Validation of the Dutch Giving Youth a Voice Questionnaire (GYV-20): A measure of the client-centredness of rehabilitation services from an adolescent perspective

References

• Rosenbaum P, King S, Law M, King G, Evans J. Family-centred service: A conceptual framework and research overview. Phys Occupat Ther Pediatrics 1998; 18: 1–20
   Google Scholar
• Cooley W C, McAllister J W. Putting family-centered care into practice – A response to the adaptive practice model. Develop Behav Pediatrics 1999; 20: 120–122
   PubMed Web of Science ®Google Scholar
• Larsson M. Organising habilitation services: Team structures and family participation. Child: Care, Health Develop 2000; 26: 501–514
   PubMed Web of Science ®Google Scholar
• Franck L S, Callery P. Re-thinking family-centred care across the continuum of children's healthcare. Child: Care, Health Develop 2004; 30: 265–277
   PubMed Web of Science ®Google Scholar
• MacKean G L, Thurston W E, Scott C M. Bridging the divide between families and health professionals' perspectives on family-centred care. Health Expectat 2005; 8: 74–85
   PubMed Web of Science ®Google Scholar
• Dunst C, Trivette C, Cornwell J, Davis M. Enabling and empowering families of children with health impairments. Children's Health Care 1988; 17: 71–81
   Google Scholar
• King S, Teplicky R, King G, Rosenbaum P. Family-centered service for children with cerebral palsy and their families: A review of the literature. Sem Pediatric Neurol 2004; 11: 78–86
   PubMedGoogle Scholar
• King G, King S, Rosenbaum P, Goffin R. Family-centered caregiving and well-being of parents of children with disabilities: Linking process with outcome. J Pediatric Psychol 1999; 24: 41–53
   Web of Science ®Google Scholar
• King G, Rosenbaum P, King S. Parents' perceptions of caregiving: Development and validation of a measure of processes. Develop Med Child Neurol 1996; 38: 757–772
   PubMed Web of Science ®Google Scholar
• Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter S D, Russell D, Swinton M, Zhu B, Wood E. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 2005; 115: e626–e636
   PubMed Web of Science ®Google Scholar
• King G A, Law M, King S M, Rosenbaum P L. Parents' and service providers' perceptions of the family-centredness of children's rehabilitation services. Phys Occupat Ther Pediatrics 1998; 18: 21–40
   Google Scholar
• Lewis M AS, de la Sota A C, Leake B. Randomized trial of a program to enhance the competencies of children with epilepsy. Epilepsia 1990; 31: 101–109
   PubMed Web of Science ®Google Scholar
• Stein R E, Jessop D J. Does pediatric home care make a difference for children with chronic illness? Findings from the Pediatric Ambulatory Care Treatment Study. Pediatrics 1984; 73: 845–853
   PubMed Web of Science ®Google Scholar
• Stein R E, Jessop D J. Long-term mental health effects of a pediatric home care program. Pediatrics 1991; 88: 490–496
   PubMed Web of Science ®Google Scholar
• Law M, Darrah J, Pollock N, King G, Rosenbaum P, Russell D, Palisano R, Harris S, Armstrong R, Watt J. Family-centred functional therapy for children with cerebral palsy: An emerging practice model. Phys Occupat Ther Pediatrics 1998; 18: 83–102
   Google Scholar
• Caro P, Derevensky J L. Family-focused intervention model: Implementation and research findings. Top Early Childhood Spec Educ 1991; 11: 66–80
   Web of Science ®Google Scholar
• Moxley-Haegert L, Serbin L A. Developmental education for parents of delayed infants: Effects on parental motivation and children's development. Child Develop 1983; 54: 1324–1331
   PubMed Web of Science ®Google Scholar
• Siebes R C, Ketelaar M, Wijnroks L, van Schie P EM, Nijhuis B JG, Vermeer A, Gorter J W. Family-centred services in the Netherlands: validating a self-report measure for paediatric service providers. Clin Rehab 2006; 20: 502–512
   PubMed Web of Science ®Google Scholar
• Gan C, Campbell K, Snider A, Hubbard J. Giving Youth a Voice Questionnaire-Brief (GYV-20). Bloorview MacMillan Children's Centre, TorontoCanada 2003
   Google Scholar
• Campbell K, Gan C, Snider A, Cohen S. Measuring what young people think about clinical services. Canad Psychol 2003; 44: 26
   Google Scholar
• Woodside J M, Rosenbaum P L, King S M, King G A. Family-centered service: Developing and validating a self-assessment tool for paediatric service providers. Children's Health Care 2001; 30: 237–252
   Web of Science ®Google Scholar
• van Schie P EM, Siebes R C, Ketelaar M, Vermeer A. The measure of processes of care (MPOC): Validation of the Dutch translation. Child: Care, Health Develop 2004; 30: 529–539
   PubMed Web of Science ®Google Scholar
• VRIN/VRA. Toekomstperspectief kinderrevalidatie in Nederland. VRIN/VRA, Utrechtthe Netherlands 2000
   Google Scholar
• Larsen D L, Attkisson C C, Hargreaves W A, Nguyen T D. Assessment of client/patient satisfaction: development of a general scale. Evaluat Program Planning 1979; 2: 197–207
   PubMedGoogle Scholar
• Nunnally J C, Wilson W H. Method and theory for developing measures in evaluation research. Method and theory for developing measures in evaluation research, E L Struening, M Guttentag. Sage, Beverly HillsUSA 1975; 227–288
   Google Scholar
• Norman G R, Streiner D L. PDQ Statistics. BC Becker, TorontoCanada 1986
   Google Scholar
• Streiner D L, Norman G R. Health measurement scales: A practical guide to their development and use. University Press, OxfordUK 1995
   Google Scholar
• King G A, Rosenbaum P L, King S M. Evaluating family-centred service using a measure of parents' perceptions. Child: Care, Health Develop 1997; 23: 47–62
   PubMed Web of Science ®Google Scholar
• Bjerre I M, Larsson M, Franzon A -M, Nilsson M S, Strömberg G, Westbom L M. Measure of Processes of Care (MPOC) applied to measure parents' perception of the habilitation process in Sweden. Child: Care, Health Develop 2004; 30: 123–130
   PubMed Web of Science ®Google Scholar
• McConachie H, Logan S. Validation of the measure of processes of care for use when there is no Child Development Centre. Child: Care, Health Develop 2003; 29: 35–45
   PubMed Web of Science ®Google Scholar
• Swaine B R, Pless I B, Friedman D S, Montes J L. Using the measure of processes of care with parents of children hospitalized for head injury. Am J Phys Med Rehab 1999; 87: 323–329
   Web of Science ®Google Scholar
• Shrout P E, Fleiss J L. Intraclass correlations: Uses in assessing rater reliability. Psycholog Bull 1975; 86: 420–428
   Google Scholar
• Sleivert G G, Wenger H A. Reliability of measuring isometric and isokinetic peak torque, rate of torque development, integrated electromyography and tibial nerve conduction velocity. Arch Phys Med Rehab 1994; 75: 1315–1321
   PubMed Web of Science ®Google Scholar
• Currier D P. Elements of research in physical therapy. Williams and Wilkins, BaltimoreUSA 1990
   Google Scholar
• Stevens J. Applied multivariate statistics for the social sciences. Lawrence Erlbaum Associates, HillsdaleUSA 1986
   Google Scholar
• Thomas J R, Nelson J K. Research methods in physical activity. Human Kinetics, ChampaignUSA 2001
   Google Scholar
• Asch D A, Jedrziewsk M K, Christakis N A. Response rates to mail surveys published in medical journals. J Clin Epidemiol 1997; 50: 1129–1136
   PubMed Web of Science ®Google Scholar
• Wensing M, Schattenberg G. Initial nonresponders had an increased response rate after repeated questionnaire mailings. J Clin Epidemiol 2005; 58: 959–961
   PubMed Web of Science ®Google Scholar
• Edwards P, Roberts I, Clarke M, DiGuiseppi C, Pratap S, Wentz R, Kwan I. Increasing response rates to postal questionnaires: Systematic review. BMJ 2002; 324: 1183–1185
   PubMed Web of Science ®Google Scholar
• King S, King G, Rosenbaum P. Evaluating health service delivery to children with chronic conditions and their families: Development of a refined Measure of Processes of Care (MPOC-20). Children's Health Care 2004; 33: 35–57
   Web of Science ®Google Scholar