Service user experiences of care recommendations from the 2014 NICE guideline for bipolar disorder: a survey

References

• Altınbaş, K., Smith, D., & Oral, E. T. (2011). Adherence to Turkish psychiatric association guideline for bipolar depression treatment in a specialized mood disorders outpatient unit. Psychiatria Danubina, 23(2), 189–193.
   PubMed Web of Science ®Google Scholar
• Armstrong, D. (2002). Clinical autonomy, individual and collective: the problem of changing doctors' behaviour. Social Science and Medicine, 55(10), 1771–1777. https://doi.org/10.1016/S0277-9536(01)00309-4
   PubMed Web of Science ®Google Scholar
• Baker, R., Reddish, S., Robertson, N., Hearnshaw, H., & Jones, B. (2001). Randomised controlled trial of tailored strategies to implement guidelines for the management of patients with depression in general practice. British Journal of General Practice, 51(470), 737–741.
   PubMed Web of Science ®Google Scholar
• Bauer, M. S., Biswas, K., & Kilbourne, A. M. (2009). Enhancing multiyear guideline concordance for bipolar disorder through collaborative care. The American Journal of Psychiatry, 166(11), 1244–1250. https://doi.org/10.1176/appi.ajp.2009.09030342
   PubMed Web of Science ®Google Scholar
• Dennehy, E. B., Suppes, T., Rush, A. J., Miller, A. L., Trivedi, M. H., Crismon, M. L., Carmody, T. J., & Kashner, T. M. (2005). Does provider adherence to a treatment guideline change clinical outcomes for patients with bipolar disorder? Results from the Texas Medication Algorithm Project. Psychological Medicine, 35(12), 1695–1706. https://doi.org/10.1017/S0033291705005933
   PubMed Web of Science ®Google Scholar
• Fang, M., Filia, K., Davey, C., McGorry, P., Berk, M., & Cotton, S. (2019). Poster: Are current guidelines appropriate for youth with early stage Bipolar Disorder? A prospective observational study of the impact of guideline concordant care on 18-month symptomatic and functional outcomes. Bipolar Disorders, 21(S1), 66–147. https://doi.org/10.1111/bdi.12746
   Google Scholar
• Freeland, K. N., Cogdill, B. R., Ross, C. A., Sullivan, C. O., Drayton, S. J., VandenBerg, A. M., Short, E. B., & Garrison, K. L. (2015). Adherence to evidence-based treatment guidelines for bipolar depression in an inpatient setting. American Journal of Health-System Pharmacy: AJHP : official Journal of the American Society of Health-System Pharmacists, 72(23 Suppl 3), S156–S161. https://doi.org/10.2146/sp150023
   PubMed Web of Science ®Google Scholar
• Goodwin, G. M, Consensus Group of the British Association for Psychopharmacology (2003). Evidence-based guidelines for treating bipolar disorder: Recommendations from the British Association for Psychopharmacology. Journal of Psychopharmacology (Oxford, England), 17(2), 149–173. https://doi.org/10.1177/0269881103017002003
   PubMed Web of Science ®Google Scholar
• Hindley, G., Stephenson, L. A., Keene, A. R., Rifkin, L., Gergel, T., & Owen, G. (2019). "Why have I not been told about this?": a survey of experiences of and attitudes to advance decision-making amongst people with bipolar?” Wellcome Open Research, 4, 16. https://doi.org/10.12688/wellcomeopenres.14989.2
   PubMedGoogle Scholar
• Jankovich, J., Richards, F., Berrisford, G., & Priebe, S. (2020). Advance statements in adult mental healthcare: an update. British Journal of Psychiatry Advances, 26 (2), 109–115.
   Google Scholar
• Kessing, L. V., Hansen, H. V., Hvenegaard, A., Christensen, E. M., Dam, H., Gluud, C., & Wetterslev, J, Early Intervention Affective Disorders (EIA) Trial Group (2013). Treatment in a specialised out-patient mood disorder clinic v. standard out-patient treatment in the early course of bipolar disorder: randomised clinical trial. British Journal of Psychiatry, 202(3), 212–219. https://doi.org/10.1192/bjp.bp.112.113548
   PubMed Web of Science ®Google Scholar
• Lenzer, J. (2013). Why we can't trust clinical guidelines. BMJ (Clinical Research ed.), 346, f3830. https://doi.org/10.1136/bmj.f3830
   PubMed Web of Science ®Google Scholar
• McCrone, P., Dhanasiri, S., Patel, A., Knapp, M., & Lawton-Smith, S. (2008). Paying the price: the cost of mental health care in England to 2026. King’s Fund.
   Google Scholar
• Morriss, R. (2008). Implementing clinical guidelines for bipolar disorder. Psychology and Psychotherapy, 81(Pt 4), 437–458. https://doi.org/10.1348/147608308X278105
   PubMedGoogle Scholar
• Morriss, R. (2015). Mandatory implementation of NICE Guidelines for the care of bipolar disorder and other conditions in England and Wales. BMC Medicine, 13(1), 246. https://doi.org/10.1186/s12916-015-0464-7
   PubMedGoogle Scholar
• Morriss, R., Mudigonda, M., Bartlett, P., Chopra, A., & Jones, S. (2020). National survey and analysis of barriers to the utilisation of the 2005 mental capacity act by people with bipolar disorder in England and Wales. Journal of Mental Health, 29(2), 131–138. https://doi.org/10.1080/09638237.2017.1340613
   PubMed Web of Science ®Google Scholar
• National Collaborating Centre for Mental Health (2011). Service user experience in adult mental health: improving the experience of care for people using adult NHS mental health services. CG136. British Psychological Society and Gaskell.
   Google Scholar
• National Statistics. 2019. English indices of deprivation 2019 https://www.gov.uk/government/statistics/english-indices-of-deprivation-2019
   Google Scholar
• NHS Commissioning Board (2013). Commissioning policy: Implementation and funding of guidance produced by the National Institute for Health and Clinical Excellence. NHS Commissioning Board.
   Google Scholar
• NICE (2006). Bipolar disorder: the management of bipolar disorder in adults, children and adolescents, in primary and secondary care. CG38. British Psychological Society and Gaskell. https://www.nice.org.uk/guidance/cg38
   Google Scholar
• NICE (2012). The guidelines manual. PMG6. NICE.
   Google Scholar
• NICE (2014). Service user experience in adult mental health: National Institute for Health and Clinical Excellence. Bipolar disorder (update): the management of bipolar disorder in adults, children and adolescents in primary and secondary care. In NICE (Ed.), Clinical Guideline 185.
   Google Scholar
• NICE (2017). NICE guidance and current practice report: Mental Health. NICE https://www.nice.org.uk/media/default/about/what-we-do/into-practice/measuring-uptake/nice-guidance-and-current-practice-report-mental-health.pdf
   Google Scholar
• Price, S. J., Whittle, I. R., Ashkan, K., Grundy, P., Cruickshank, G., & Group, U.-H S, UK-HGG Study Group (2012). NICE guidance on the use of carmustine wafers in high grade gliomas: a national study on variation in practice. British Journal of Neurosurgery, 26(3), 331–335. https://doi.org/10.3109/02688697.2012.673651
   PubMed Web of Science ®Google Scholar
• Renes, J. W., Regeer, E. J., Hoogendoorn, A. W., Nolen, W. B., & Kupka, R. W. (2018). A nationwide study on concordance with multimodal treatment guidelines in bipolar disorder. International Journal of Bipolar Disorders, 6(1), 22. https://doi.org/10.1186/s40345-018-0130-z
   PubMedGoogle Scholar
• Samalin, L., & Llorca, P. M. (2012). [Methodological approach to inter "guideline" variability in the management of bipolar disorders]“” . L'Encephale, 38(2), 126–132. https://doi.org/10.1016/j.encep.2011.07.004
   PubMed Web of Science ®Google Scholar
• Stephenson, L. A., Gergel, T., Ruck Keene, A., Rifkin, L., & Owen, G. (2020). The PACT advance decision-making template: preparing for Mental Health Act reforms with co-production, focus groups and consultation. International Journal of Law and Psychiatry, 71, 101563. https://doi.org/10.1016/j.ijlp.2020.101563
   PubMed Web of Science ®Google Scholar
• Vos, T., Flaxman, A. D., Naghavi, M., Lozano, R., Michaud, C., Ezzati, M., Shibuya, K., Salomon, J. A., Abdalla, S., Aboyans, V., Abraham, J., Ackerman, I., Aggarwal, R., Ahn, S. Y., Ali, M. K., Alvarado, M., Anderson, H. R., Anderson, L. M., Andrews, K. G., Memish, Z. A. (2012). Years lived with disability (YLDs) for 1160 sequelae of 289 diseases and injuries 1990-2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet (London, England), 380(9859), 2163–2196. https://doi.org/10.1016/S0140-6736(12)61729-2
   PubMed Web of Science ®Google Scholar
• Woolf, S. H., Grol, R., Hutchinson, A., Eccles, M., & Grimshaw, J. (1999). Clinical guidelines: potential benefits, limitations, and harms of clinical guidelines. BMJ (Clinical Research ed.), 318(7182), 527–530. https://doi.org/10.1136/bmj.318.7182.527
   PubMed Web of Science ®Google Scholar
• Ziebland, S., Locock, L., Fitzpatrick, R., Stokes, T., Robert, G., O’Flynn, N., Bennert, K., Ryan, S., Thomas, V., & Martin, A. (2014). Informing the development of NICE (National Institute for Health and Care Excellence) quality standards through secondary analysis of qualitative narrative interviews on patients’ experiences. NIHR Journals Library. Health Services and Delivery Research, 2(45), 1–206. https://doi.org/10.3310/hsdr02450
   Google Scholar