Shared goals for mental health research: what, why and when for the 2020s

References

• Alonso, J., Liu, Z., Evans-Lacko, S., Sadikova, E., Sampson, N., Chatterji, S., Abdulmalik, J., Aguilar-Gaxiola, S., Al-Hamzawi, A., Andrade, L. H., Bruffaerts, R., Cardoso, G., Cia, A., Florescu, S., de Girolamo, G., Gureje, O., Haro, J. M., He, Y., de Jonge, P., … Thornicroft, G. (2018). Treatment gap for anxiety disorders is global: Results of the World Mental Health Surveys in 21 countries. Depression and Anxiety, 35(3), 195–208. https://doi.org/10.1002/da.22711
   PubMed Web of Science ®Google Scholar
• Brooks, S. K., Webster, R. K., Smith, L. E., Woodland, L., Wessely, S., Greenberg, N., & Rubin, G. J. (2020). The psychological impact of quarantine and how to reduce it: Rapid review of the evidence. Lancet, 395(10227), 912–920. https://doi.org/10.1016/S0140-6736(20)30460-8
   PubMed Web of Science ®Google Scholar
• Centre for Mental Health. (2020). Commission for equality in mental health: “Mental health for all? The final report of the Commission for Equality in Mental Health” Nov 2020.
   Google Scholar
• Chang, C., Hayes, R., Perera, G., Broadbent, M., Fernandes, A., Lee, W (2011)., & Stewart, R. Life expectancy at birth for people with serious mental illness from a secondary mental health care case register in London, UK. Paper presented at the AMERICAN JOURNAL OF EPIDEMIOLOGY.
   Google Scholar
• Csillag, C., Nordentoft, M., Mizuno, M., McDaid, D., Arango, C., Smith, J., Lora, A., Verma, S., Di Fiandra, T., & Jones, P. B. (2018). Early intervention in psychosis: From clinical intervention to health system implementation. Early Intervention in Psychiatry, 12(4), 757–764. https://doi.org/10.1111/eip.12514
   PubMed Web of Science ®Google Scholar
• Davies, S. C. (2014). Annual Report of the Chief Medical Officer: Public mental health priorities: Investing in the evidence.
   Google Scholar
• Department for Work and Pension. (2014). Employment and support allowance: Outcomes of work capability assessments. Quarterly Official Statistics Bulletin.
   Google Scholar
• Department of Health & Social Care & Department of Education. (2017). Transforming children and young people’s mental health provision: A Green paper. Crown Copyright. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/728892/government-response-to-consultation-on-transforming-children-and-young-peoples-mental-health.pdf.
   Google Scholar
• Department of Health. (2017). A framework for mental health research. https://assetspublishingservicegovuk/government/uploads/system/uploads/attachment_data/file/665576/A_framework_for_mental_health_researchpdf.
   Google Scholar
• Dorrington, S., Carr, E., Stevelink, S. A. M., Dregan, A., Whitney, D., Durbaba, S., Ashworth, M., Mykletun, A., Broadbent, M., Madan, I., Hatch, S., & Hotopf, M. (2020). Demographic variation in fit note receipt and long-term conditions in south London. Occupational and Environmental Medicine, 77(6), 418–426. https://doi.org/10.1136/oemed-2019-106035
   PubMed Web of Science ®Google Scholar
• Downs, J. M., Ford, T., Stewart, R., Epstein, S., Shetty, H., Little, R., Jewell, A., Broadbent, M., Deighton, J., Mostafa, T., Gilbert, R., Hotopf, M., & Hayes, R. (2019). An approach to linking education, social care and electronic health records for children and young people in South London: A linkage study of child and adolescent mental health service data. BMJ Open, 9(1), e024355. https://doi.org/10.1136/bmjopen-2018-024355
   PubMed Web of Science ®Google Scholar
• Dregan, A., McNeill, A., Gaughran, F., Jones, P. B., Bazley, A., Cross, S., Lillywhite, K., Armstrong, D., Smith, S., Osborn, D. P. J., Stewart, R., Wykes, T., & Hotopf, M. (2020). Potential gains in life expectancy from reducing amenable mortality among people diagnosed with serious mental illness in the United Kingdom. PLoS One, 15(3), e0230674 https://doi.org/10.1371/journal.pone.0230674
   PubMed Web of Science ®Google Scholar
• Early Intervention Foundation. (2019). Guidebook. https://guidebookeiforguk/.
   Google Scholar
• Evans-Lacko, S., Courtin, E., Fiorillo, A., Knapp, M., Luciano, M., Park, A.-L., Brunn, M., Byford, S., Chevreul, K., Forsman, A. K., Gulacsi, L., Haro, J. M., Kennelly, B., Knappe, S., Lai, T., Lasalvia, A., Miret, M., O'Sullivan, C., Obradors-Tarragó, C., … Thornicroft, G. (2014). The state of the art in European research on reducing social exclusion and stigma related to mental health: A systematic mapping of the literature. European Psychiatry, 29(6), 381–389. https://doi.org/10.1016/j.eurpsy.2014.02.007
   PubMed Web of Science ®Google Scholar
• Evensen, M., Lyngstad, T. H., Melkevik, O., Reneflot, A., & Mykletun, A. (2017). Adolescent mental health and earnings inequalities in adulthood: Evidence from the Young-HUNT Study. Journal of Epidemiology and Community Health, 71(2), 201–206. https://doi.org/10.1136/jech-2015-206939
   PubMed Web of Science ®Google Scholar
• Faulkner, A., Yiannoullou, S., Kalathil, J., Crepaz-Keay, D., Singer, F., James, N (2015). Kalleyik, J. Involvement for influence 2015 National Survivor Network. https://www.nsun.org.uk/Handlers/Download.ashx?IDMF=995617f8-1cd7-40af-8128-5eaaf2953b8e%20.
   Google Scholar
• Hazo, J.-B., Gandré, C., Leboyer, M., Obradors-Tarragó, C., Belli, S., McDaid, D., Park, A.-L., Maliandi, M. V., Wahlbeck, K., Wykes, T., van Os, J., Haro, J. M., & Chevreul, K. (2017). National funding for mental health research in Finland, France, Spain and the United Kingdom. European Neuropsychopharmacology: The Journal of the European College of Neuropsychopharmacology, 27(9), 892–899. https://doi.org/10.1016/j.euroneuro.2017.06.008
   PubMed Web of Science ®Google Scholar
• Hollis, C., Sampson, S., Simons, L., Davies, E. B., Churchill, R., Betton, V., Butler, D., Chapman, K., Easton, K., Gronlund, T. A., Kabir, T., Rawsthorne, M., Rye, E., & Tomlin, A. (2018). Identifying research priorities for digital technology in mental health care: Results of the James Lind Alliance Priority Setting Partnership. The Lancet Psychiatry, 5(10), 845–854. https://doi.org/10.1016/S2215-0366(18)30296-7
   PubMed Web of Science ®Google Scholar
• Holmes, E. A., O'Connor, R. C., Perry, V. H., Tracey, I., Wessely, S., Arseneault, L., Ballard, C., Christensen, H., Cohen Silver, R., Everall, I., Ford, T., John, A., Kabir, T., King, K., Madan, I., Michie, S., Przybylski, A. K., Shafran, R., Sweeney, A., … Bullmore, E. (2020). Multidisciplinary research priorities for the COVID-19 pandemic: A call for action for mental health science. The Lancet Psychiatry, 7(6), 547–560. https://doi.org/10.1016/S2215-0366(20)30168-1
   PubMed Web of Science ®Google Scholar
• Ismail, K., Winkley, K., Stahl, D., Chalder, T., & Edmonds, M. (2007). A cohort study of people with diabetes and their first foot ulcer: The role of depression on mortality. Diabetes Care, 30(6), 1473–1479. https://doi.org/10.2337/dc06-2313
   PubMed Web of Science ®Google Scholar
• James Lind Alliance. (2020). James Lind Alliance: Priority setting partnerships: https://www.jla.nihr.ac.uk/priority-setting-partnerships/schizophrenia/.
   Google Scholar
• Kessler, R. C., Berglund, P., Demler, O., Jin, R., Merikangas, K. R., & Walters, E. E. (2005). Lifetime prevalence and age-of-onset distributions of DSM-IV disorders in the National Comorbidity Survey Replication. Archives of General Psychiatry, 62(6), 593–602. https://doi.org/10.1001/archpsyc.62.6.593
   PubMed Web of Science ®Google Scholar
• Lawrence, D., Johnson, S., Hafekost, J., Boterhoven de Haan, K., Sawyer, M., Ainley, J., & Zubrick, S. R. (2015). The mental health of children and adolescents: Report on the second Australian child and adolescent survey of mental health and wellbeing. Department of Health.
   Google Scholar
• Lim, M. H., Eres, R., & Vasan, S. (2020). Understanding loneliness in the twenty-first century: An update on correlates, risk factors, and potential solutions. Social Psychiatry and Psychiatric Epidemiology, 55(7), 793–810. https://doi.org/10.1007/s00127-020-01889-7
   PubMed Web of Science ®Google Scholar
• Lloyd, K., & White, J. (2011). Democratizing clinical research. Nature, 474(7351), 277–278. https://doi.org/10.1038/474277a
   PubMed Web of Science ®Google Scholar
• Mandalia, D., Ford, T., Hill, S., Sadler, K., Vizard, T., Goodman, A., & McManus, S. (2017). Mental health of children and young people in England, 2017: Professional services, informal support, and education. Mental Health of Children and Young People in England.
   Google Scholar
• Marshall, M., Lewis, S., Lockwood, A., Drake, R., Jones, P., & Croudace, T. (2005). Association between duration of untreated psychosis and outcome in cohorts of first-episode patients: A systematic review. Archives of General Psychiatry, 62(9), 975–983. https://doi.org/10.1001/archpsyc.62.9.975
   PubMed Web of Science ®Google Scholar
• McManus, S., Bebbington, P., Jenkins, R., & Brugha, T. (2016). Mental Health and Wellbeing in England: The adult psychiatric morbidity survey. NHS Digital, 2014.
   Google Scholar
• McManus, S., Meltzer, H., Brugha, T., Bebbington, P., & Jenkins, R. (2009). Adult psychiatric morbidity in England: Results of a household survey. Health and Social Care Information Centre.
   Google Scholar
• McPin. (2018). Children and young people’s research priorities. https://mcpinorg/cyp-research-priorities/.
   Google Scholar
• Medical Research Council. (2017). Strategy for lifelong mental health research. https://mrcukriorg/documents/pdf/strategy-for-lifelong-mental-health-research/.
   Google Scholar
• Mental Health Taskforce. (2016). The five year forward view for mental health. https://wwwenglandnhsuk/wp-content/uploads/2016/02/Mental-Health-Taskforce-FYFV-finalpdf.
   Google Scholar
• Merikangas, K. R., He, J-p., Burstein, M., Swendsen, J., Avenevoli, S., Case, B., Georgiades, K., Heaton, L., Swanson, S., & Olfson, M. (2011). Service utilization for lifetime mental disorders in U.S. adolescents: Results of the National Comorbidity Survey-Adolescent Supplement (NCS-A). Journal of the American Academy of Child and Adolescent Psychiatry, 50(1), 32–45. https://doi.org/10.1016/j.jaac.2010.10.006
   PubMed Web of Science ®Google Scholar
• Momen, N. C., Plana-Ripoll, O., Agerbo, E., Benros, M. E., Børglum, A. D., Christensen, M. K., Dalsgaard, S., Degenhardt, L., de Jonge, P., Debost, J.-C P. G., Fenger-Grøn, M., Gunn, J. M., Iburg, K. M., Kessing, L. V., Kessler, R. C., Laursen, T. M., Lim, C. C. W., Mors, O., Mortensen, P. B., … McGrath, J. J. (2020). Association between mental disorders and subsequent medical conditions. The New England Journal of Medicine, 382(18), 1721–1731. https://doi.org/10.1056/NEJMoa1915784
   PubMed Web of Science ®Google Scholar
• Moreno, C., Wykes, T., Galderisi, S., Nordentoft, M., Crossley, N., Jones, N., Cannon, M., Correll, C. U., Byrne, L., Carr, S., Chen, E. Y. H., Gorwood, P., Johnson, S., Kärkkäinen, H., Krystal, J. H., Lee, J., Lieberman, J., López-Jaramillo, C., Männikkö, M., … Arango, C. (2020). How mental health care should change as a consequence of the COVID-19 pandemic. The Lancet. Psychiatry, 7(9), 813–824. https://doi.org/10.1016/S2215-0366(20)30307-2
   PubMed Web of Science ®Google Scholar
• Morris, Z. S., Wooding, S., & Grant, J. (2011). The answer is 17 years, what is the question: Understanding time lags in translational research. Journal of the Royal Society of Medicine, 104(12), 510–520. https://doi.org/10.1258/jrsm.2011.110180
   PubMed Web of Science ®Google Scholar
• Naylor, C., P. M., McDaid, D., Knapp, M., Fossey, M., Galea, A.   (2012). Long term conditions and mental health: The cost of co-morbidities. The King’s Fund and Centre for Mental Health. https://wwwkingsfundorguk/publications/long-term-conditions-and-mental-health.
   Google Scholar
• Nestsiarovich, A., Hurwitz, N. G., Nelson, S. J., Crisanti, A. S., Kerner, B., Kuntz, M. J., Smith, A. N., Volesky, E., Schroeter, Q. L., DeShaw, J. L., Young, S. S., Obenchain, R. L., Krall, R. L., Jordan, K., Fawcett, J., Tohen, M., Perkins, D. J., & Lambert, C. G. (2017). Systemic challenges in bipolar disorder management: A patient-centered approach. Bipolar Disorders, 19(8), 676–688. https://doi.org/10.1111/bdi.12547
   PubMed Web of Science ®Google Scholar
• NHS Digital. (2018). Mental Health of Children and Young People in England, 2017. https://digitalnhsuk/data-and-information/publications/statistical/mental-health-of-children-and-youngpeople-in-england/2017/2017.
   Google Scholar
• NHS Digital. (2020). Mental Health of Children and Young People in England, 2020: Wave 1 follow up to the 2017 survey October 2020. https://digital.nhs.uk/data-and-information/publications/statistical/mental-health-of-children-and-young-people-in-england/2020-wave-1-follow-up
   Google Scholar
• NHS England. (2016). Implementing the five year forward view for mental health. https://wwwenglandnhsuk/wp-content/uploads/2016/07/fyfv-mhpdf.
   Google Scholar
• Nordt, C., Warnke, I., Seifritz, E., & Kawohl, W. (2015). Modelling suicide and unemployment: A longitudinal analysis covering 63 countries, 2000–11. The Lancet. Psychiatry, 2(3), 239–245. https://doi.org/10.1016/S2215-0366(14)00118-7
   PubMed Web of Science ®Google Scholar
• O'Connor, D. B., Aggleton, J. P., Chakrabarti, B., Cooper, C. L., Creswell, C., Dunsmuir, S., Fiske, S. T., Gathercole, S., Gough, B., Ireland, J. L., Jones, M. V., Jowett, A., Kagan, C., Karanika‐Murray, M., Kaye, L. K., Kumari, V., Lewandowsky, S., Lightman, S., Malpass, D., … Armitage, C. J. (2020). Research priorities for the COVID-19 pandemic and beyond: A call to action for psychological science. British Journal of Psychology, 111(4), 603–629. https://doi.org/10.1111/bjop.12468
   PubMed Web of Science ®Google Scholar
• Office for National Statistics. (2014). Sickness Absence in the Labour Market. ONS.
   Google Scholar
• Office for National Statistics. (2019). An overview of the UK population: How it has changed, why it has changed and how it is projected to change in the future. https://backup.ons.gov.uk/wp-content/uploads/sites/3/2019/08/Overview-of-the-UK-population-August-2019.pdf.
   Google Scholar
• Office for National Statistics. (2020). Coronavirus and depression in adults, Great Britain: June 2020. https://www.ons.gov.uk/peoplepopulationandcommunity/wellbeing/articles/coronavirusanddepressioninadultsgreatbritain/june2020.
   Google Scholar
• Organization for Economic Co-operation and Development. (2018). Health at a glance: Europe 2018: Organization for Economic. OECD.
   Google Scholar
• Ormerod, E., Bereford, P., Carr, S., Gould, D., Jeffreys, S., Machin, K., &., et al. (2018). Survivor, Researcher, Network–Mental health knowledge built by service users and survivors. https://wwwnsunorguk/Handlers/Downloadashx?IDMF=941b61f7-4a71-4eba-8099-1269177a7858.
   Google Scholar
• Pfefferbaum, B., & North, C. S. (2020). Mental health and the Covid-19 pandemic. New England Journal of Medicine, 383(6), 510–512. https://doi.org/10.1056/NEJMp2008017
   PubMed Web of Science ®Google Scholar
• Pierce, M., Hope, H., Ford, T., Hatch, S., Hotopf, M., John, A., Kontopantelis, E., Webb, R., Wessely, S., McManus, S., & Abel, K. M. (2020). Mental health before and during the COVID-19 pandemic: A longitudinal probability sample survey of the UK population. The Lancet. Psychiatry, 7(10), 883–892. https://doi.org/10.1016/S2215-0366(20)30308-4
   PubMed Web of Science ®Google Scholar
• Pitman, A., Krysinska, K., Osborn, D., & King, M. (2012). Suicide in young men. Lancet, 379(9834), 2383–2392. https://doi.org/10.1016/S0140-6736(12)60731-4
   PubMed Web of Science ®Google Scholar
• Robotham, D., Wykes, T., Rose, D., Doughty, L., Strange, S., Neale, J., & Hotopf, M. (2016). Service user and carer priorities in a Biomedical Research Centre for mental health. Taylor & Francis.
   Google Scholar
• Russo, J., & Sweeney, A. (2016). Searching for a rose garden: Challenging psychiatry, fostering Mad Studies. PCCS Books.
   Google Scholar
• Stewart, R., Soremekun, M., Perera, G., Broadbent, M., Callard, F., Denis, M., Hotopf, M., Thornicroft, G., & Lovestone, S. (2009). The South London and Maudsley NHS Foundation Trust Biomedical Research Centre (SLAM BRC) case register: Development and descriptive data. BMC Psychiatry, 9, 51. https://doi.org/10.1186/1471-244X-9-51
   PubMed Web of Science ®Google Scholar
• Taquet, M., Luciano, S., Geddes, J. R., & Harrison, P. J. (2020). Bidirectional associations between COVID-19 and psychiatric disorder: Retrospective cohort studies of 62 354 COVID-19 cases in the USA. The Lancet Psychiatry, 8(2), P130–P140. https://doi.org/10.1016/S2215-0366(20)30462-4
   PubMed Web of Science ®Google Scholar
• The AHSN Network. (2019). National survey of local innovation and research needs of the NHS, NIHR April 2019. https://wwwahsnnetworkcom/wp-content/uploads/2019/07/National-survey-of-local-research-and-innovation-needs-of-the-NHSpdf.
   Google Scholar
• Thomas, C. M., & Morris, S. (2003). Cost of depression among adults in England in 2000. British Journal of Psychiatry, 183, 514–519. https://doi.org/10.1192/bjp.183.6.514
   PubMed Web of Science ®Google Scholar
• Thornicroft, G., Chatterji, S., Evans-Lacko, S., Gruber, M., Sampson, N., Aguilar-Gaxiola, S., Al-Hamzawi, A., Alonso, J., Andrade, L., Borges, G., Bruffaerts, R., Bunting, B., de Almeida, J. M. C., Florescu, S., de Girolamo, G., Gureje, O., Haro, J. M., He, Y., Hinkov, H., … Kessler, R. C. (2017). Undertreatment of people with major depressive disorder in 21 countries. The British Journal of Psychiatry: The Journal of Mental Science, 210(2), 119–124. https://doi.org/10.1192/bjp.bp.116.188078
   PubMed Web of Science ®Google Scholar
• Tomlinson, M., Rudan, I., Saxena, S., Swartz, L., Tsai, A. C., & Patel, V. (2009). Setting priorities for global mental health research. Bulletin of the World Health Organization, 87(6), 438–446. https://doi.org/10.2471/blt.08.054353
   PubMed Web of Science ®Google Scholar
• Wickersham, A., Dickson, H., Jones, R., Pritchard, M., Stewart, R., Ford, T., & Downs, J. (2021). Educational attainment trajectories among children and adolescents with depression, and the role of sociodemographic characteristics: Longitudinal data-linkage study. The British Journal of Psychiatry, 218(3), 151–157. https://doi.org/10.1192/bjp.2020.160
   PubMed Web of Science ®Google Scholar
• Wittchen, H. U., Fuetsch, M., Sonntag, H., Muller, N., & Liebowitz, M. (2000). Disability and quality of life in pure and comorbid social phobia. Findings from a controlled study. European Psychiatry: The Journal of the Association of European Psychiatrists, 15(1), 46–58. https://doi.org/10.1016/S0924-9338(00)00211-X
   PubMed Web of Science ®Google Scholar
• Wittchen, H. U., Jacobi, F., Rehm, J., Gustavsson, A., Svensson, M., Jönsson, B., Olesen, J., Allgulander, C., Alonso, J., Faravelli, C., Fratiglioni, L., Jennum, P., Lieb, R., Maercker, A., van Os, J., Preisig, M., Salvador-Carulla, L., Simon, R., & Steinhausen, H.-C. (2011). The size and burden of mental disorders and other disorders of the brain in Europe 2010. European Neuropsychopharmacology: The Journal of the European College of Neuropsychopharmacology, 21(9), 655–679. https://doi.org/10.1016/j.euroneuro.2011.07.018
   PubMed Web of Science ®Google Scholar
• Woelbert, E., Lundell-Smith, K., White, R., & Kemmer, D. (2021). Accounting for mental health research funding: Developing a quantitative baseline of global investments. The Lancet. Psychiatry, 8(3), 250–258. https://doi.org/10.1016/S2215-0366(20)30469-7
   PubMed Web of Science ®Google Scholar
• Wooding, S., Pollitt, A., Castle-Clarke, S., Cochrane, G., Diepeveen, S., Guthrie, S (2013). Ni Chonaill, S. Mental Health Retrosight: Understanding the returns from research (lessons from schizophrenia): Policy Report. https://www.rand.org/pubs/research_reports/RR325.html.
   Google Scholar
• Wykes, T., Haro, J. M., Belli, S. R., Obradors-Tarragó, C., Arango, C., Ayuso-Mateos, J. L., Bitter, I., Brunn, M., Chevreul, K., Demotes-Mainard, J., Elfeddali, I., Evans-Lacko, S., Fiorillo, A., Forsman, A. K., Hazo, J.-B., Kuepper, R., Knappe, S., Leboyer, M., Lewis, S. W., … Wittchen, H.-U. (2015). Mental health research priorities for Europe. The Lancet. Psychiatry, 2(11), 1036–1042. https://doi.org/10.1016/S2215-0366(15)00332-6
   PubMed Web of Science ®Google Scholar
• YoungMinds. (2018). Fighting for young people’s mental health report. https://youngmindsorguk/media/2258/youngminds-fightingfor-reportpdf.
   Google Scholar
• Zuidersma, M., Ormel, J., Conradi, H. J., & de Jonge, P. (2012). An increase in depressive symptoms after myocardial infarction predicts new cardiac events irrespective of depressive symptoms before myocardial infarction. Psychological Medicine, 42(4), 683–693. https://doi.org/10.1017/S0033291711001784
   PubMed Web of Science ®Google Scholar