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Assessment Procedures

Towards a short questionnaire for stepwise assessment of upper limb function, pain and stiffness in Duchenne muscular dystrophy

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Pages 842-847 | Received 09 Jun 2016, Accepted 15 Dec 2016, Published online: 13 Jan 2017

References

  • Hoffman EP, Brown RH, Jr, Kunkel LM. Dystrophin: the protein product of the Duchenne muscular dystrophy locus. Cell. 1987;51:919–928.
  • Kohler M, Clarenbach CF, Bahler C, et al. Disability and survival in Duchenne muscular dystrophy. J Neurol Neurosurg Psychiatr. 2009;80:320–325.
  • Janssen MM, Bergsma A, Geurts AC, et al. Patterns of decline in upper limb function of boys and men with DMD: an international survey. J Neurol. 2014;261:1269–1288.
  • Eagle M, Baudouin SV, Chandler C, et al. Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromuscul Disord. 2002;12:926–929.
  • Marino RJ, Shea JA, Stineman MG. The capabilities of upper extremity instrument: reliability and validity of a measure of functional limitation in tetraplegia. Arch Phys Med Rehabil. 1998;79:1512–1521.
  • Vandervelde L, Van den Bergh PY, Penta M, et al. Validation of the ABILHAND questionnaire to measure manual ability in children and adults with neuromuscular disorders. J Neurol Neurosurg Psychiatry. 2010;81:506–512.
  • Brooke MH, Griggs RC, Mendell JR, et al. Clinical trial in Duchenne dystrophy. I. The design of the protocol. Muscle Nerve. 1981;4:186–197.
  • Salerno DF, Franzblau A, Armstrong TJ, et al. Test-retest reliability of the Upper Extremity Questionnaire among keyboard operators. Am J Ind Med. 2001;40:655–666.
  • Emery AE. Diagnostic criteria for neuromuscular disorders. London: Royal Society of Medicine Press; 1997.
  • Bartels B, Pangalila RF, Bergen MP, et al. Upper limb function in adults with Duchenne muscular dystrophy. J Rehabil Med. 2011;43:770–775.
  • James WV, Orr JF. Upper limb weakness in children with Duchenne muscular dystrophy-a neglected problem. Prosthet Orthot Int. 1984;8:111–113.
  • Scott OM, Hyde SA, Goddard C, et al. Quantitation of muscle function in children: a prospective study in Duchenne muscular dystrophy. Muscle Nerve. 1982;5:291–301.
  • Engel JM, Kartin D, Carter GT, et al. Pain in youths with neuromuscular disease. Am J Hosp Palliat Care. 2009;26:405–412.
  • Tiffreau V, Viet G, Thevenon A. Pain and neuromuscular disease: the results of a survey. Am J Phys Med Rehabil. 2006;85:756–766.
  • Pangalila RF, van den Bos GA, Bartels B, et al. Prevalence of fatigue, pain, and affective disorders in adults with Duchenne muscular dystrophy and their associations with quality of life. Arch Phys Med Rehabil. 2015;96:1242–1247.