Scoping review of the person-centered literature in adult physical rehabilitation

References

• Institute of Medicine. Crossing the quality chasm. Washington (DC): National Academies Press; 2001.
   Google Scholar
• Berwick D. A user's manual for the IOM's 'Quality Chasm' report. Patients' experiences should be the fundamental source of the definition of quality. Health Aff (Millwood). 2002;21(3):80–90.
   PubMed Web of Science ®Google Scholar
• Bettger JP, Nguyen VQC, Thomas JG, et al. Turning data into information: opportunities to advance rehabilitation quality, research, and policy. Arch Phys Med Rehabil. 2018;99(6):1226–1231.
   PubMed Web of Science ®Google Scholar
• Jesus TS, Hoenig H. Post-acute rehabilitation quality of care: toward a shared conceptual framework. Arch Phys Med Rehabil. 2015;96(5):960–969.
   PubMed Web of Science ®Google Scholar
• National Quality Forum. Priority setting for healthcare performance measurement: Addressing performance measure gaps in person-centered care and outcomes. Washington (DC): NQF; 2014.
   Google Scholar
• Jesus TS, Bright F, Kayes N, et al. Person-centred rehabilitation: what exactly does it mean? Protocol for a scoping review with thematic analysis towards framing the concept and practice of person-centred rehabilitation. BMJ Open. 2016;6(7):e011959.
   PubMed Web of Science ®Google Scholar
• Mead N, Bower P. Patient-centredness: a conceptual framework and review of the empirical literature. Soc Sci Med. 2000;51(7):1087–1110.
   PubMed Web of Science ®Google Scholar
• The Health Foundation. Person-centred care made simple: What everyone should know about person-centred care. 2014. London. UK. [cited 2018 Dec 14]. Available from: https://www.health.org.uk/sites/default/files/PersonCentredCareMadeSimple_0.pdf.
   Google Scholar
• Smith RC, Dwamena FC, Grover M, et al. Behaviorally defined patient-centered communication – a narrative review of the literature. J Gen Intern Med. 2011;26(2):185–191.
   PubMed Web of Science ®Google Scholar
• Epstein RM, Franks P, Fiscella K, et al. Measuring patient-centered communication in patient-physician consultations: theoretical and practical issues. Soc Sci Med. 2005;61(7):1516–1528.
   PubMed Web of Science ®Google Scholar
• Morgan S, Yoder LH. A concept analysis of person-centered care. J Holist Nurs. 2012;30(1):6–15.
   PubMedGoogle Scholar
• Berwick DM. What 'patient-centered' should mean: confessions of an extremist. Health Aff (Millwood). 2009;28(4):w555–65.
   PubMed Web of Science ®Google Scholar
• Entwistle VA, Watt IS. Treating patients as persons: a capabilities approach to support delivery of person-centered care. Am J Bioeth. 2013;13(8):29–39.
   PubMed Web of Science ®Google Scholar
• Duggan PS, Geller G, Cooper LA, et al. The moral nature of patient-centeredness: is it “just the right thing to do”?. Patient Educ Couns. 2006;62(2):271–276.
   PubMed Web of Science ®Google Scholar
• Leplege A, Gzil F, Cammelli M, et al. Person-centredness: conceptual and historical perspectives. Disabil Rehabil. 2007;29(20-21):1555–1565.
   PubMed Web of Science ®Google Scholar
• Fix GM, VanDeusen Lukas C, Bolton RE, et al. Patient-centred care is a way of doing things: how healthcare employees conceptualize patient-centred care. Health Expect. 2018;21(1):300–307.
   PubMed Web of Science ®Google Scholar
• Silva D. Helping measure person-centred care: a review of evidence about commonly used approaches and tools used to help measure person-centred care. London (UK): Health Foundation; 2014.
   Google Scholar
• Zhao J, Gao S, Wang J, et al. Differentiation between two healthcare concepts: person-centered and patient-centered care. Int J Nurs Sci. 2016;3(4):398–402.
   Web of Science ®Google Scholar
• Gabutti I, Mascia D, Cicchetti A. Exploring “patient-centered” hospitals: a systematic review to understand change. BMC Health Serv Res. 2017;17(1):364.
   PubMedGoogle Scholar
• Bokhour BG, Fix GM, Mueller NM, et al. How can healthcare organizations implement patient-centered care? Examining a large-scale cultural transformation. BMC Health Serv Res. 2018;18(1):168.
   PubMedGoogle Scholar
• Kogan AC, Wilber K, Mosqueda L. Person-centered care for older adults with chronic conditions and functional impairment: a systematic literature review. J Am Geriatr Soc. 2016; 64(1):e1–7.
   PubMed Web of Science ®Google Scholar
• Mead N, Bower P. Measuring patient-centredness: a comparison of three observation-based instruments. Patient Educ Couns. 2000; 39(1):71–80.
   PubMed Web of Science ®Google Scholar
• Dwamena F, Holmes-Rovner M, Gaulden CM, et al. Interventions for providers to promote a patient-centred approach in clinical consultations. Cochrane Database Syst Rev. 2012;12:CD003267.
   PubMed Web of Science ®Google Scholar
• Lewin SA, Skea ZC, Entwistle V, et al. Interventions for providers to promote a patient-centred approach in clinical consultations. Cochrane Database Syst Rev. 2001;(4):CD003267.
   PubMedGoogle Scholar
• Scholl I, Zill JM, Härter M, et al. An integrative model of patient-centeredness – a systematic review and concept analysis. PLoS One. 2014;9(9):e107828.
   PubMed Web of Science ®Google Scholar
• Constand MK, MacDermid JC, Dal Bello-Haas V, et al. Scoping review of patient-centered care approaches in healthcare. BMC Health Serv Res. 2014;14:271.
   PubMed Web of Science ®Google Scholar
• Sharma T, Bamford M, Dodman D. Person-centred care: an overview of reviews. Contemp Nurse. 2015;51(2–3):107–120.
   PubMed Web of Science ®Google Scholar
• Zill JM, Scholl I, Härter M, et al. Which dimensions of patient-centeredness matter? – results of a web-based expert Delphi survey. PLoS One. 2015;10(11):e0141978.
   PubMed Web of Science ®Google Scholar
• McPherson K, Gibson B, Leplege A. Rethinking rehabilitation: theory and practice. Boca Raton (Fl): Taylor and Francis Group; 2015.
   Google Scholar
• Cott CA. Client-centred rehabilitation: client perspectives. Disabil Rehabil. 2004;26(24):1411–1412.
   PubMed Web of Science ®Google Scholar
• Mroz TM, Pitonyak JS, Fogelberg D, et al. Client centeredness and health reform: key issues for occupational therapy. Am J Occup Ther. 2015;69(5):6905090010p1–6905090010p8.
   PubMed Web of Science ®Google Scholar
• Hunt MR, Ells C. A patient-centered care ethics analysis model for rehabilitation. Am J Phys Med Rehabil. 2013;92(9):818–827.
   PubMed Web of Science ®Google Scholar
• Gzil F, Lefeve C, Cammelli M, et al. Why is rehabilitation not yet fully person-centred and should it be more person-centred?. Disabil Rehabil. 2007;29(20–21):1616–1624.
   PubMed Web of Science ®Google Scholar
• Kramer A. Reabilitation care and outcomes from the patient's perspective. Med Care. 1997;35(6 Suppl):JS48–JS57.
   PubMed Web of Science ®Google Scholar
• Levac D, Colquhoun H, O'Brien KK. Scoping studies: advancing the methodology. Implement Sci. 2010;5:69.
   PubMed Web of Science ®Google Scholar
• Colquhoun HL, Levac D, O'Brien KK, et al. Scoping reviews: time for clarity in definition, methods, and reporting. J Clin Epidemiol. 2014;67(12):1291–1294.
   PubMed Web of Science ®Google Scholar
• Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Social Research Methodology. 2005;8(1):19–32.
   Google Scholar
• Tricco AC, Lillie E, Zarin W, et al. A scoping review on the conduct and reporting of scoping reviews. BMC Med Res Methodol. 2016;16:15.
   PubMed Web of Science ®Google Scholar
• Tricco AC, Lillie E, Zarin W, et al. PRISMA Extension for Scoping Reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467–473.
   PubMed Web of Science ®Google Scholar
• Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288.
   PubMed Web of Science ®Google Scholar
• McPherson KM, Siegert RJ. Person-centred rehabilitation: rhetoric or reality? Disabil Rehabil. 2007;29(20-21):1551–1554.
   PubMed Web of Science ®Google Scholar
• Hammell KR. Client-centred practice in occupational therapy: critical reflections. Scand J Occup Ther. 2013;20(3):174–181.
   PubMed Web of Science ®Google Scholar
• Prescott S, Fleming J, Doig E. Goal setting approaches and principles used in rehabilitation for people with acquired brain injury: a systematic scoping review. Brain Inj. 2015;29(13–14):1515–1529.
   PubMed Web of Science ®Google Scholar
• Resnik L, Jensen GM. Using clinical outcomes to explore the theory of expert practice in physical therapy. Phys Ther. 2003;83(12):1090–1106.
   PubMed Web of Science ®Google Scholar
• Fors A, Swedberg K, Ulin K, et al. Effects of person-centred care after an event of acute coronary syndrome: two-year follow-up of a randomised controlled trial. Int J Cardiol. 2017;249:42–47.
   PubMed Web of Science ®Google Scholar
• Eyssen IC, Steultjens MP, de Groot V, et al. A cluster randomised controlled trial on the efficacy of client-centred occupational therapy in multiple sclerosis: good process, poor outcome. Disabil Rehabil. 2013;35(19):1636–1646.
   PubMed Web of Science ®Google Scholar
• Eyssen IC, Dekker J, de Groot V, et al. Client-centred therapy in multiple sclerosis: more intensive diagnostic evaluation and less intensive treatment. J Rehabil Med. 2014;46(6):527–531.
   PubMed Web of Science ®Google Scholar
• Tracy SJ, Hinrichs MM. Big tent criteria for qualitative quality. In: Davis CS, Potter RF Matthes J, editors. International encyclopedia of communication research method. Hoboken (NJ): John Wiley & Sons; 2017. p. 2–10.
   Google Scholar
• Bensing J, Rimondini M, Visser A. What patients want. Patient Educ Couns. 2013;90(3):287–290.
   PubMed Web of Science ®Google Scholar
• Slater P, McCance T, McCormack B. The development and testing of the person-centred practice inventory – Staff (PCPI-S). Int J Qual Health Care. 2017;29(4):541–547.
   PubMed Web of Science ®Google Scholar
• Cardiff S, McCormack B, McCance T. Person-centred leadership: a relational approach to leadership derived through action research. J Clin Nurs. 2018;27(15–16):3056–3069.
   PubMed Web of Science ®Google Scholar
• Bright FA, Kayes NM, Cummins C, et al. Co-constructing engagement in stroke rehabilitation: a qualitative study exploring how practitioner engagement can influence patient engagement. Clin Rehabil. 2017;31(10):1396–1405.
   PubMed Web of Science ®Google Scholar
• Rosewilliam S, Sintler C, Pandyan AD, et al. Is the practice of goal-setting for patients in acute stroke care patient-centred and what factors influence this? A qualitative study. Clin Rehabil. 2016;30(5):508–519.
   PubMed Web of Science ®Google Scholar
• Levack WM, Dean SG, Siegert RJ, et al. Navigating patient-centered goal setting in inpatient stroke rehabilitation: how clinicians control the process to meet perceived professional responsibilities. Patient Educ Couns. 2011;85(2):206–213.
   PubMed Web of Science ®Google Scholar
• Jones TM, Dear BF, Hush JM, et al. Application of intervention mapping to the development of a complex physical therapist intervention. Phys Ther. 2016;96(12):1994–2004.
   PubMed Web of Science ®Google Scholar
• Sakakibara BM, Lear SA, Barr SI, et al. Development of a chronic disease management program for stroke survivors using intervention mapping: the stroke coach. Arch Phys Med Rehabil. 2017;98(6):1195–1202.
   PubMed Web of Science ®Google Scholar
• Jesus TS, Silva IL. Toward an evidence-based patient-provider communication in rehabilitation: pathways linking communication elements to better rehabilitation outcomes. Clin Rehabil. 2016;30(4):315–328.
   PubMed Web of Science ®Google Scholar
• Breuer E, De Silva MJ, Shidaye R, et al. Planning and evaluating mental health services in low- and middle-income countries using theory of change. Br J Psychiatry. 2016;208(s56):S55–S62.
   PubMedGoogle Scholar
• Ehde DM, Wegener ST, Williams RM, et al. Developing, testing, and sustaining rehabilitation interventions via participatory action research. Arch Phys Med Rehabil. 2013;94(1):S30–S42.
   PubMed Web of Science ®Google Scholar
• McMurray J, McNeil H, Gordon A, et al. Building a rehabilitative care measurement instrument to improve the patient experience. Arch Phys Med Rehabil. 2019;100(1):39–44.
   PubMed Web of Science ®Google Scholar
• McMurray J, McNeil H, Gordon A, et al. Psychometric testing of a rehabilitative care patient experience instrument. Arch Phys Med Rehabil. 2018;99(9):1840–1847.
   PubMed Web of Science ®Google Scholar
• Krug E, Cieza A. Strengthening health systems to provide rehabilitation services. Bull World Health Organ. 2017;95(3):167.
   PubMed Web of Science ®Google Scholar
• Kamenov K, Mills JA, Chatterji S, et al. Needs and unmet needs for rehabilitation services: a scoping review. Disabil Rehabil. 2018;41:1227–1237.
   PubMed Web of Science ®Google Scholar
• Jesus TS, Landry MD, Dussault G, et al. Human resources for health (and rehabilitation): six rehab-workforce challenges for the century. Hum Resour Health. 2017;15(1):8.
   PubMedGoogle Scholar
• Wijma AJ, Bletterman AN, Clark JR, et al. Patient-centeredness in physiotherapy: what does it entail? A systematic review of qualitative studies. Physiother Theory Pract. 2017;33(11):825–840.
   PubMed Web of Science ®Google Scholar
• McMurray J, McNeil H, Lafortune C, et al. Measuring patients' experience of rehabilitation services across the care continuum. Part II: Key dimensions. Arch Phys Med Rehabil. 2016;97(1):121–130.
   PubMed Web of Science ®Google Scholar
• GBD 2017 Disease and Injury Incidence and Prevalence Collaborators. Global, regional, and national incidence, prevalence, and years lived with disability for 354 diseases and injuries for 195 countries and territories, 1990–2017: a systematic analysis for the Global Burden of Disease Study 2017. Lancet. 2018;392(10159):1789–1858.
   PubMed Web of Science ®Google Scholar
• Jesus TS. Systematic reviews and clinical trials in rehabilitation: comprehensive analyses of publication trends. Arch Phys Med Rehabil. 2016;97(11):1853–1862.e2.
   PubMed Web of Science ®Google Scholar
• Jesus TS, Gianola S, Castellini G, et al. Evolving trends in Physical Therapy Research Publications between 1995 and 2015. Physother Can. DOI: 10.3138/ptc-2018-0065.
   Google Scholar
• Cott CA, Wiles R, Devitt R. Continuity, transition and participation: preparing clients for life in the community post-stroke. Disabil Rehabil. 2007;29(20–21):1566–1574.
   PubMed Web of Science ®Google Scholar
• Walder K, Molineux M. Re-establishing an occupational identity after stroke – a theoretical model based on survivor experience. Br J Occupat Therap. 2017;80(10):620–630.
   Web of Science ®Google Scholar
• Hersh D, Worrall L, Howe T, et al. SMARTER goal setting in aphasia rehabilitation. Aphasiology. 2012;26(2):220–233.
   Web of Science ®Google Scholar
• Halladay CW, Trikalinos TA, Schmid IT, et al. Using data sources beyond PubMed has a modest impact on the results of systematic reviews of therapeutic interventions. J Clin Epidemiol. 2015;68(9):1076–1084.
   PubMed Web of Science ®Google Scholar