Maximizing gait and balance: behaviors and decision-making processes of persons with multiple sclerosis and physical therapists

References

• Larocca NG. Impact of walking impairment in multiple sclerosis: perspectives of patients and care partners. Patient. 2011;4:189–201.
   PubMedGoogle Scholar
• Souza A, Kelleher A, Cooper R, et al. Multiple sclerosis and mobility-related assistive technology: systematic review of literature. JRRD. 2010;47:213–223.
   PubMed Web of Science ®Google Scholar
• Martin CL, Phillips BA, Kilpatrick TJ, et al. Gait and balance impairment in early multiple sclerosis in the absence of clinical disability. Mult Scler. 2006;12:620–628.
   PubMed Web of Science ®Google Scholar
• Kalron A, Dvir Z, Frid L, et al. Quantifying gait impairment using an instrumented treadmill in people with multiple sclerosis. ISRN Neurol. 867575. 2013 Jun 25 [cited 2014 Jun 8]. Available from: http://www.hindawi.com/journals/isrn/2013/867575/.
   PubMedGoogle Scholar
• Matsuda PN, Shumway-Cook A, Bamer AM, et al. Falls in multiple sclerosis. PM R. 2011;3:624–632.
   PubMedGoogle Scholar
• Finlayson M, van Denend T. Experiencing the loss of mobility: perspectives of older adults with MS. Disabil Rehabil. 2003;25:1168–1180.
   PubMed Web of Science ®Google Scholar
• MS Fact Sheet [Internet] National Multiple Sclerosis Society [cited 2013 Nov 10]. Available from: http://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Brochure-Just-the-Facts.pdf
   Google Scholar
• Myhr KM, Riise T, Vedeler C, et al. Disability and prognosis in multiple sclerosis: demographic and clinical variables important for the ability to walk and awarding of disability pension. Mult Scler. 2001;7:59–65.
   PubMed Web of Science ®Google Scholar
• Miller AE, Rhoades RW. Treatment of relapsing-remitting multiple sclerosis: current approaches and unmet needs. Curr Opin Neurol. 2012;25(Suppl):S4–S10.
   PubMed Web of Science ®Google Scholar
• Bennett S, Bethoux F, Brown T, et al. Comprehensive management of mobility impairment and complex symptoms in multiple sclerosis: a focus on walking. Int J MS Care. 2014;16:1–11.
   PubMedGoogle Scholar
• Dierckx K, Deveugele M, Roosen P, et al. Implementation of shared decision making in physical therapy: observed level of involvement and patient preference. Phys Ther. 2013;93:1321–1330.
   PubMed Web of Science ®Google Scholar
• Rae-Grant AD, Turner AP, Sloan A, et al. Self-management in neurological disorders: systematic review of the literature and potential interventions in multiple sclerosis care. JRRD. 2011;48:1087–1100.
   PubMed Web of Science ®Google Scholar
• Coleman K, Austin BT, Brach C, et al. Evidence on the Chronic Care Model in the new millennium. Health Aff (Millwood). 2009;28:75–85.
   PubMed Web of Science ®Google Scholar
• Khan F, Turner-Stokes L, Ng L, et al. Multidisciplinary rehabilitation for adults with multiple sclerosis. Cochrane Database Syst Rev. 2007. [cited 2012 Jul 9] Available from: http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD006036.pub2/abstract.
   Web of Science ®Google Scholar
• Paltamaa J, Sjögren T, Peurala SH, et al. Effects of physiotherapy interventions on balance in multiple sclerosis: a systematic review and meta-analysis of randomized controlled trials. J Rehabil Med. 2012;44:811–823.
   PubMed Web of Science ®Google Scholar
• Brichetto G, Rinaldi S, Spallarossa P, et al. Efficacy of physical therapy in multiple sclerosis as measured with the modified fatigue impact scale and ambulation index: a retrospective study. NeuroRehabilitation. 2013;33:107–112.
   PubMed Web of Science ®Google Scholar
• Motl RW, McAuley E, Snook EM. Physical activity and multiple sclerosis: a meta-analysis. Mult Scler. 2005;11:459–463.
   PubMed Web of Science ®Google Scholar
• Kohn CG, Coleman CI, Michael White C, et al. Mobility, walking and physical activity in persons with multiple sclerosis. Curr Med Res Opin. 2014;30:1857–1862.
   PubMed Web of Science ®Google Scholar
• Finlayson M, Plow M, Cho C. Use of physical therapy services among middle-aged and older adults with multiple sclerosis. Phys Ther. 2010;90:1607–1618.
   PubMed Web of Science ®Google Scholar
• Rhodes RE, Fiala B. Building motivation and sustainability into the prescription and recommendations for physical activity and exercise therapy: the evidence. Physiother Theory Pract. 2009;25:424–441.
   PubMedGoogle Scholar
• Basset S. The assessment of patient adherence to physiotherapy rehabilitation. N Z J Physiother. 2003;31:60–66.
   Google Scholar
• Kayes NM, McPherson KM, Schluter P, et al. Exploring the facilitators and barriers to engagement in physical activity for people with multiple sclerosis. Disabil Rehabil. 2011;33:1043–1053.
   PubMed Web of Science ®Google Scholar
• Stroud N, Minahan C, Sabapathy S. The perceived benefits and barriers to exercise participation in persons with multiple sclerosis. Disabil Rehabil. 2009;31:2216–2222.
   PubMed Web of Science ®Google Scholar
• Mulligan HF, Hale LA, Whitehead L, et al. Barriers to physical activity for people with long-term neurological conditions: a review study. Adapt Phys Activ Q. 2012;29:243–265.
   PubMed Web of Science ®Google Scholar
• Rusconi S, Turner-Stokes L. An evaluation of aftercare following discharge from a specialist in-patient rehabilitation service. Disabil Rehabil. 2003;25:1281–1288.
   PubMed Web of Science ®Google Scholar
• Pound P, Gompertz P, Ebrahim S. Social and practical strategies described by people living at home with stroke. Health Soc Care Commun. 1999;7:120–128.
   PubMed Web of Science ®Google Scholar
• Cohen D, Crabtree B. Qualitative Research Guidelines Project [Internet]; 2006 [cited 2013 May 22]. Available from: http://www.qualres.org/index.html
   Google Scholar
• Stake RE. Multiple case study analysis. New York: The Guilford Press; 2006.
   Google Scholar
• Brewer J, Hunter A. Foundations of multimethod research: synthesizing styles. Thousand Oaks (CA): Sage Publications; 2006.
   Google Scholar
• Bandura A. Health promotion by social cognitive means. Health Educ Behav. 2004;31:143–164.
   PubMed Web of Science ®Google Scholar
• Noonan CW, Williamson DM, Henry JP, et al. The prevalence of multiple sclerosis in 3 US communities. Prev Chronic Dis. 2010;7:1–8.
   Web of Science ®Google Scholar
• Hohol MJ, Orav EJ, Weiner HL. Disease steps in multiple sclerosis: a simple approach to evaluate disease progression. Neurology. 1995;45:251–255.
   PubMed Web of Science ®Google Scholar
• Marrie RA, Cutter G, Tyry T, et al. Does multiple sclerosis-associated disability differ between races? Neurology. 2006;66:1235–1240.
   PubMed Web of Science ®Google Scholar
• Learmonth YC, Motl RW, Sandroff BM, et al. Validation of patient determined disease steps (PDDS) scale scores in persons with multiple sclerosis. BMC Neurol. 2013;13:37.
   PubMed Web of Science ®Google Scholar
• Majmudar S, Schiffer RB. Why depression goes unrecognized in multiple sclerosis patients. Int J MS Care. 2009;11:154–159.
   Google Scholar
• Mohr DC, Hart SL, Julian L, et al. Screening for depression among patients with multiple sclerosis: two questions may be enough. Mult Scler. 2007;13:215–219.
   PubMed Web of Science ®Google Scholar
• Rubin EH, Morris JC, Grant EA, et al. Very mild senile dementia of the Alzheimer type. I. Clinical assessment. Arch Neurol. 1989;46:379–382.
   PubMedGoogle Scholar
• Katzman R, Brown T, Fuld P, et al. Validation of a short Orientation-Memory-Concentration Test of cognitive impairment. Am J Psychiatry. 1983;140:734–739.
   PubMed Web of Science ®Google Scholar
• Latimer-Cheung AE, Martin Ginis KA, Hicks AL, et al. Development of evidence-informed physical activity guidelines for adults with multiple sclerosis. Arch Phys Med Rehabil. 2013;94:1829–1836.
   PubMed Web of Science ®Google Scholar
• Wendel-Vos GC, Schuit AJ, Saris WH, et al. Reproducibility and relative validity of the short questionnaire to assess health-enhancing physical activity. J Clin Epidemiol. 2003;56:1163–1169.
   PubMed Web of Science ®Google Scholar
• Beckerman H, de Groot V, Scholten MA, et al. Physical activity behavior of people with multiple sclerosis: understanding how they can become more physically active. Phys Ther. 2010;90:1001–1013.
   PubMed Web of Science ®Google Scholar
• Potter K, Allen D, Bennett S, et al. Multiple sclerosis EDGE – outcome measures for in- and out-patient rehabilitation [Internet]. American Physical Therapy Association Neurology Section; 2012 [cited 2013 Jan 9]. Available from: http://www.neuropt.org/docs/ms-edge-documents/ms-edge_rehab_recs5417E23D4B53.pdf?sfvrsn=2
   Google Scholar
• Cattaneo D, Jonsdottir J, Repetti S. Reliability of four scales on balance disorders in persons with multiple sclerosis. Disabil Rehabil. 2007;29:1920–1925.
   PubMed Web of Science ®Google Scholar
• Cattaneo D, Regola A, Meotti M. Validity of six balance disorders scales in persons with multiple sclerosis. Disabil Rehabil. 2006;28:789–795.
   PubMed Web of Science ®Google Scholar
• Mercer SW, Maxwell M, Heaney D, et al. The consultation and relational empathy (CARE) measure: development and preliminary validation and reliability of an empathy-based consultation process measure. Fam Pract. 2004;21:699–705.
   PubMed Web of Science ®Google Scholar
• Thorne S, Paterson B, Russell C. The structure of everyday self-care decision making in chronic illness. Qual Health Res. 2003;13:1337–1352.
   PubMed Web of Science ®Google Scholar
• Lowden D, Lee V, Ritchie JA. Redefining self: patients' decision making about treatment for multiple sclerosis. J Neurosci Nurs. 2014;46:E14–E24.
   PubMed Web of Science ®Google Scholar
• Jensen GM, Gwyer J, Shepard KF, et al. Expert practice in physical therapy. Phys Ther. 2000;80:28–52.
   PubMed Web of Science ®Google Scholar
• Schenkman M, Deutsch JE, Gill-Body KM. An integrated framework for decision making in neurologic physical therapist practice. Phys Ther. 2006;86:1681–1702.
   PubMed Web of Science ®Google Scholar
• Heesen C, Köpke S, Solari A, et al. Patient autonomy in multiple sclerosis – possible goals and assessment strategies. J Neurol Sci. 2013;331:2–9.
   PubMed Web of Science ®Google Scholar
• Charmaz K. The self as habit: the reconstruction of self in chronic illness. Occup Ther J Res. 2002;22:315–415.
   Google Scholar
• Lorig K, Laurent DD, Plant K, et al. The components of action planning and their associations with behavior and health outcomes. Chronic Illn. 2014;10:50–59.
   PubMedGoogle Scholar
• Hale LA, Mulligan HF, Treharne GJ, et al. The feasibility and short-term benefits of Blue Prescription: a novel intervention to enable physical activity for people with multiple sclerosis. Disabil Rehabil. 2013;35:1213–1220.
   PubMed Web of Science ®Google Scholar
• Pashley E, Powers A, McNamee N, et al. Discharge from outpatient orthopaedic physiotherapy: a qualitative descriptive study of physiotherapists' practices. Physiother Can. 2010;62:224–234.
   PubMed Web of Science ®Google Scholar
• Hammick M, Freeth D, Koppel I, et al. A best evidence systematic review of interprofessional education: BEME Guide no. 9. Med Teach. 2007;29:735–751.
   PubMed Web of Science ®Google Scholar