1,062
Views
2
CrossRef citations to date
0
Altmetric
Original Articles

Assessing a digital peer support self-management intervention for adults with serious mental illness: feasibility, acceptability, and preliminary effectiveness

, , , , , & show all
Pages 833-841 | Received 31 Mar 2021, Accepted 16 Dec 2021, Published online: 28 Jan 2022

References

  • Bartels, S. J., Pratt, S. I., Mueser, K. T., Forester, B. P., Wolfe, R., Cather, C., Xie, H., McHugo, G. J., Bird, B., Aschbrenner, K. A., Naslund, J. A., & Feldman, J. (2014). Long-term outcomes of a randomized trial of integrated skills training and preventive healthcare for older adults with serious mental illness. The American Journal of Geriatric Psychiatry, 22(11), 1251–1261. https://doi.org/10.1016/j.jagp.2013.04.013
  • Bartels, S. J., Pratt, S. I., Mueser, K. T., Naslund, J. A., Wolfe, R. S., Santos, M., Xie, H., & Riera, E. G. (2014). Integrated IMR for psychiatric and general medical illness for adults aged 50 or older with serious mental illness. Psychiatric Services, 65(3), 330–337. https://doi.org/10.1176/appi.ps.201300023
  • Becker, H., Stuifbergen, A., Oh, H., & Hall, S. (1993). Self-rated abilities for health practices: A health self-efficacy measure. Health Values, 17(5), 42–50.
  • Chinman, M., George, P., Dougherty, R. H., Daniels, A. S., Ghose, S. S., Swift, A., & Delphin-Rittmon, M. E. (2014). Peer support services for individuals with serious mental illnesses: Assessing the evidence. Psychiatric Services, 65(4), 429–441. https://doi.org/10.1176/appi.ps.201300244
  • Corrigan, P. (2002). Empowerment and serious mental illness: Treatment partnerships and community opportunities. The Psychiatric Quarterly, 73(3), 217–228. https://doi.org/10.1023/a:1016040805432
  • Corrigan, P. W., Salzer, M., Ralph, R. O., Sangster, Y., & Keck, L. (2004). Examining the factor structure of the recovery assessment scale. Schizophrenia Bulletin, 30(4), 1035–1041. https://doi.org/10.1093/oxfordjournals.schbul.a007118
  • Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). Mini-mental status: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189–198. https://doi.org/10.1016/0022-3956(75)90026-6
  • Fortuna, K. (in press). Systematic Review of Peer-Supported Digital Mental Health Interventions for People with a Lived Experience of a Serious Mental Illness. Mental Health.
  • Fortuna, K. L., Brusilovskiy, E., Snethen, G., Brooks, J. M., Townley, G., & Salzer, M. S. (2020). Loneliness and its association with physical health conditions and psychiatric hospitalizations in people with serious mental illness. Social Work in Mental Health, 18(5), 571–515. https://doi.org/10.1080/15332985.2020.1810197
  • Fortuna, K. L., DiMilia, P. R., Lohman, M. C., Bruce, M. L., Zubritsky, C. D., Halaby, M. R., Walker, R. M., Brooks, J. M., & Bartels, S. J. (2018). Feasibility, acceptability, and preliminary effectiveness of a peer-delivered and technology supported self-management intervention for older adults with serious mental illness. The Psychiatric Quarterly, 89(2), 293–305. https://doi.org/10.1007/s11126-017-9534-7
  • Fortuna, K. L., DiMilia, P. R., Lohman, M. C., Cotton, B. P., Cummings, J. R., Bartels, S. J., Batsis, J. A., & Pratt, S. I. (2020). Systematic review of the impact of behavioral health homes on cardiometabolic risk factors for adults with serious mental illness. Psychiatric Services, 71(1), 57–74. https://doi.org/10.1176/appi.ps.201800563
  • Fortuna, K. L., Myers, A. L., Walsh, D., Walker, R., Mois, G., & Brooks, J. M. (2020). Strategies to increase peer support specialists' capacity to use digital technology in the era of COVID-19: Pre-post study. JMIR Mental Health, 7(7), e20429. https://doi.org/10.2196/20429
  • Fortuna, K. L., Naslund, J. A., LaCroix, J. M., Bianco, C. L., Brooks, J. M., Zisman-Ilani, Y., Muralidharan, A., & Deegan, P. (2020). Digital peer support mental health interventions for people with a lived experience of a serious mental illness: Systematic review. JMIR Mental Health, 7(4), e16460. https://doi.org/10.2196/16460
  • Fortuna, K. L., Venegas, M., Umucu, E., Mois, G., Walker, R., & Brooks, J. M. (2019). The future of peer support in digital psychiatry: Promise, progress, and opportunities. Current Treatment Options in Psychiatry, 6(3), 221–231. (https://doi.org/10.1007/s40501-019-00179-7
  • Fortuna, K., Barr, P., Goldstein, C., Walker, R., Brewer, L., Zagaria, A., & Bartels, S. (2019). Application of community-engaged research to inform the development and implementation of a peer-delivered mobile health intervention for adults with serious mental illness. Journal of Participatory Medicine, 11(1), e12380. https://doi.org/10.2196/12380
  • Garber-Epstein, P., Zisman-Ilani, Y., Levine, S., & Roe, D. (2013). Comparative impact of professional mental health background on ratings of consumer outcome and fidelity in an illness management and recovery program. Psychiatric Rehabilitation Journal, 36(4), 236–242. https://doi.org/10.1037/prj0000026
  • Gunnell, D., Appleby, L., Arensman, E., Hawton, K., John, A., Kapur, N., Khan, M., O'Connor, R. C., & Pirkis, J. (2020). Suicide risk and prevention during the COVID-19 pandemic. The Lancet Psychiatry, 7(6), 468–471. https://doi.org/10.1016/S2215-0366(20)30171-1
  • Hasson-Ohayon, I., Roe, D., & Kravetz, S. (2008). The psychometric properties of the illness management and recovery scale: Client and clinician versions. Psychiatry Research, 160(2), 228–235. https://doi.org/10.1016/j.psychres.2007.06.013
  • Haugan, G., Utvaer, B. K. S., & Moksnes, U. K. (2013). The Herth Hope Index − A psychometric study among cognitively intact nursing home patients. Journal of Nursing Measurement, 21(3), 378–400. https://doi.org/10.1891/1061-3749.21.3.378
  • Herth, K. (1992). Abbreviated instrument to measure hope: Development and psychometric evaluation. Journal of Advanced Nursing, 17(10), 1251–1259. https://doi.org/10.1111/j.1365-2648.1992.tb01843.x
  • Hunsaker, A., Terhorst, L., Gentry, A., & Lingler, J. H. (2016). Measuring hope among families impacted by cognitive impairment. Dementia, 15(4), 596–608. https://doi.org/10.1177/1471301214531590
  • Jacobson, N., & Greenley, D. (2001). What is recovery? A conceptual model and explication. Psychiatric Services, 52(4), 482–486. https://doi.org/10.1176/appi.ps.52.4.482
  • Kaufman, L., Kuhn, W., & Stevens Manser, S. (2016). Peer specialist training and certification programs: A national overview. Texas Institute for Excellence in Mental Health, School of Social Work, University of Texas at Austin.
  • Lorig, K. R., Sobel, D. S., Ritter, P. L., Laurent, D., & Hobbs, M. (2001). Effect of a self-management program on patients with chronic disease. Effective Clinical Practice, 4(6), 256–262.
  • Mauritz, M. W., Goossens, P. J. J., Draijer, N., & van Achterberg, T. (2013). Prevalence of interpersonal trauma exposure and trauma-related disorders in severe mental illness. European Journal of Psychotraumatology, 4(1), 19985. https://doi.org/10.3402/ejpt.v4i0.19985
  • Mueser, K. T., Meyer, P. S., Penn, D. L., Clancy, R., Clancy, D. M., & Salyers, M. P. (2006). The illness management and recovery program: Rationale, development, and preliminary findings. Schizophrenia Bulletin, 32(Suppl 1), S32–S43. https://doi.org/10.1093/schbul/sbl022
  • Resnick, S. G., Fontana, A., Lehman, A. F., & Rosenheck, R. A. (2005). An empirical conceptualization of the recovery orientation. Schizophrenia Research, 75(1), 119–128. https://doi.org/10.1016/j.schres.2004.05.009
  • Riehm, K. E., Kwakkenbos, L., Carrier, M.-E., Bartlett, S. J., Malcarne, V. L., Mouthon, L., Nielson, W. R., Poiraudeau, S., Nielsen, K., Baron, M., Frech, T., Hudson, M., Pope, J., Sauve, M., Suarez-Almazor, M. E., Wigley, F. M., & Thombs, B. D. (2016). Validation of the self-efficacy for managing chronic disease scale: A scleroderma patient-centered intervention network cohort study. Arthritis Care & Research, 68(8), 1195–2000., https://doi.org/10.1002/acr.22807
  • Rogers, E. S., Ralph, R. O., & Salzer, M. S. (2010). Validating the empowerment scale with a multisite sample of consumers of mental health services. Psychiatric Services, 61(9), 933–936. https://doi.org/10.1176/ps.2010.61.9.933
  • Rotondi, A. J., Sinkule, J., Haas, G. L., Spring, M., Litschge, C., Newhill, C., Ganguli, R., & Anderson, C. (2007). Designing websites for persons with cognitive deficits: Design and usability of a psychoeducational intervention for persons with severe mental illness. Psychological Services, 4(3), 202–224. https://doi.org/10.1037/1541-1559.4.3.202
  • Rotondi, A. J., Spring, M. R., Hanusa, B. H., Eack, S. M., & Haas, G. L. (2017). Designing eHealth applications to reduce cognitive effort for persons with severe mental illness: Page complexity, navigation simplicity, and comprehensibility. JMIR Human Factors, 4(1), e1. https://doi.org/10.2196/humanfactors.6221
  • Russell, D. (1996). UCLA Loneliness Scale (Version 3): Reliability, validity, and factor structure. Journal of Personality Assessment, 66(1), 20–40. https://doi.org/10.1207/s15327752jpa6601_2
  • Russell, D., Peplau, L., & Cutrona, C. (1980). The Revised UCLA loneliness scale: Concurrent and discriminate validity evidence. Journal of Personality and Social Psychology, 39(3), 472–480. https://doi.org/10.1037/0022-3514.39.3.472
  • Russell, D., Peplau, L., & Ferguson, M. (1978). Developing a measure of loneliness. Journal of Personality Assessment, 42(3), 290–294. https://doi.org/10.1207/s15327752jpa4203_11
  • Salyers, M. P., Godfrey, J. L., Mueser, K. T., & Labriola, S. (2007). Measuring illness management outcomes: A psychometric study of clinician and consumer rating scales for illness self management and recovery. Community Mental Health Journal, 43(5), 459–480. (https://doi.org/10.1007/s10597-007-9087-6
  • Sherbourne, C. D., & Stewart, A. (1991). The MOS social support survey. Social Science & Medicine, 32(6), 705–714. https://doi.org/10.1016/0277-9536(91)90150-B
  • Sherbourne, C. S. (1993). A The MOS Social Support Survey. RAND Corporation.
  • Simmons, M. B., Batchelor, S., Dimopoulos-Bick, T., & Howe, D. (2017). The choice project: Peer workers promoting shared decision making at a youth mental health service. Psychiatric Services, 68(8), 764–770. https://doi.org/10.1176/appi.ps.201600388
  • Sklar, M., Sarkin, A., Gilmer, T., & Groessl, E. (2012). The psychometric properties of the illness management and recovery scale in a large American public mental health system. Psychiatry Research, 199(3), 220–227. https://doi.org/10.1016/j.psychres.2012.03.013
  • Solomon, P. (2004). Peer support/peer provided services underlying processes, benefits, and critical ingredients. Psychiatric Rehabilitation Journal, 27(4), 392–401. https://doi.org/10.2975/27.2004.392.401
  • Tremeau, F. (2016). Loneliness in schizophrenia and its possible correlates. An exploratory study. Psychiatry Research, 246, 211–217.
  • Tveiten, S., Haukland, M., & Onstad, F. (2011). The patient’s voice-empowerment in a psychiatric context. Nordic Journal of Nursing Research, 31(3), 20–24. https://doi.org/10.1177/010740831103100305
  • Whiteman, K. L., Naslund, J. A., DiNapoli, E. A., Bruce, M. L., & Bartels, S. J. (2016). Systematic review of integrated general medical and psychiatric self-management interventions for adults with serious mental illness. Psychiatric Services, 67(11), 1213–1255. https://doi.org/10.1176/appi.ps.201500521
  • Whiteman, K., Lohman, M., & Bartels, S. (2017). A Peer- and Technology-Supported Self-Management Intervention. Psychiatric Services, 68(4), 420. https://doi.org/10.1176/appi.ps.68404
  • Fortuna, K., Lohman, M., Gill Bruce, M., & Bartels, S. (2017). Adapting a psychosocial intervention for smartphone delivery to middle-aged and older adults with serious mental illness. American Journal of Geriatric Psychiatry, 25(8), 819–828. https://doi.org/10.1016/j.jagp.2016.12.007
  • World, Health, and Organization, About social determinants of health (2017).
  • Wowra, S., & McCarter, R. (1999). Validation of the empowerment scale with an outpatient mental health population. Psychiatric Services, 5(7), 959–961.
  • Yamaguchi, S., Taneda, A., Matsunaga, A., Sasaki, N., Mizuno, M., Sawada, Y., Sakata, M., Fukui, S., Hisanaga, F., Bernick, P., & Ito, J. (2017). Efficacy of a peer-led, recovery-oriented shared decision-making system: A pilot randomized controlled trial. Psychiatric Services, 68(12), 1307–1311.
  • Zisman-Ilani, Y., Barnett, E., Harik, J., Pavlo, A., & O’Connell, M. (2017). Expanding the concept of shared decision making for mental health: Systematic search and scoping review of interventions. Mental Health Review Journal, 22(3), 191–213. https://doi.org/10.1108/MHRJ-01-2017-0002

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.