Subjective health complaints and illness perception amongst adults with Joint Hypermobility Syndrome/Ehlers–Danlos Syndrome-HypermobilityType – a cross-sectional study

References

• Remvig L, Jensen DV, Ward RC. Epidemiology of general joint hypermobility and basis for the proposed criteria for benign joint hypermobility syndrome: review of the literature. J Rheumatol. 2007;34:804–809.
   PubMed Web of Science ®Google Scholar
• Hakim A, Grahame R. Joint hypermobility. Best Pract Res Clin Rheumatol. 2003;17:989–1004.
   PubMed Web of Science ®Google Scholar
• Remvig L, Engelbert RH, Berglund B, et al. Need for a consensus on the methods by which to measure joint mobility and the definition of norms for hypermobility that reflect age, gender and ethnic-dependent variation: is revision of criteria for joint hypermobility syndrome and Ehlers–Danlos syndrome hypermobility type indicated? Rheumatology. 2011;50:1169–1171.
   PubMed Web of Science ®Google Scholar
• Rombaut L, Malfait F, Cools A, et al. Musculoskeletal complaints, physical activity and health-related quality of life among patients with the Ehlers–Danlos syndrome hypermobility type. Disabil Rehabil. 2010;32:1339–1345.
   PubMed Web of Science ®Google Scholar
• Voermans NC, Knoop H. Both pain and fatigue are important possible determinants of disability in patients with the Ehlers–Danlos syndrome hypermobility type. Disabil Rehabil. 2011;33:706–707.
   PubMed Web of Science ®Google Scholar
• Castori M, Sperduti I, Celletti C, et al. Symptom and joint mobility progression in the joint hypermobility syndrome (Ehlers–Danlos syndrome, hypermobility type). Clin Exp Rheumatol. 2011;29:998–1005.
   PubMed Web of Science ®Google Scholar
• Tinkle BT, Bird HA, Grahame R, et al. The lack of clinical distinction between the hypermobility type of Ehlers–Danlos syndrome and the joint hypermobility syndrome (aka hypermobility syndrome). Am J Med Genet. 2009;149:2368–2370.
   Google Scholar
• Castori M, Camerota F, Celletti C, et al. Natural history and manifestations of the hypermobility type Ehlers–Danlos syndrome: a pilot study on 21 patients. Am J Med Genet. 2010;152:556–564.
   Google Scholar
• Berglund B, Nordström G. Symptoms and functional health status of individuals with Ehlers–Danlos syndrome (EDS). JCR. J Clin Rheumatol. 2001;7:308–314.
   PubMed Web of Science ®Google Scholar
• Maeland S, Assmus J, Berglund B. Subjective health complaints in individuals with Ehlers–Danlos syndrome: a questionnaire study. Int J Nurs Stud. 2011;48:720–724.
   PubMed Web of Science ®Google Scholar
• Ihlebaek C, Eriksen HR, Ursin H. Prevalence of subjective health complaints (SHC) in Norway. Scand J Public Health. 2002;30:20–29.
   PubMed Web of Science ®Google Scholar
• Laerum E, Brage S, Ihlebaek C, et al. Et muskel- og skjelettregnskap. v/FORMI, Klinikk for kirurgi og nevrofag, Oslo universitetssykehus - Ullevål. 2013(2. utgave, 2014).
   Google Scholar
• Brosschot JF. Cognitive-emotional sensitization and somatic health complaints . Scand J Psychol. 2002;43:113–121.
   PubMed Web of Science ®Google Scholar
• Brosschot JF, Gerin W, Thayer JF. The perseverative cognition hypothesis: a review of worry, prolonged stress-related physiological activation, and health. J Psychosom Res. 2006;60:113–124.
   PubMed Web of Science ®Google Scholar
• Ursin H. Sensitization, somatization, and subjective health complaints. Int J Behav Med. 1997;4:105–116.
   PubMed Web of Science ®Google Scholar
• Eriksen H, Ursin H. Subjective health complaints, sensitization, and sustained cognitive activation (stress). J Psychosom Res. 2004;56:445–448.
   PubMed Web of Science ®Google Scholar
• Leventhal H, Benyamini Y, Brownlee S, et al. Illness representations: theoretical foundations. Percep Health Illness. 1997;2:19–46.
   Google Scholar
• Petrie KJ, Broadbent E, Kydd R. Illness perceptions in mental health: Issues and potential applications. J Ment Health. 2008;17:559–564.
   Web of Science ®Google Scholar
• Lovvik C, Overland S, Hysing M, et al. Association between illness perceptions and return-to-work expectations in workers with common mental health symptoms. J Occup Rehabil. 2014;24:160–170.
   PubMed Web of Science ®Google Scholar
• Hagger MS, Orbell S. A meta-analytic review of the common-sense model of illness representations. Psychol Health. 2003;18:141–184.
   Web of Science ®Google Scholar
• Petrie KJ, Cameron LD, Ellis CJ, et al. Changing illness perceptions after myocardial infarction: an early intervention randomized controlled trial. Psychosom Med. 2002;64:580–586.
   PubMed Web of Science ®Google Scholar
• Ross S, Walker A, MacLeod M. Patient compliance in hypertension: role of illness perceptions and treatment beliefs. J Hum Hypertens. 2004;18:607–613.
   PubMed Web of Science ®Google Scholar
• Kucukarslan SN. A review of published studies of patients’ illness perceptions and medication adherence: lessons learned and future directions. Res Social Admin Pharmy. 2012;8:371–382.
   PubMed Web of Science ®Google Scholar
• Somers TJ, Keefe FJ, Pells JJ, et al. Pain catastrophizing and pain-related fear in osteoarthritis patients: relationships to pain and disability. J Pain Symptom Manage. 2009;37:863–872.
   PubMed Web of Science ®Google Scholar
• Johannessen EC, Reiten HS, Lovaas H, et al. Shoulder function, pain and health related quality of life in adults with joint hypermobility syndrome/Ehlers–Danlos syndrome-hypermobility type. Disabil Rehabil. 2016;38:1382–1390.
   PubMed Web of Science ®Google Scholar
• Eriksen HR, Ihlebaek C, Ursin H. A scoring system for subjective health complaints (SHC). Scand J Public Health. 1999;27:63–72.
   PubMed Web of Science ®Google Scholar
• Broadbent E, Petrie KJ, Main J, et al. The brief illness perception questionnaire. J Psychosom Res. 2006;60:631–637.
   PubMed Web of Science ®Google Scholar
• Broadbent E, Wilkes C, Koschwanez H, et al. A systematic review and meta-analysis of the Brief Illness Perception Questionnaire. Psychol Health. 2015;30:1361–1385.
   PubMed Web of Science ®Google Scholar
• De Wandele I, Rombaut L, Malfait F, et al. Clinical heterogeneity in patients with the hypermobility type of Ehlers–Danlos syndrome. Res Dev Disabil. 2013;34:873–881.
   PubMed Web of Science ®Google Scholar
• Zarate N, Farmer A, Grahame R, et al. Unexplained gastrointestinal symptoms and joint hypermobility: is connective tissue the missing link? Neurogastroenterol Motil. 2010;22:252–e78.
   PubMed Web of Science ®Google Scholar
• Voermans NC, van Alfen N, Pillen S, et al. Neuromuscular involvement in various types of Ehlers–Danlos syndrome. Ann Neurol. 2009;65:687–697.
   PubMed Web of Science ®Google Scholar
• Grahame R. Pain, distress and joint hyperlaxity. Joint Bone Spine. 2000;67:157–163.
   PubMed Web of Science ®Google Scholar
• Camerota F, Celletti C, Castori M, et al. Neuropathic pain is a common feature in Ehlers–Danlos Syndrome. J Pain Symptom Manage. 2011;41:e2–e4.
   PubMed Web of Science ®Google Scholar
• Rombaut L, Scheper M, De Wandele I, et al. Chronic pain in patients with the hypermobility type of Ehlers–Danlos syndrome: evidence for generalized hyperalgesia. Clin Rheumatol. 2015;34:1121–1129.
   PubMed Web of Science ®Google Scholar
• Staud R, Smitherman ML. Peripheral and central sensitization in fibromyalgia: pathogenetic role. Curr Pain Headache Rep. 2002;6:259–266.
   PubMedGoogle Scholar
• Marques A, Ferreira E, Matsutani L, et al. Quantifying pain threshold and quality of life of fibromyalgia patients. Clin Rheumatol. 2005;24:266–271.
   PubMed Web of Science ®Google Scholar
• Wilhelmsen I. Somatization, sensitization, and functional dyspepsia. Scand J Psychol. 2002;43:177–180.
   PubMed Web of Science ®Google Scholar
• Cazzola M, Atzeni F, Boccassini L, et al. Physiopathology of pain in rheumatology. Reumatismo. 2014;66:4–13.
   PubMedGoogle Scholar
• Terry RH, Palmer ST, Rimes KA, et al. Living with joint hypermobility syndrome: patient experiences of diagnosis, referral and self-care. Fam Pract. 2015;32:354–358.
   PubMed Web of Science ®Google Scholar
• Dangoor N, Florian V. Women with chronic physical disabilities: correlates of their long-term psychosocial adaptation. Int J Rehabil Res. 1994;17:159–168.
   PubMedGoogle Scholar
• Turnquist DC, Harvey JH, Andersen BL. Attributions and adjustment to life‐threatening illness. Br J Clin Psychol. 1988;27:55–65.
   PubMed Web of Science ®Google Scholar
• Baeza-Velasco C, Gély-Nargeot M, Vilarrasa AB, et al. Joint hypermobility syndrome: problems that require psychological intervention. Rheumatol Int. 2011;31:1131–1136.
   PubMed Web of Science ®Google Scholar
• Žugelj U, Zupančič M, Komidar L, et al. Self-reported adherence behavior in adolescent hypertensive patients: the role of illness representations and personality. J Pediatr Psychol. 2010;35:1049–1060.
   PubMed Web of Science ®Google Scholar
• Searle A, Norman P, Thompson R, et al. A prospective examination of illness beliefs and coping in patients with type 2 diabetes. Br J Health Psychol. 2007;12:621–638.
   PubMed Web of Science ®Google Scholar
• Helder DI, Kaptein AA, Kempen GM, et al. Living with Huntington’s disease: illness perceptions, coping mechanisms, and patients’ well‐being. Br J Health Psychol. 2002;7:449–462.
   PubMed Web of Science ®Google Scholar
• Broadbent E, Ellis CJ, Thomas J, et al. Further development of an illness perception intervention for myocardial infarction patients: a randomized controlled trial. J Psychosom Res. 2009;67:17–23.
   PubMed Web of Science ®Google Scholar
• Rahman A, Daniel C, Grahame R. Efficacy of an out-patient pain management programme for people with joint hypermobility syndrome. Clin Rheumatol. 2014;33:1665–1669.
   PubMed Web of Science ®Google Scholar
• Warsi A, LaValley MP, Wang PS, et al. Arthritis self‐management education programs: a meta‐analysis of the effect on pain and disability. Arthritis Rheum. 2003;48:2207–2213.
   PubMed Web of Science ®Google Scholar
• Pesut D, Ciobanu L, Bhagyabati S, et al. Illness perception in COPD patients. Advances in allergy, asthma & immunology: from Basic Science to Clinical Management Medimond, Bologna. 2010:79–82.
   Google Scholar
• Galea S, Tracy M. Participation rates in epidemiologic studies. Ann Epidemiol. 2007;17:643–653.
   PubMed Web of Science ®Google Scholar