Contextual determinants of participation after stroke: a systematic review of quantitative and qualitative studies

References

• Bonita R, Mendis S, Truelsen T, et al. The global stroke initiative. Lancet Neurol. 2004;3(7):391–393.
   PubMed Web of Science ®Google Scholar
• Blömer A-M, van Mierlo ML, Visser-Meily JM, et al. Does the frequency of participation change after stroke and is this change associated with the subjective experience of participation? Arch Phys Med Rehabil. 2015;96(3):456–463.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International Classification of Functioning, Disability and Health (ICF). Geneva: World Health Organization; 2001. Available from: https://www.who.int/classifications/icf/en/
   Google Scholar
• Algurén B, Fridlund B, Cieza A, et al. Factors associated with health-related quality of life after stroke: a 1-year prospective cohort study. Neurorehabil Neural Repair. 2012;26(3):266–274.
   PubMed Web of Science ®Google Scholar
• Kwok T, Pan J-H, Lo R, et al. The influence of participation on health-related quality of life in stroke patients. Disabil Rehabil. 2011;33(21–22):1990–1996.
   PubMed Web of Science ®Google Scholar
• Kossi O, Thonnard J-L. Tracking changes in participation with participation measurement scale in community-dwelling stroke survivors in Africa. Arch Phys Med Rehabil. 2018;99(11):2238–2243.
   PubMed Web of Science ®Google Scholar
• Viscogliosi C, Belleville S, Desrosiers J, et al. Participation after a stroke: changes over time as a function of cognitive deficits. Arch Gerontol Geriatr. 2011;52(3):336–343.
   PubMed Web of Science ®Google Scholar
• Ytterberg C, DybaCk M, BergstroM A, et al. Perceived impact of stroke six years after onset, and changes in impact between one and six years. J Rehabil Med. 2017;49(8):637–643.
   PubMed Web of Science ®Google Scholar
• Desrosiers J, Noreau L, Rochette A, et al. Predictors of long-term participation after stroke. Disabil Rehabil. 2006;28(4):221–230.
   PubMed Web of Science ®Google Scholar
• Jette AM, Keysor J, Coster W, et al. Beyond function: predicting participation in a rehabilitation cohort. Arch Phys Med Rehabil. 2005;86(11):2087–2094.
   PubMed Web of Science ®Google Scholar
• Jellema S, van Hees S, Zajec J, et al. What environmental factors influence resumption of valued activities post stroke: a systematic review of qualitative and quantitative findings. Clin Rehabil. 2017;31(7):936–947.
   PubMed Web of Science ®Google Scholar
• Walsh ME, Galvin R, Loughnane C, et al. Factors associated with community reintegration in the first year after stroke: a qualitative meta-synthesis. Disabil Rehabil. 2015;37(18):1599–1608.
   PubMed Web of Science ®Google Scholar
• Hoyle M, Gustafsson L, Meredith P, et al. Participation after stroke: do we understand all the components and relationships as categorised in the ICF? Brain Impair. 2012;13(1):4–15.
   Web of Science ®Google Scholar
• Ezekiel L, Collett J, Mayo NE, et al. Factors associated with participation in life situations for adults with stroke: a systematic review. Arch Phys Med Rehabil. 2019;100(5):945–955.
   PubMed Web of Science ®Google Scholar
• Moher D, Liberati A, Tetzlaff J, et al. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. BMJ. 2009;339(1):b2535.
   PubMed Web of Science ®Google Scholar
• NIH National Heart, Lung and Blood Institute. Study quality assessment tools. 2018. Available from: https://www.nhlbi.nih.gov/health-topics/study-quality-assessment-tools
   Google Scholar
• Critical Appraisal Skills Programme 2018. CASP (Qualitative checklist) Checklist. Available from: https://casp-uk.net/casp-tools-checklists/
   Google Scholar
• Whittemore R, Chao A, Jang M, et al. Methods for knowledge synthesis: an overview. Heart Lung J Crit Care. 2014;43(5):453–461.
   PubMed Web of Science ®Google Scholar
• Sandelowski M, Voils CI, Barroso J. Defining and designing mixed research synthesis studies. Res Sch Natl Refereed J Spons -South Educ Res Assoc Univ Ala. 2006;13:29.
   Google Scholar
• de Graaf J. D, Mierlo M. V, Post MWM, et al. Long-term restrictions in participation in stroke survivors under and over 70 years of age. Disabil Rehabil. 2017;40:637–645.
   PubMed Web of Science ®Google Scholar
• Singam A, Ytterberg C, Tham K, et al. Participation in complex and social everyday activities six years after stroke: predictors for return to pre-stroke level. PLoS One. 2015;10(12):e0144344.
   PubMed Web of Science ®Google Scholar
• Le Dorze G, Salois-Bellerose E, Alepins M, et al. A description of the personal and environmental determinants of participation several years post-stroke according to the views of people who have aphasia. Aphasiology. 2014;28(4):421–439.
   Web of Science ®Google Scholar
• Yang S-Y, Kong KH. Level and predictors of participation in patients with stroke undergoing inpatient rehabilitation. SMEDJ. 2013;54(10):564–568.
   Google Scholar
• Chau JP, Thompson DR, Twinn S, et al. Determinants of participation restriction among community dwelling stroke survivors: a path analysis. BMC Neurol. 2009;9(1):7–49.
   PubMedGoogle Scholar
• Tse T, Binte Yusoff SZ, Churilov L, et al. Increased work and social engagement is associated with increased stroke specific quality of life in stroke survivors at 3 months and 12 months post-stroke: a longitudinal study of an Australian stroke cohort. Top Stroke Rehabil. 2017;24(6):405–414.
   PubMed Web of Science ®Google Scholar
• Berges I-M, Seale GS, Ostir GV. The role of positive affect on social participation following stroke. Disabil Rehabil. 2012;34(25):2119–2123.
   PubMed Web of Science ®Google Scholar
• van der Zee CH, van der Visser-Meily JMA, Lindeman E, et al. Participation in the chronic phase of stroke. Top Stroke Rehabil. 2013;20:52–61.
   PubMed Web of Science ®Google Scholar
• D’Alisa S, Baudo S, Mauro A, et al. How does stroke restrict participation in long-term post-stroke survivors? Acta Neurol Scand. 2005;112:157–162.
   PubMed Web of Science ®Google Scholar
• Beckley MN. The influence of the quality and quantity of social support in the promotion of community participation following stroke. Aust Occ Ther J. 2007;54(3):215–220.
   Web of Science ®Google Scholar
• Schepers VP, Visser-Meily AM, Ketelaar M, et al. Prediction of social activity 1 year poststroke. Arch Phys Med Rehabil. 2005;86(7):1472–1476.
   PubMed Web of Science ®Google Scholar
• Silva SM, Corrêa JCF, Pereira GS, et al. Social participation following a stroke: an assessment in accordance with the International Classification of Functioning, Disability and Health. Disabil Rehabil. 2019;41(8):879–886.
   PubMed Web of Science ®Google Scholar
• Chen X, He Y, Meng X, et al. Factors associated with perceived participation three months after being discharged from a tertiary hospital. Clin Rehabil. 2017;31(9):1257–1266.
   PubMed Web of Science ®Google Scholar
• Adamit T, Maeir A, Ben Assayag E, et al. Impact of first-ever mild stroke on participation at 3 and 6 month post-event: the TABASCO study. Disabil Rehabil. 2015;37(8):667–673.
   PubMed Web of Science ®Google Scholar
• Bertolin M, Van Patten R, Greif T, et al. Predicting cognitive functioning, activities of daily living, and participation 6 months after mild to moderate stroke. Arch Clin Neuropsychol Off J Natl Acad Neuropsychol. 2018;33(5):562–576.
   PubMed Web of Science ®Google Scholar
• Eriksson G, Baum MC, Wolf TJ, et al. Perceived participation after stroke: the influence of activity retention, reintegration, and perceived recovery. Am J Occup Ther Off Publ Am Occup Ther Assoc. 2013;67(6):e131–138.
   PubMedGoogle Scholar
• Ekechukwu N, Olaleye O, Hamzat T. Clinical and psychosocial predictors of community reintegration of stroke survivors three months post in-hospital discharge. Ethiop J Health Sci. 2017;27(1):27–34.
   PubMed Web of Science ®Google Scholar
• Zhang L, Yan T, You L, et al. Barriers to activity and participation for stroke survivors in rural China. Arch Phys Med Rehabil. 2015;96(7):1222–1228.
   PubMed Web of Science ®Google Scholar
• Vincent-Onabajo GO, Ihaza LO, Usman Ali M, et al. Impact of social support on participation after stroke in Nigeria. Top Stroke Rehabil. 2016;23(5):305–310.
   PubMed Web of Science ®Google Scholar
• Zhang L, Sui M, Yan T, et al. A study in persons later after stroke of the relationships between social participation, environmental factors and depression. Clin Rehabil. 2017;31(3):394–402.
   PubMed Web of Science ®Google Scholar
• Norlander A, Carlstedt E, Jönsson A-C, et al. Long-term predictors of social and leisure activity 10 years after stroke. PLoS One. 2016;11(2):e0149395.
   PubMed Web of Science ®Google Scholar
• Sumathipala K, Radcliffe E, Sadler E, et al. Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health. Chronic Illn. 2011;8(1):31–44.
   PubMedGoogle Scholar
• Suttiwong J, Vongsirinavarat M, Hiengkaew V. Predictors of community participation among individuals with first stroke: a Thailand study. Ann Rehabil Med. 2018;42(5):660–669.
   PubMedGoogle Scholar
• Robison J, Wiles R, Ellis-Hill C, et al. Resuming previously valued activities post-stroke: who or what helps? Disabil Rehabil. 2009;31(19):1555–1566.
   PubMed Web of Science ®Google Scholar
• Zhang L, Yan T, You L, et al. Functional activities and social participation after stroke in rural China: a qualitative study of barriers and facilitators. Clin Rehabil. 2018;32(2):273–283.
   PubMed Web of Science ®Google Scholar
• Dalemans RJP, Witte LPD, Beurskens A, et al. An investigation into the social participation of stroke survivors with aphasia. Disabil Rehabil. 2010;32(20):1678–1685.
   PubMed Web of Science ®Google Scholar
• Egan M, Davis CG, Dubouloz C-J, et al. Participation and well-being poststroke: evidence of reciprocal effects. Arch Phys Med Rehabil. 2014;95(2):262–268.
   PubMed Web of Science ®Google Scholar
• Fallahpour M, Tham K, Joghataei MT, Jonsson H. Perceived participation and autonomy: aspects of functioning and contextual factors predicting participation after stroke. J Rehabil Med. 2011;43(5):388–397.
   PubMed Web of Science ®Google Scholar
• Choi YI, Park JH, Jung M-Y, et al. Psychosocial predictors of participation restriction poststroke in Korea: a path analysis. Rehabil Psychol. 2015;60(3):286–294.
   PubMed Web of Science ®Google Scholar
• Desrosiers J, Demers L, Robichaud L, et al. Short-term changes in and predictors of participation of older adults after stroke following acute care or rehabilitation. Neurorehabil Neural Repair. 2008;22(3):288–297.
   PubMed Web of Science ®Google Scholar
• Dalemans RJP, de Witte L, Wade D, et al. Social participation through the eyes of people with aphasia. Int J Lang Commun Disord. 2010;45(5):537–550.
   PubMed Web of Science ®Google Scholar
• Howe TJ, Worrall LE, Hickson L. Interviews with people with aphasia: environmental factors that influence their community participation. Aphasiology. 2008;22(10):1092–1120.
   Web of Science ®Google Scholar
• Brady MC, Clark AM, Dickson S, et al. The impact of stroke-related dysarthria on social participation and implications for rehabilitation. Disabil Rehabil. 2011;33(3):178–186.
   PubMed Web of Science ®Google Scholar
• Lenze EJ, Munin MC, Quear T, et al. The Pittsburgh Rehabilitation Participation Scale: reliability and validity of a clinician-rated measure of participation in acute rehabilitation. Arch Phys Med Rehabil. 2004;85(3):380–384.
   PubMed Web of Science ®Google Scholar
• Katz N, Karpin H, Lak A, et al. Participation in occupational performance: reliability and validity of the activity card sort. OTJR Occup Particip Health. 2003;23(1):10–17.
   Web of Science ®Google Scholar
• Tse T, Douglas J, Lentin P, et al. Reduction in retained activity participation is associated with depressive symptoms 3 months after mild stroke: an observational cohort study. J Rehabil Med. 2017;49(2):120–127.
   PubMed Web of Science ®Google Scholar
• World Health Organization. How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF); 2013. Available from: https://www.who.int/classifications/drafticfpracticalmanual.pdf
   Google Scholar
• Sander AM, Clark A, Pappadis MR. What is community integration anyway?: defining meaning following traumatic brain injury. J Head Trauma Rehabil. 2010;25(2):121–127.
   PubMed Web of Science ®Google Scholar
• Christensen ER, Golden SL, Gesell SB. Perceived benefits of peer support groups for stroke survivors and caregivers in rural North Carolina. N C Med J. 2019;80:143–148.
   PubMedGoogle Scholar
• De Simoni A, Shanks A, Balasooriya-Smeekens C, et al. Stroke survivors and their families receive information and support on an individual basis from an online forum: descriptive analysis of a population of 2348 patients and qualitative study of a sample of participants. BMJ Open. 2016;6(4):e010501.
   PubMed Web of Science ®Google Scholar
• Geyh S, Peter C, Müller R, et al. The personal factors of the International Classification of Functioning, Disability and Health in the literature - a systematic review and content analysis. Disabil Rehabil. 2011;33(13–14):1089–1102.
   PubMed Web of Science ®Google Scholar
• Wolf TJ, Baum CM, Lee D, et al. The development of the improving participation after stroke self-management program (IPASS): an exploratory randomized clinical study. Top Stroke Rehabil. 2016;23(4):284–292.
   PubMed Web of Science ®Google Scholar
• Whiteneck GG, Harrison-Felix CL, Mellick DC, et al. Quantifying environmental factors: a measure of physical, attitudinal, service, productivity, and policy barriers. Arch Phys Med Rehabil. 2004;85(8):1324–1335.
   PubMed Web of Science ®Google Scholar
• Tse T, Douglas J, Lentin P, et al. Measuring participation after stroke: a review of frequently used tools. Arch Phys Med Rehabil. 2013;94(1):177–192.
   PubMed Web of Science ®Google Scholar