6,348
Views
12
CrossRef citations to date
0
Altmetric
Research Papers

The multiple faces of pain in motor neuron disease: a qualitative study to inform pain assessment and pain management

, , &
Pages 2123-2132 | Received 23 Feb 2018, Accepted 30 Nov 2018, Published online: 24 Apr 2019

References

  • Ludolph A, Drory V, Hardiman O, et al. A revision of the El Escorial criteria - 2015. Amyotroph La Scl Fr. 2015;16:291.
  • Wood-Allum C, Shaw PJ. Motor neurone disease: a practical update on diagnosis and management. Clin Med (Lond). 2010;10:252–258.
  • Wijesekera LC, Leigh PN. Amyotrophic lateral sclerosis. Orphanet J Rare Dis. 2009;4:3.
  • Handy CR, Krudy C, Boulis N, et al. Pain in Amyotrophic Lateral Sclerosis: A Neglected Aspect of Disease. Neuro Res Int. 2011;2011:403808.
  • Gunther R, Richter N, Sauerbier A, et al. Non-Motor Symptoms in Patients Suffering from Motor Neuron Diseases. Front Neurol. 2016;7:117.
  • Swinnen B, Robberecht W. The phenotypic variability of amyotrophic lateral sclerosis. Nat Rev Neurol. 2014;10:661–670.
  • Chio A, Mora G, Lauria G. Pain in amyotrophic lateral sclerosis. Lancet Neurol. 2017;16:144–157.
  • Wallace VC, Ellis CM, Burman R, et al. The evaluation of pain in amyotrophic lateral sclerosis: a case controlled observational study. Amyotroph La Scl Fr. 2014;15:520.
  • Rivera I, Ajroud-Driss S, Casey P, et al. Prevalence and characteristics of pain in early and late stages of ALS. Amyotroph La Scl Fr. 2013;14:369–372.
  • Hanisch F, Skudlarek A, Berndt J, et al. Characteristics of pain in amyotrophic lateral sclerosis. Brain Behav. 2015;5:e00296
  • Lopes LCG, Galhardoni R, Silva V, et al. Beyond weakness: Characterization of pain, sensory profile and conditioned pain modulation in patients with motor neuron disease: A controlled study. Eur J Pain. 2018;22:72–83.
  • Stephens HE, Lehman E, Raheja D, et al. Pain in amyotrophic lateral sclerosis: Patient and physician perspectives and practices. Amyotroph La Scl Fr. 2016;17:21–29.
  • Pizzimenti A, Aragona M, Onesti E, et al. Depression, pain and quality of life in patients with amyotrophic lateral sclerosis: a cross-sectional study. Funct Neurol. 2013;28:115–119.
  • Adelman EE, Albert SM, Rabkin JG, et al. Disparities in perceptions of distress and burden in ALS patients and family caregivers. Neurology. 2004;62:1766–1770.
  • Chiò A, Canosa A, Gallo S, et al. Pain in amyotrophic lateral sclerosis: a population-based controlled study. Eur J Neurol. 2012;19:551–555.
  • Nicholas MK, Linton SJ, Watson PJ, et al. Early identification and management of psychological risk factors ("yellow flags") in patients with low back pain: a reappraisal. Phys Ther. 2011;91:737–753.
  • Denzin NK, Lincoln YS. Strategies of qualitative inquiry. London: SAGE; 1998.
  • Krippendorff K. Content analysis: an introduction to its methodology. Thousand Oaks, Calif: SAGE; 2013.
  • Antonini G, Gragnani F, Romaniello A, et al. Sensory involvement in spinal-bulbar muscular atrophy (Kennedy's disease). Muscle Nerve. 2000;23:252–258.
  • Cedarbaum JM, Stambler N, Malta E, et al. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169:13–21.
  • Keller S, Bann CM, Dodd SL, et al. Validity of the brief pain inventory for use in documenting the outcomes of patients with noncancer pain. Clin J Pain. 2004;20:309–318.
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurs Educ Today. 2004;24:105–112.
  • Pagnini F, Lunetta C, Banfi P, et al. Pain in Amyotrophic Lateral Sclerosis: a psychological perspective. Neurol Sci. 2012;33:1193–1196.
  • Caress JB, Ciarlone SL, Sullivan EA, et al. Natural history of muscle cramps in amyotrophic lateral sclerosis. Muscle Nerve. 2016;53:513–517.
  • Adams LM, Turk DC. Psychosocial factors and central sensitivity syndromes. Curr Rheumatol Rev. 2015;11:96–108.
  • de Castro-Costa CM, Oria RB, Machado-Filho JA, et al. Amyotrophic lateral sclerosis. Clinical analysis of 78 cases from Fortaleza (northeastern Brazil). Arq Neuro-Psiquiatr. 1999;57:761–774.
  • Newrick PG, Langton-Hewer R. Pain in motor neuron disease. J Neurol Neurosurg Psychiatry. 1985;48:838–840.
  • Hecht M, Hillemacher T, Grasel E, et al. Subjective experience and coping in ALS. Amyotroph Lateral Scler Other Motor Neuron Disord. 2002;3:225–231.
  • Fairchild A. Under-treatment of cancer pain. Curr Opin Support Palliat Care. 2010;4:11–15.
  • Linton SJ, Shaw WS. Impact of psychological factors in the experience of pain. Phys Ther. 2011;91:700–711.
  • Fusch PI, Ness LR. Are we there yet? Data saturation in qualitative research. Qual Rep. 2015;20:1408.
  • Scherder EJA, Eggermont L, Plooij B, et al. Relationship between chronic pain and cognition in cognitively intact older persons and in patients with Alzheimer's disease. The Need to Control for Mood. Gerontology. 2008;54:50–58.
  • Benedetti F, Arduino C, Vighetti S, et al. Pain reactivity in Alzheimer patients with different degrees of cognitive impairment and brain electrical activity deterioration. Pain 2004;111:22–29.