References
- American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders, 5th edition (DSM-5). Arlington: APA; 2013.
- Bölte S, Schipper E, Robison JE, et al. Classification of functioning and impairment: the development of ICF-CY core sets for autism spectrum disorder. Autism Res. 2014;7(1):167–172.
- Castro S, Pinto A, Simeonsson R. Content analysis of portuguese individualized education programs for young children with autism using the ICF-CY framework. Eur Early Child Educ Res J. 2012;22(1):91–104.
- Schipper E, Lundequist A, Coghill D, et al. Ability and disability in autism spectrum disorder: a systematic literature review employing the international classification of functioning, disability and health‐children and youth version. Autism Res. 2015;8(6):782–794.
- World Health Organisation (WHO). International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Geneva: WHO; 2007.
- Bond C, Hebron J. Developing mainstream resource provision for pupils with autism spectrum disorder: staff perceptions and satisfaction. Eur J Special Needs Educ. 2016;31(2):250–263.
- Pellicano E, Dinsmore A, Charman T. What should autism research focus upon? Community views and priorities from the United Kingdom. Autism. 2014;18(7):756–770.
- Insel T, Daniels SA. Future directions: setting priorities to guide the federal research effort. In Amaral DG, Dawson G, Geschwind DH, editors. Autism Spectrum Disorders. New York: Oxford University Press; 2011. p. 1359–1366.
- Hendricks DR, Wehman P. Transition from school to adulthood for youth with autism spectrum disorders: review and recommendations. Focus Autism Other Dev Disabil. 2009;24(2):77–88.
- Howlin P. Social disadvantage and exclusion: adults with autism lag far behind in employment prospects. J Am Acad Child Adolesc Psychiatry. 2013;52(9):897–899.
- Roux AM, Shattuck PT, Cooper BP, et al. Postsecondary employment experiences among young adults with an autism spectrum disorder. J Am Acad Child Adolesc Psychiatry. 2013;52(9): 931–939.
- Wei X, Wagner M, Hudson L, et al. Transition to adulthood: employment, education, and disengagement in individuals with autism spectrum disorders. Emerg Adulthood. 2015;3(1):37–45.
- Anderson KA, McDonald TA, Edsall D, et al. Postsecondary expectations of high-school students with autism spectrum disorders. Focus Autism Other Develop Disabil. 2016;31(1):16–26.
- Halpern AS. Quality of life as a conceptual framework for evaluating transition outcomes. Except Child. 1993;59:486–498.
- Schall CM, McDonough JT. Autism spectrum disorders in adolescence and early adulthood: characteristics and issues. J Vocat Rehabil. 2010;32(2):81–88.
- Taylor JL, Seltzer MM. Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. J Autism Develop Disord. 2011;41(5):566–574.
- Wehman P, Schall C, Carr S, et al. Transition from school to adulthood for youth with autism spectrum disorder: what we know and what we need to know. J Disabil Policy Studies. 2014;25(1):30–40.
- Shattuck PT, Narendorf SC, Cooper B, et al. Postsecondary education and employment among youth with an autism spectrum disorder. Pediatrics. 2012;129(6):1042–1049.
- Wehman PH, Schall CM, McDonough J, et al. Competitive employment for youth with autism spectrum disorders: Early results from a randomized clinical trial. J Autism Develop Disord. 2014;44(3):487–500.
- Palikara O, Lindsay G, Dockrell JE. Voices of young people with a history of specific language impairment (SLI) in the first year of post‐16 education. Int J Lang Commun Disord. 2009;44(1):56–78.
- Hendricks D. Employment and adults with autism spectrum disorders: challenges and strategies for success. J Vocat Rehabil. 2010;32(2):125–134.
- Hurlbutt K, Chalmers L. Employment and adults with Asperger syndrome. Focus Autism and Other Develop Disabil. 2004;19(4):215–222.
- Children and Families Act 2014. London: HMSO; 2014.
- United Nations. Convention on the Rights of the Child. Geneva: UN; 1989.
- Porter J. Research and pupil voice. In: Florian L, editor. The SAGE handbook of special education. 2nd ed. Volume 2. Los Angeles: SAGE; 2014. p. 405–420.
- United Nations. Convention on the Rights of Persons with Disabilities. Geneva: UN; 2006.
- Individuals with Disabilities Education Act 2004. Washington, DC: GPO; 2004.
- Lewis A. ‘And when did you last see your father?’ Exploring the views of children with learning difficulties/disabilities. Br J Special Educ. 2004;31(1):3–9.
- Lundy L. ‘Voice’ is not enough: conceptualising Article 12 of the United Nations Convention on the Rights of the Child. Br Educ Res J. 2007;33(6):927–942.
- Morgan B. Consulting pupils about classroom teaching and learning: policy, practice and response in one school. Res Pap Educ. 2011;26(4):445–467.
- Fayette R, Bond C. A systematic literature review of qualitative research methods for eliciting the views of young people with ASD about their educational experiences. Eur J Special Needs Educ. 2017;1–17.
- Carrington S, Graham L. Perceptions of school by two teenage boys with Asperger syndrome and their mothers: a qualitative study. Autism. 2001;5(1):37–48.
- Department for Education and Department of Health. Special educational needs and disability code of practice: 0 to 25 years. London: HMSO; 2015.
- World Health Organisation (WHO). International Classification of Functioning, Disability and Health. Geneva: WHO; 2001.
- Adolfsson M. Applying the ICF-CY to identify everyday life situations of children and youth with disabilities [dissertation]. Jonkoping: Jonkoping University; 2011.
- Lollar DJ, Simeonsson RJ. Diagnosis to function: classification for children and youths. J Develop Behav Pediatr. 2005;26(4):323–330.
- Castro S, Pinto AI, Maia M. Linking the Carolina curriculum for pre-schoolers with special needs to the ICF-CY. Br J Develop Disabil. 2011;57(113):133–146.
- Tate RL, Perdices M. Applying the International Classification of Functioning, Disability and Health (ICF-CY) to clinical practice and research in acquired brain impairment. Brain Impair. 2008;9(03):282–292.
- Castro S, Palikara O. Mind the gap: The new special educational needs and disability legislation in England. Front Educ. 2016;1(4):1–9.
- American Psychiatric Association (APA). Diagnostic and Statistical Manual of Mental Disorders-IV-Text Revision. Washington, DC: American Psychiatric Publishing; 2000.
- World Health Organisation (WHO). International Classification of Diseases, 10th Revision (ICD-10). Geneva: WHO; 2010.
- Rutter M, Bailey A, Lord C. The Social Communication Questionnaire. Los Angeles: Western Psychological Services; 2003.
- Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107–115.
- Augustine L, Lygnegård F, Granlund M, et al. Linking youths’ mental, psychosocial, and emotional functioning to ICF-CY: lessons learned. Disabil Rehabil. 2018;40(19):2293–2299.
- Ballert CS, Hopfe M, Kus S, et al. Using the refined ICF-CY linking rules to compare the content of existing instruments and assessments: a systematic review and exemplary analysis of instruments measuring participation. Disabil Rehabil. 2019;41(5):584–600.
- Cieza A, Fayed N, Bickenbach J, et al. Refinements of the ICF-CY linking rules to strengthen their potential for establishing comparability of health information. Disabil Rehabil. 2016:1–10. DOI:10.3109/09638288.2016.1145258. [Epub ahead of print]
- MacLeod A, Lewis A, & Robertson C. ‘Why should I be like bloody RainMan?!’ Navigating the autistic identity. Br J Special Educ. 2013;40(1):41–49.
- Castro S, Ferreira T, Dababnah S, et al. Linking autism measures with the ICF-CY: functionality beyond the borders of diagnosis and interrater agreement issues. Dev Neurorehabil. 2013;16(5):321–331.
- Shepherd J. 'Interrupted interviews': listening to young people with autism in transition to college. Warwick Res J. 2015;2(2):249–262.
- Fayette R, Bond C. A qualitative study of specialist schools’ processes of eliciting the views of young people with autism spectrum disorders in planning their transition to adulthood. Br J Special Educ. 2018;45(1):5–25.
- Palikara O, Castro S, Gaona C, et al. Capturing the voices of children in EHC plans in England: are we there yet. Front Educ. 2018:3(24):1–9.
- Lamb, B. Accountability, the local offer and SEND reform: a cultural revolution? In SEN Policy Research Forum (2015) how will accountability work in the new SEND legislative system? J Res Special Educ Needs. 2015;15(1):57–79.
- Krippendorff K. Content analysis: an introduction to its methodology. Third Edition. Los Angeles: SAGE; 2013.
- Palikara O, Castro S, Gaona C, et al. Professionals’ views on the new policy for special educational needs in England: ideology versus implementation. Eur J Special Needs Educ. 2018. DOI:10.1080/08856257.2018.1451310
- Boesley L, Crane L. ‘Forget the health and care and just call them education plans’: SENCO s' perspectives on education, health and care plans. J Res Special Educ Needs. 2018. DOI:10.1111/1471-3802.12416
- Robinson D, Moore N, Hooley T. Ensuring an independent future for young people with special educational needs and disabilities (SEND): a critical examination of the impact of education, health and care plans in England. Br J Guid Couns. 2018;46(4):479–491.
- Norwich B. Conceptualising special educational needs using a biopsychosocial model in England: The prospects and challenges of using the International Classification of Functioning Framework. Front Educ. 2016;1(5):1–12.