Assessment of everyday functioning in young children with disabilities: An ICF-based analysis of concepts and content of the Pediatric Evaluation of Disability Inventory (PEDI)

References

• Coster W J, Haley S M. Conceptualization and measurement of disablement in infants and young children. Infants and Young Children 1992; 4: 11–22
   Google Scholar
• Coster W J, Haley S M, Andres P L, Ludlow L H, Bond T LY, Ni P. Refining the conceptual basis for rehabilitation outcome measurement. Personal care and instrumental activities domain. Medical Care 2004; 42: 62–72
   Web of Science ®Google Scholar
• Rosenbaum P, Stewart D. The World Health Organization International Classification of Functioning, Disability, and Health: a model to guide clinical thinking, practice and research in the field of cerebral palsy. Seminars in Pediatric Neurology 2004; 11: 5–10
   PubMedGoogle Scholar
• Simeonsson R J, Lollar D, Hollowell J, Adams M. Revision of the International Classification of Impairments, Disabilities, and Handicaps. Developmental issues. Journal of Clinical Epidemiology 2000; 53: 113–124
   PubMed Web of Science ®Google Scholar
• Simeonsson R J, Leonardi M, Lollar D, Bjorck-Akesson E, Hollenweger J, Martinuzzi A. Applying the International Classification of Functioning, Disability and Health (ICF) to measure childhood disability. Disability and Rehabilitation 2003; 25: 602–610
   PubMed Web of Science ®Google Scholar
• Cohen M E, Marino R J. The tools of disability outcomes research functional status measures. Archives of Physical Medicine and Rehabilitation 2000; 81(Suppl. 2)21–29
   PubMed Web of Science ®Google Scholar
• Haley S M, Coster W J, Ludlow L H, Haltiwanger J T, Andrellos P J. Pediatric Evaluation of Disability Inventory (PEDI). Development Standardization and Administration Manual. Boston University, Boston, MA 1992
   Google Scholar
• Haley S M, Coster W J, Binda-Sundberg K. Measuring physical disablement: the contextual challenge. Physical Therapy 1994; 74: 443–451
   PubMed Web of Science ®Google Scholar
• Haley S M, Ludlow L, Coster W, Langmuir L. Self-reporting of capable versus typical functional activity performance in community-dwelling older adults: Is there a difference. Journal of Geriatric Physical Therapy 2002; 25: 3–10
   Google Scholar
• Young N L, Williams J I, Yoshida K K, Bombardier C, Wright J G. The context of measuring disability: Does it matter whether capability or performance is measured. Journal of Clinical Epidemiology 1996; 49: 1097–1101
   PubMed Web of Science ®Google Scholar
• World Health Organization. International Classification of Functioning, Disability and Health (ICF). World Health Organization, Geneva 2001
   Google Scholar
• Nagi S Z. Disability concepts revisited: Implications for prevention. Disability in America, A M Pope, A R Tarlow. National Academy Press, Washington, DC 1991
   Google Scholar
• Dumas H M, Haley S M, Bedell G M, Hull E M. Social function changes in children and adolescents with acquired brain injury during inpatient rehabilitation. Pediatric Rehabilitation 2001; 4: 177–185
   PubMedGoogle Scholar
• Ketelaar M, Vermeer A, ‘Hart H, van Petegem-van Beck E, Helders P JM. Effects of a functional therapy program on motor abilities of children with cerebral palsy. Physical Therapy 2001; 81: 1534–1545
   PubMed Web of Science ®Google Scholar
• Haley S M, Dumas H M, Ludlow L H. Variation by diagnostic and practice pattern in the mobility outcomes of inpatient rehabilitation programs for children and youth. Physical Therapy 2001; 81: 1425–1436
   PubMed Web of Science ®Google Scholar
• Dumas H M, Haley S M, Steva B J. Functional changes during inpatient rehabilitation for children with musculoskeletal diagnosis. Pediatric Physical Therapy 2002; 14: 85–91
   PubMedGoogle Scholar
• Engelbert R H, Uiterwaal C S, Gerver W, van der Net J, Pruijs H E, Helders P J. Osteogenesis imperfecta in childhood: impairment and disability: A prospective study with 4-year follow-up. Archives of Physical Medicine and Rehabilitation 2004; 85: 772–778
   PubMed Web of Science ®Google Scholar
• Østensjø S, Carlberg E B, Vøllestad N K. Motor impairments in young children with cerebral palsy: relationship to gross motor function and everyday activities. Developmental Medicine and Child Neurology 2004; 46: 580–589
   PubMed Web of Science ®Google Scholar
• Schoenmakers M AG, Gulmans V AM, Gooskens R HJ, Helders P JM. Spina bifida at the sacral level: More than minor gait disturbances. Clinical Rehabilitation 2004; 18: 178–185
   PubMed Web of Science ®Google Scholar
• Haynes S N, Richard D CS, Kubany E S. Content validity in psychological assessment: A functional approach to concepts and methods. Psychological Assessment 1995; 7: 238–247
   Web of Science ®Google Scholar
• Haley S M, Coster W J, Faas R M. A content validity study of the Pediatric Evaluation of Disability Inventory. Pediatric Physical Therapy 1991; 3: 177–178
   Google Scholar
• Jahnsen R, Berg M, Dolva A S, Høyem R. Pediatric Evaluation of Disability Inventory (PEDI). Norsk tillegg til den amerikanske manualen. Norsk Psykologforening, Oslo 2000, [In Norwegian]
   Google Scholar
• Cieza A, Brockow T, Ewert T, Aman E, Kollerits B, Chatterji S, Üstün B, Stucki G. Linking health status measurements to the International Classification of Functioning, Disability and Health. Journal of Rehabilitation Medicine 2002; 34: 205–210
   PubMed Web of Science ®Google Scholar
• The Norwegian Directorate for Health and Social Affairs. Internasjonal klassifikasjon av funksjon, funksjonshemming og helse (ICF). Aktietrykkeriet i Trondhjem, Trondheim 2003, [In Norwegian]
   Google Scholar
• Glomnes E. Noen sier noe! Kommunikasjonsteori. Landslaget for norskundervisning/Cappelen, Oslo 1991, [In Norwegian]
   Google Scholar
• Østensjø S, Carlberg E B, Vøllestad N K. Everyday functioning in young children with cerebral palsy: functional skills, caregiver assistance and modifications of the environment. Developmental Medicine and Child Neurology 2003; 45: 603–612
   PubMed Web of Science ®Google Scholar
• Tieman B L, Palisano R J, Gracely E J, Rosenbaum P L. Gross motor capability and performance of mobility in children with cerebral palsy: A comparison across home, school, and outdoors/community settings. Physical Therapy 2004; 84: 419–429
   PubMed Web of Science ®Google Scholar
• Jette A M. How measurements techniques influence estimates of disability in older populations. Social Science & Medicine 1994; 38: 937–942
   PubMed Web of Science ®Google Scholar
• Kopec J A. Concepts of disability. The activity space model. Social Science & Medicine 1995; 40: 649–656
   PubMed Web of Science ®Google Scholar
• Østensjø S, Carlberg E B, Vøllestad N K. The use and impact of assistive devices and other environmental modifications on everyday activities and care in young children with cerebral palsy. Disability and Rehabilitation 2005; 27: 849–861
   PubMed Web of Science ®Google Scholar
• Dijkers M, Whiteneck G, El-Jaroudi R. Measures of social outcomes in disability research. Archives of Physical Medicine and Rehabilitation 2000; 81(Suppl. 2)63–60
   PubMed Web of Science ®Google Scholar
• Nordmark E, Jarnlo G, Hägglund G. Comparison of the Gross Motor Function Measure and Pediatric Evaluation of Disability Inventory in assessing motor function in children undergoing selective dorsal rhizotomy. Developmental Medicine & Child Neurology 2000; 42: 245–252
   PubMed Web of Science ®Google Scholar
• Besio S. An Italian research project to study the play of children with motor disabilities: The first year of activity. Disability and Rehabilitation 2002; 24: 72–79
   PubMed Web of Science ®Google Scholar
• Brodin J. Play in children with multiple disabilities: Play with toys – A review. International Journal of Disability, Development and Education 1999; 46: 25–34
   Google Scholar
• Malone D M. Contextual factors informing play-based program planning. International Journal of Disability, Development and Education 1999; 46: 308–324
   Google Scholar
• Battaglia M, Russo E, Bolla A, Chiusso A, Bertelli S, Pellegri A, Boerri B, Martinuzzi A. International Classification of Functioning, Disability and Health in a cohort of children with cognitive, motor, and complex disabilities. Developmental Medicine & Child Neurology 2004; 46: 98–106
   PubMed Web of Science ®Google Scholar
• ICF Children and Youth online browser. Available at ICF homepage; http://www.who.int/icf [cited 2004 Des 12]
   Google Scholar
• Simeonsson R J, Leonardi M. ICF version for children and youth. Development & field trial. Meeting paper to the WHO family of international classifications network meeting, Reykjavik, Oct, 24 – 302004
   Google Scholar