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Original

Determinants of functioning of adolescents and young adults with cerebral palsy

, , , , &
Pages 453-463 | Accepted 01 Mar 2006, Published online: 07 Jul 2009

References

  • Odding E, Roebroeck M E, Stam H J. The Epidemiology of Cerebral Palsy. Part I Incidence, impairments and risk factors. Disabil Rehabil 2006; 28(4)183–191
  • SCPE. Surveillance of cerebral palsy in Europe: A collaboration of cerebral palsy surveys and registers. Surveillance of Cerebral Palsy in Europe (SCPE). Dev Med Child Neurol 2000; 42: 816–824
  • Wichers M J, Schouw YT van der, Moons K G, Stam H J, Nieuwenhuizen O van. Prevalence of cerebral palsy in The Netherlands (1977 – 1988). Eur J Epidemiologie 2001; 17: 527–532
  • Pharoah P O, Cook T, Johnson M A, King R, Mutch L. Epidemiology of cerebral palsy in England and Scotland, 1984 – 1989. Arch Dis Child Fetal Neonatal Ed 1998; 79: F21–25
  • Haerer A F, Anderson D W, Schoenberg B S. Prevalence of cerebral palsy in the biracial population of Copiah County, Mississippi. Dev Med Child Neurol 1984; 26: 195–199
  • Reddihough D S, Collins K J. The epidemiology and causes of cerebral palsy. Aust J Physiother 2003; 49: 7–12
  • Mutch L, Alberman E, Hagberg B, Kodama K, Perat M V. Cerebral palsy epidemiology: Where are we now and where are we going?. Dev Med Child Neurol 1992; 34: 547–551
  • Hagberg B, Hagberg G, Olow I. The changing panorama of cerebral palsy in Sweden. VI. Prevalence and origin during the birth year period 1983 – 1986. Acta Paediatr 1993; 82: 387–393
  • Strauss D, Shavelle R. Life expectancy of adults with cerebral palsy. Dev Med Child Neurol 1998; 40: 369–375
  • Koman L A, Smith B P, Shilt J S. Cerebral palsy. Lancet 2004; 363: 1619–1631
  • White P H. Resilience in children with disabilities – transition to adulthood. J Rheumatol 1996; 23: 960–962
  • Bax M C, Smyth D P, Thomas A P. Health care of physically handicapped young adults. BMJ (Clin Res Ed) 1988; 296: 1153–1155
  • Cathels B A, Reddihough D S. The health care of young adults with cerebral palsy. Med J Aust 1993; 159: 444–446
  • Chamberlain M A. Physically handicapped school leavers. Arch Dis Child 1993; 69: 399–402
  • Stevenson C J, Pharoah P O, Stevenson R. Cerebral palsy – the transition from youth to adulthood. Dev Med Child Neurol 1997; 39: 336–342
  • Ng S Y, Dinesh S K, Tay S K, Lee E H. Decreased access to health care and social isolation among young adults with cerebral palsy after leaving school. J Orthop Surg (Hong Kong) 2003; 11: 80–89
  • King G, Law M, King S, Rosenbaum P, Kertoy M K, Young N L. A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Phys Occup Ther Pediatr 2003; 23: 63–90
  • King G, Cathers T. What adolescents with disabilities want in life: Implications for service delivery. Centre for Childhood Disability Research (Keeping Current #96-2) 1996, CanChild, Available: http://www.fhs.mcmaster.ca/canchild/. Accessed September
  • Hallum A. Disability and the transition to adulthood: issues for the disabled child, the family, and the pediatrician. Curr Probl Pediatr 1995; 25: 12–50
  • Anderson E. The psychological and social adjustment of adolescents with cerebral palsy or spina bifida and hydrocephalus. Int J Rehabil Res 1979; 2: 245–247
  • Blum R W, Resnick M D, Nelson R, St Germaine A. Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics 1991; 88: 280–285
  • Brown M, Gordon W A. Impact of impairment on activity patterns of children. Arch Phys Med Rehabil 1987; 68: 828–832
  • Odding E, Roebroeck M E, Stam H J. The Epidemiology of Cerebral Palsy. Part II Activity limitation, participation restriction and life expectancy, (Submitted)
  • Fuhrer M J. Subjective well-being: Implications for medical rehabilitation outcomes and models of disablement. Am J Phys Med Rehabil 1994; 73: 358–364
  • Ireys H T, Werthamer-Larsson L A, Kolodner K B, Gross S S. Mental health of young adults with chronic illness: The mediating effect of perceived impact. J Pediatr Psychol 1994; 19: 205–222
  • Kokkonen J, Saukkonen A L, Timonen E, Serlo W, Kinnunen P. Social outcome of handicapped children as adults. Dev Med Child Neurol 1991; 33: 1095–1100
  • Parmenter T R, Knox M. The post-school experiences of young people with a disability. Int J Rehabil Res 1991; 14: 281–291
  • Doyle Y, Moffatt P, Corlett S. Coping with disabilities: The perspective of young adults from different ethnic backgrounds in inner London. Soc Sci Med 1994; 38: 1491–1498
  • Andren E, Grimby G. Dependence and perceived difficulty in activities of daily living in adults with cerebral palsy and spina bifida. Disabil Rehabil 2000; 22: 299–307
  • Andren E, Grimby G. Dependence in daily activities and life satisfaction in adult subjects with cerebral palsy or spina bifida: A follow-up study. Disabil Rehabil 2004; 26: 528–536
  • Andren E, Grimby G. Activity limitations in personal, domestic and vocational tasks: A study of adults with inborn and early acquired mobility disorders. Disabil Rehabil 2004; 26: 262–271
  • Murphy K P, Molnar G E, Lankasky K. Employment and social issues in adults with cerebral palsy. Arch Phys Med Rehabil 2000; 81: 807–811
  • van der Dussen L, Nieuwstraten W, Roebroeck M E, Stam H J. Functional level of young adults with cerebral palsy. Clin Rehabil 2001; 15: 84–91
  • Andersson C, Mattsson E. Adults with cerebral palsy: A survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol 2001; 43: 76–82
  • Law M. Participation in the occupations of everyday life. Am J Occup Ther 2002; 56: 640–649
  • Garton A F, Pratt C. Leisure activities of adolescent school students: Predictors of participation and interest. J Adolesc 1991; 14: 305–321
  • Larson R W, Verma S. How children and adolescents spend time across the world: Work, play, and developmental opportunities. Psychol Bull 1999; 125: 701–736
  • Law M, Steinwender S, Leclair L. Occupation, health and well-being. Can J Occupat Ther 1998; 65: 81–91
  • Ostensjo S, Carlberg E B, Vollestad N K. Everyday functioning in young children with cerebral palsy: Functional skills, caregiver assistance, and modifications of the environment. Dev Med Child Neurol 2003; 45: 603–612
  • Ostensjo S, Carlberg E B, Vollestad N K. Motor impairments in young children with cerebral palsy: relationship to gross motor function and everyday activities. Dev Med Child Neurol 2004; 46: 580–589
  • Houlihan C M, O'Donnell M, Conaway M, Stevenson R D. Bodily pain and health-related quality of life in children with cerebral palsy. Dev Med Child Neurol 2004; 46: 305–310
  • Jahnsen R, Villien L, Stanghelle J K, Holm I. Fatigue in adults with cerebral palsy in Norway compared with the general population. Dev Med Child Neurol 2003; 45: 296–303
  • Jahnsen R, Villien L, Aamodt G, Stanghelle J K, Holm I. Musculoskeletal pain in adults with cerebral palsy compared with the general population. J Rehabil Med 2004; 36: 78–84
  • Bent N, Jones A, Molloy I, Chamberlain M A, Tennant A. Factors determining participation in young adults with a physical disability: A pilot study. Clin Rehabil 2001; 15: 552–561
  • Bent N, Tennant A, Swift T, Posnett J, Scuffham P, Chamberlain M A. Team approach versus ad hoc health services for young people with physical disabilities: A retrospective cohort study. Lancet 2002; 360: 1280–1286
  • Beckung E, Hagberg G. Neuroimpairments, activity limitations, and participation restrictions in children with cerebral palsy. Dev Med Child Neurol 2002; 44: 309–316
  • Schenker R, Coster W, Parush S. Participation and activity performance of students with cerebral palsy within the school environment. Disabil Rehabil 2005; 27: 539–552
  • Lepage C, Noreau L, Bernard P M. Association between characteristics of locomotion and accomplishment of life habits in children with cerebral palsy. Phys Ther 1998; 78: 458–469
  • Lepage C, Noreau L, Bernard P M, Fougeyrollas P. Profile of handicap situations in children with cerebral palsy. Scand J Rehabil Med 1998; 30: 263–272
  • Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol 1997; 39: 214–223
  • Wood E, Rosenbaum P. The gross motor function classification system for cerebral palsy: A study of reliability and stability over time. Dev Med Child Neurol 2000; 42: 292–296
  • WHO. International Classification of Functioning, Disability and Health (ICF). World Health Organization, Geneva 2001
  • Fougeyrollas P, Noreau L, St-Michel G. Life Habits measure – shortened version (LIFE-H 3.0). Lac St-Charles, Quebec, Canada, CQCIDIH2001
  • Noreau L, Desrosiers J, Robichaud L, Fougeyrollas P, Rochette A, Viscogliosi C. Measuring social participation: Reliability of the LIFE-H in older adults with disabilities. Disabil Rehabil 2004; 26: 346–352
  • Fougeyrollas P, Noreau L, Bergeron H, Cloutier R, Dion S A, St-Micgel G. Social consequences of long term impairments and disabilities: Conceptual approach and assessment of handicap. Int J Rehabil Res 1998; 21: 127–1241
  • Desrosiers J, Noreau L, Robichaud L, Fougeyrollas P, Rochette A, Viscogliosi C. Validity of the Assessment of Life Habits in older adults. J Rehabil Med 2004; 36: 177–182
  • Granger C V, Hamilton B B, Keith R A, Zielezny M, Sherwin F S. Advances in functional assessment for medical rehabilitation. Top Geriat Rehabil 1986; 1: 59–74
  • Hamilton B B, Granger C V, Sherwin F S. A uniform national data system for medical rehabilitation. Rehabilitation outcomes: Analysis and measurement, M J Fuhrer. Brooks, Baltimore, MD 1987; 137–147
  • Hall K M, Hamilton B B, Gordon W A, Zasler N D. Characteristics and comparisons of functional assessment indices: Disability Rating Scale, Functional Independence Measure and Functional Assessment Measure. J Head Trauma Rehabil 1993; 8: 60–74
  • McPherson K M, Pentland B, Cudmore S F, Prescott R J. An inter-rater reliability study of the Functional Assessment Measure (FIM + FAM). Disabil Rehabil 1996; 18: 341–347
  • Donaghy S, Wass P J. Interrater reliability of the Functional Assessment Measure in a brain injury rehabilitation program. Arch Phys Med Rehabil 1998; 79: 1231–1236
  • Hall K M, Bushnik T, Lakisic-Kazazic B, Wright J, Cantagallo A. Assessing traumatic brain injury outcome measures for long-term follow-up of community-based individuals. Arch Phys Med Rehabil 2001; 82: 367–374
  • Sparrow S S, Balla D A, Cicchetti D V. The Vineland Adaptive Behavior Scales. American Guidance Service inc, Circle Pines, MN 1984
  • van Berckelaer-Onnes I A, Buysse W H, Dijkxhoorn Y M, Gooyen J BM, van der Ploeg J A. Dutch translation of the Vineland Adaptive Behavior Scales. University Leiden, Leiden 1997
  • Cicchetti D V, Sparrow S S. Developing criteria for establishing interrater reliability of specific items. Application to assessment of adaptive behavior. Am J Mental Deficiency 1981; 86: 341–350
  • Statistics Netherlands. Statline, Available from http://statline. cbs.nl. Accessed September 2005

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