The micro-politics of caring: tinkering with person-centered rehabilitation

References

• McCormack B, Borg M, Cardiff S, et al. Person-centredness: the “state” of the art. Int Pract Dev J. 2015;5:1–15.
   Google Scholar
• Miles A, Asbridge J. Person-centered healthcare-moving from rhetoric to methods, through implementation to outcomes. Eur J Person Centered Healthcare. 2017;5:1–9.
   Google Scholar
• Mezzich JE, Appleyard J, Botbol M, et al. International journey and the development of person centered medicine. Int J Person Centered Med. 2015;4:211–216.
   Google Scholar
• Terry G, Kayes N. Person centered care in neurorehabilitation: a secondary analysis. Disability and Rehabilitation. 2018;1–10. [e-pub ahead of print].
   Google Scholar
• Gibson BE. Rehabilitation: a post-critical approach. Boca Raton (United States): CRC Press; 2016.
   Google Scholar
• Hughes JC, Bamford C, May C. Types of centredness in health care: themes and concepts. Med Health Care Philos. 2008;11:455–463.
   PubMed Web of Science ®Google Scholar
• Jesus TS, Bright F, Kayes N, et al. Person-centred rehabilitation: what exactly does it mean? Protocol for a scoping review with thematic analysis towards framing the concept and practice of person-centred rehabilitation. BMJ Open. 2016;6:e011959.
   PubMed Web of Science ®Google Scholar
• Dewing J, McCormack B. Editorial: Tell me, how do you define person-centredness? J Clin Nurs. 2017;26:2509–2510.
   PubMed Web of Science ®Google Scholar
• Whalley Hammell KR. Client-centred practice in occupational therapy: critical reflections. Scand J Occup Ther. 2013;20:174.
   PubMed Web of Science ®Google Scholar
• Pluut B. Differences that matter: developing critical insights into discourses of patient-centeredness. Med Health Care and Philos. 2016;19:501–515.
   PubMed Web of Science ®Google Scholar
• Tanenbaum S. What is patient-centered care? A typology of models and missions. Health Care Anal. 2015;23:272–287.
   PubMed Web of Science ®Google Scholar
• Buetow SA, Martínez-Martín P, McCormack B. Ultrabilitation: beyond recovery-oriented rehabilitation. Disabil Rehabil. 2017;28:1–6.
   Google Scholar
• Fox NJ, Alldred P. Sociology and the new materialism: theory, research, action. London (UK): Sage; 2016.
   Google Scholar
• Barad K. Posthumanist performativity: toward an understanding of how matter comes to matter. Signs: J Women Culture Soc. 2003;28:801–831.
   Web of Science ®Google Scholar
• Barad K. Meeting the universe halfway: quantum physics and the entanglement of matter and meaning. Durham (NC): Duke University Press; 2007.
   Google Scholar
• Taguchi HL. A diffractive and Deleuzian approach to analysing interview data. Feminist Theory. 2012;13:265–281.
   Web of Science ®Google Scholar
• Hickey-Moody A, Palmer H, Sayers E. Diffractive pedagogies: dancing across new materialist imaginaries. Gender Educ. 2016;28:213–229. 23
   Web of Science ®Google Scholar
• Murray SJ, Holmes D. Introduction: towards a critical bioethics. In: Murray SJ, Holmes D, editors. Critical interventions in the ethics of healthcare: challenging the principle of autonomy in bioethics. New York (NY): Routledge; 2009. p. 1–11.
   Google Scholar
• Shildrick M. Beyond the body of bioethics: challenging the conventions. In: Shildrick M, Mykitiuk R, editors. Ethics of the body: postconventional challenges. Cambridge (MA): MIT Press; 2005. p. 1–28.
   Google Scholar
• Gibson BE. Post-critical physiotherapy ethics: a commitment to openness. In: BE Gibson, D Nicholls, J Setchell, KS Groven, editors. Manipulating practice; a critical physiotherapy reader. Oslo (Norway): Cappelen Damm Academic Publishing. 2018; p. 35–54. Available from: https://press.nordicopenaccess.no/index.php/noasp/catalog/book/29.
   Google Scholar
• Fox NJ, Alldred P. Sociology and the new materialism: theory, research, action. London (UK): Sage; 2016. Chapter 9, Research – Designs, Methods and the Research Assemblage; p. 151–175.
   Google Scholar
• Zabrodska K, Linnell S, Laws C, et al. Bullying as intra-active process in neoliberal universities. Qual Inquiry. 2011;17:709–719.
   Web of Science ®Google Scholar
• Setchell J, Thille P, Abrams T, et al. Enhancing human aspects of care with young people with muscular dystrophy: results from a participatory qualitative study with clinicians. Child Care Health Dev. 2018;44:269–277.
   PubMed Web of Science ®Google Scholar
• Bright FAS, Kayes NM, McPherson KM, et al. Engaging people experiencing communication disability in stroke rehabilitation: a qualitative study. Int J Lang Commun Disord. 2018;53:981–994.
   PubMed Web of Science ®Google Scholar
• Kayes N, Cummins C, Mudge S, et al. Changing physiotherapy behaviour to optimise outcome: an indepth examination of a knowledge translation process. Making an Impact: New Zealand Rehabilitation Conference. Christchurch, New Zealand, 2017 Sep 08–2017.
   Google Scholar
• Dennison K, Kayes NM, Larmer P. Patient and practitioner perspectives on self-management in osteoarthritis (A report submitted to Arthritis New Zealand). Auckland: AUT University; 2017. [cited 2018 Oct 30]. Available from: http://www.generalpractice.org.nz/files/docs/01%20nzra17/saturday%20presentations/kara%20dennison.pdf
   Google Scholar
• Levack WM, Dean SG, Siegert RJ, et al. Navigating patient-centered goal setting in inpatient stroke rehabilitation: how clinicians control the process to meet perceived professional responsibilities. Patient Educ Couns. 2011;85:206–213.
   PubMed Web of Science ®Google Scholar
• Rosewilliam S, Roskell CA, Pandyan AD. A systematic review and synthesis of the quantitative and qualitative evidence behind patient-centred goal setting in stroke rehabilitation. Clin Rehabil. 2011;25:501–514.
   PubMed Web of Science ®Google Scholar
• Levack WM, Dean SG, Siegert RJ, et al. Purposes and mechanisms of goal planning in rehabilitation: the need for a critical distinction. Disabil Rehabil. 2006;28:741–749.
   PubMed Web of Science ®Google Scholar
• Buetow S. Person-centred health care: balancing the welfare of clinicians and patients. London (UK): Routledge. 2016.
   Google Scholar
• Gibson BE. Long-term ventilation for patients with Duchenne muscular dystrophy: physicians' beliefs and practices. Chest. 2001;119:940–946.
   PubMed Web of Science ®Google Scholar
• Katz J. The silent world of doctor and patient. Baltimore (MD): JHU Press; 2002.
   Google Scholar
• Feinberg J. Paternalism. Encyclopedia of philosophy. Borchert DM, editor. 2nd ed. Vol. 7. USA: Macmillan Reference; 2006. p. 137–140. [cited 2018 Sep 4]. Available from: http://link.galegroup.com/apps/doc/CX3446801502/GVRL?u=utoronto_main&sid=GVRL&xid=91c2b40f.
   Google Scholar
• Beauchamp TL, Childress JF. Principles of biomedical ethics. 7th ed. New York (NY): Oxford University Press; 2012.
   Google Scholar
• Rodriguez-Osorio CA, Dominguez-Cherit G. Medical decision making: paternalism versus patient-centered (autonomous) care. Curr Opin Crit Care. 2008;14:708–713.
   PubMed Web of Science ®Google Scholar
• Faden RR, Beauchamp TL. A history and theory of informed consent. New York (NY): Oxford University Press; 1986.
   Google Scholar
• Mol A. The logic of care: health and the problem of patient choice. New York (NY): Routledge; 2008.
   Google Scholar
• Pols J. Accounting and washing: good care in long-term psychiatry. Sci Technol Hum Values. 2006; 31:409–430.
   Web of Science ®Google Scholar
• Winance M. Care and disability. Practices of experimenting, tinkering with, and arranging people and technical aids. In Mol A, Moser I, Pols J, editors. Care in practice: on tinkering in clinics, homes and farms. Bielefeld (Germany): Transcript Verlag; 2010. p. 93–117.
   Google Scholar
• Struhkamp R. Goals in their setting: a normative analysis of goal setting in physical rehabilitation. Health Care Analysis. 2004;12:131–155.
   PubMed Web of Science ®Google Scholar
• Struhkamp R, Mol A, Swierstra T. Dealing with in/dependence: doctoring in physical rehabilitation practice. Sci Technol Hum Values. 2009;34:55–76.
   Web of Science ®Google Scholar
• Gibson BE. Rehabilitation: a post-critical approach. Boca Raton (FL): CRC Press; 2016. Chapter 6, Mobilities; p. 113–136.
   Google Scholar
• Mol A. The body multiple: ontology in medical practice. Durham (NC): Duke University Press; 2002.
   Google Scholar
• Pols J. Enacting appreciations: beyond the patient perspective. Health Care Anal. 2005; 13:203–221.
   PubMed Web of Science ®Google Scholar
• Monforte J, Pérez-Samaniego V, Smith B. Traveling material↔ semiotic environments of disability, rehabilitation, and physical activity. Qual Health Res. 2018; 1–13. [e-pub ahead of print].
   Google Scholar