Parent engagement and disengagement in paediatric settings: an occupational therapy perspective

References

• Rosenbaum P, King S, Law M, et al. Family-centred service. Phys Occup Ther Pediatr. 1998;18:1–20.
   Google Scholar
• Hanna K, Rodger S. Towards family-centred practice in paediatric occupational therapy: a review of the literature on parent-therapist collaboration. Austral Occup Ther J. 2002;49:14–24.
   Google Scholar
• Lawlor MC. The particularities of engagement: intersubjectivity in occupational therapy practice. OTJR: Occup Part Health. 2012;32:151–159.
   Web of Science ®Google Scholar
• Haine-Schlagel R, Roesch SC, Trask EV, et al. The parent participation engagement measure: Reliability and validity in child and adolescent community mental health services. Admin Policy Mental Health. 2016;43:813–823.
   PubMed Web of Science ®Google Scholar
• King G, Chiarello LA, Thompson L, et al. Development of an observational measure of therapy engagement for pediatric rehabilitation. Disabil Rehabil. 2017:1–12.
   Web of Science ®Google Scholar
• D'Arrigo R, Ziviani J, Poulsen AA, et al. Child and parent engagement in therapy: what is the key? Austral Occup Ther J. 2016;64:340–343.
   PubMed Web of Science ®Google Scholar
• D'Arrigo R, Ziviani J, Copley J, et al. Measures of parent engagement for children receiving developmental or rehabilitation interventions: a systematic review. Physi Occup Ther Pediatr. 2017;38:18–38.
   PubMed Web of Science ®Google Scholar
• James S, Ziviani J, King G, et al. Understanding engagement in home-based interactive computer play: perspectives of children with unilateral cerebral palsy and their caregivers. Phys Occup Ther Pediatr. 2015;36:343–358.
   PubMed Web of Science ®Google Scholar
• King G, Currie M, Petersen P. Child and parent engagement in the mental health intervention process: a motivational framework. Child Adolesc Mental Health. 2014;19:2–8.
   PubMed Web of Science ®Google Scholar
• Bright FAS, Kayes NM, Worrall L, et al. A conceptual review of engagement in healthcare and rehabilitation. Disabil Rehabil. 2015;37:643–654.
   PubMed Web of Science ®Google Scholar
• Fingerhut PE, Piro J, Sutton A, et al. Family-centered principles implemented in home-based, clinic-based, and school-based pediatric settings. Am J Occup Ther. 2013;67:228–235.
   PubMed Web of Science ®Google Scholar
• Division for Early Childhood. Division for early childhood recommended practices in early intervention/early childhood special education. 2014.
   Google Scholar
• Novak I, Cusick A, Lannin N. Occupational therapy home programs for cerebral palsy: double-blind, randomized, controlled trial. Pediatrics. 2009;124:606–614.
   PubMed Web of Science ®Google Scholar
• Ryan RM, Deci EL. Self-determination theory: basic psychological needs in motivation, development, and wellness. New York (NY): Guilford Press; 2017.
   Google Scholar
• Smart E, Aulakh A, McDougall C, et al. Optimizing engagement in goal pursuit with youth with physical disabilities attending life skills and transition programs: an exploratory study. Disabil Rehabil. 2016; 39:2029–2038.
   PubMed Web of Science ®Google Scholar
• Costa UM, Brauchle G, Kennedy-Behr A. Collaborative goal setting with and for children as part of therapeutic intervention. Disabil Rehabil. 2017;39:1589–1600.
   PubMed Web of Science ®Google Scholar
• Hunt M. Strengths and challenges in the use of interpretive description: reflections arising from a study of the moral experience of health professionals in humanitarian work. Qual Health Res. 2009;19:1284–1292.
   PubMed Web of Science ®Google Scholar
• Thorne S. Interpretive description: qualitative research for applied practice. New York (NY): Routledge; 2016.
   Google Scholar
• Thorne S. Working data. In: Thorne S, editor. Interpretive description: qualitative research for applied science. Second ed. New York (NY): Routledge; 2016. p. 155–171.
   Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
   Google Scholar
• Marks DF, Yardley L. Content and thematic analysis. In: Marks DF, Yardley L, editors. Research methods for clinical and health psychology. London: SAGE Publications, Ltd; 2004. p. 56–68.
   Google Scholar
• Shenton AK. Strategies for ensuring trustworthiness in qualitative reserch projects. Educ Inform. 2004;22:63–75.
   Google Scholar
• Thorne S. Making sense of data. In: Thorne S, editor. Intepretive description. California: Left Coast Press Inc; 2008. p. 141–161.
   Google Scholar
• Patton MQ. Enhancing the quality and credibility of qualitative studies. In: Patton MQ, editor. Qualitative research and evaluation method: integrating theory and practice. Fourth edition ed. California: SAGE; 2015. p. 652–710.
   Google Scholar
• Pearson A, Hannes K. Evidence about patients' experiences and concerns. In: Hoffmann T, Bennett S, Mar CD, editors. Evidence-based practice across the health professions. 2nd edition. Sydney: Elsevier Health Sciences; 2013.
   Google Scholar
• Karver MS, Handelsman JB, Fields S, et al. Meta-analysis of therapeutic relationship variables in youth and family therapy: the evidence for different relationship variables in the child and adolescent treatment outcome literature. Clin Psychol Rev. 2006;26:50–65.
   PubMed Web of Science ®Google Scholar
• Nelson A, Allison H. Relationships: the key to effective occupational therapy practice with urban Australian indigenous children. Occup Ther Int. 2007;14:57–70.
   PubMedGoogle Scholar
• Taylor RR. A model of the intentional relationship. In: Taylor RR, editor. The intentional relationship occupational therapy and use of self. Philadelphia (PA): F.A. Davis Co.; 2008.
   Google Scholar
• Hocking C, Ness NE. Introduction to the revised minimum standards for the education of occupational therapists—2002. WFOT Bull. 2016;46:30–33.
   Google Scholar
• Bonsaksen T. Self-reported therapeutic style in occupational therapy students. Br J Occup Ther. 2013;76:496–502.
   Web of Science ®Google Scholar
• Kruijsen-Terpstra AJ, Verschuren O, Ketelaar M, et al. Parents' experiences and needs regarding physical and occupational therapy for their young children with cerebral palsy. Res Dev Disabil. 2016;53-54:314–322.
   PubMed Web of Science ®Google Scholar
• Cuskelly M, Poulsen AA. Children’s understanding of purpose: a matter of choice. In: Ziviani J, Cuskelly M, Poulsen AA, editors. The art and science of motivation. London: Jessica Kingsley Publishers; 2013. p. 59–90.
   Google Scholar
• Williams GC, McGregor HA, Zeldman A, et al. Testing a self-determination theory process model for promoting glycemic control through diabetes self-management. Health Psychol. 2004;23:58–66.
   PubMed Web of Science ®Google Scholar
• Vansteenkiste M, Claes L, Soenens B, et al. Motivational dynamics among eating‐disordered patients with and without nonsuicidal self‐injury: a self‐determination theory approach. Eur Eating Dis Rev. 2013;21:209–214.
   PubMed Web of Science ®Google Scholar
• Meyns P, Roman de Mettelinge T, van der Spank J, et al. Motivation in pediatric motor rehabilitation: a systematic search of the literature using the self-determination theory as a conceptual framework. Dev Neurorehabil. 2018;21:371–390.
   PubMed Web of Science ®Google Scholar
• Järvikoski A, Härkäpää K, Martin M, et al. Service characteristics as predictors of parents’ perceptions of child rehabilitation outcomes. J Child Health Care. 2015;19:106–117.
   PubMed Web of Science ®Google Scholar
• Gilmore R, Ziviani J, Sakzewski L, et al. A balancing act: children's experience of modified constraint-induced movement therapy. Dev Neurorehabil. 2010;13:88–94.
   PubMed Web of Science ®Google Scholar
• Graham F. Occupational performance coaching: A contemporary approach for working with parents of children with occupational challenges [PhD Thesis]: The University of Queensland, School of Health and Rehabilitation Sciences; 2010.
   Google Scholar
• Ziviani J. Occupational performance: a case for self-determination. Austral Occup Ther J. 2015;62:393–400.
   PubMed Web of Science ®Google Scholar
• King G, Schwellnus H, Servais M, et al. Solution focused coaching in pediatric rehabilitation: investigating transformative experiences and outcomes for families. Phys Occup Ther Pediatr. 2017 [cited Oct 23]; [17 p.]. DOI:10.1080/01942638.2017.1379457
   Web of Science ®Google Scholar
• Bandura A. Social cognitive theory. In: Kessler EH, editor. Encyclopedia of management theory. Thousand Oaks (CA): Sage Publications; 2013. p. 710–715.
   Google Scholar
• Andrews F, Griffiths N, Harrison L, et al. Expectations of parents on low incomes and therapists who work with parents on low incomes of the first therapy session. Austral Occup Ther J. 2013;60:436–444.
   PubMed Web of Science ®Google Scholar
• King G, Schwellnus H, Keenan S, et al. Youth engagement in pediatric rehabilitation: service providers' perceptions in a real-time study of solution-focused coaching for participation goals. Phys Occup Ther Pediatr. 2018;38:527–547.
   Web of Science ®Google Scholar
• Gopalan G, Goldstein L, Klingenstein K, et al. Engaging families into child mental health treatment: updates and special considerations. J Can Acad Child Adolesc Psychiatry. 2010;19:182–196.
   PubMedGoogle Scholar
• Hudson JL, Kendall PC, Chu BC, et al. Child involvement, alliance, and therapist flexibility: process variables in cognitive-behavioural therapy for anxiety disorders in childhood. Behav Res Ther. 2014;52:1–8.
   PubMed Web of Science ®Google Scholar
• Phoenix M, Vanderkaay S. Client-centred occupational therapy with children: a critical perspective. Scand J Occup Ther. 2015;22:318–321.
   PubMed Web of Science ®Google Scholar
• Solish AJ. Parents' involvement in behavioural intervention for their children with autism. Canada: York University; 2010.
   Google Scholar
• Rodger S. Becoming an occupation-centered practitioner. In: Rodger S, editor. Occupation-centred practice with children: a practical guide for occupational therapists. United Kingdom: John Wiley & Sons, Incorporated; 2017. p. 21–44.
   Google Scholar
• Levac D. How can therapists enhance children's engagement in home-based rehabilitation interventions? Phys Occup Ther Pediatr. 2016;36:359–362.
   PubMed Web of Science ®Google Scholar
• Kinsella E. Embodied reasoning in professional practice. In: Schell BAB, Schell JW, editors. Clinical and professional reasoning in occupational therapy. Philadelphia (PA): Wotlers Kluwer; 2018. p. 105–124.
   Google Scholar
• Turpin MJ, Copley JA. Interactive reasoning. In: Schell BAB, Schell JW, editors. Clinical and professional reasoning in occupational therapy. Philadelphia (PA): Wotlers Kluwer; 2018. p. 245–260.
   Google Scholar