Representing and organizing information to describe the lived experience of health from a personal factors perspective in the light of the International Classification of Functioning, Disability and Health (ICF): a discussion paper

References

• World Health Organization and the World Bank. World report on disability. Geneva: World Health Organization; 2011.
   Google Scholar
• World Health Organization. International classification of functioning, disability and health: ICF. Geneva: World Health Organization; 2001.
   Google Scholar
• Stucki G, Cieza A, Melvin J. The International Classification of Functioning, Disability and Health (ICF): a unifying model for the conceptual description of the rehabilitation strategy. Acta Derm Venereol. 2007;39:279–285.
   Web of Science ®Google Scholar
• Üstün TB, Chatterji S, Bickenbach J, et al. The international classification of functioning, disability and health: a new tool for understanding disability and health. Disabil Rehabil. 2003;25:565–571.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International statistical classification of diseases and related health problems, 10th revision. Geneva: World Health Organization; 1992.
   Google Scholar
• Hoffmann Eivind and Chamie Mary. Standard statistical classifications: basic principles. Stat J UN Econ Comm Eur. 2002;19:223–241.
   Google Scholar
• Bailey Kenneth D. Typologies and taxonomies. An introduction to classification techniques. Thousand Oaks: Sage; 1994.
   Google Scholar
• Cerniauskaite M, Quintas R, Boldt C, et al. Systematic literature review on ICF from 2001 to 2009: its use, implementation and operationalisation. Disabil Rehabil. 2011;33:281–309.
   PubMed Web of Science ®Google Scholar
• Jelsma J. Use of the international classification of functioning, disability and health: a literature survey. J Rehabil Med. 2009;41:1–12.
   PubMed Web of Science ®Google Scholar
• Wiegand NM, Belting J, Fekete C, et al. All talk, no action?: the global diffusion and clinical implementation of the international classification of functioning, disability, and health. Am J Phys Med Rehabil. 2012;91:550–560.
   PubMed Web of Science ®Google Scholar
• Badley EM. Enhancing the conceptual clarity of the activity and participation components of the international classification of functioning, disability, and health. Soc Sci Med. 2008;66:2335–2345.
   PubMed Web of Science ®Google Scholar
• Nordenfelt L. Action theory, disability and ICF. Disabil Rehabil. 2003;25:1075–1079.
   PubMed Web of Science ®Google Scholar
• Wang PP, Badley EM, Gignac M. Exploring the role of contextual factors in disability models. Disabil Rehabil. 2006;28:135–140.
   PubMed Web of Science ®Google Scholar
• Whiteneck G. Conceptual models of disability: past, present, and future. In: Field MJ, Jette AM, and Martin L, editors. Workshop on disability in America: a new look. Washington (DC): National Academic Press; 2006. p. 50–66.
   Google Scholar
• Danaei G, Ding EL, Mozaffarian D, et al. The preventable causes of death in the United States: comparative risk assessment of dietary, lifestyle, and metabolic risk factors. PLoS Med. 2009;6:e1000058.
   PubMed Web of Science ®Google Scholar
• Mokdad AH, Marks JS, Stroup DF, et al. Actual causes of death in the United States, 2000. JAMA. 2004;291:1238–1245.
   PubMed Web of Science ®Google Scholar
• United Nations. Disability statistics compendium. New York: United Nations; 1990.
   Google Scholar
• Murray CJ, Lopez AD. Global mortality, disability, and the contribution of risk factors: global burden of disease study. Lancet. 1997;349:1436–1442.
   PubMed Web of Science ®Google Scholar
• Murray CJ, Lopez AD. Regional patterns of disability-free life expectancy and disability-adjusted life expectancy: global burden of disease study. Lancet. 1997;349:1347–1352.
   PubMed Web of Science ®Google Scholar
• EUROSTAT. Disability and social participation in Europe. 2001, Luxembourg: European Communities.
   Google Scholar
• Savelkoul M, de Witte L, Post M. Stimulating active coping in patients with rheumatic diseases: a systematic review of controlled group intervention studies. Patient Educ Couns. 2003;50:133–143.
   PubMed Web of Science ®Google Scholar
• Hawthorne K, Robles Y, Cannings-John R, et al. Culturally appropriate health education for Type 2 diabetes in ethnic minority groups: a systematic and narrative review of randomized controlled trials. Diabet Med. 2010;27:613–623.
   PubMed Web of Science ®Google Scholar
• Corbie-Smith G, Viscoli CM, Kernan WN, et al. Influence of race, clinical, and other socio-demographic features on trial participation. J Clin Epidemiol. 2003;56:304–309.
   PubMed Web of Science ®Google Scholar
• Geyh S, Peter C, Müller R, et al. The personal factors of the international classification of functioning, disability and health in the literature - a systematic review and content analysis. Disabil Rehabil. 2011;33:1089–1102.
   PubMed Web of Science ®Google Scholar
• Müller R, Geyh S. Lessons learned from different approaches towards classifying personal factors. Disabil Rehabil. 2014;26:1–9.
   Google Scholar
• Stephens D, Gianopoulos I, Kerr P. Determination and classification of the problems experienced by hearing-impaired elderly people. Int J Audiol. 2001;40:294–300.
   Google Scholar
• Stephens D, Kerr P. Auditory disablements: an update. Audiology. 2000;39:322–332.
   PubMedGoogle Scholar
• Ng L, Khan F. Identification of personal factors in motor neurone disease: a pilot study. Rehabil Res Pract. 2011;2011:871237.
   PubMedGoogle Scholar
• Heerkens Y, Engels J, Kuiper C, et al. The use of the ICF to describe work related factors influencing the health of employees. Disabil Rehabil. 2004;26:1060–1066.
   PubMed Web of Science ®Google Scholar
• Heerkens Y, Van Ravensberg D. List of personal factors. WHO. Family of International Classifications (FIC). Newsletter. 2012, WHO Collaborating Centre for the FIC in The Netherlands. p. 15.
   Google Scholar
• Viol M, Grotkamp S, van Treeck B, et al. Ein erster Versuch zur systematischen, kommentierten Auflistung von geordneten Anhaltspunkten für die sozialmedizinische Begutachtung im deutschen Sprachraum. Gesundheitswesen. 2006;68:747–759.
   PubMed Web of Science ®Google Scholar
• Grotkamp S, Cibis W, Behrens J, et al. [Personal contextual factors of the ICF draft from the Working Group “ICF” of Specialty Group II of the German Society for Social Medicine and Prevention]. Gesundheitswesen. 2010;72:908–916.
   PubMed Web of Science ®Google Scholar
• Grotkamp S, Cibis W, Nuchtern E, et al. [Personal factors of the ICF]. Gesundheitswesen. 2012b;74:449–458.
   PubMed Web of Science ®Google Scholar
• Grotkamp S, Cibis W, Nuchtern E, et al. Personal factors in the international classification of functioning, disabiltiy and health: prospective evidence. Austr J Rehabil Counsel. 2012a;18:1–24.
   Google Scholar
• Salvador-Carulla L, Walsh CO, Alonso F, et al. eVITAL: a preliminary taxonomy and electronic toolkit of health-related habits and lifestyle. Sci World J. 2012;2012:379752.
   Google Scholar
• Rouquette A, Badley EM, Falissard B, et al. Moderators, mediators, and bidirectional relationships in the International Classification of Functioning, Disability and Health (ICF) framework: an empirical investigation using a longitudinal design and Structural Equation Modeling (SEM). Soc Sci Med. 2015;135:133–42.
   Google Scholar
• Ueda S, Okawa Y. The subjective dimension of functioning and disability: what is it and what is it for? Disabil Rehabil. 2003;25:596–601.
   PubMed Web of Science ®Google Scholar
• Okawa Y, Ueda S. Implementation of the International Classification of Functioning, Disability and Health in national legislation and policy in Japan. Int J Rehabil Res. 2008;31:73–77.
   Google Scholar
• Madden R, Sykes C, and, Ustun U. World Health Organization Family of International Classifications: definition, scope and purpose. 2007 [cited 2012]. Geneva: WHO. Available from: http://www.who.int/classifications/en/FamilyDocument2007.pdf
   Google Scholar
• United Nations Statistics Division [Internet]. International family of economic and social classifications. 2009 [cited 15 Oct 2013]. United Nations. Available from: http://unstats.un.org/unsd/class/family/
   Google Scholar
• Cieza A, Ewert T, Üstün TB, et al. Development of ICF Core Sets for patients with chronic conditions. J Rehabil Med. 2004;44:9–11.
   PubMed Web of Science ®Google Scholar
• Üstün BT, Chatterji S, Bickenbach JE, et al., eds. Disability and culture. Universalism and diversity. ICIDH-2 series. Göttingen: Hogrefe & Huber; 2001.
   Google Scholar
• World Health Organization. International classification of impairments, disabilities and handicaps. A manual of classification relating to the consequences of disease. Geneva: World Health Organization; 1980.
   Google Scholar
• World Health Organization. Towards a common language for functioning, disability and health, ICF. Geneva: World Health Organization; 2002.
   Google Scholar
• Bales ME, Kukafka R, Burkhardt A, et al. Qualitative assessment of the international classification of functioning, disability, and health with respect to the desiderata for controlled medical vocabularies. Int J Med Inform. 2006;75:384–395.
   PubMed Web of Science ®Google Scholar
• Fougeyrollas P, Cloutier R, Bergeron H, et al. The Quebec classification: disability creation process. Québec: International Network on the Disability Creation Process; 1998.
   Google Scholar
• Üstün TB, van Duuren-Kristen S, Bertolote J, et al. The International Classification of Impairments, Disabilities, and Handicaps (ICIDH): mental health aspects of its use in rehabilitation. Eur Psychiatry. 1996;11:51s–55s.
   Web of Science ®Google Scholar
• Müller-Staub M, Lavin MA, Needham I, et al. Meeting the criteria of a nursing diagnosis classification: evaluation of ICNP®, ICF, NANDA and ZEFP. Int J Nurs Stud. 2007;44:702–713.
   PubMed Web of Science ®Google Scholar
• Jakob R, Ustun B, Madden R, et al. The WHO family of international classifications. Bundesgesundheitsbl. 2007;50:924–931.
   Google Scholar
• Biering-Sorensen F, Scheuringer M, Baumberger M, et al. Developing core sets for persons with spinal cord injuries based on the international classification of functioning, disability and health as a way to specify functioning. Spinal Cord. 2006;44:541–546.
   PubMed Web of Science ®Google Scholar
• Cieza A, Kirchberger I, Biering-Sorensen F, et al. ICF Core Sets for individuals with spinal cord injury in the long-term context. Spinal Cord. 2010;48:305–312.
   PubMed Web of Science ®Google Scholar
• Kirchberger I, Cieza A, Biering-Sorensen F, et al. ICF Core Sets for individuals with spinal cord injury in the early post-acute context. Spinal Cord. 2010;48:297–304.
   PubMed Web of Science ®Google Scholar
• Kirchberger I, Sinnott A, Charlifue S, et al. Functioning and disability in spinal cord injury from the consumer perspective: an international qualitative study using focus groups and the ICF. Spinal Cord. 2010;48:603–613.
   PubMed Web of Science ®Google Scholar
• Scheuringer M, Kirchberger I, Boldt C, et al. Identification of problems in individuals with spinal cord injury from the health professional perspective using the ICF: a worldwide expert survey. Spinal Cord. 2010;48:529–536.
   PubMed Web of Science ®Google Scholar
• Cieza A, Geyh S, Chatterji S, et al. ICF linking rules: an update based on lessons learned. J Rehabil Med. 2005;37:212–218.
   PubMed Web of Science ®Google Scholar
• Eriks-Hoogland I, Cieza A, Post M, et al. Category specification and measurement instruments in large spinal cord injury studies: a comparison using the international classification of functioning, disability, and health as a reference. Am J Phys Med Rehabil. 2011;90:S39–S49.
   PubMedGoogle Scholar
• Geyh S, Peter C, Müller R, et al. Translating topics in SCI psychology into the international classification of functioning, disability and health. Top Spinal Cord Inj Rehabil. 2011;16:104–130.
   Google Scholar
• Schreier M. Qualitative content analysis in practice. London: Sage; 2012.
   Google Scholar
• Schreier M. What is qualitative about qualitative content analysis? Qualitative content analysis in practice. London: Sage; 2012. p. 24–25.
   Google Scholar
• Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62:107–115.
   PubMed Web of Science ®Google Scholar
• Schreier M. Coding frames and varying complexity. Qualitative content analysis in practice. London: Sage; 2012. p. 71–79.
   Google Scholar
• Seligman MEP, Csikszentmihalyi M. Positive psychology: an introduction. Am Psychol. 2000;55:5–14.
   PubMed Web of Science ®Google Scholar
• Noy Natalya F, McGuinness DL. Ontology development 101: a guide to creating your first ontology. Stanford (CA): Stanford University; 2001.
   Google Scholar
• Sartre J-P. Being and nothingness. An essay on phenomenological ontology. New York: Washington Square Press; 1956.
   Google Scholar
• Bagraith KS, Strong J. The International Classification of Functioning, Disability and Health (ICF) can be used to describe multidisciplinary clinical assessments of people with chronic musculoskeletal conditions. Clin Rheumatol. 2013;32:383–389.
   PubMed Web of Science ®Google Scholar
• Glocker C, Kirchberger I, Glassel A, et al. Content validity of the comprehensive international classification of functioning, disability and health (ICF) core set for low back pain from the perspective of physicians: a Delphi survey. Chronic Illn. 2013;9:57–72.
   PubMedGoogle Scholar
• Mattsson M, Boström C, Mihai C, et al. A Personal factors in systemic sclerosis and their coverage by patient-reported outcome measures: a multicentre european qualitative study and literature review. Eur J Phys Rehabil Med. 2015;51:405–421.
   PubMedGoogle Scholar
• Schwegler U, Peter C, Trezzini B, et al. Toward transparent documentation in medical work capacity evaluations: identifying personal factors in medical reports on Swiss disability claimants with chronic widespread pain. Int J Rehabil Res. 2013;36:298–307.
   PubMed Web of Science ®Google Scholar
• Geyh S, Müller R, Peter C, et al. Capturing the psychologic-personal perspective in spinal cord injury. Am J Phys Med Rehabil. 2011;90:S79–S96.
   PubMed Web of Science ®Google Scholar
• Gutenbrunner C, Ward AB, Chamberlain MA. White book on physical and rehabilitation medicine in Europe. J Rehabil Med. 2007;39:1–48.
   Google Scholar
• Steiner WA, Ryser L, Huber E, et al. Use of the ICF model as a clinical problem-solving tool in physical therapy and rehabilitation medicine. Phys Ther. 2002;82:1098–1107.
   PubMed Web of Science ®Google Scholar
• Post Marcel WM, Kirchberger I, Scheuringer M, et al. Outcome parameters in spinal cord injury research: a systematic review using the International Classification of Functioning, Disability and Health as a reference. Spinal Cord. 2010;48:522–528.
   PubMed Web of Science ®Google Scholar