3,528
Views
12
CrossRef citations to date
0
Altmetric
Research Papers

Self-management of a musculoskeletal condition for people from harder to reach groups: a qualitative patient interview study

, , , , , , & show all
Pages 3034-3042 | Received 13 Oct 2017, Accepted 03 Jun 2018, Published online: 28 Oct 2018

References

  • Flanagan SM, Hancock B. ‘Reaching the hard to reach’ - lessons learned from the VCS (voluntary and community Sector). A qualitative study. BMC Health Serv Res. 2010;10:92–92.
  • Murray CJL, Richards MA, Newton JN, et al. UK health performance: findings of the Global Burden of Disease Study 2010. The Lancet. 2013;381:997–1020.
  • Naylor C, Imison C, Addicott R, et al. Transforming our health care system: ten priorities for commissioners. London (UK): Kings Fund; 2013.
  • Craig P, Dieppe P, Macintyre S, et al. Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ. 2008;337:a1655.
  • Kroon FP, van der Burg LR, Buchbinder R, et al. Self-management education programmes for osteoarthritis. Cochrane Database Syst Rev. 2014;(1):CD008963.
  • Dziedzic K, Hammond A. Rheumatology: evidence-based practice for physiotherapists and occupational therapists. Edinburgh: Elsevier; 2010.
  • Rogers A, Kennedy A, Bower P, et al. The United Kingdom Expert Patients Programme: results and implications from a national evaluation. Med J Australia. 2008;189:S21–S24.
  • Vermaak V, Briffa NK, Langlands B, et al. Evaluation of a disease specific rheumatoid arthritis self-management education program, a single group repeated measures study. BMC Musculoskelet Disord. 2015;16:214.
  • Lamb SE, Williamson EM, Heine PJ, et al. Exercises to improve function of the rheumatoid hand (SARAH): a randomised controlled trial. Lancet. 2015;385:421–429.
  • Carpenter K, Stoner S, Mundt J, et al. An online self-help CBT intervention for chronic lower back pain. Clin J Pain. 2012;28:14–22.
  • Hewlett S, Ambler N, Almeida C, et al. Self-management of fatigue in rheumatoid arthritis: a randomised controlled trial of group cognitive-behavioural therapy. Ann Rheum Dis. 2011;70:1060–1067.
  • Conn DL, Pan Y, Easley KA, et al. The effect of the Arthritis Self-Management Program on outcome in African Americans with rheumatoid arthritis served by a public hospital. Clin Rheumatol. 2013;32:49–59.
  • Nutbeam D. Health promotion glossary. Health Prom Int. 1998;13:349–364.
  • Nutbeam D. Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century. Health Prom Int. 2000;15:259–267.
  • Jordan JE, Buchbinder R, Osborne RH. Conceptualising health literacy from the patient perspective. Patient Educ Counsel. 2010;79:36–42.
  • Dodson S, Good S, Osborne R. Health literacy toolkit for low and middle-income countries: a series of information sheets to empower communities and strengthen health systems. New Delhi: World Health Organisation; 2015.
  • Smith SG, Curtis LM, Wardle J, et al. Skill set or mind set? Associations between health literacy, patient activation and health. PLoS One. 2013;8:e74373.
  • Rowlands G, Protheroe J, Winkley J, et al. A mismatch between population health literacy and the complexity of health information: an observational study. Br J Gen Pract. 2015;65:e379–e386.
  • Berkman ND, Sheridan SL, Donahue KE, et al. Low health literacy and health outcomes: an updated systematic review. Ann Intern Med. 2011;155:97–107.
  • Loke Y, Hinz I, Wang X, et al. Impact of health literacy in patients with chronic musculoskeletal disease – systematic review. PLoS Genet. 2012;7:e40210.
  • Sheridan SL, Halpern DJ, Viera AJ, et al. Interventions for individuals with low health literacy: a systematic review. J Health Commun. 2011;16:30–54.
  • Rowlands G, Protheroe J, Winkley J, et al. A mismatch between population health literacy and the complexity of health information: an observational study. Brit J Gen Pract. 2015;65:e379–e386.
  • De Silva D. Evidence: helping people help themselves. London: The Health Foundation; 2011.
  • Lowe W, Ballinger C, Protheroe J, et al. Effectiveness of musculoskeletal education interventions in people with low literacy levels: a systematic review. Arthritis Care Res (Hoboken). 2013;65:1976–1985.
  • National Institute for Health and Clinical Excellence. Osteoarthritis: care and management Clinical guideline [CG177]. London: NICE; 2014.
  • Zangi HA, Ndosi M, Adams J, et al. EULAR recommendations for patient education for people with inflammatory arthritis. Ann Rheum Dis. 2015;74:954–962.
  • Lowe W, Ballinger C, Protheroe J, et al. Suggestions for a research agenda for Health Literacy and musculoskeletal health – reflections following a qualitative evidence synthesis. Working Papers Health Sci. 2014;1:1–8.
  • Bayliss EA, Bonds DE, Boyd CM, et al. Understanding the context of health for persons with multiple chronic conditions: moving from what is the matter to what matters. Ann Fam Med. 2014;12:260–269.
  • Creswell J, Plano Clark V. Designing and conducting mixed methods research. 2nd ed. Los Angeles (CA): Sage; 2011.
  • Guttman N, Salmon CT. Guilt, fear, stigma and knowledge gaps: ethical issues in public health communication interventions. Bioethics. 2004;18:531–552.
  • Health Research Authority/INVOLVE. Impact of public involvement on ethical aspects of research. Southampton (UK): INVOLVE; 2016.
  • Mason J, May T. Qualitative interviewing: asking, listening and interpreting. Qualitative Research in Action. Sage; 2002.
  • Kitzinger J. Qualitative research. Introducing focus groups. BMJ. 1995;311:299–302.
  • Arozullah AM, Yarnold PR, Bennett CL, et al. Development and validation of a short-form, rapid estimate of adult literacy in medicine. Med Care. 2007;45:1026–1033.
  • Guzys D, Kenny A, Dickson-Swift V, et al. A critical review of population health literacy assessment. BMC Public Health. 2015;15:1–7.
  • Kavanagh J, Oliver S, Lorenc T. Reflections on developing and using PROGRESS-Plus. Ottawa: Cochrane Health Equity Field; 2008.
  • Braun V, Clarke V. Using thematic approaches in psychology. Qual Res Psychol. 2006;3:77–101.
  • Ballinger C. Writing up rigour: representing and evaluating good scholarship in qualitative research. Br J Occup Ther. 2004;67:540–546.
  • Fossey E, Harvey C, McDermott F, et al. Understanding and evaluating qualitative research. Aust N Z J Psychiatry. 2002;36:717–732.
  • Heijmans M, Waverijn G, Rademakers J, et al. Functional, communicative and critical health literacy of chronic disease patients and their importance for self-management. Patient Educ Counsel. 2015;98:41–48.
  • Haun JN, Patel NR, French DD, et al. Association between health literacy and medical care costs in an integrated healthcare system: a regional population based study. BMC Health Serv Res. 2015;15:249.
  • Jordan KP, Edwards JJ, Porcheret M, et al. Effect of a model consultation informed by guidelines on recorded quality of care of osteoarthritis (MOSAICS): a cluster randomised controlled trial in primary care. Osteoarthr Cartil. 2017;25:1588–1597.
  • Coulter A, Ellins J. Effectiveness of strategies for informing, educating, and involving patients. BMJ. 2007;335:24–27.
  • Adams J, Whale E, Walker D-M, et al. What factors do people with joint pain feel are important in designing and developing community information-based self-management approaches? A patient and public engagement report. Musculoskelet Care. 2017;15:167.
  • Chapman L, Lawson J, Russell C, et al. An investigation into the accessibility of online self-management support websites for people with chronic joint pain. Rheumatology. 2017;56:ii36–ii48.
  • Ha Dinh TT, Bonner A, Clark R, et al. The effectiveness of the teach-back method on adherence and self-management in health education for people with chronic disease: a systematic review. JBI Database System Rev Implement Rep. 2016;14:210–247.
  • Rudd RE. Needed action in health literacy. J Health Psychol. 2013;18:1004–1010.
  • Vassilev I, Rogers A, Kennedy A, et al. Social network type and long-term condition management support: a cross-sectional study in six European countries. PLoS One. 2016;11:e0161027.
  • Ong BN, Jinks C, Morden A. The hard work of self-management: living with chronic knee pain. Int J Qual Stud Health Well-Being. 2011;6:7035.
  • Kennedy A, Bower P, Reeves D, et al. Implementation of self management support for long term conditions in routine primary care settings: cluster randomised controlled trial. Br Med J. 2013;346:f2882.
  • Mancuso JM. Assessment and measurement of health literacy: an integrative review of the literature. Nurs Health Sci. 2009;11:77–89.
  • Altin SV, Finke I, Kautz-Freimuth S, et al. The evolution of health literacy assessment tools: a systematic review. BMC Public Health. 2014;14:1207.
  • Osborne RH, Batterham RW, Elsworth GR, et al. The grounded psychometric development and initial validation of the Health Literacy Questionnaire (HLQ). BMC Public Health. 2013;13:658.
  • Agarwal N, Shah K, Stone JG, et al. Educational resources "over the head" of neurosurgical patients: the economic impact of inadequate health literacy. World Neurosurg. 2015;84:1223–1226.
  • Bostock S, Steptoe A. Association between low functional health literacy and mortality in older adults: longitudinal cohort study. BMJ. 2012;344:e1602.