6,527
Views
13
CrossRef citations to date
0
Altmetric
Research Papers

Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke

ORCID Icon, , , , ORCID Icon, , , ORCID Icon & show all
Pages 1359-1372 | Received 07 Nov 2017, Accepted 12 Sep 2018, Published online: 03 Dec 2018

References

  • National Audit Office (UK). Progress in improving stroke care. 2010. Her Majesty’s Stationery Office P002346666 02/10 77240.
  • World Health Organization (WHO). WHO STEPS Stroke Manual: The WHO STEPwise Approach to Stroke Surveillance. Geneva: World Health Organization; 2006.
  • Daniel K, Charles DA, Wolfe MD. What are the social consequences of stroke for working-aged adults? A systematic review. Stroke. 2009;40:e431–e440.
  • Lo Buono V, Corallo F, Bramanti P, et al. Coping strategies and health-related quality of life after stroke. J Health Psychol. 2017;22:16–28.
  • Pollock A, St George B, Fenton M, et al. Top ten research priorities relating to life after stroke. Lancet Neurol. 2012;11:209.
  • Morris R, Morris P. Participants’ experiences of hospital-based peer coaching groups for stroke patients and carers. Disabil Rehabil. 2012;34:347–354.
  • Sveen U, Thommessen B, Bautz-Holter E, et al. Well-being and instrumental activities of daily living after stroke. Clin Rehabil. 2004;18:267–274.
  • Hartman-Maeir A, Soroker N, Ring H, et al. Activities, participation and satisfaction one-year post stroke. Disabil Rehabil. 2007;29:559–566.
  • Carlsson GE, Moller A, Blomstrand C. Managing an everyday life of uncertainty-a qualitative study of coping in persons with mild stroke. Disabil Rehabil. 2009;31:773–782.
  • Jones S, Auton M, Burton C, et al. Engaging service users in the development of stroke services: an action research study. J Clin Nurs. 2008;17:1270–1279.
  • Parker CJ, Gladman JRF, Drummond AER, et al. A multicentre randomized controlled trial of leisure therapy and conventional occupational therapy after stroke. Clin Rehabil. 2001;15:42–52.
  • Logan PA, Gladman JRF, Drummond AER, et al. A study of interventions and related outcomes in a randomized controlled trial of occupational therapy and leisure therapy for community stroke patients. Clin Rehabil. 2003;17:249–255.
  • Desrosiers J, Noreau L, Rochette A, et al. Effect of a home leisure education program after stroke: a randomized controlled trial. Arch Phys Med Rehabil. 2007;88:1095–2000.
  • Hartman-Maeir A, Eliad Y, Kizoni R, et al. Evaluation of a long-term community based rehabilitation program for adult stroke survivors. Neurorehabil. 2007;22:295–301.
  • Reupert A, Maybery D. A snapshot of Australian programs to support children and adolescents whose parents have a mental illness. Psychiatr Rehabil J. 2009;33:125–132.
  • Foster K, Lewis P, McCloughen A. Experiences of peer support for children and adolescents whose parents and siblings have mental health illness. J Child Adolesc Psychiatr Nurs. 2014;27:61–67.
  • Kessler D, Egan M, Kubina LA. Peer support for stroke survivors: a case study. BMC Health Serv Res. 2014;14:256–265.
  • Beauchamp MR, Scarlett LJ, Ruissen GR, et al. Peer mentoring of adults with spinal cord injury: a transformational leadership perspective. Disabil Rehabil. 2016;38:1884–1892.
  • Greenwood N, Habibi R, Mackenzie A, et al. Peer support for carers: a qualitative investigation of the experiences of carers and peer volunteers. Am J Alzheimers Dis Other Demen. 2013;28:617–626.
  • Ng L, Amatya B, Khan F. Outcomes of a peer support program in multiple sclerosis in an Australian community cohort: a prospective study. J Neurodegener Dis. 2013;2013:429171.
  • Nesta (UK). Peer Support: What is it and does it work? National voices. People shaping health and social care. 2015.
  • Dennis CL. Peer support within a health care context: a concept analysis. Int J Nurs Stud. 2003;40:321–332.
  • Ch'ng AM, French D, McLean N. Coping with the challenges of recovery from stroke: long term perspectives of stroke support group members. J Health Psychol. 2008;13:1136–1146.
  • Hancock E. Health Recovery Social Networks: Exploring the experiences of participants in stroke recovery peer support groups. Ottawa, Canada: Stroke Recovery Canada®; 2009. http://www.marchofdimes.ca/EN/programs/src/Documents/Strokepeersupport.pdf]
  • Batalden M, Batalden P, Margolis P, et al. Coproduction of healthcare service. BMJ Qual Saf. 2016;25:509–517.
  • Beaver LG, Litowsky L, Suddes M, et al. I.N.S.P.I.R.E.S. - in-patient support program in recovery from stroke- “the voice(s) of experience”. Stroke. 2012;43:e115–e162.
  • Ajzen I. The theory of planned behavior. Organ Behav Hum Decis Process. 1991;50:179–211.
  • Bandura A. Self-efficacy. New York: Freeman; 1997.
  • Leventhal H, Diefenbach MA, Leventhal EA. Illness cognition: Using common sense to understand treatment adherence and affect cognition interactions. Cogn Ther Res. 1992;16:143–163.
  • Bass MB. Leadership and performance beyond expectations. 4th ed. New York: Free Press; 1985.
  • Kelly GA. The psychology of personal constructs. 2nd ed. New York: Norton; 1955.
  • Johnston M, Pollard B, Morrison V, et al. Functional limitations and survival following stroke:psychological and clinincal predictors of 3-year outcome. Int J Behav Med. 2004;11:187–196.
  • Morrison V, Pollard B, Johnston M, et al. Depression and anxiety following stroke: Demographic, clinical, psychological predictors of 3-year outcome. J Psychosom Res. 2005;59:209–213.
  • Clarke D, Jones F, Harris R, et al. What outcomes are associated with developing and implementing co-produced interventions in acute care settings? A rapid evidence synthesis. BMJ Open. 2017;7:e014650.
  • Van Swieten J, Koudstaal P, Visser M, et al. Interobserver agreement for the assessment of handicap in stroke patients. Stroke. 1988;19:604–607.
  • Quinn T, Langhorne P, Stott D. Barthel index for stroke trials: development, properties, and application. Stroke 2011;42:1146–1151.
  • Goldberg D, Williams P. A User’s Guide to the General health Questionnaire. Windsor: NFER-Nelson; 1988.
  • Charmaz K. Grounded theory: Objectivist and constructivist methods. In: Denzin N.K. & Lincoln T.S. eds. Handbook of Qualitative Research. 2nd ed. Thousand Oaks, CA: Sage Publications; 2002.
  • Kouwenhoven SE, Kirkevold M, Engedal K, et al. Depression in acute stroke: prevalence, dominant symptoms and associated factors. A systematic literature review. Disabil Rehabil. 2011;33:539–556.
  • Simoni A, Shanks A, Balasooriya-Smeekens C. Stroke survivors and their families receive information and support on an individual basis from an online forum: descriptive analysis of a population of 2348 patients and qualitative study of a sample of participants. BMJ Open. 2016;6:e010501.
  • Cameron JI, Gignac MA. “Timing It Right”: a conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home. Patient Educ Couns. 2008;70:305–314.
  • Goldfinger JZ, Kronish IM, Fei K, et al. Peer education for secondary stroke prevention in inner-city minorities: design and methods of the prevent recurrence of all inner-city Strokes through Education randomized controlled trial. Contemp Clin Trials. 2012;33:1065–1073.