Family role in in-patient rehabilitation: the cases of England and Turkey

References

• Chun S, Lee Y. ‘I am just thankful’: the experience of gratitude following traumatic spinal cord injury. Disabil Rehabil. 2013;35:11–19.
   PubMed Web of Science ®Google Scholar
• Byrnes M, Beilby J, Ray P, et al. Patient-focused goal planning process and outcome after spinal cord injury rehabilitation: quantitative and qualitative audit. Clin Rehabil. 2012;26:1141–1149.
   PubMed Web of Science ®Google Scholar
• Majnemer A, Shevell M, Law M, Poulin C, et al. Indicators of distress on families of children with cerebral palsy. Disabil Rehabil. 2012;34:1202–1207.
   PubMed Web of Science ®Google Scholar
• Muir K, Strnadova I. Whose responsibility? Resilience in families of children with developmental disabilities. Disabil Soc. 2014;29:922–937.
   Web of Science ®Google Scholar
• McLaughlin J. Understanding disabled families: replacing tales of burden with ties of interdependency. In: Watson N, Roulstone A, Thomas C, editors. Routledge handbook of disability studies. London: Routledge; 2012, pp. 402–413.
   Google Scholar
• Borsay A. Disability and attitudes to family care in Britain: towards a sociological perspective. Disabil Handicap Soc. 1990;5:107–122.
   Google Scholar
• Soulis S, Andreou, Y. An explanatory study of the relationships between adolescents with impaired mobility and their parents in Greek families. Disabil Soc. 2007;22:777–789.
   Web of Science ®Google Scholar
• Stalker K, editor. Reconceptualising work with ‘carers’: new directions for policy and practice. London: Jessica Kingsley Publishers; 2003.
   Google Scholar
• Morris J. Pride against prejudice: transforming attitudes to disability. London: the Women’s Press; 1996.
   Google Scholar
• Lawler K, Taylor N, Shields, N. Involving family members in physiotherapy for older people transitioning from hospital to the community: a qualitative analysis. Disabil Rehabil. 2015;37:2061–2069.
   PubMed Web of Science ®Google Scholar
• Visser-Meily A, Post M, Gorter JW, et al. Rehabilitation of stroke patients needs a family-centred approach. Disabil Rehabil. 2006;28:1557–1561.
   PubMed Web of Science ®Google Scholar
• Foster AM, Armstrong J, Buckley A, et al. Encouraging family engagement in the rehabilitation process: a rehabilitation provider’s development of support strategies for family members of people with traumatic brain injury. Disabil Rehabil. 2012;34:1855–1862.
   PubMed Web of Science ®Google Scholar
• Galvin R, Cusack T, Stokes E. To what extent are family members and friends involved in physiotherapy and the delivery of exercises to people with stroke? Disabil Rehabil. 2009;31:898–905.
   PubMed Web of Science ®Google Scholar
• O’Brien MR, Whitehead B, Jack, BA, et al. The need for support services for family carers of people with motor neurone disease (MND): views of current and former family caregivers a qualitative study. Disabil Rehabil. 2012;34:247–256.
   PubMed Web of Science ®Google Scholar
• McDowell BC, Duffy C, Parkes J. Service-use and family-centred care in young people with severe cerebral palsy: a population-based, cross-sectional clinical survey. Disabil Rehabil. 2015;37:2324–2329.
   PubMed Web of Science ®Google Scholar
• Young ME, Lutz BJ, Creasy KR, et al. A comprehensive assessment of family caregivers of stroke survivors during in-patient rehabilitation. Disabil Rehabil. 2014;36:1892–1902.
   PubMed Web of Science ®Google Scholar
• Nolan M, Brereton L. ‘Seeking’: a key activity for new family carers of stroke survivors. J Clin Nursing. 2002;11:22–31.
   PubMed Web of Science ®Google Scholar
• Dodd J, Saggers S, Wildly H. Constructing the ‘ideal’ family for family-centred practice: challenges for delivery. Disabil Soc. 2009;24:173–186.
   Web of Science ®Google Scholar
• Wool Z, Messinger S. Labors of love: the transformation of care in the non-medical attendant program at Walter Reed Army Medical Center. Med Anthropol Quarte. 2012;26:26–48.
   PubMed Web of Science ®Google Scholar
• Allen, D. Negotiating the role of expert carers on an adult hospital ward. Soc Health Illness. 2000;22:149–171.
   Web of Science ®Google Scholar
• Daudji A, Eby S, Foo T, et al. Perceptions of disability among south Asian immigrant mothers of children with disabilities in Canada: implications for rehabilitation service delivery. Disabil Rehabil. 2011;33:511–521.
   PubMed Web of Science ®Google Scholar
• Shikako-Thomas K, Bogossian A, Lach LM, et al. Parents’ perspectives on the quality of life of adolescents with cerebral palsy: trajectory, choices and hope. Disabil Rehabil. 2013;35:2113–2122.
   PubMed Web of Science ®Google Scholar
• Akmeşe P, Mutlu A, Günel, M et al. Serebral paralizili çocukların annelerinin kaygı düzeyinin araştırılması [An analysis of the anxiety level of mothers of children with cerebral palsy]. Çocuk Sağlığı ve Hastalıkları Dergisi [J Child Health Illness]. 2007;50:236–332.
   Google Scholar
• Karadağ G. Engelli çocuğa sahip annelerin yaşadıkları güçlükler ile aileden algıladıkları sosyal destek ve umutsuzluk düzeyleri [Difficulties experienced by mothers with disabled children, the social support they get from their families and their level of hopelessness]. TAF Prev Med Bull. 2009;8:315–322.
   Google Scholar
• Bezmez D, Yardımcı S. Social experiences of physical rehabilitation: the role of the family. In: Shakespeare T, editor. Disability research today: international perspectives. London: Routledge; 2015, pp. 9–27.
   Google Scholar
• Yardımcı, S. and Bezmez, D. Disabled Istanbulites’ everyday life experiences as ‘urban citizens’: accessibility and participation in decision-making. Citizenship Studies. 2018;22:475–490.
   Web of Science ®Google Scholar
• Shakespeare T. Disability rights and wrongs. Abingdon: Routledge; 2006.
   Google Scholar
• Shakespeare T, Cooper H, Bezmez D, Poland F. Rehabilitation as a disability equality issue: a conceptual shift for disability studies. Soc Inclusion. 2018;6:61–72.
   Web of Science ®Google Scholar
• Hammell KW. Perspectives on disability and rehabilitation: contesting assumptions, challenging practice. Amsterdam: Elsevier; 2006.
   Google Scholar
• Seymour W. Remaking the body: rehabilitation and change. London: Routledge; 1998.
   Google Scholar
• Gibson, EB. Rehabilitation: a post-critical approach. Boca Raton: CRC Press; 2016.
   Google Scholar
• Solvang PK, Hanisch H, Reinhardt JD. The rehabilitation research matrix: producing knowledge at micro, meso and macro levels. Disabil Rehabil. 2016;39:1983–1989.
   PubMed Web of Science ®Google Scholar
• Sturkenboom I, Dekker J, Scheppers E, et al. Healing care? Rehabilitation of female immigrant patients with chronic pain from a family perspective. Disabil Rehabil. 2007;29:323–332.
   PubMed Web of Science ®Google Scholar
• Yılmaz Z. ‘Strengthening the family’ policies in Turkey: managing the social question and armoring conservative-neoliberal populism. Turkish Studies. 2015;16:371–390.
   Web of Science ®Google Scholar
• Esping-Andersen G. The three world of welfare capitalism. New Jersey (NJ): Princeton University Press; 1990.
   Google Scholar
• Gough I. The southern European welfare model and the fight against poverty and social exclusion. In: Tolba M, editor. Our fragile world: Challenges and opportunities for sustainable development. Paris: EOLSS Publications; 1996. p. 1041–1051.
   Google Scholar
• Buğra A, Keyder Ç. Önsöz [Preface]. In: Buğra A, Keyder Ç, editors. Sosyal politika yazıları [Writings on social policy], Istanbul: İletişim Publishing; 2006. p. 7–17. Turkish.
   Google Scholar
• Martin C. Southern European welfare states between crisis and reform. London: Frank Cass and Co. Ltd; 1997. Social welfare and the family in southern Europe; p. 23–41.
   Google Scholar
• Esping-Andersen G. Social Foundations of postindustrial economies. New York (NY): Oxford University Press; 1999.
   Google Scholar
• Yılmaz V. Changing origins of inequalities in access to health care services in Turkey: From occupational status to income. New Perspect Turkey. 2013;48:55–77.
   Google Scholar
• Bezmez D. Looking for a ‘cure’: negotiating ‘walking’ in a Turkish rehabilitation hospital. Disabil Soc. 2016;31:389–405.
   Web of Science ®Google Scholar
• Bezmez D, Yardımcı S. Rehabilitation technology and the reproduction of bodily normality: a critical analysis of robotic gait training in Turkey. Scandinavian J Disabil Res. 2016;18:343–353.
   Web of Science ®Google Scholar
• Hammersley M, Atkinson P. Ethnography: principles in practice. 2nd ed. London: Routledge; 2007.
   Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
   Google Scholar
• Finkelstein V. Attitudes and disabled people: issues for discussion. New York (NY): World Rehabilitation Fund; 1980.
   Google Scholar