Evaluating pain in cerebral palsy: comparing assessment tools using the International Classification of Functioning, Disability and Health

References

• King S, Chambers CT, Huguet A, et al. The epidemiology of chronic pain in children and adolescents revisited: a systematic review. Pain. 2011;152:2729–2738.
   PubMed Web of Science ®Google Scholar
• van Dijk A, McGrath PA, Pickett W, et al. Pain and self-reported health in Canadian children. Pain Res Manage J Can Pain Soc. 2008;13:407–411.
   PubMed Web of Science ®Google Scholar
• Konijnenberg AY, Uiterwaal CSPM, Kimpen JLL, et al. Children with unexplained chronic pain: Substantial impairment in everyday life. Arch Dis Child. 2005;90:680–686.
   PubMed Web of Science ®Google Scholar
• Lewandowski AS, Palermo TM, Kirchner HL, et al. Comparing diary and retrospective reports of pain and activity restriction in children and adolescents with chronic pain conditions. Clin J Pain. 2009;25:299–306.
   PubMed Web of Science ®Google Scholar
• Logan DE, Simons LE, Kaczynski KJ. School functioning in adolescents with chronic pain: The role of depressive symptoms in school impairment. J Pediatr Psychol. 2009;34:882–892.
   PubMed Web of Science ®Google Scholar
• Chambers CT, Corkum PV, Rusak B. The importance of sleep in pediatric chronic pain – a wake-up call for pediatric psychologists. J Pediatr Psychol. 2008;33:333–334.
   PubMed Web of Science ®Google Scholar
• Mahrer NE, Montano Z, Gold JI. Relations between anxiety sensitivity, somatization, and health-related quality of life in children with chronic pain. J Pediatr Psychol. 2012;37:808–816.
   PubMed Web of Science ®Google Scholar
• Zernikow B, Wager J, Hechler T, et al. Characteristics of highly impaired children with severe chronic pain: a 5-year retrospective study on 2249 pediatric pain patients. BMC Pediatr. 2012;12:54.
   PubMed Web of Science ®Google Scholar
• Clinch J, Eccleston C. Chronic musculoskeletal pain in children: assessment and management. Rheumatology (Oxford). 2009;48:466–474.
   PubMed Web of Science ®Google Scholar
• Duenas M, Ojeda B, Salazar A, et al. A review of chronic pain impact on patients, their social environment and the health care system. J Pain Res. 2016;9:457–467.
   PubMed Web of Science ®Google Scholar
• Groenewald CB, Essner BS, Wright D, et al. The economic costs of chronic pain among a cohort of treatment-seeking adolescents in the united states. J Pain. 2014;15:925–933. September 2014
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Rosenbloom L. What is cerebral palsy? In: H. Hart, editor. Cerebral palsy from diagnosis to adult life. London: Mac Keith Press; 2012.
   Google Scholar
• Penner M, Xie WY, Binepal N, et al. Characteristics of pain in children and youth with cerebral palsy. Pediatrics. 2013;132:e407–e413.
   PubMed Web of Science ®Google Scholar
• Parkinson KN, Dickinson HO, Arnaud C, et al. Pain in young people aged 13 to 17 years with cerebral palsy: cross-sectional, multicentre european study. Arch Dis Child. 2013;98:434–440.
   PubMed Web of Science ®Google Scholar
• Dickinson HO, Colver A, Sparcle G. Quantifying the physical, social and attitudinal environment of children with cerebral palsy. Disabil Rehabil. 2011;33:36–50.
   PubMed Web of Science ®Google Scholar
• Schiariti V, Klassen AF, Cieza A, et al. Comparing contents of outcome measures in cerebral palsy using the international classification of functioning (ICF-CY): a systematic review. Eur J Paediatr Neurol. 2014;18:1–12.
   PubMed Web of Science ®Google Scholar
• Christensen R, Macintosh A, Switzer L, et al. Change in pain status in children with cerebral palsy. Dev Med Child Neurol. 2017;59:374–379.
   PubMed Web of Science ®Google Scholar
• Kingsnorth S, Orava T, Provvidenza C, et al. Chronic pain assessment tools for cerebral palsy: a systematic review. Pediatrics. 2015;136:e947–e960.
   PubMed Web of Science ®Google Scholar
• Jahnsen R. Pain hurts 2: changes over time in children and young people with cerebral palsy. Dev Med Child Neurol. 2017;59:345–346.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International classification of functioning, disability and health: Children & youth version. Geneva: World Health Organization; 2007.
   Google Scholar
• Jonsdottir J, Rainero G, Racca V, et al. Functioning and disability in persons with low back pain. Disabil Rehabil. 2010;32 Suppl 1:S78–S84.
   PubMed Web of Science ®Google Scholar
• Stier-Jarmer M, Cieza A, Borchers M, et al. How to apply the ICF and ICF core sets for low back pain. Clin J Pain. 2009;25:29–38.
   PubMed Web of Science ®Google Scholar
• Schwegler U, Anner J, Boldt C, et al. Aspects of functioning and environmental factors in medical work capacity evaluations of persons with chronic widespread pain and low back pain can be represented by a combination of applicable ICF core sets. BMC Public Health. 2012;12:1088.
   PubMed Web of Science ®Google Scholar
• Simeonsson RJ, Bjorck-Akesson E, Lollar DJ. Communication, disability, and the ICF-CY. Augment Alternat Commun (Baltimore, MD: 1985). 2012;28:3–10.
   PubMed Web of Science ®Google Scholar
• Huber EO, Tobler A, Gloor-Juzi T, et al. The ICF as a way to specify goals and to assess the outcome of physiotherapeutic interventions in the acute hospital. J Rehabil Med. 2011;43:174–177.
   PubMed Web of Science ®Google Scholar
• Kostanjsek N, Rubinelli S, Escorpizo R, et al. Assessing the impact of health conditions using the ICF. Disabil Rehabil. 2011;33:1475–1482.
   PubMed Web of Science ®Google Scholar
• Ptyushkin P, Vidmar G, Burger H, et al. Use of the international classification of functioning, disability, and health in traumatic brain injury rehabilitation: linking issues and general perspectives. Am J Phys Med Rehabil. 2012;91(13 Suppl 1):S48–S54.
   Web of Science ®Google Scholar
• Selb M, Escorpizo R, Kostanjsek N, et al. A guide on how to develop an international classification of functioning, disability and health core set. J Occup Rehabil. 2015;51:105–117.
   Google Scholar
• Schiariti V, Selb M, Cieza A, et al. International classification of functioning, disability and health core sets for children and youth with cerebral palsy: a consensus meeting. Dev Med Child Neurol. 2015;57:149–158.
   PubMed Web of Science ®Google Scholar
• Cieza A, Stucki G. Applying the ICF and ICF core sets for chronic widespread pain. In: Carr D: Wittink H, editor. Pain management: evidence, outcomes, and quality of life. A sourcebook. pain research and clinical management series. Amsterdam (Netherlands): Elsevier Limited; 2007. p. 161–170 (Pain Research and Clinical Management, 19).
   Google Scholar
• Cieza A, Ewert T, Ustun TB, et al. Development of ICF core sets for patients with chronic conditions. J Rehabil Med. 2004;(44 Suppl):9–11.
   PubMed Web of Science ®Google Scholar
• McGrath PJ, Walco GA, Turk DC, et al. Core outcome domains and measures for pediatric acute and chronic/recurrent pain clinical trials: PedIMMPACT recommendations. J Pain. 2008;9:771–783.
   PubMed Web of Science ®Google Scholar
• Kingsnorth S, Adler E, Ami N, et al. Developing a cerebral palsy chronic pain assessment toolkit: a systematic review of the evidence. Dev Med Child Neurol. 2013;55:39.
   Web of Science ®Google Scholar
• Cieza A. ICF linking rules: an update based on lessons learned. J Rehabil Med. 2005;37:212.
   PubMed Web of Science ®Google Scholar
• Fayed N, Schiariti V, Bostan C, et al. Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using world health organization definitions. Qual Life Res. 2011;20:1247–1258.
   PubMed Web of Science ®Google Scholar
• Schiariti V, Fayed N, Cieza A, et al. Content comparison of health-related quality of life measures for cerebral palsy based on the international classification of functioning. Disabil Rehabil. 2011;33:1330–1339.
   PubMed Web of Science ®Google Scholar