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Research Papers

A grounded theory of parents’ attendance, participation and engagement in children’s developmental rehabilitation services: Part 2. The journey to child health and happiness

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Pages 2151-2160 | Received 13 Jun 2018, Accepted 30 Nov 2018, Published online: 23 Jan 2019

References

  • Kuhlthau KA, Bloom S, Van Cleave J, et al. Evidence for family-centered care for children with special health care needs: a systematic review. Acad Pediatr. 2011;11:136–143.
  • Rosenbaum P, King S, Law M, et al. Family-centred service: a conceptual framework and research review. Phys Occup Ther Pediatr. 1998;86:1–20.
  • Siebes RC, Wijnroks L, Ketelaar M, et al. Parent participation in paediatric rehabilitation treatment centres in the Netherlands: a parents' viewpoint. Child Care Health Dev. 2007;33:196–205.
  • Arai L, Stapley S, Roberts H. 'Did not attends' in children 0-10: a scoping review. Child Care Health Dev. 2014;40:797–805.
  • Littell J, Alexander L, Reynolds W. Client participation: central and underinvestigated elements of intervention. Soc Serv Rev. 2001;75:1–28.
  • Bright FAS, Kayes NM, Worrall L, et al. A conceptual review of engagement in healthcare and rehabilitation. Disabil Rehabil. 2015;37:643–654.
  • D'Arrigo R, Ziviani J, Poulsen AA, et al. Child and parent engagement in therapy: what is the key? Aust Occup Ther J. 2017;64(4):340–343.
  • King G, Currie M, Petersen P. Child and parent engagement in the mental health intervention process: a motivational framework. Child and Child Adolesc Ment Health. 2014;19:2–8.
  • Boag-Munroe G, Evangelou M. From hard to reach to how to reach: a systematic review of the literature on hard-to-reach families. Res Pap Ed. 2012;27:209–239.
  • Phoenix M, Rosenbaum P. Development and implementation of a paediatric rehabilitation care path for hard-to-reach families: a case report. Child Care Health Dev. 2015;41:494–499.
  • Winkworth G, McArthur M, Layton M, et al. Opportunities lost––why some parents of young children are not well-connected to the service systems designed to assist them. Aust Soc Work. 2010;63:431–444.
  • King G, Servais M, Shepherd TA, et al. A listening skill educational intervention for pediatric rehabilitation clinicians: a mixed-methods pilot study. Dev Neurorehabil. 2017;20(1):40-52.
  • Hurtubise K, Carpenter C. Parents' experiences in role negotiation within an infant services program. Infants Young Child. 2011;24:75–86.
  • Øien I, Fallang B, Østensjø S. Goal-setting in paediatric rehabilitation: perceptions of parents and professional. Child Care Health Dev. 2010;36:558–565.
  • Wiart L, Ray L, Darrah J, et al. Parents' perspectives on occupational therapy and physical therapy goals for children with cerebral palsy. Disabil Rehabil. 2010;32:248–258.
  • King G, Currie M, Bartlett DJ, et al. The development of expertise in pediatric rehabilitation therapists: changes in approach, self-knowledge, and use of enabling and customizing strategies. Dev Neurorehabil. 2007;10:223–240.
  • Forsingdal S, St John W, Miller V, et al. Goal setting with mothers in child development services. Child Care Health Dev. 2014;40:587–596.
  • Staudt M. Treatment engagement with caregivers of at-risk children: gaps in research and conceptualization. J Child Fam Stud. 2007;16:183–196.
  • Charmaz K. Constructing grounded theory: a practical guide through qualitative analysis. Thousand Oaks, CA: Sage Publications; 2006.
  • Charmaz K. Constructing grounded theory. 2nd ed. Thousand Oaks, CA: Sage Publications; 2014.
  • Higginbottom G, Lauridsen EI. The roots and development of constructivist grounded theory. Nurse Res. 2014;21:8–13.
  • Lincoln YS, Guba EG. But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Dir Eval. 1986;30:73–84.
  • Gentles SJ, Jack SM, Nicholas DB, et al. Critical approach to reflexivity in grounded theory. Qual Rep. 2014;19:1–14.
  • Breckenridge J, Jones D. Demystifying theoretical sampling in grounded theory. Grounded Theory Rev. 2009;8. http://groundedtheoryreview.com/2009/06/30/847/
  • Gentles SJ, Charles C, Ploeg J, et al. Sampling in qualitative research: insights from an overview of the methods literature sampling. Qual Rep. 2015;20:1772–1789.
  • Boeije H. A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Qual Quant. 2002;36:391–409.
  • Bradley EH, Curry LA, Devers KJ. Qualitative data analysis for health services research: developing taxonomy, themes, and theory. Health Serv Res. 2007;42:1758–1772.
  • Glaser BG, Strauss A. The discovery of grounded theory. Chicago, IL: Aldine; 1967.
  • Birks M, Chapman Y, Francis K. Memoing in qualitative research: probing data and processes. J Res Nurs. 2008;13:68–75.
  • Timmermans S, Tavory I. Theory construction in qualitative research: from grounded theory to abductive analysis. Soc Theory. 2012;30:167–186.
  • Farmer T, Robinson K, Elliott SJ, et al. Developing and implementing a triangulation protocol for qualitative health research. Qual Health Res. 2006;16:377–394.
  • King G. A relational goal-oriented model of optimal service delivery to children and families. Phys Occup Ther Pediatr. 2009;29:384–408.
  • King G. The role of the therapist in therapeutic change: how knowledge from mental health can inform pediatric rehabilitation. Phys Occup Ther Pediatr. 2017;37(2):121-138.
  • Brewer K, Pollock N, Wright FV. Addressing the challenges of collaborative goal setting with children and their families. Phys Occup Ther Pediatr. 2014;34:138–152.
  • Hessell S. ‘Entering the unknown? ’ Identifying potential expectations of paediatric occupational therapy held by families. New Zealand J Occup Ther. 2004;51:5–11.
  • Coyne I. Families and health-care professionals' perspectives and expectations of family-centred care: Hidden expectations and unclear roles. Health Expect. 2015;18:796–808.
  • Andrews F, Griffiths N, Harrison L, et al. Expectations of parents on low incomes and therapists who work with parents on low incomes of the first therapy session. Aust Occup Ther J. 2013;60:436–444.
  • Carroll C. "It's not everyday that parents get a chance to talk like this": exploring parents' perceptions and expectations of speech-language pathology services for children with intellectual disability. Int J Speech Lang Pathol. 2010;12:352–361.
  • Lyons R, O'Malley MP, O'Connor P, et al. 'It's just so lovely to hear him talking': exploring the early-intervention expectations and experiences of parents. Child Lang Teach Ther. 2010;26:61–76.
  • Gibson BE, Teachman G, Wright V, et al. Children's and parents' beliefs regarding the value of walking: rehabilitation implications for children with cerebral palsy. Child Care Health Dev. 2012;38:61–69.
  • Gibson BE, Darrah J, Cameron D, et al. Revisiting therapy assumptions in children's rehabilitation: clinical and research implications. Disabil Rehabil. 2009;31:1446–1453.
  • Gibson BE. Rehabilitation: a post-critical approach. Boca Raton: CRC Press; 2016.
  • World Health Organization. Towards a common language for functioning, disability and health ICF. Geneva: World Health Organization; 2002.
  • Cunningham BJ, Washington KN, Binns A, et al. Current methods of evaluating speech-language outcomes for preschoolers with communication disorders: a scoping review using the icf-cy. J Speech Lang Hear Res. 2017;60:447–464.
  • Darrah J. Using the ICF as a framework for clinical decision making in pediatric physical therapy. Adv Physiother. 2008;10:146–151.
  • Ketelaar M, Bogossian A, Saini M, et al. Assessment of the family environment in pediatric neurodisability: a state-of-the-art review. Dev Med Child Neurol. 2017;59(3):259-269.
  • Geyh S, Peter C, Müller R, et al. The personal factors of the international classification of functioning, disability and health in the literature - a systematic review and content analysis. Disabil Rehabil. 2011;33:1089–1102.
  • Rosenbaum P, Gorter JW. The 'f-words' in childhood disability: i swear this is how we should think!. Child Care Health Dev. 2012;38:457–463.
  • Imms C, Granlund M, Rosenbaum P, et al. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59:16–25.