvador. International Journal of Mental Health Systems, 10(1), 26. https://doi.org/https://doi.org/10.1186/s13033-016-0058-6
   PubMed Web of Science ®Google Scholar
• Okkels, N., Trabjerg, B., Arendt, M., & Pedersen, C. B. (2017). Traumatic stress disorders and risk of subsequent schizophrenia spectrum disorder or bipolar disorder: A nationwide cohort study. Schizophrenia Bulletin, 43(1), 180–186. https://doi.org/https://doi.org/10.1093/schbul/sbw082
   PubMed Web of Science ®Google Scholar
• Powell, R. A., & Single, H. M. (1996). Methodology matters: Focus groups. International Journal for Quality in Health Care, 8(5), 499–504. https://doi.org/https://doi.org/10.1093/intqhc/8.5.499
   PubMed Web of Science ®Google Scholar
• Puschner, B., Repper, J., Mahlke, C., Nixdorf, R., Basangwa, D., Nakku, J., Ryan, G., Baillie, D., Shamba, D., Ramesh, M., Moran, G., Lachmann, M., Kalha, J., Pathare, S., Müller-Stierlin, A., & Slade, M. (2019). Using peer support in developing empowering mental health services (UPSIDES): Background, rationale and methodology. Annals of Global Health, 85(1), 53. https://doi.org/https://doi.org/10.5334/aogh.2435
   Google Scholar
• Quinn, N., Shulman, A., Knifton, L., & Byrne, P. (2011). The impact of a national mental health arts and film festival on stigma and recovery. Acta Psychiatrica Scandinavica, 123(1), 71–81. https://doi.org/https://doi.org/10.1111/j.1600-0447.2010.01573.x
   PubMed Web of Science ®Google Scholar
• Stant, A. D., Castelein, S., Bruggeman, R., Van Busschbach, J. T., Van Der Gaag, M., Knegtering, H., & Wiersma, D. (2011). Economic aspects of peer support groups for psychosis. Community Mental Health Journal, 47(1), 99–105. https://doi.org/https://doi.org/10.1007/s10597-009-9193-8
   PubMed Web of Science ®Google Scholar
• Susanti, H., James, K., Utomo, B., Keliat, B.-A., Lovell, K., Irmansyah, I., Rose, D., Colucci, E., & Brooks, H. (2020). Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 23(2), 377–387. https://doi.org/https://doi.org/10.1111/hex.13007
   PubMed Web of Science ®Google Scholar
• Tew, J., Ramon, S., Slade, M., Bird, V., Melton, J., & Le Boutillier, C. (2012). Social factors and recovery from mental health difficulties: A review of the evidence. British Journal of Social Work, 42(3), 443–460. https://doi.org/https://doi.org/10.1093/bjsw/bcr076
   Web of Science ®Google Scholar
• Van der Geest, R. (2011). Mejor dejarlo tranquilo: vivir con un familiar psicótico en Nicaragua. PUBLICACIONS UNIVERSITAT ROVIRA i VIRGILI.
   Google Scholar
• Van der Geest, R. (2017). A family-based intervention for people with a psychotic disorder in Nicaragua. In The Palgrave handbook of sociocultural perspectives on global mental health (pp. 531–548). Palgrave Macmillan.
   Google Scholar
• Vázquez, J., Panadero, S., & Rincón, P. P. (2007). Stressful life events in countries of differing economic development: Nicaragua, Chile, and Spain. Psychological Reports, 101(1), 193–201.
   PubMed Web of Science ®Google Scholar
• Vázquez, J. J., Panadero, S., & Rincón, P. P. (2010). Stressful life events and suicidal behaviour in countries with different development levels: Nicaragua, El Salvador, Chile and Spain. Journal of Community & Applied Social Psychology, 20(4), 288–298.
   Web of Science ®Google Scholar
• Virdee, G., Frederick, T., Tarasoff, L. A., McKenzie, K., Davidson, L., & Kidd, S. A. (2016). Exploring the contours of religion and spirituality in creating community: A focus on persons with psychosis. Journal of Community Psychology, 44(8), 1081–1087. https://doi.org/https://doi.org/10.1002/jcop.21829
   Web of Science ®Google Scholar
• White, R. G., & Sashidharan, S. P. (2014). Towards a more nuanced global mental health. The British Journal of Psychiatry : The Journal of Mental Science, 204(6), 415–417. https://doi.org/https://doi.org/10.1192/bjp.bp.113.139204
   PubMed Web of Science ®Google Scholar
• White, R. G., Ramachandran, P., & Kumar, S. (2017). Addressing mental health-related stigma in a global context. In The Palgrave handbook of sociocultural perspectives on global mental health (pp. 257–283). Palgrave Macmillan.
   Google Scholar
• Wüsten, C., & Lincoln, T. M. (2017). The association of family functioning and psychosis proneness in five countries that differ in cultural values and family structures. Psychiatry Research, 253, 158–164. https://doi.org/https://doi.org/10.1016/j.psychres.2017.03.041
   PubMed Web of Science ®Google Scholar
• Wüsten, C., Schlier, B., Jaya, E. S., Alizadeh, B. Z., Bartels-Velthuis, A. A., van Beveren, N. J., Bruggeman, R., Cahn, W., de Haan, L., Delespaul, P., Meijer, C. J., Myin-Germeys, I., Kahn, R. S., Schirmbeck, F., Simons, C. J. P., van Haren, N. E., van Os, J., van Winkel, R., Fonseca-Pedrero, E., … Lincoln, T. M., Genetic Risk and Outcome of Psychosis (GROUP) Investigators. (2018). Psychotic experiences and related distress: A cross-national comparison and network analysis based on 7141 participants from 13 countries. Schizophrenia Bulletin, 44(6), 1185–1194. https://doi.org/https://doi.org/10.1093/schbul/sby087
   PubMed Web of Science ®Google Scholar