Coping profiles of family caregivers of people with schizophrenia: differentiations between parent and sibling caregivers

References

• Asparouhov, T., & Muthén, B. (2014). Auxiliary variables in mixture modeling : Three-step approaches using M plus. Structural Equation Modeling: A Multidisciplinary Journal, 21(3), 329–341. https://doi.org/10.1080/10705511.2014.915181
   Web of Science ®Google Scholar
• Ben-Zur, H. (2009). Coping styles and affect. International Journal of Stress Management, 16(2), 87–101. https://doi.org/10.1037/a0015731
   Google Scholar
• Chadda, R. K. (2014). Caring for the family caregivers of persons with mental illness. Indian Journal of Psychiatry, 56(3), 221–227. https://doi.org/10.4103/0019-5545.140616
   PubMed Web of Science ®Google Scholar
• Coloni-Terrapon, C., Favrod, J., Clément-Perritaz, A., Gothuey, I., & Rexhaj, S. (2019). Optimism and the psychological recovery process among informal caregivers of inpatients suffering from depressive disorder : A descriptive exploratory study. Frontiers in Psychiatry, 10, 972. https://doi.org/10.3389/fpsyt.2019.00972
   PubMed Web of Science ®Google Scholar
• Creado, D. A., Parkar, S. R., & Kamath, R. M. (2006). A comparison of the level of functioning in chronic schizophrenia with coping and burden in caregivers. Indian Journal of Psychiatry, 48(1), 27–33. https://doi.org/10.4103/0019-5545.31615
   PubMedGoogle Scholar
• Davtian, H. (2003). Les frères et soeurs de malades psychiques, résultats de l’enquête et réflexions. Unafam.
   Google Scholar
• Davtian, H. (2010). Le handicap psychique et son retentissement sur la fratrie. Annales Médico-Psychologiques, Revue Psychiatrique, 168(10), 773–775. https://doi.org/10.1016/j.amp.2010.09.010
   Google Scholar
• Dillinger, R. L., & Kersun, J. M. (2020). Caring for caregivers: Understanding and meeting their needs in coping with first episode psychosis. Early Intervention in Psychiatry, 14(5), 528–534. https://doi.org/10.1111/eip.12870
   PubMed Web of Science ®Google Scholar
• Dodge, C. E., & Smith, A. P. (2019). Caregiving as role transition : Siblings’ experiences and expectations when caring for a brother or sister with schizophrenia. Canadian Journal of Community Mental Health, 38(2), 35–47. https://doi.org/10.7870/cjcmh-2019-005
   Google Scholar
• Doron, J., Trouillet, R., Maneveau, A., Ninot, G., & Neveu, D. (2015). Coping profiles, perceived stress and health-related behaviors: A cluster analysis approach. Health Promotion International, 30(1), 88–100. https://doi.org/10.1093/heapro/dau090
   PubMed Web of Science ®Google Scholar
• Eisenbarth, C. (2012). Coping profiles and psychological distress: A cluster analysis. North American Journal of Psychology, 14(3), 485–496.
   Google Scholar
• Grandón, P., Jenaro, C., & Lemos, S. (2008). Primary caregivers of schizophrenia outpatients: Burden and predictor variables. Psychiatry Research, 158(3), 335–343. https://doi.org/10.1016/j.psychres.2006.12.013
   PubMed Web of Science ®Google Scholar
• Grover, S., Chakrabarti, & S., Pradyumna. (2015). Coping among the caregivers of patients with schizophrenia. Industrial Psychiatry Journal, 24(1), 5–11., https://doi.org/10.4103/0972-6748.160907
   PubMedGoogle Scholar
• Guan, Z., Wang, Y., Lam, L., Cross, W., Wiley, J. A., Huang, C., Bai, X., Sun, M., & Tang, S. (2021). Severity of illness and distress in caregivers of patients with schizophrenia: Do internalized stigma and caregiving burden mediate the relationship? Journal of Advanced Nursing, 77(3), 1258–1270. https://doi.org/10.1111/jan.14648
   PubMed Web of Science ®Google Scholar
• Holahan, C. J., Moos, R. H., Holahan, C. K., Brennan, P. L., & Schutte, K. K. (2005). Stress generation, avoidance coping, and depressive symptoms: A 10-year model. Journal of Consulting and Clinical Psychology, 73(4), 658–666. https://doi.org/10.1037/0022-006X.73.4.658
   PubMed Web of Science ®Google Scholar
• Jansen, J. E., Haahr, U. H., Lyse, H.-G., Pedersen, M. B., Trauelsen, A. M., & Simonsen, E. (2017). Psychological flexibility as a buffer against caregiver distress in families with psychosis. Frontiers in Psychology, 8, 1625. https://doi.org/10.3389/fpsyg.2017.01625
   PubMed Web of Science ®Google Scholar
• Kamil, S. H., & Velligan, D. I. (2019). Caregivers of individuals with schizophrenia: Who are they and what are their challenges? Current Opinion in Psychiatry, 32(3), 157–163. https://doi.org/10.1097/YCO.0000000000000492
   PubMed Web of Science ®Google Scholar
• Kate, N., Grover, S., Kulhara, P., & Nehra, R. (2013). Relationship of caregiver burden with coping strategies, social support, psychological morbidity, and quality of life in the caregivers of schizophrenia. Asian Journal of Psychiatry, 6(5), 380–388. https://doi.org/10.1016/j.ajp.2013.03.014
   PubMedGoogle Scholar
• Lanza, S. T., Tan, X., & Bray, B. C. (2013). Latent class analysis with distal outcomes: A flexible model-based approach. Structural Equation Modeling : a Multidisciplinary Journal, 20(1), 1–26. https://doi.org/10.1080/10705511.2013.742377
   PubMed Web of Science ®Google Scholar
• Lauzier-Jobin, F., & Houle, J. (2021). Caregiver support in mental health recovery : A critical realist qualitative research. Qualitative Health Research, 31(13), 2440–2453. https://doi.org/10.1177/10497323211039828
   PubMed Web of Science ®Google Scholar
• Lazarus, R. S., & Folkman, S. (1984). Stress, Appraisal, and Coping. Springer Publishing Co Inc.
   Google Scholar
• Magliano, L., Fadden, G., Economou, M., Held, T., Xavier, M., Guarneri, M., Malangone, C., Marasco, C., & Maj, M. (2000). Family burden and coping strategies in schizophrenia: 1-year follow-up data from the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology, 35(3), 109–115. https://doi.org/10.1007/s001270050192
   PubMed Web of Science ®Google Scholar
• Magliano, L., Fadden, G., Madianos, M., Almeida, J. M. C.de, Held, T., Guarneri, M., Marasco, C., Tosini, P., & Maj, M. (1998). Burden on the families of patients with schizophrenia: Results of the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology, 33(9), 405–412. https://doi.org/10.1007/s001270050073
   PubMed Web of Science ®Google Scholar
• Magliano, L., Guarneri, M., Marasco, C., Tosini, P., Morosini, P. L., & Maj, M. (1996). A new questionnaire assessing coping strategies in relatives of patients with schizophrenia: Development and factor analysis. Acta Psychiatrica Scandinavica, 94(4), 224–228. https://doi.org/10.1111/j.1600-0447.1996.tb09853.x
   PubMed Web of Science ®Google Scholar
• McFarlane, W. R. (2016). Family interventions for schizophrenia and the psychoses: A review. Family Process, 55(3), 460–482. https://doi.org/10.1111/famp.12235
   PubMed Web of Science ®Google Scholar
• Meng, N., Chen, J., Cao, B., Wang, F., Xie, X., & Li, X. (2021). Focusing on quality of life in the family caregivers of patients with schizophrenia from the perspective of family functioning. Medicine, 100(5), e24270. https://doi.org/10.1097/MD.0000000000024270
   PubMed Web of Science ®Google Scholar
• Ong, H. C., Ibrahim, N., & Wahab, S. (2016). Psychological distress, perceived stigma, and coping among caregivers of patients with schizophrenia. Psychology Research and Behavior Management, 9, 211–218. https://doi.org/10.2147/PRBM.S112129
   PubMed Web of Science ®Google Scholar
• Onwumere, J., Lotey, G., Schulz, J., James, G., Afsharzadegan, R., Harvey, R., Chu Man, L., Kuipers, E., & Raune, D. (2017). Burnout in early course psychosis caregivers: The role of illness beliefs and coping styles. Early Intervention in Psychiatry, 11(3), 237–243. https://doi.org/10.1111/eip.12227
   PubMed Web of Science ®Google Scholar
• Plessis, L., Golay, P., Wilquin, H., Favrod, J., & Rexhaj, S. (2018). Internal validity of the French version of the Family Coping Questionnaire (FCQ): A confirmatory factor analysis. Psychiatry Research, 269, 337–344. https://doi.org/10.1016/j.psychres.2018.08.021
   PubMed Web of Science ®Google Scholar
• Plessis, L., Wilquin, H., Pavani, J.-B., & Bouteyre, E. (2020). Explaining differences between sibling relationships in schizophrenia and nonclinical sibling relationships. Frontiers in Psychiatry, 11, 321. https://doi.org/10.3389/fpsyt.2020.00321
   PubMed Web of Science ®Google Scholar
• Porcelli, S., Kasper, S., Zohar, J., Souery, D., Montgomery, S., Ferentinos, P., Rujescu, D., Mendlewicz, J., Merlo Pich, E., Pollentier, S., Penninx, B. W. J. H., & Serretti, A. (2020). Social dysfunction in mood disorders and schizophrenia: Clinical modulators in four independent samples. Progress in Neuro-Psychopharmacology & Biological Psychiatry, 99, 109835. https://doi.org/10.1016/j.pnpbp.2019.109835
   PubMed Web of Science ®Google Scholar
• Rexhaj, S., Jose, A. E., Golay, P., & Favrod, J. (2016). Perceptions of schizophrenia and coping styles in caregivers: Comparison between India and Switzerland. Journal of Psychiatric and Mental Health Nursing, 23(9-10), 585–594.
   PubMed Web of Science ®Google Scholar
• Rexhaj, S., Leclerc, C., Bonsack, C., Golay, P., & Favrod, J. (2017). Feasibility and accessibility of a tailored intervention for informal caregivers of people with severe psychiatric disorders : A pilot study. Frontiers in Psychiatry, 8(178). https://doi.org/10.3389/fpsyt.2017.00178
   PubMed Web of Science ®Google Scholar
• Rexhaj, S., Python, N. V., Morin, D., Bonsack, C., & Favrod, J. (2013). Correlational study: Illness representations and coping styles in caregivers for individuals with schizophrenia. Annals of General Psychiatry, 12(1), 27. https://doi.org/10.1186/1744-859X-12-27
   PubMedGoogle Scholar
• Scazufca, M., & Kuipers, E. (1999). Coping strategies in relatives of people with schizophrenia before and after psychiatric admission. The British Journal of Psychiatry : The Journal of Mental Science, 174(2), 154–158. https://doi.org/10.1192/bjp.174.2.154
   PubMedGoogle Scholar
• Schmid, R., Schielein, T., Binder, H., Hajak, G., & Spiessl, H. (2009). The forgotten caregivers: Siblings of schizophrenic patients. International Journal of Psychiatry in Clinical Practice, 13(4), 326–337. https://doi.org/10.3109/13651500903141400
   PubMed Web of Science ®Google Scholar
• Schwarz, G. (1978). Estimating the dimension of a model. The Annals of Statistics, 6(2), 461–464. https://doi.org/10.1214/aos/1176344136
   Web of Science ®Google Scholar
• Sideridis, G. D. (2006). Coping is not an ‘either’ ‘or’: The interaction of coping strategies in regulating affect, arousal and performance. Stress and Health, 22(5), 315–327. https://doi.org/10.1002/smi.1114
   Web of Science ®Google Scholar
• Sin, J., Murrells, T., Spain, D., Norman, I., & Henderson, C. (2016). Wellbeing, mental health knowledge and caregiving experiences of siblings of people with psychosis, compared to their peers and parents: An exploratory study. Social Psychiatry and Psychiatric Epidemiology, 51(9), 1247–1255. https://doi.org/10.1007/s00127-016-1222-7
   PubMed Web of Science ®Google Scholar
• Smith, M. J., Greenberg, J. S., & Mailick Seltzer, M. (2007). Siblings of adults with schizophrenia: Expectations about future caregiving roles. The American Journal of Orthopsychiatry, 77(1), 29–37. https://doi.org/10.1037/0002-9432.77.1.29
   PubMed Web of Science ®Google Scholar
• Stamm, B. H. (2010). The concise ProQOL manual: The concise manual for the Professional Quality of Life Scale., 2nd Edition, ProQOL.org.
   Google Scholar
• Stanley, S., & Balakrishnan, S. (2021a). Informal caregiving in schizophrenia: Correlates and predictors of perceived rewards. Social Work in Mental Health, 19(3), 230–247. https://doi.org/10.1080/15332985.2021.1904089
   Web of Science ®Google Scholar
• Stanley, S., & Balakrishnan, S. (2021b). Informal caregivers of people with a diagnosis of schizophrenia: Determinants and predictors of resilience. Journal of Mental Health, 19(3), 1–8. https://doi.org/10.1080/09638237.2021.1952945
   Google Scholar
• Stein, C. H., Gonzales, S. M., Walker, K., Benoit, M. F., & Russin, S. E. (2020). Self and sibling care attitudes, personal loss, and stress-related growth among siblings of adults with mental illness. The American Journal of Orthopsychiatry, 90(6), 799–809. https://doi.org/10.1037/ort0000511
   PubMed Web of Science ®Google Scholar
• van der Meer, L., & Wunderink, C. (2019). Contemporary approaches in mental health rehabilitation. Epidemiology and Psychiatric Sciences, 28(1), 9–14. https://doi.org/10.1017/S2045796018000343
   PubMed Web of Science ®Google Scholar
• World Medical Association. (2013). World Medical Association Declaration of Helsinki: Ethical principles for medical research involving human subjects. Journal of the American Medical Association, 310(20), 2191–2194. https://doi.org/10.1001/jama.2013.281053
   PubMed Web of Science ®Google Scholar
• Young, L., Murata, L., McPherson, C., Jacob, J. D., & Vandyk, A. D. (2019). Exploring the Experiences of Parent Caregivers of Adult Children With Schizophrenia: A Systematic Review. Archives of Psychiatric Nursing, 33(1), 93–103. https://doi.org/10.1016/j.apnu.2018.08.005
   PubMed Web of Science ®Google Scholar
• Yu, W., Chen, J., Hu, J., & Hu, J. (2019). Relationship between mental health and burden among primary caregivers of outpatients with schizophrenia. Family Process, 58(2), 370–383. https://doi.org/10.1111/famp.12340
   PubMed Web of Science ®Google Scholar
• Yusuf, A. J., & Nuhu, F. T. (2011). Factors associated with emotional distress among caregivers of patients with schizophrenia in Katsina, Nigeria. Social Psychiatry and Psychiatric Epidemiology, 46(1), 11–16. https://doi.org/10.1007/s00127-009-0166-6
   PubMed Web of Science ®Google Scholar