Long-term physical activity in people with multiple sclerosis: exploring expert views on facilitators and barriers

References

• Petersen G, Wittmann R, Arndt V, et al. [Epidemiology of multiple sclerosis in Germany: regional differences and drug prescription in the claims data of the statutory health insurance]. Nervenarzt. 2014;85:990–998.
   PubMed Web of Science ®Google Scholar
• Browne P, Chandraratna D, Angood C, et al. Atlas of Multiple Sclerosis 2013: a growing global problem with widespread inequity. Neurology. 2014;83:1022–1024.
   PubMed Web of Science ®Google Scholar
• Compston A, Coles A. Multiple sclerosis. Lancet. 2008;372:1502–1517.
   PubMed Web of Science ®Google Scholar
• Filippini G, Del Giovane C, Clerico M, et al. Treatment with disease-modifying drugs for people with a first clinical attack suggestive of multiple sclerosis. Cochrane Database Syst Rev. 2017;4:CD012200.
   PubMed Web of Science ®Google Scholar
• Tramacere I, Del Giovane C, Salanti G, et al. Immunomodulators and immunosuppressants for relapsing-remitting multiple sclerosis: a network meta-analysis. Cochrane Database Syst Rev. 2015;CD011381.
   PubMed Web of Science ®Google Scholar
• Dalgas U, Stenager E, Ingemann-Hansen T. Multiple sclerosis and physical exercise: recommendations for the application of resistance-, endurance- and combined training. Mult Scler. 2008;14:35–53.
   PubMed Web of Science ®Google Scholar
• Petajan JH, Gappmaier E, White AT, et al. Impact of aerobic training on fitness and quality of life in multiple sclerosis. Ann Neurol. 1996;39:432–441.
   PubMed Web of Science ®Google Scholar
• Latimer-Cheung AE, Pilutti LA, Hicks AL, et al. Effects of exercise training on fitness, mobility, fatigue, and health-related quality of life among adults with multiple sclerosis: a systematic review to inform guideline development. Arch Phys Med Rehabil. 2013;94:1800–1828 e3.
   PubMed Web of Science ®Google Scholar
• Heine M, van de Port I, Rietberg MB, et al. Exercise therapy for fatigue in multiple sclerosis. Cochrane Database Syst Rev. 2015;9:CD009956.
   Google Scholar
• Rietberg MB, Brooks D, Uitdehaag BM, et al. Exercise therapy for multiple sclerosis. Cochrane Database Syst Rev. 2005;25:CD003980.
   Google Scholar
• Gunn H, Markevics S, Haas B, et al. Systematic review: the effectiveness of interventions to reduce falls and improve balance in adults with multiple sclerosis. Arch Phys Med Rehabil. 2015;96:1898–1912.
   PubMed Web of Science ®Google Scholar
• Pilutti LA, Platta ME, Motl RW, et al. The safety of exercise training in multiple sclerosis: a systematic review. J Neurol Sci. 2014;343:3–7.
   PubMed Web of Science ®Google Scholar
• Briken S, Gold SM, Patra S, et al. Effects of exercise on fitness and cognition in progressive MS: a randomized, controlled pilot trial. Mult Scler. 2014;20:382–390.
   PubMed Web of Science ®Google Scholar
• Kjolhede T, Siemonsen S, Wenzel D, et al. Can resistance training impact MRI outcomes in relapsing-remitting multiple sclerosis? Mult Scler J. 2018;24:1356–1365.
   Web of Science ®Google Scholar
• Zimmer P, Bloch W, Schenk A, et al. High-intensity interval exercise improves cognitive performance and reduces matrix metalloproteinases-2 serum levels in persons with multiple sclerosis: a randomized controlled trial. Mult Scler J. 2018;24:1635–1644.
   Web of Science ®Google Scholar
• Latimer-Cheung AE, Martin Ginis KA, Hicks AL, et al. Development of evidence-informed physical activity guidelines for adults with multiple sclerosis. Arch Phys Med Rehabil. 2013;94:1829–1836 e7.
   PubMed Web of Science ®Google Scholar
• Motl RW, McAuley E, Sandroff BM, et al. Descriptive epidemiology of physical activity rates in multiple sclerosis. Acta Neurol Scand. 2015;131:422–425.
   PubMed Web of Science ®Google Scholar
• Klaren RE, Motl RW, Dlugonski D, et al. Objectively quantified physical activity in persons with multiple sclerosis. Arch Phys Med Rehabil. 2013;94:2342–2348.
   PubMed Web of Science ®Google Scholar
• Kinnett-Hopkins D, Adamson B, Rougeau K, et al. People with MS are less physically active than healthy controls but as active as those with other chronic diseases: an updated meta-analysis. Mult Scler Relat Disord. 2017;13:38–43.
   PubMed Web of Science ®Google Scholar
• Casey B, Coote S, Shirazipour C, et al. Modifiable psychosocial constructs associated with physical activity participation in people with multiple sclerosis: a systematic review and meta-analysis. Arch Phys Med Rehabil. 2017;98:1453–1475.
   PubMed Web of Science ®Google Scholar
• Streber R, Peters S, Pfeifer K. Systematic review of correlates and determinants of physical activity in persons with multiple sclerosis. Arch Phys Med Rehabil. 2016;97:633–645.e29.
   PubMed Web of Science ®Google Scholar
• Kickbusch I. The contribution of the World Health Organization to a new public health and health promotion. Am J Public Health. 2003;93:383–388.
   PubMed Web of Science ®Google Scholar
• Learmonth YC, Motl RW. Physical activity and exercise training in multiple sclerosis: a review and content analysis of qualitative research identifying perceived determinants and consequences. Disabil Rehabil. 2016;38:1227–1242.
   PubMed Web of Science ®Google Scholar
• Casey B, Coote S, Hayes S, et al. Changing physical activity behavior in people with multiple sclerosis: a systematic review and meta-analysis. Arch Phys Med Rehabil. 2018;99:2059-2075.
   PubMed Web of Science ®Google Scholar
• Lai B, Kim Y, Wilroy J, et al. Sustainability of exercise intervention outcomes among people with disabilities: a secondary review. Disabil Rehabil. 2018. DOI: 10.1080/09638288.2018.1432704
   Web of Science ®Google Scholar
• Sangelaji B, Smith CM, Paul L, et al. The effectiveness of behaviour change interventions to increase physical activity participation in people with multiple sclerosis: a systematic review and meta-analysis. Clin Rehabil. 2016;30:559–576.
   PubMed Web of Science ®Google Scholar
• Motl RW, Sandroff BM, Kwakkel G, et al. Exercise in patients with multiple sclerosis. Lancet Neurol. 2017;16:848–856.
   PubMed Web of Science ®Google Scholar
• Guest G, Bunce A, Johnson L. How many interviews are enough? Field Method. 2006;18:59–82.
   Web of Science ®Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
   Google Scholar
• Kuckartz U. Qualitative text analysis: a guide to methods, practice & using software. London: Sage Publications Ltd.; 2014.
   Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349–357.
   PubMed Web of Science ®Google Scholar
• World Health Organization. ICF: International classification of functioning, disability and health. Geneva: World Health Organization; 2001.
   Google Scholar
• McLeroy KR, Bibeau D, Steckler A, et al. An ecological perspective on health promotion programs. Health Educ Q. 1988;15:351–377.
   PubMedGoogle Scholar
• World Health Oranization. Everybody business: strengthening health systems to improve health outcomes: WHO’s framework for action. Geneva: World Health Oranization; 2007.
   Google Scholar
• Cane J, O'Connor D, Michie S. Validation of the theoretical domains framework for use in behaviour change and implementation research. Implement Sci. 2012;7:37.
   PubMed Web of Science ®Google Scholar
• Fuchs R, Goehner W, Seelig H. Long-term effects of a psychological group intervention on physical exercise and health: the MoVo concept. J Phys Act Health. 2011;8:794–803.
   PubMed Web of Science ®Google Scholar
• APA Dictionary of Psychology [Internet]. Washington (DC): American Psychological Association; [cited 2018 Jul 03]. Available from: https://dictionary.apa.org/motivation
   Google Scholar
• Bandura A. Health promotion by social cognitive means. Health Educ Behav. 2004;31:143–164.
   PubMed Web of Science ®Google Scholar
• Schwarzer R. Modeling health behavior change: how to predict and modify the adoption and maintenance of health behaviors. Appl Psychol. 2008;57:1–29.
   Web of Science ®Google Scholar
• Kwasnicka D, Dombrowski SU, White M, et al. Theoretical explanations for maintenance of behaviour change: a systematic review of behaviour theories. Health Psychol Rev. 2016;10:277–296.
   PubMed Web of Science ®Google Scholar
• Sheldon KM, Elliot AJ. Goal striving, need satisfaction, and longitudinal well-being: the self-concordance model. J Pers Soc Psychol. 1999;76:482–497.
   PubMed Web of Science ®Google Scholar
• Ng JY, Ntoumanis N, Thogersen-Ntoumani C, et al. Self-determination theory applied to health contexts: a meta-analysis. Perspect Psychol Sci. 2012;7:325–340.
   PubMedGoogle Scholar
• Fasczewski KS, Gill DL, Rothberger SM. Physical activity motivation and benefits in people with multiple sclerosis. Disabil Rehabil. 2018;40:1517-1523.
   Web of Science ®Google Scholar
• Fasczewski KS, Rothberger SM, Gill DL. Why do they do it? Assessing self-report physical activity behavior and quality of life in individuals with multiple sclerosis. J Health Psychol. 2017. DOI: 10.1177/1359105317739965
   PubMed Web of Science ®Google Scholar