1,623
Views
11
CrossRef citations to date
0
Altmetric
Original Article

When I do, I become someone: experiences of occupational performance in young adults with cerebral palsy

ORCID Icon, , & ORCID Icon
Pages 341-347 | Received 15 Mar 2017, Accepted 07 Oct 2017, Published online: 17 Oct 2017

References

  • Kielhofner G. Model of human occupation: theory and application. Baltimore (MD): Lippincott Williams & Wilkins; 2008.
  • Christiansen C, Baum CM, Bass JD. Occupational therapy: performance, participation and well-being. Thorofare (NJ): Slack; 2015.
  • Christiansen CH, Backman C, Little BR, et al. Occupations and well-being: a study of personal projects. Am J Occup Ther. 1999;53:91.
  • Ostensjo S, Carlberg EB, Vollestad NK. Everyday functioning in young children with cerebral palsy: functional skills, caregiver assistance, and modifications of the environment. Dev Med Child Neurol. 2003;45:603–612.
  • Michelsen SI, Flachs EM, Damsgaard MT, et al. European study of frequency of participation of adolescents with and without cerebral palsy. Eur J Paediatr Neurol. 2014;18:282–294.
  • Pierce D. Untangling occupation and activity. Am J Occup Ther. 2001;55:138–146.
  • Law M, Cooper B, Strong S, et al. The-Person-Environment-Occupation-model: a transactive approach to occupational performance. Can J Occup Ther. 1996;63:9–23.
  • Polatajko HJ. Dreams, dilemmas, and decisions for occupational therapy practice in a new millennium: a Canadian perspective. Am J Occup Ther. 1994;48:590.
  • Strong S, Rigby P, Stewart D, et al. Application of the Person-Environment-Occupation Model: a practical tool. Can J Occup Ther. 1999;66:122–133.
  • Nelson DL. Occupation: form and performance. Am J Occup Ther. 1988;42:633–641.
  • Granlund M. Participation-challenges in conceptualization, measurement and intervention. Child Care Health Dev. 2013;39:470–473.
  • Imms C, Adair B, Keen D, et al. ’Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Dev Med Child Neurol. 2016;58:29–38.
  • Hemmingsson H, Jonsson H. An occupational perspective on the concept of participation in the International Classification of Functioning, Disability and Health: some critical remarks. Am J Occup Ther. 2005;59:569–576.
  • Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol. 2007;49:8–14.
  • Himmelmann K, Uvebrant P. The panorama of cerebral palsy in Sweden. XI. Changing patterns in the birth-year period 2003–2006. Acta Paediatr. 2014;103:18–24.
  • Ohrvall AM, Eliasson AC, Lowing K, et al. Self-care and mobility skills in children with cerebral palsy, related to their manual ability and gross motor function classifications. Dev Med Child Neurol. 2010;52:1048–1055.
  • Opheim A, Jahnsen R, Olsson E, et al. Walking function, pain, and fatigue in adults with cerebral palsy: a 7-year follow-up study. Dev Med Child Neurol. 2009;51:381–388.
  • Malone LA, Vogtle LK. Pain and fatigue consistency in adults with cerebral palsy. Disabil Rehabil. 2010;32:385–391.
  • Bottcher L. Children with spastic cerebral palsy, their cognitive functioning, and social participation: a review. Child Neuropsychol. 2010;16:209–228.
  • Bodimeade HL, Whittingham K, Lloyd O, et al. Executive function in children and adolescents with unilateral cerebral palsy. Dev Med Child Neurol. 2013;55:926–933.
  • Sandstrom K. The lived body: experiences from adults with cerebral palsy. Clin Rehabil. 2007;21:432–441.
  • Marton F. Phenomenography: describing conceptions of the world around us. Instr Sci. 1981;10:177–200.
  • Lepp M, Ringberg KC. Phenomenography: a qualitative research approach. In: Hallberg L, editor. Qualitative methods in public health research: theoretical foundations and practical examples. Lund: Studentlitteratur; 2002. p. 105–135.
  • Sjöström B, Dahlgren LO. Applying phenomenography in nursing research. J Adv Nurs. 2002;40:339–345.
  • Åkerlind GS. Variation and commonality in phenomenographic research methods. High Educ Res Dev. 2012;31:115.
  • Eliasson AC, Krumlinde-Sundholm L, Rosblad B, et al. The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48:549–554.
  • van Meeteren J, Nieuwenhuijsen C, de Grund A, et al. Using the manual ability classification system in young adults with cerebral palsy and normal intelligence. Disabil Rehabil. 2010;32:1885–1893.
  • Elisasson A-C. Supplementary MACS level identification chart [Internet]. Stockholm: Karolinska Institutet; 2010; [cited 2017 Aug 23]. Available from: http://www.macs.nu/files/MACS_identification_chart_eng.pdf
  • Hidecker MJ, Paneth N, Rosenbaum PL, et al. Developing and validating the Communication Function Classification System for individuals with cerebral palsy. Dev Med Child Neurol. 2011;53:704–710.
  • Palisano R, Rosenbaum P, Bartlett D, et al. Gross motor function classification system expanded and revised: canchild centre for childhood disability research, McMaster University; 2007; [Internet] [cited 2017 Aug 23]. Available from: https://www.canchild.ca/system/tenon/assets/attachments/000/000/058/original/GMFCS-ER_English.pdf
  • Rosenbaum PL, Palisano RJ, Bartlett DJ, et al. Development of the Gross Motor Function Classification System for cerebral palsy. Dev Med Child Neurol. 2008;50:249–253.
  • Kvale S. Doing interviews. Thousand Oaks (CA): Sage Publications; 2007.
  • QSR International. NVivo 10 software program. Melbourne (Australia): QSR International; 2012.
  • Hammell KW. Dimensions of meaning in the occupations of daily life. Can J Occup Ther. 2004;71:296.
  • Hasselkus BR. The meaning of everyday occupation. Thorofare (NJ): SLACK; 2011.
  • Fisher AG. Occupation-centred, occupation-based, occupation-focused: same, same or different? Scand J Occup Ther. 2013;20:162–173.
  • Hammell KRW. Belonging, occupation, and human well-being: an exploration. Can J Occup Ther. 2014;81:39.
  • Schwartz L, Engel JM, Jensen MP. Pain in persons with cerebral palsy. Arch Phys Med Rehabil. 1999;80:1243–1246.
  • Jahnsen R, Villien L, Stanghelle JK, et al. Fatigue in adults with cerebral palsy in Norway compared with the general population. Dev Med Child Neurol. 2003;45:296–303.
  • Jahnsen R, Villien L, Egeland T, et al. Locomotion skills in adults with cerebral palsy. Clin Rehabil. 2004;18:309–316.
  • Wilcock AA. Reflections on doing, being and becoming. Aust Occup Ther J. 1999;46:1–11.
  • Bottcher L, Flachs EM, Uldall P. Attentional and executive impairments in children with spastic cerebral palsy. Dev Med Child Neurol. 2010;52:e42–e47.
  • Mandich A, Rodger S. Doing, being and becoming: their importance for children. In: Rodger S, Ziviani J, editors. Occupational therapy with children: understanding children’s occupations and enabling participation. Oxford: Blackwell; 2006. p. 115–135.
  • Bandura A. On the functional properties of perceived self-efficacy revisited. J Manage. 2012;38:9–44.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.