165
Views
24
CrossRef citations to date
0
Altmetric
Research Paper

A comparison of consumer-directed and agency-directed personal assistance services programmes

, , &
Pages 518-527 | Accepted 01 Feb 2004, Published online: 07 Jul 2009

References

  • Nosek MA, Fuhrer MJ, Potter C. Life satisfaction of people with physical disabilities: relationship to personal assistance, disability status and handicap. Rehabilitation Psychology 1995; 40(3): 191– 202.
  • Richmond GW, Beatty P, Tepper S, DeJong G. The effect of consumer-directed personal assistance services on the productivity outcomes of people with disabilities. Journal of Rehabilitation Outcomes Measurement 1997; 1(4): 48– 51.
  • Doty P, Kasper J, Litvak S. Consumer-direct models of personal care: Lessons from Medicaid. Milbank Quarterly 1996; 74(3): 377– 409.
  • Tilly J, Wiener JM, Cuellar AE. Consumer-directed home and community-based services programmes in five countries: Policy issues for older people and government. Generations 2000; 24(3): 74– 83.
  • United States Census Bureau. Americans with Disabilities:1997. Household Economic Studies, Current Population Reports P70-73 [accessed on November 6, 2002]. Available at: http://www.census.- gov/hhes/www/disable.
  • Benjamin AE, Matthias R, Franke TM. Comparing consumer- direct and agency models for providing supportive services at home. Health Services Research 2000; 35(1): 351– 366.
  • Beatty PW, Richmond GW, Tepper S, DeJong, G. Personal assistance for people with physical disabilities: consumer-direction and satisfaction with services. Archives of Physical Medicine Rehabilitation 1998; 79: 674– 677.
  • Kapp MB. Enhancing autonomy and choice in selecting and directing long-term care services. Elder Law Journal 1996; 4(1): 55– 97.
  • Doty D, Kasper J, Litvak S, Taylor, H. Consumer choice and the frontline worker. Generations 1994; 18(3): 65– 70.
  • Egley L. The cost of programme models providing personal assistance services (PAS) for independent Living. 1994. Oakland, CA: World Institute on Disability.
  • Mattson-Prince J. A rational approach to long term care: comparing the independent living model with agency-based care for persons with high spinal cord injuries. Spinal Cord 1997; 35: 326– 331.
  • Mitchell JM, Kemp BJ. Satisfaction ratings and problems experienced with paid personal attendant care: Ethnic compar- isons. Topics in Geriatric Rehabilitation 1999; 14(4): 53– 67.
  • Commonwealth Fund Commission on Elderly People Living Alone, Final Report. The unfinished agenda. Improving the well- being of elderly people living alone. Oakland, CA: World Institute on Disability 1993.
  • Benjamin AE, Matthias RE, Franke T, et al. 1998; Comparing client-directed and agency models for providing supportive services at home (contract award # 100-94-00022). Los Angeles, CA: UCLA.
  • Prince MJ, Manley S, Whiteneck GG. Self-managed versus agency- provided personal assistance care for individuals with high level tetraplegia. Archives of Physical Medicine and Rehabilitation 1995; 76: 919– 923.
  • Stone RI. Consumer direction in long-term care. Generations 2000; 24(3): 5– 9.
  • Benjamin AE. Consumer-directed services at home: a new model for persons with disabilities. Health Affairs 2001; 20(6): 80– 95.
  • This project did not include individuals with developmental disabilities served by the State of Missouri, Department of Mental Health.
  • Folstein MF, Folstein SE, McHugh PR. Mini-mental state. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research 1974; 12(3): 189– 198.
  • Marshall GN, Hays RD, Sherbourne CD, Wells KB. The structure of patient satisfaction with outpatient medical care. Psychological Assessment 1993; 5(4): 477– 483.
  • Davies AR, Ware JE. GHAA’s Consumer Satisfaction Survey and User’s Manual (2nd ed.). Washington, DC: The Group Health Association of America 1991.
  • Project Hope. National Home Care Survey. 1995; Unpublished Instrument, Bethesda, MD.
  • Ware JJ, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). Conceptual framework and item selection. Medical Care 1992; 30: 473– 483.
  • Kujala S. User Involvement: a review of the benefits and challenges. Behavior and Information Technology 2003; 22: 1– 16.
  • Rose D. Partnership, co-ordination of care and the place of user involvement. Journal of Mental Health 2003; 12(1): 59– 70.
  • Hess DW, Ripley DL, McKinley WO, Tewksbury M. Predictors for return to work after spinal cord injury: a 3-year multicentre analysis. Archives of Physical Medicine and Rehabilitation 2000; 81(3): 359– 363.
  • Krause JS, Kemp B, Coker J. Depression after spinal cord injury: relation to gender, ethnicity, aging, and socioeconomic indicators. Archives of Physical Medicine and Rehabilitation 2000; 81(8): 1099– 1109.
  • Centres for Disease Control and Prevention. Summary Health Statistics for the US Population: National Health Interview Survey, 1997. Series 10, no.204 [accessed on November 6, 2002]. Available at: http://www.cdc.gov/nchs/data/series.
  • Kennedy J. Unmet and undermet need for activities of daily living and instrumental activities of daily living assistance among adults with disabilities. Medical Care 2001; 39(12): 1305– 1312.
  • Fuhrer MJ, Rintala DH, Hart KA, Clearman R, Young ME. Relationship of life satisfaction to impairment, disability, and handicap among persons with spinal cord injury living in the community. Archives of Physical Medicine and Rehabilitation 1992; 73: 552– 557.
  • Mehnert T, Krauss HH, Nadler R, Boyd M. Correlates of life satisfaction in those with disabling conditions. Rehabilitation Psychology 1990; 35: 3– 17.
  • Bushnik T. Access to equipment, participation and quality of life in aging individuals with high tetraplegia (C1 – C4). Topics in Spinal Cord Injury and Rehabilitation 2002; 7(3): 17– 27.
  • Cunningham WE, Hays RD, Ettl MK, et al. The prospective effect of access to medical care on health-related quality-of-life outcomes in patients with symptomatic HIV disease. Medical Care 1998; 36(3): 295– 306.
  • Pierce CA, Richards JS, Gordon W, Tate D. Life satisfaction following spinal cord injury and the WHO model of functioning and disability. SCI Psychosocial Process 1999; 12(4):121, 124–127.
  • Putzke JD, Richards JS, Hicken BL, DeVivo MJ. Predictors of life satisfaction: a spinal cord injury cohort study. Archives of Physical Medicine and Rehabilitation 2002; 83(4): 555– 561.
  • Chase BW, Cornille TA, English RW. Life satisfaction among persons with spinal cord injuries. Journal of Rehabilitation 2000; 66(3): 14– 20.
  • Vogel LC, Klaas SJ, Lubicky JP, Anderson CJ. Long-term outcomes and life satisfaction of adults who had pediatric spinal cord injuries. Archives of Physical Medicine and Rehabilitation 1998; 79: 1496–1503.
  • Crist PA. Does quality of life vary with different types of housing among older persons? A pilot study. Physical and Occupational Therapy in Geriatrics 1999; 16(3,4): 101–116.
  • Institute of Medicine. Crossing the Quality Chasm. A New Health System for the 21st Century. Washington, DC: National Academy of Sciences, 2001.
  • Institute of Medicine. Fostering rapid advances in health care: Learning from systems demonstrations. Washington, DC: National Academies Press, 2003.
  • United States Department of Health and Human Services. President will propose $1.75 billion programme to help transition Americans with disabilities from institutions to community living [accessed on January 23, 2003]. Available at: http://www.hhs.gov/ news.
  • Weitzenkamp DA, Gerhart KA, Charlifue SW, Whiteneck GG, Savic G. Spouses of spinal cord injury survivors: the added impact of caregiving. Archives of Physical Medicine and Rehabilitation 1997; 78(8): 822– 827.
  • Kolakowsky-Hayner SA, Kishore R. Caregiver functioning after traumatic injury. Neurorehabilitation 1999; 13(1): 27– 33.
  • Crockett LJ, Schulenberg JE, Petersen AC. Congruence between objective and self-report data in a sample of young adolescents. Journal of Adolescent Research 1987; 2(4): 383– 392.
  • Sherbourne CD, Meredith LS. Quality of self-report data: a comparison of older and younger chronically ill patients. Journal of Gerontology 1992; 47(4): S204– S211.
  • Doty PJ. The cash and counseling demonstration: An experiment in consumer-directed personal assistance services. American Re- habilitation 1998; 24(3): 27– 31.
  • DeJong G, Palsbo SE, Beatty PW, Jones GC, Kroll T, Neri MT. The organisation and financing of health services for persons with disabilities. The Milbank Quarterly 2002; 80(2): 261– 301.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.