Independence in self-care activities in children with myelomeningocele: exploring factors based on the International Classification of Function model

References

• Zlotogora J, Amitai Y, Leventhal A. Surveillance of neural tube defects in Israel: the effect of the recommendation for periconceptional folic acid. Isr Med Assoc J. 2006;8:601–604.
   PubMed Web of Science ®Google Scholar
• Januschek E, Röhrig A, Kunze S, et al. Myelomeningocele – a single institute analysis of the years 2007 to 2015. Childs Nerv Syst. 2016;32:1281–1287.
   PubMed Web of Science ®Google Scholar
• Schoenmakers MA, Gulmans VA, Gooskens RH, et al. Spina bifida at the sacral level: more than minor gait disturbances. Clin Rehabil. 2004;18:178–185.
   PubMed Web of Science ®Google Scholar
• ] Bier JB, Prince A, Tremont M, et al. Medical, functional, and social determinants of health-related quality of life in individuals with myelomeningocele. Dev Med Child Neuro. 2005;47:609–612.
   PubMed Web of Science ®Google Scholar
• Lomax-Bream LE, Barnes M, Copeland K, et al. The impact of spina bifida on development across the first 3 years. Dev Neuropsychol. 2007;31:1–20.
   PubMed Web of Science ®Google Scholar
• Peny-Dahlstrand M, Ahlander AC, Krumlinde-Sundholm L, et al. Quality of performance of everyday activities in children with spina bifida: a population-based study. Acta Paediatr. 2009;98:1674–1679.
   PubMed Web of Science ®Google Scholar
• Dennis M, Salman MS, Jewell D, et al. Upper limb motor function in young adults with spina bifida and hydrocephalus. Childs Nerv Syst. 2009;25:1447–1453.
   PubMed Web of Science ®Google Scholar
• Muen WJ, Bannister CM. Hand function in subjects with spina bifida. Eur J Pediatr Surg. 1997;7:18–22.
   PubMed Web of Science ®Google Scholar
• Vinck A, Nijhuis-van der Sanden MW, Roeleveld NJ, et al. Motor profile and cognitive functioning in children with spina bifida. Eur J Pediatr Neurol. 2009;14:86–92.
   PubMed Web of Science ®Google Scholar
• Verhoef M, Barf HA, Post MW, et al. Functional independence among young adults with spina bifida in relation to hydrocephalus and level of lesion. Dev Med Child Neuro. 2006;48:114–119.
   PubMed Web of Science ®Google Scholar
• Schoenmakers MA, Uiterwaal CS, Gulmans VA, et al. Determinants of functional independence and quality of life in children with spina bifida. Clin Rehabil. 2005;19:677–685.
   PubMed Web of Science ®Google Scholar
• Tsai PY, Yang TF, Chan RC, et al. Functional investigation in children with spina bifida- measured by the Pediatric Evaluation of Disability Inventory (PEDI). Child Nerv Syst. 2002;18:48–53.
   PubMed Web of Science ®Google Scholar
• Holmbeck GN, Devine KA. Psychosocial and family functioning in spina bifida. Dev Disabil Res Rev. 2010;6:40–46.
   Web of Science ®Google Scholar
• Kelly EH, Altiok H, Gorzkowski JA, et al. How does participation of youth with spina bifida vary by age? Clin Orthop Relat Res. 2011;469:1236–1245.
   PubMed Web of Science ®Google Scholar
• McCormick MC, Charney EB, Stemmler MM. Assessing the impact of a child with spina bifida on the family. Dev Med Child Neurol. 2011;28:53–61.
   Google Scholar
• Hwang AW, Liao HF, Chen PC, et al. Applying the ICF-CY framework to examine biological and environmental factors in early childhood development. J Formos Med Assoc. 2014;113:303–312.
   PubMed Web of Science ®Google Scholar
• Martinuzzi A, De Polo G, Bortolot S, et al. Pediatric neurorehabilitation and the ICF. Neurorehabilitation. 2015;36:31–36.
   PubMed Web of Science ®Google Scholar
• WHO. The International Classification of Functioning Disability and Health (ICF). Geneva: WHO; 2001.
   Google Scholar
• Lexell J, Brogardh C. The use of ICF in the neurorehabilitation process. Neurorehabilitation. 2015;36:5–9.
   PubMed Web of Science ®Google Scholar
• Liptak GS, Kennedy BS, Dopa NP. Youth with spina bifida and transitions: health and social participation in a nationally represented sample. J Pediatr. 2010;157:584–588.
   PubMed Web of Science ®Google Scholar
• Haley SM, Coster W, Ludlow LH, et al. Pediatric Evaluation of Disability Inventory. Sargent College of Health and Rehabilitation Sciences, Boston, MA: Boston University; 1998.
   Google Scholar
• Iyıgun ZE, Duymaz T, Ozgonenel L, et al. Using functional mobility scale for assessment ambulation and study of association of lesion and ambulation level with kidney malposition in spina bifida. Int J Ther Rehab Res. 2016;5:1–3.
   Google Scholar
• Smith YA, Hong E, Presson C. Normative and validation studies of the Nine-hole Peg Test with children. Percept Mot Skills. 2000;90:823–843.
   PubMed Web of Science ®Google Scholar
• Beery KE, Beery NA. The Beery-Butenica Developmental Test of Visual-Motor Integration. 5th ed. San Antonio, TX: NCS Pearson Inc.; 2006.
   Google Scholar
• Msall ME, DiGaudio K, Rogers BT, et al. The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities. Clin Pediatr. 1994;33:421–430.
   PubMed Web of Science ®Google Scholar
• Jansen J, Taudorf K, Pederson H, et al. Upper extremity function in spina bifida. Childs Nerv Syst. 1991;7:67–71.
   PubMed Web of Science ®Google Scholar
• Adzick NS, Thom EA, Spong CY, et al. A randomized trial of prenatal versus postnatal repair of myelomeningocele. N Engl J Med. 2011;364:993–1004.
   PubMed Web of Science ®Google Scholar
• Danielsson AJ, Bartonek A, Levey E, et al. Associations between orthopedic findings, ambulation and health-related quality of life in children with myelomeningocele. J Child Orthop. 2008;2:45–54.
   PubMedGoogle Scholar
• Wassing HE, Siebelink BM, Luyendijk W. Handedness and progressive hydrocephalus in spina bifida patients. Dev Med Child Neurol. 1993;35:788–797.
   PubMed Web of Science ®Google Scholar
• Satz P. Pathological left-handedness: an explanatory model. Cortex. 1972;8:121–135.
   PubMedGoogle Scholar
• Donlau M, Imms C, Mattsson GG, et al. Children and youth with myelomeningocele’s independence in managing clean intermittent catheterization in familiar settings. Acta Paediatr. 2010;100:429–438.
   PubMed Web of Science ®Google Scholar