Revisiting therapy assumptions in children's rehabilitation: clinical and research implications

References

• Bottos M, Bolcati C, Sciuto L, Ruggeri C, Feliciangeli A. Powered wheelchairs and independence in young children with tetraplegia. Dev Med Child Neurol 2001; 43: 769–777
   PubMed Web of Science ®Google Scholar
• Helders P JM, Engelbert R HH, Gulmans V AN, Van Der Net J. Paediatric rehabilitation. Disabil Rehabil 2001; 23: 497
   PubMed Web of Science ®Google Scholar
• Law M, Darrah J, Pollock N, Rosenbaum P, Russell D, Walter S D. Focus on function – a randomized controlled trial comparing two rehabilitation interventions for young children with cerebral palsy. BMC Pediatrics 2007; 7: 31
   PubMedGoogle Scholar
• Wiart L, Darrah J. Changing philosophical perspectives on the management of children with physical disabilities – their effect on the use of powered mobility. Disabil Rehabil 2002; 24: 492–498
   PubMed Web of Science ®Google Scholar
• Lincoln Y, Denzin N. Epilogue: the eight and ninth moments – qualitative research in/and the fractured future. Handbook of qualitative research3rd ed., N K Denzin, Y S Lincoln. Sage, Thousand Oaks, CA 2005; 1115–1126
   Google Scholar
• Molke D, Laliberte-Rudman D, Polatajko H. The promise of occupational science: a developmental assessment of an emerging academic discipline. Can J Occup Ther 2005; 71: 269–281
   Google Scholar
• Iwama M. Kawa (river) model: nature, life flow, the power of culturally relevant occupational therapy. Occupational therapy without borders: learning from the spirit of survivors, F Kronenberg, S Algado, N Pollard. Elsevier, Churchill Livingstone, Edinburgh 2005; 213–227
   Google Scholar
• Kronenberg F, Algado S, Pollard N. Occupational therapy without borders: learning from the spirit of survivors. Elsevier, Churchill Livingstone, Edinburgh 2005
   Google Scholar
• Gentile A M. The nature of skill acquisition: therapeutic implications for children with movement disorders. Med Sports Sci 1992; 36: 31–40
   Google Scholar
• Damiano D. Activity, activity, activity: rethinking our physical therapy approach to cerebral palsy. Phys Ther 2006; 86: 1534–1540
   PubMed Web of Science ®Google Scholar
• Helders P J, Engelbert R H, Custers J W, Gorter J W, Takken T, van der Net J. Creating and being created: The changing panorama of paediatric rehabilitation. Pediatric Rehabil 2003; 6: 5–12
   PubMedGoogle Scholar
• World Health Organization. International classification of functioning, disability and health. World Health Organization, Geneva 2001
   Google Scholar
• Butler C. Effects of powered mobility on self-initiated behaviours of very young children with locomotor disability. Dev Med Child Neurol 1986; 28: 325–332
   PubMed Web of Science ®Google Scholar
• Davis C M. Patient-practitioner interaction: an experiential manual for developing the art of health care3rd ed. Slack, Thorofare, NJ 1998
   Google Scholar
• Raina P, O'Donnell M, Schwellnus H, Rosenbaum P, King G, Brehaut J, Russell D, Swinton M, King S, Wong M, Walter S D, Wood E. Caregiving process and caregiver burden: Conceptual models to guide research and practice. BMC Pediatrics 2004; 4: 1
   PubMedGoogle Scholar
• Nelson A M. A metasynthesis: mothering other-than-normal children. Qual Health Res 2002; 12: 515
   PubMed Web of Science ®Google Scholar
• Priestly M. Childhood disability and disabled childhoods: agendas for research. Childhood 1998; 5: 207–223
   Web of Science ®Google Scholar
• Bailey D B, Bruer J T, Symons F J, Luchtman J W. Critical thinking about critical periods. Paul H. Brooks, Baltimore 2001
   Google Scholar
• Giangreco M F. Related services decision-making: a foundation component of effective education for students with disabilities. Occup Phys Ther Educ Environ 1995; 15: 47–67
   Google Scholar
• Meisels S J, Shonkoff J P. Early childhood intervention: a continuing education. Handbook of early childhood intervention. Cambridge University Press, CambridgeU.K. 2000; 3–31
   Google Scholar
• Stevenson C J, Pharoah P O, Stevenson R. Cerebral palsy – the transition from youth to adulthood. Dev Med Child Neurol 1997; 39: 336–343
   PubMed Web of Science ®Google Scholar
• Marn L M, Koch L C. The major tasks of adolescence: implications for transition planning with youths with cerebral palsy. Work: J Prevent, Assess Rehabil 1999; 13: 51–58
   Google Scholar
• Hauser-Cram P, Krauss M W. Adolescents with developmental disabilities and their families. Handbook of adolescent psychology2nd ed., R M Lerner, L Steinberg. Wiley, Hoboken, NJ 2004; 697–719
   Google Scholar
• Turk M A, Geremski C A, Rosenbaum P F, Weber R J. The health status of women with cerebral palsy. Arch Phys Med Rehabil 1997; 78: S10–S17
   PubMed Web of Science ®Google Scholar
• Bottos M, Feliciangeli A, Sciuto L, Gericke C, Vianello A. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol 2001; 43: 516–528
   PubMed Web of Science ®Google Scholar
• Stewart D A, Law M C, Rosenbaum P, Willms D G. A qualitative study of the transition to adulthood for youth with physical disabilities. Phys Occup Ther Pediatrics 2001; 21: 3–21
   PubMedGoogle Scholar
• Gibson B E, Young N L, Upshur R EG, McKeever P. Men on the margin: a Bourdieusian examination of living into adulthood with muscular dystrophy. Soc Sci Med 2007; 65: 505–517
   PubMed Web of Science ®Google Scholar
• Schneider J W, Gurucharri L M, Gutierrez A L, Gaebler-Spira D. Health-related quality of life and functional outcome measures for children with cerebral palsy. Dev Med Child Neurol 2001; 43: 601–608
   PubMed Web of Science ®Google Scholar
• Walkerdine V. Beyond developmentalism. Theory Psychol 1993; 3: 451–469
   Web of Science ®Google Scholar
• Young B, Rice H, Dixon-Woods M, Colver A F, Parkinson K N. A qualitative study of the health-related quality of life of disabled children. Dev Med Child Neurol 2007; 49: 660–665
   PubMed Web of Science ®Google Scholar
• Rosenbaum P L, Livingston M H, Palisano R J, Galuppi B E, Russel D J. Quality of life and health-related quality of life of adolescents with cerebral palsy. Dev Med Child Neurol 2007; 49: 516–521
   PubMed Web of Science ®Google Scholar
• Livingston M H, Rosenbaum P L, Russell D J, Palisano R J. Quality of Life among adolescents with cerebral palsy: what does the literature tell us. Dev Med Child Neurol 2007; 49: 225–231
   PubMed Web of Science ®Google Scholar
• King G A, Cathers T, Polgar J M, MacKinnon E, Havens L. Success in life for older adolescents with cerebral palsy. Qual Health Res 2000; 10: 734–749
   PubMed Web of Science ®Google Scholar
• Hunt S M. The problem of quality of life. Qual Life Res 1997; 6: 205–212
   PubMed Web of Science ®Google Scholar
• Lepage A, Hunt S. The problem of quality of life in medicine. J Am Med Assoc 1997; 278: 47–50
   Web of Science ®Google Scholar
• Gill T M, Feinstein A R. A critical appraisal of the quality of quality of life instruments. J Am Med Assoc 1994; 272: 24–31
   Google Scholar
• Koch T. Disability and difference: balancing social and physical constructions. J Med Ethics 2001; 27: 370–376
   PubMed Web of Science ®Google Scholar
• Harris J. Is there a coherent social conception of disability. J Med Ethics 2000; 26: 95–100
   PubMed Web of Science ®Google Scholar
• Koch T. Life quality vs ‘quality of life’: assumptions underlying prospective quality of life instruments in health care planning. Soc Sci Med 2000; 51: 419–427
   PubMed Web of Science ®Google Scholar
• Franck L S, Callery P. Re-thinking family-centred care across the continuum of children's healthcare. Child: Care, Health, Dev 2004; 30: 265–277
   PubMed Web of Science ®Google Scholar
• De Geeter K I, Poppes P, Vlaskamp C. Parents as experts: the position of parents of children with profound multiple disabilities. Child: Care, Health, Dev 2002; 28: 443–453
   PubMed Web of Science ®Google Scholar
• Gall C, Kingsnorth S, Healy H. Growing up ready: a shared management approach to transition. Phys Occup Ther Pediatrics 2006; 38: 47–62
   Google Scholar
• Beayni S, Curran C J, Gall C, Kingsnorth S, Lunan D, McDougall C, Healy H. Creating a transition peer support program: Family Facilitators. Panel Presentation at the Ontario Association of Children's Rehabilitation Services (OACRS) Conference. October, 2007. Waterloo, ON
   Google Scholar
• Kingsnorth S, Rigby P, Healy H, Beayni S. A Transition Pilot Project for Parents of AAC Users. Podium presentation at the International ISAAC Conference. July, 2006. DüsseldorfGermany
   Google Scholar
• Blum R W. Transition to adult health care: setting the stage. J Adolesc Health 1995; 17: 3–5
   PubMed Web of Science ®Google Scholar
• Hammell K W. Perspectives on disability and rehabilitation. Elsevier, Edinburgh 2006
   Google Scholar
• Wade D T. Describing rehabilitation interventions. Clinical Rehabil 2005; 19: 811–818
   PubMed Web of Science ®Google Scholar
• Gladstone B M, Boydell K M, McKeever P. Recasting research into children's experience of parental mental illness: beyond risk and resilience. Soc Sci Med 2006; 62: 2540–2550
   PubMed Web of Science ®Google Scholar
• James A, Jenks C, Prout A. Theorising childhood. Polity Press & Blackwell Publishers, Cambridge 1998
   Google Scholar
• Matthews S. A window on the ‘new’ sociology of childhood. Sociology Compass 2007; 1: 322–334
   Google Scholar