References
- Berry, N., Lobban, F., Belousov, M., Emsley, R., Nenadic, G., & Bucci, S. (2017). #WhyWeTweetMH: Understanding why people use Twitter to discuss mental health problems. Journal of Medical Internet Research, 19(4), e107. https://doi.org/https://doi.org/10.2196/jmir.6173
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/https://doi.org/10.1191/1478088706qp063oa
- Budenz, A., Klassen, A., Purtle, J., Yom Tov, E., Yudell, M., & Massey, P. (2020). Mental illness and bipolar disorder on Twitter: Implications for stigma and social support. Journal of Mental Health (Abingdon, England), 29(2), 191–199.
- Budhwani, H., & De, P. (2019). Perceived stigma in health care settings and the physical and mental health of people of color in the United States. Health Equity, 3(1), 73–80. https://doi.org/https://doi.org/10.1089/heq.2018.0079
- Corrigan, P. W., Morris, S. B., Michaels, P. J., Rafacz, J. D., & Rüsch, N. (2012). Challenging the public stigma of mental illness: A meta-analysis of outcome studies. Psychiatric Services, 63(10), 963–973. https://doi.org/https://doi.org/10.1176/appi.ps.201100529
- Croft, B., Ostrow, L., Italia, L., Camp-Bernard, A., & Jacobs, Y. (2016). Peer interviewers in mental health services research. The Journal of Mental Health Training, Education and Practice, 11(4), 234–243.
- Evans-Lacko, S., London, J., Little, K., Henderson, C., & Thornicroft, G. (2010). Evaluation of a brief anti-stigma campaign in Cambridge: Do short-term campaigns work? BMC Public Health, 10(1), 1–6. https://doi.org/https://doi.org/10.1186/1471-2458-10-339
- Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Prentice Hall.
- Green, G., Hayes, C., Dickinson, D., Whittaker, A., & Gilheany, B. (2003). A mental health service users perspective to stigmatisation. Journal of Mental Health, 12(3), 223–234. https://doi.org/https://doi.org/10.1080/0963823031000118212
- Green, L. (2022). Community principles on ethical data sharing presented at Bloomberg’s data for good exchange. https://www.dominodatalab.com/blog/community-principles-ethical-data-sharing-presented-bloombergs-data-good-exchange/.
- Guest, G., Namey, E., & McKenna, K. (2017). How many focus groups are enough? Building an evidence base for nonprobability sample sizes. Field Methods, 29(1), 3–22. https://doi.org/https://doi.org/10.1177/15258
- Gulliver, A., Griffiths, K. M., Christensen, H., Mackinnon, A., Calear, A. L., Parsons, A., Bennett, K., Batterham, P. J., & Stanimirovic, R. (2012). Internet-based interventions to promote mental health help-seeking in elite athletes: An exploratory randomized controlled trial. Journal of Medical Internet Research, 14(3), e69. https://doi.org/https://doi.org/10.2196/jmir.186
- Hudson, G., Jansli, S., Erturk, S., Morris, D., Odoi, C., Clayton-Turner, A., Bray, V., Yourston, G., Clouden, D., Proudfoot, D., Cornwall, A., Waldron, C., Wykes, T., Jilka, S. (2022). Investigation of Carers' Perspectives of Dementia Misconceptions on Twitter: Focus Group Study JMIR Aging, 5(1), e30388. https://doi.org/https://doi.org/10.2196/30388
- Jilka, S., Odoi, C.M., van Bilsen, J. et al. (2022). Identifying schizophrenia stigma on Twitter: a proof of principle model using service user supervised machine learning. Schizophr, 8, 1. https://doi.org/https://doi.org/10.1038/s41537-021-00197-6
- Karamouzian, M., Knight, R., Davis, W. M., Gilbert, M., & Shoveller, J. (2018). Stigma associated with sexually transmissible infection testing in an online testing environment: Examining the perspectives of youth in Vancouver, Canada. Sexual Health, 15(1), 46–53. https://doi.org/https://doi.org/10.1071/SH17089
- Laverack, G. (2013). Health activism: Foundations and strategies. Sage.
- Masciantonio, A., Bourguignon, D., Bouchat, P., Balty, M., & Rimé, B. (2021). Don’t put all social network sites in one basket: Facebook, Instagram, Twitter, TikTok, and their relations with well-being during the COVID-19 pandemic. PLoS One, 16(3), e0248384. https://doi.org/https://doi.org/10.1371/journal.pone.0248384
- Matthews, S., Dwyer, R., & Snoek, A. (2017). Stigma and self-stigma in addiction. Journal of Bioethical Inquiry, 14(2), 275–286.
- Niedzwiedz, C. L., Green, M. J., Benzeval, M., Campbell, D., Craig, P., Demou, E., Leyland, A., Pearce, A., Thomson, R., Whitley, E., & Katikireddi, S. V. (2021). Mental health and health behaviours before and during the initial phase of the COVID-19 lockdown: Longitudinal analyses of the UK Household Longitudinal Study. Journal of Epidemiology and Community Health, 75(3), 224–231. https://doi.org/https://doi.org/10.1136/jech-2020-215060
- NIHR Maudsley Biomedical Research Centre. (2021). https://www.maudsleybrc.nihr.ac.uk/patients-public/support-for-researchers/
- Ostrow, L., Penney, D., Stuart, E., & Leaf, P. J. (2017). Web-based survey data collection with peer support and advocacy organizations: Implications of participatory methods. Progress in Community Health Partnerships: Research, Education, and Action, 11(1), 45–52. https://doi.org/https://doi.org/10.1353/cpr.2017.0006.
- Pachankis, J. E., Hatzenbuehler, M. L., Wang, K., Burton, C. L., Crawford, F. W., Phelan, J. C., & Link, B. G. (2018). The burden of stigma on health and well-being: A taxonomy of concealment, course, disruptiveness, aesthetics, origin, and peril across 93 stigmas. Personality & Social Psychology Bulletin, 44(4), 451–474. https://doi.org/https://doi.org/10.1177/0146167217741313
- Pavelko, R., & Myrick, J. G. (2016). Tweeting and trivializing: How the trivialization of obsessive–compulsive disorder via social media impacts user perceptions, emotions, and behaviors. Imagination. Cognition and Personality, 36(1), 41–63. https://doi.org/https://doi.org/10.1177/0276236615598957
- Pieh, C., Budimir, S., Delgadillo, J., Barkham, M., Fontaine, J. R. J., & Probst, T. (2021). Mental health during COVID-19 lockdown in the United Kingdom. Psychosomatic Medicine, 83(4), 328–337. https://doi.org/https://doi.org/10.1097/PSY.0000000000000871
- Pierce, M., Hope, H., Ford, T., Hatch, S., Hotopf, M., John, A., Kontopantelis, E., Webb, R., Wessely, S., McManus, S., & Abel, K. M. (2020). Mental health before and during the COVID-19 pandemic: A longitudinal probability sample survey of the UK population. The Lancet. Psychiatry, 7(10), 883–892. https://doi.org/https://doi.org/10.1016/S2215-0366(20)30308-4
- Pyett, P. M. (2003). Validation of qualitative research in the “real world”. Qualitative Health Research, 13(8), 1170–1179. https://doi.org/https://doi.org/10.1177/1049732303255686
- Robinson, P., Turk, D., Jilka, S., & Cella, M. (2019). Measuring attitudes towards mental health using social media: Investigating stigma and trivialisation. Social Psychiatry and Psychiatric Epidemiology, 54(1), 51–58.
- Rose, D. (2018). Participatory research: Real or imagined. Social Psychiatry and Psychiatric Epidemiology, 53(8), 765–771. https://doi.org/https://doi.org/10.1007/s00127-018-1549-3
- Spagnolo, A. B., Murphy, A. A., & Librera, L. A. (2008). Reducing stigma by meeting and learning from people with mental illness. Psychiatric Rehabilitation Journal, 31(3), 186–193. https://doi.org/https://doi.org/10.2975/31.3.2008.186.193
- Statistica. (2021). https://www.statista.com/statistics/1106498/home-media-consumption-coronavirus-worldwide-by-country/#statisticContainer
- Sweeney, A., Greenwood, K. E., Williams, S., Wykes, T., & Rose, D. S. (2013). Hearing the voices of service user researchers in collaborative qualitative data analysis: The case for multiple coding. Health Expectations, 16(4), e89–e99.
- Taylor, S. E., & Brown, J. D. (1988). Illusion and well-being: A social psychological perspective on mental health. Psychological Bulletin, 103(2), 193–210. https://doi.org/https://doi.org/10.1037/0033-2909.103.2.193
- Turan, B., Budhwani, H., Fazeli, P. L., Browning, W. R., Raper, J. L., Mugavero, M. J., & Turan, J. M. (2017). How does stigma affect people living with HIV? The mediating roles of internalized and anticipated HIV stigma in the effects of perceived community stigma on health and psychosocial outcomes. AIDS and Behavior, 21(1), 283–291. https://doi.org/https://doi.org/10.1007/s10461-016-1451-5
- Tweepy. (2021). https://docs.tweepy.org/en/latest/api.html.
- Twitter. (2021). https://about.twitter.com/company. [WebCite Cache Twitter. Dev. The streaming APIs]. https://dev.twitter.com/streaming/overview.
- Vindegaard, N., & Benros, M. E. (2020). COVID-19 pandemic and mental health consequences: Systematic review of the current evidence. Brain, Behavior, and Immunity, 89, 531–542.
- Wahl, O. F., & Harman, C. R. (1989). Family views of stigma. Schizophrenia Bulletin, 15(1), 131–139.
- Wykes, T. (2014). Great expectations for participatory research: What have we achieved in the last ten years? World Psychiatry, 13(1), 24–27. https://doi.org/https://doi.org/10.1002/wps.20086
- Yap, M., Reavley, N., & Jorm, A. (2013). Where would young people seek help for mental disorders and what stops them? Findings from an Australian national survey. Journal of Affective Disorders, 147(1–3), 255–261. https://doi.org/https://doi.org/10.1016/j.jad.2012.11.014
- Zhong, B., Huang, Y., & Liu, Q. (2021). Mental health toll from the coronavirus: Social media usage reveals Wuhan residents' depression and secondary trauma in the COVID-19 outbreak. Computers in Human Behavior, 114, 106524. https://doi.org/https://doi.org/10.1016/j.chb.2020.106524