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Research Papers

Growing up with a disability following paralytic poliomyelitis: experiences from persons with late effects of polio

ORCID Icon, ORCID Icon & ORCID Icon
Pages 960-966 | Received 09 Dec 2018, Accepted 19 Jul 2019, Published online: 06 Aug 2019

References

  • Lexell J. Postpoliomyelitis Syndrome. In: Frontera W, Silver J, Rizzo J, editors. Essentials of physical medicine and rehabilitation. 3rd ed. Philadelphia: Elsevier Saunders; 2014. p. 775–781.
  • Farbu E, Gilhus NE, Barnes MP, et al. EFNS guideline on diagnosis and management of post-polio syndrome. Report of an EFNS task force. Eur J Neurol. 2006;13:795–801.
  • Jensen MP, Alschuler KN, Smith AE, et al. Pain and fatigue in persons with postpolio syndrome: independent effects on functioning. Arch Phys Med Rehabil. 2011; 92:1796–1801.
  • Koh ESC, Williams AJ, Povlsen B. Upper-limb pain in long-term poliomyelitis. Quarterly J Med. 2002;95:389–395.
  • Murray D, Hardiman O, Meldrum D. Assessment of subjective and motor fatigue in Polio survivors, attending a Postpolio clinic, comparison with healthy controls and an exploration of clinical correlates. Physiother Theor Pract. 2014;30:229–235.
  • Trojan DA, Cashman NR. Post-poliomyelitis syndrome. Muscle Nerve. 2005;31:6–19.
  • Brogårdh C, Lexell J, Lundgren-Nilsson A. Construct validity of a new rating scale for self-reported impairments in persons with late effects of polio. PM & R: J Injury Funct Rehabil. 2013;5:176–181.
  • Brogårdh C, Lexell J, Sjodahl Hammarlund C. Experiences of falls and strategies to manage the consequences of falls in persons with late effects of polio: a qualitative study. J Rehabil Med. 2017;49:652–658.
  • Sjödahl Hammarlund C, Lexell J, Brogårdh C. Perceived consequences of ageing with late effects of polio and strategies for managing daily life: a qualitative study. BMC Geriatr. 2017;17:179.
  • Winberg C, Carlsson G, Brogårdh C, et al. The perception of physical activity in ambulatory persons with late effects of polio: a qualitative study. J Aging Phys Act. 2016;24:1–26.
  • Winberg C, Flansbjer U-B, Carlsson G, et al. Physical activity in persons with late effects of polio: a descriptive study. Disabil Health J. 2014;7:302–308.
  • Brogårdh C, Lexell J. Falls, fear of falling, self-reported impairments, and walking limitations in persons with late effects of polio. PM & R: J Injury Funct Rehabil. 2014;6:900–907.
  • Brogårdh C, Lexell J. How various self-reported impairments influence walking ability in persons with late effects of polio. Neuro Rehab. 2015;37:291–298.
  • Larsson Lund M, Lexell J. Relationship between participation in life situations and life satisfaction in persons with late effects of polio. Disabil Rehabil. 2009;31:1592–1597.
  • Lexell J, Brogårdh C. Life satisfaction and self-reported impairments in persons with late effects of polio. Ann Phys Rehabil Med. 2012;55:577–589.
  • Larsson Lund M, Lexell J. A positive turning point in life-how persons with late effects of polio experience the influence of an interdisciplinary rehabilitation programme. J Rehabil Med. 2010;42:559–565.
  • Griffin JM, Hawke WA, Barraclough WW. Mental hygiene in an orthopedic hospital. J Pediatr. 1938;13:75–85.
  • Bruno RL, Frick NM. The psychology of polio as prelude to post-polio sequelae: behavior modification and psychotherapy. Orthopedics. 1991;14:1185–1193.
  • Hollingsworth L, Didelot MJ, Levington C. Post-polio syndrome: psychological adjustment to disability. Issues Ment Health Nurs. 2002;23:135–156.
  • Scheer J, Luborsky ML. The cultural context of polio biographies. Orthopedics. 1991;14:1173–1181.
  • Meyer E. Psychological considerations in a group of children with poliomyelitis. J Pediatr. 1947;31:34–48.
  • Ahlström G, Karlsson U. Disability and quality of life in individuals with postpolio syndrome. Disability Rehabil. 2000;22:416–422.
  • Wenneberg S, Ahlström G. Illness narratives of persons with post-polio syndrome. J Adv Nurs. 2000;32:354–361.
  • Malterud K. Systematic text condensation: a strategy for qualitative analysis. Scand J Public Health. 2012;40:795–805.
  • Patton MQ. Qualitative evaluation and research methods. Thousand Oaks: Sage Publications Inc.; 2002.
  • Harrison TC, Stuifbergen A. A hermeneutic phenomenological analysis of aging with a childhood onset disability. Health Care Women Int. 2005;26:731–747.
  • Chatzitheochari S, Parsons S, Platt L. Doubly disadvantaged? Bullying experiences among disabled children and young people in England. Sociology. 2016;50:695–713.
  • Moll LR, Cott CA. The paradox of normalization through rehabilitation: growing up and growing older with cerebral palsy. Disability Rehabil. 2013;35:1276–1283.
  • Russo E, Trevisi E, Zulian F, et al. Psychological profile in children and adolescents with severe course Juvenile Idiopathic Arthritis. Sci World J. 2012;2012:1.
  • Verstappen SM, Cobb J, Foster HE, et al. The association between low socioeconomic status with high physical limitations and low illness self-perception in patients with Juvenile Idiopathic Arthritis: results from the childhood arthritis prospective study. Arthritis Care Res. 2015;67:382–389.
  • Harrison TC. A qualitative analysis of the meaning of aging for women with disabilities with policy implications. ANS Adv Nurs Sci. 2006;29:E1–E13.
  • Gledhill J, Rangel L, Garralda E. Surviving chronic physical illness: psychosocial outcome in adult life. Arch Dis Child. 2000;83:104–110.
  • Leuzinger-Bohleber M. Biographical truths and their clinical consequences: Understanding ‘embodied memories’ in a third psychoanalysis with a traumatized patient recovered from severe poliomyelitis. Int J Psycho-Anal. 2008;89:1165–1187.
  • Malterud K. Qualitative research: standards, challenges, and guidelines. The Lancet. 2001;358:483–488.