Stroke survivor attitudes toward, and motivations for, considering experimental stem cell treatments

References

• Thrift AG, Cadilhac DA, Thayabaranathan T. Global stroke statistics. Int J Stroke. 2014;9:6–18.
   PubMed Web of Science ®Google Scholar
• Wang Y, Wang Y. Stroke research in 2017: surgical progress and stem-cell advances. Lancet Neurol. 2018;17:2–3.
   PubMed Web of Science ®Google Scholar
• Anderson E, Fernandez S, Ganzman A, et al. Incorporating nonphysician stroke specialists into the stroke team. Stroke. 2017;48:e323–e325.
   PubMed Web of Science ®Google Scholar
• Mozaffarian D, Benjamin EJ, Go AS, et al. Executive summary: heart disease and stroke statistics-2016 update: a report from the American Heart Association. Circulation. 2016;133:447–454.
   PubMed Web of Science ®Google Scholar
• Hackett ML, Köhler S, O'Brien J, et al. Neuropsychiatric outcomes of stroke. Lancet Neurol. 2014;13:525–534.
   PubMed Web of Science ®Google Scholar
• Richards CL, Malouin F, Nadeau S. Stroke rehabilitation: clinical picture, assessment, and therapeutic challenge. Prog. Brain Res. 2015;218:253–280.
   PubMed Web of Science ®Google Scholar
• Unsworth DJ, Mathias JL, Dorstyn DS. Safety and efficacy of cell therapies administered in the acute and subacute stages after stroke: a meta-analysis. Regen Med. 2016;11:725–741.
   PubMed Web of Science ®Google Scholar
• Unsworth DJ, Mathias JL, Dorstyn DS. Cell therapies administered in the chronic phase after stroke: a meta-analysis examining safety and efficacy. Regen Med. 2017;12:91–108.
   PubMed Web of Science ®Google Scholar
• Nagpal A, Choy FC, Howell S, et al. Safety and effectiveness of stem cell therapies in early-phase clinical trials in stroke: a systematic review and meta-analysis. Stem Cell Res Ther. 2017;8:13.
   PubMed Web of Science ®Google Scholar
• Jolkkonen J, Kwakkel G. Translational hurdles in stroke recovery studies. Transl Stroke Res. 2016; 7:331–342.
   PubMed Web of Science ®Google Scholar
• Sipp D, Caulfield T, Kaye J, et al. Marketing of unproven stem cell–based interventions: a call to action. Sci Transl Med. 2017;9:1–5.
   Web of Science ®Google Scholar
• Srivastava A, Mason C, Wagena E, et al. Part 1: defining unproven cellular therapies. Cytotherapy. 2016;18:117–119.
   PubMed Web of Science ®Google Scholar
• Mikati T, Griffin K, Lane D, et al. International travel patterns and travel risks for stem cell transplant recipients. J Travel Med. 2015;22:39–47.
   PubMed Web of Science ®Google Scholar
• Kim YS, Chung DI, Choi H, et al. Fantasies about stem cell therapy in chronic ischemic stroke patients. Stem Cells Dev. 2013;22:31–36.
   PubMed Web of Science ®Google Scholar
• Petersen A, Seear K, Munsie M. Therapeutic journeys: the hopeful travails of stem cell tourists. Sociol Health Illn. 2014;36:670–685.
   PubMed Web of Science ®Google Scholar
• Rachul C. “What have I got to lose?” An analysis of stem cell therapy patients’ blogs. Health Law Rev. 2011;20:5–12.
   Google Scholar
• Stucki G. International Classification of Functioning, Disability, and Health (ICF): a promising framework and classification for rehabilitation medicine. Am J Phys Med Rehabil. 2005;84:733–740.
   PubMed Web of Science ®Google Scholar
• Sheeran P, Maki A, Montanaro E, et al. The impact of changing attitudes, norms, and self-efficacy on health-related intentions and behavior: a meta-analysis. Health Psychol. 2016;35:1178–1188.
   PubMed Web of Science ®Google Scholar
• Ajzen I. The theory of planned behavior. Organ Behav Hum Decis Processes. 1991;50:179–211.
   Web of Science ®Google Scholar
• Seow AN, Choong YO, Moorthy K, et al. Intention to visit Malaysia for medical tourism using the antecedents of Theory of Planned Behaviour: a predictive model. Int J Tourism Res. 2017;19:383–393.
   Web of Science ®Google Scholar
• Von Elm E, Altman DG, Egger M, et al. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. Bmj. 2007;335:806–808.
   PubMed Web of Science ®Google Scholar
• Nouri FM, Lincoln NB. An extended activities of daily living scale for stroke patients. Clin Rehabil. 1987;1:301–305.
   Google Scholar
• Hawthorne G, Richardson J, Osborne R. The Assessment of Quality of Life (AQoL) instrument: a psychometric measure of health-related quality of life. Qual Life Res. 1999;8:209–224.
   PubMed Web of Science ®Google Scholar
• Duncan PW, Wallace D, Lai SM, et al. The stroke impact scale version 2.0. Evaluation of reliability, validity, and sensitivity to change. Stroke. 1999;30:2131–2140.
   PubMed Web of Science ®Google Scholar
• Pound P, Gompertz P, Ebrahim S. Patients’ satisfaction with stroke services. Clin Rehabil. 1994;8:7–17.
   Google Scholar
• Zimet GD, Dahlem NW, Zimet SG, et al. The multidimensional scale of perceived social support. J Pers Assess. 1988;52:30–41.
   Web of Science ®Google Scholar
• Snaith RP. The hospital anxiety and depression scale. Health Qual Life Outcomes. 2003;1:29–33.
   PubMedGoogle Scholar
• Sagen U, Vik TG, Moum T, et al. Screening for anxiety and depression after stroke: comparison of the Hospital Anxiety and Depression Scale and the Montgomery and Åsberg Depression Rating Scale. J Psychosom Res. 2009;67:325–332.
   PubMed Web of Science ®Google Scholar
• Cousineau N, McDowell I, Hotz S, et al. Measuring chronic patients’ feelings of being a burden to their caregivers: development and preliminary validation of a Scale. Med Care. 2003;41:110–118.
   PubMed Web of Science ®Google Scholar
• Horton NJ, Kleinman KP. Much ado about nothing: a comparison of missing data methods and software to fit incomplete data regression models. Am Stat. 2007;61:79–90.
   PubMed Web of Science ®Google Scholar
• Eekhout I, de Vet HC, Twisk JW, et al. Missing data in a multi-item instrument were best handled by multiple imputation at the item score level. J Clin Epidemiol. 2014;67:335–342.
   PubMed Web of Science ®Google Scholar
• Hosmer DW, Lemeshow S, Sturdivant RX. Applied logistic regression. NJ: John Wiley & Sons; 2013.
   Google Scholar
• Steyerberg EW, Harrell FE. Prediction models need appropriate internal, internal–external, and external validation. J Clin Epidemiol. 2016;69:245–247.
   PubMed Web of Science ®Google Scholar
• Muller CJ, MacLehose RF. Estimating predicted probabilities from logistic regression: different methods correspond to different target populations. Int J Epidemiol. 2014;43:962–970.
   PubMed Web of Science ®Google Scholar
• Zipkin DA, Umscheid CA, Keating NL, et al. Evidence-based risk communication: a systematic review. Ann Intern Med. 2014;161:270–280.
   PubMed Web of Science ®Google Scholar
• Vittinghoff E, McCulloch CE. Relaxing the rule of ten events per variable in logistic and Cox regression. Am J Epidemiol. 2007;165:710–718.
   PubMed Web of Science ®Google Scholar
• IBM Corp. IBM SPSS Statistics for Windows, Version 24.0. NY, IBM Corp; 2012.
   Google Scholar
• Sarkar SK, Midi H, Rana S. Detection of outliers and influential observations in binary logistic regression: an empirical study. J of Applied Sciences. 2011;11:26–35.
   Google Scholar
• Yu JY, Ko TG. A cross-cultural study of perceptions of medical tourism among Chinese, Japanese and Korean tourists in Korea. Tour Manag. 2012;33:80–88.
   Web of Science ®Google Scholar
• Aked J, Delavaran H, Lindvall O, et al. Attitudes to stem cell therapy among ischemic stroke survivors in the Lund Stroke Recovery Study. Stem Cells Dev. 2017; 26:566–572.
   PubMed Web of Science ®Google Scholar
• Petersen A, Munsie M, Tanner C, et al. Stem cell tourism and the political economy of hope. London (UK): Springer; 2017.
   Google Scholar
• McLean AK, Stewart C, Kerridge I. Untested, unproven, and unethical: the promotion and provision of autologous stem cell therapies in Australia. Stem Cell Res Ther. 2015;6:33–41.
   PubMed Web of Science ®Google Scholar
• Knoepfler PS. Too much carrot and not enough stick in new stem cell oversight trends. Stem Cell. 2018;23:18–20.
   Google Scholar
• Tanner C, Petersen A, Munsie M. ‘No one here's helping me, what do you do?’: addressing patient need for support and advice about stem cell treatments. Regen Med. 2017;12:791–801.
   PubMed Web of Science ®Google Scholar
• Sparrow EP, Spaniol J. Age-related changes in decision making. Curr Behav Neurosci Rep. 2016;3:285–292.
   Google Scholar
• Kneebone II. A framework to support cognitive behavior therapy for emotional disorder after stroke. Cogn Behav Pract. 2016;23:99–109.
   Web of Science ®Google Scholar
• Winson R, Wilson BA, and Bateman A. (Eds.). The brain injury rehabilitation workbook. New York (NY): Guilford Publications; 2016. p. 263–277.
   Google Scholar