Peer support in early intervention in psychosis: a qualitative research study

References

• Alvarez-Jimenez, M., O'Donoghue, B., Thompson, A., Gleeson, J. F., Bendall, S., Gonzalez-Blanch, C., Killackey, E., Wunderink, L., & McGorry, P. D. (2016). Beyond clinical remission in first episode psychosis: Thoughts on antipsychotic maintenance vs. guided discontinuation in the functional recovery era. CNS Drugs, 30(5), 357–368. https://doi.org/https://doi.org/10.1007/s40263-016-0331-x
   PubMed Web of Science ®Google Scholar
• Bracke, P., Christiaens, W., & Verhaeghe, M. (2008). Self‐esteem, self‐efficacy, and the balance of peer support among persons with chronic mental health problems. Journal of Applied Social Psychology, 38(2), 436–459. https://doi.org/https://doi.org/10.1111/j.1559-1816.2008.00312.x
   Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. [Database] https://doi.org/https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Braun, V., & Clarke, V. (2016). ( Mis) conceptualising themes, thematic analysis, and other problems with Fugard and Potts’(2015) sample-size tool for thematic analysis. International Journal of Social Research Methodology, 19(6), 739–743. https://doi.org/https://doi.org/10.1080/13645579.2016.1195588
   Web of Science ®Google Scholar
• Brohan, E., Elgie, R., Sartorius, N., Thornicroft, G., & Gamian, E. & Study Group, (2010). Self-stigma, empowerment and perceived discrimination among people with schizophrenia in 14 European countries: The GAMIAN-Europe study. Schizophrenia Research, 122(1-3), 232–238. https://doi.org/https://doi.org/10.1016/j.schres.2010.02.1065
   PubMed Web of Science ®Google Scholar
• Burke, E., Wood, L., Zabel, E., Clark, A., & Morrison, A. P. (2016). Experiences of stigma in psychosis: A qualitative analysis of service users’ perspectives. Psychosis, 8(2), 130–142. https://doi.org/https://doi.org/10.1080/17522439.2015.1115541
   Web of Science ®Google Scholar
• Castelein, S., Bruggeman, R., Van Busschbach, J. T., Van Der Gaag, M., Stant, A. D., Knegtering, H., & Wiersma, D. (2008). The effectiveness of peer support groups in psychosis: A randomized controlled trial. Acta Psychiatrica Scandinavica, 118(1), 64–72. https://doi.org/https://doi.org/10.1111/j.1600-0447.2008.01216.x
   PubMed Web of Science ®Google Scholar
• Chien, W. T., Clifton, A. V., Zhao, S., & Lui, S. (2019). Peer support for people with schizophrenia or other serious mental  illness. Cochrane Database of Systematic Reviews, (4), CD010880. https://doi.org/https://doi.org/10.1002/14651858.CD010880.pub2
   Google Scholar
• Craig, T. K., Garety, P., Power, P., Rahaman, N., Colbert, S., Fornells-Ambrojo, M., & Dunn, G. (2004). The Lambeth Early Onset (LEO) Team: Randomised controlled trial of the effectiveness of specialised care for early psychosis. BMJ, 329(7474), 1067. https://doi.org/https://doi.org/10.1136/bmj.38246.594873.7C
   PubMed Web of Science ®Google Scholar
• Davidson, L. (2020). Recovering a sense of self in schizophrenia. Journal of Personality, 88(1), 122–132. https://doi.org/https://doi.org/10.1111/jopy.12471
   PubMed Web of Science ®Google Scholar
• Davidson, L., Bellamy, C., Guy, K., & Miller, R. (2012). Peer support among persons with severe mental illnesses: A review of evidence and experience. World Psychiatry, 11(2), 123–128. https://doi.org/https://doi.org/10.1016/j.wpsyc.2012.05.009
   PubMed Web of Science ®Google Scholar
• Faulkner, A., & Basset, T. (2012). A helping hand: Taking peer support into the 21st century. Mental Health and Social Inclusion, 16(1), 41–47. https://doi.org/https://doi.org/10.1108/20428301211205892
   Google Scholar
• Fereday, J., & Muir-Cochrane, E. (2006). Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development. International Journal of Qualitative Methods, 5(1), 80–92. https://doi.org/https://doi.org/10.1177/160940690600500107
   Google Scholar
• Gillard, S. (2019). Peer support in mental health services: Where is the research taking us, and do we want to go there? Journal of Mental Health, 28(4), 341–344. https://doi.org/https://doi.org/10.1080/09638237.2019.1608935
   PubMed Web of Science ®Google Scholar
• Gillard, S., Edwards, C., Gibson, S., Holley, J., & Owen, K. (2014). New ways of working in mental health services: A qualitative, comparative case study assessing and informing the emergence of new peer worker roles in mental health services. Health Services and Delivery Research, 2(19), 1–218. https://doi.org/https://doi.org/10.3310/hsdr02190
   Google Scholar
• Gillard, S., Foster, R., Gibson, S., Goldsmith, L., Marks, J., & White, S. (2017). Describing a principles-based approach to developing and evaluating peer worker roles as peer support moves into mainstream mental health services. Mental Health and Social Inclusion, 21(3), 133–143. https://doi.org/https://doi.org/10.1108/MHSI-03-2017-0016
   Web of Science ®Google Scholar
• Hodgekins, J., Birchwood, M., Christopher, R., Marshall, M., Coker, S., Everard, L., Lester, H., Jones, P., Amos, T., Singh, S., Sharma, V., Freemantle, N., & Fowler, D. (2015). Investigating trajectories of social recovery in individuals with first-episode psychosis: A latent class growth analysis. The British Journal of Psychiatry : The Journal of Mental Science, 207(6), 536–543. https://doi.org/https://doi.org/10.1192/bjp.bp.114.153486
   PubMed Web of Science ®Google Scholar
• Iyer, S. N., Mangala, R., Anitha, J., Thara, R., & Malla, A. K. (2011). An examination of patient‐identified goals for treatment in a first‐episode programme in Chennai. Early Intervention in Psychiatry, 5(4), 360–365. https://doi.org/https://doi.org/10.1111/j.1751-7893.2011.00289.x
   PubMed Web of Science ®Google Scholar
• Jeppesen, P., Petersen, L., Thorup, A., Abel, M.-B., ⊘Ehlenschlaeger, J., Christensen, T. Ø., Krarup, G., Hemmingsen, R., J⊘Rgensen, P., & Nordentoft, M. (2005). Integrated treatment of first-episode psychosis: Effect of treatment on family burden: OPUS trial. British Journal of Psychiatry, 187(S48), s85–s90. https://doi.org/https://doi.org/10.1192/bjp.187.48.s85
   Google Scholar
• Jones, N. (2015). Peer involvement and leadership in early intervention in psychosis services: From planning to peer support and evaluation. https://www.nasmhpd.org/sites/default/files/Peer-Involvement-Guidance_Manual_Final.pdf
   Google Scholar
• Lieberman, J., Jody, D., Geisler, S., Alvir, J., Loebel, A., Szymanski, S., Woerner, M., & Borenstein, M. (1993). Time course and biologic correlates of treatment response in first-episode schizophrenia. Archives of General Psychiatry, 50(5), 369–376. https://doi.org/https://doi.org/10.1001/archpsyc.1993.01820170047006
   PubMed Web of Science ®Google Scholar
• Lim, M. H., Gleeson, J. F. M., Alvarez-Jimenez, M., & Penn, D. L. (2018). Loneliness in psychosis: A systematic review. Social Psychiatry and Psychiatric Epidemiology: The International Journal for Research in Social and Genetic Epidemiology and Mental Health Services, 53(3), 221–238. https://doi.org/https://doi.org/10.1007/s00127-018-1482-5
   PubMed Web of Science ®Google Scholar
• Livingston, J. D., & Boyd, J. E. (2010). Correlates and consequences of internalized stigma for people living with mental illness: A systematic review and meta-analysis. Social Science & Medicine (1982), 71(12), 2150–2161. https://doi.org/https://doi.org/10.1016/j.socscimed.2010.09.030
   PubMed Web of Science ®Google Scholar
• Lloyd-Evans, B., Mayo-Wilson, E., Harrison, B., Istead, H., Brown, E., Pilling, S., Johnson, S., & Kendall, T. (2014). A systematic review and meta-analysis of randomised controlled trials of peer support for people with severe mental illness. BMC Psychiatry, 14(1), 39. https://doi.org/https://doi.org/10.1186/1471-244X-14-39
   PubMed Web of Science ®Google Scholar
• Mahlke, C. I., Priebe, S., Heumann, K., Daubmann, A., Wegscheider, K., & Bock, T. (2017). Effectiveness of one-to-one peer support for patients with severe mental illness – A randomised controlled trial. European Psychiatry, 42, 103–110. https://doi.org/https://doi.org/10.1016/j.eurpsy.2016.12.007
   PubMed Web of Science ®Google Scholar
• Morgan, C., Mallett, R., Hutchinson, G., & Leff, J. (2004). Negative pathways to psychiatric care and ethnicity: The bridge between social science and psychiatry. Social Science & Medicine, 58(4), 739–752. https://doi.org/https://doi.org/10.1016/S0277-9536(03)00233-8
   PubMed Web of Science ®Google Scholar
• National Institute for Health and Care Excellence. (2014). Psychosis and schizophrenia in adults: Treatment and management (clinical guideline 178). NICE.
   Google Scholar
• Oborn, E., Barrett, M., Gibson, S., & Gillard, S. (2019). Knowledge and expertise in care practices: The role of the peer worker in mental health teams. Sociology of Health & Illness, 41(7), 1305–1322. https://doi.org/https://doi.org/10.1111/1467-9566.12944
   PubMed Web of Science ®Google Scholar
• Payne, J., Malla, A., Norman, R., Windell, D., & Brown, N. (2006). Status of first-episode psychosis patients presenting for routine care in a defined catchment area. The Canadian Journal of Psychiatry, 51(1), 42–47. https://doi.org/https://doi.org/10.1177/070674370605100108
   PubMed Web of Science ®Google Scholar
• Pitt, V., Lowe, D., Hill, S., Prictor, M., Hetrick, S. E., Ryan, R., & Berends, L. (2013). Consumer‐providers of care for adult clients of statutory mental health services. Cochrane Database of Systematic Reviews, (3), CD004807. https://doi.org/https://doi.org/10.1002/14651858.CD004807.pub2.
   Google Scholar
• Pyle, M., Pilling, S., Machin, K., Allende-Cullen, G., & Morrison, A. P. (2018). Peer support for internalised stigma experienced by people with psychosis: Rationale and recommendations. Psychosis, 10(2), 146–152. https://doi.org/https://doi.org/10.1080/17522439.2018.1437212
   Web of Science ®Google Scholar
• Santesteban-Echarri, O., Paino, M., Rice, S., González-Blanch, C., McGorry, P., Gleeson, J., & Alvarez-Jimenez, M. (2017). Predictors of functional recovery in first-episode psychosis: A systematic review and meta-analysis of longitudinal studies. Clinical Psychology Review, 58, 59–75. https://doi.org/https://doi.org/10.1016/j.cpr.2017.09.007
   PubMed Web of Science ®Google Scholar
• Sartorius, N., & Aichenberger, M. (2005). The WPA global programme to reduce the stigma and discrimination because of schizophrenia. In Bibliography, 2005. World Psychiatric Association.
   Google Scholar
• Schutt, R. K., & Rogers, E. S. (2009). Empowerment and peer support: Structure and process of self‐help in a consumer‐run center for individuals with mental illness. Journal of Community Psychology, 37(6), 697–710. https://doi.org/https://doi.org/10.1002/jcop.20325
   Web of Science ®Google Scholar
• Singh, S. P., Greenwood, N., White, S., & Churchill, R. (2007). Ethnicity and detention in the UK: A systematic review and meta-analysis. European Psychiatry, 22(S1), S168–S168.
   Google Scholar
• Thorup, A., Petersen, L., Jeppesen, P., Øhlenschlaeger, J., Christensen, T., Krarup, G., Jørgensen, P., & Nordentoft, M. (2005). Integrated treatment ameliorates negative symptoms in first episode psychosis—results from the Danish OPUS trial. Schizophrenia Research, 79(1), 95–105. https://doi.org/https://doi.org/10.1016/j.schres.2004.12.020
   PubMed Web of Science ®Google Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/https://doi.org/10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• Vauth, R., Kleim, B., Wirtz, M., & Corrigan, P. W. (2007). Self-efficacy and empowerment as outcomes of self-stigmatizing and coping in schizophrenia. Psychiatry Research, 150(1), 71–80. https://doi.org/https://doi.org/10.1016/j.psychres.2006.07.005
   PubMed Web of Science ®Google Scholar
• White, H., Price, L., & Barker, T. (2017). Exploring the impact of peer support in early intervention in psychosis. Mental Health and Social Inclusion, 21(2), 102–109. https://doi.org/https://doi.org/10.1108/MHSI-12-2016-0036
   Web of Science ®Google Scholar
• White, S., Foster, R., Marks, J., Morshead, R., Goldsmith, L., Barlow, S., Sin, J., & Gillard, S. (2020). The effectiveness of one-to-one peer support in mental health services: A systematic review and meta-analysis. BMC Psychiatry, 20(1), 1–20. https://doi.org/https://doi.org/10.1186/s12888-020-02923-3
   PubMed Web of Science ®Google Scholar
• Wilken, J. P. (2007). Understanding recovery from psychosis. A growing body of knowledge. Tidsskrift-Norsk Psykologforening, 44(5), 658.
   Google Scholar
• Yanos, P. T., Roe, D., Markus, K., & Lysaker, P. H. (2008). Pathways between internalized stigma and outcomes related to recovery in schizophrenia spectrum disorders. Psychiatric Services, 59(12), 1437–1442. https://doi.org/https://doi.org/10.1176/appi.ps.59.12.1437
   PubMed Web of Science ®Google Scholar