Translating reablement research for dementia practice: development of a handbook using implementation science

References

• Alzheimer's Disease International. World Alzheimer’s report 2018. The state of the art of dementia research: new frontiers. Alzheimer's Disease International; 2018 [cited 2018 May 12]. Available from: https://www.alz.co.uk/research/world-report-2018
   Google Scholar
• World Health Organisation. Global action plan on the public health response to dementia 2017–2025. World Health Organisation; 2017 [cited 2018 May 12]. Available from: https://www.who.int/mental_health/neurology/dementia/action_plan_2017_2025/en/
   Google Scholar
• Pink J, O’Brien J, Robinson L, Guideline Committee, et al. Dementia: assessment, management and support: summary of updated NICE guidance. BMJ. 2018;361:k2438.
   PubMedGoogle Scholar
• Poulos CJ, Bayer A, Beaupre L, et al. A comprehensive approach to reablement in dementia. Alzheimers Dement (N Y). 2017;3(3):450–458.
   PubMedGoogle Scholar
• Commonwealth of Australia. Living well at home: CHSP good practice guide. Commonwealth of Australia; 2015 [cited 2018 Nov 20]. Available from: https://agedcare.health.gov.au/sites/g/files/net1426/f/documents/06_2015/good_practice_guide_version_web_accessible_pdf.pdf
   Google Scholar
• Guideline Adaptation Committee. Clinical practice guidelines and principals of care for people with dementia. Guideline Adaptation Committee; 2016 [cited 2018 Feb 27]. Available from: https://cdpc.sydney.edu.au/wp-content/uploads/2019/06/CDPC-Dementia-Guidelines_WEB.pdf
   Google Scholar
• National Institute for Health and Care Excellence (NICE). Dementia: assessment, management and support for people living with dementia and their carers (NICE guideline NG97); 2018 [cited 2019 May 7]. Available from: https://www.nice.org.uk/guidance/ng97/resources/dementia-assessment-management-and-support-for-people-living-with-dementia-and-their-carers-pdf-1837760199109
   Google Scholar
• Laver K, Dyer S, Whitehead C, et al. Interventions to delay functional decline in people with dementia: a systematic review of systematic reviews. BMJ Open. 2016;6(4):e010767.
   PubMed Web of Science ®Google Scholar
• Poulos RG, Gresham M, O'Connor CM, et al. Bridging the gap: from reablement policy to practice for people with dementia. Alzheimers Dement (N Y). 2018;4:508–509.
   PubMedGoogle Scholar
• Murray E, Treweek S, Pope C, et al. Normalisation process theory: a framework for developing, evaluating and implementing complex interventions. BMC Med. 2010;8:63.
   PubMed Web of Science ®Google Scholar
• O’Connor CMC, Gresham M, Poulos RG, et al. Understanding in the Australian aged care sector of reablement interventions for people living with dementia: a qualitative content analysis. BMC Health Serv Res. 2020;20:140.
   Web of Science ®Google Scholar
• Fervers B, Burgers JS, Voellinger R, ADAPTE Collaboration, et al. Guideline adaptation: an approach to enhance efficiency in guideline development and improve utilisation. BMJ Qual Saf. 2011;20(3):228–236.
   PubMed Web of Science ®Google Scholar
• Poulos CJ, Gresham M, Poulos RG, et al. Supporting independence and function in people living with dementia: a handbook for service providers. 2nd ed. Sydney: HammondCare Media; 2019.
   Google Scholar
• Neta G, Glasgow RE, Carpenter CR, et al. A framework for enhancing the value of research for dissemination and implementation. Am J Public Health. 2015;105(1):49–57.
   PubMed Web of Science ®Google Scholar
• Gagliardi AR, Brouwers MC, Palda VA, et al. How can we improve guideline use? A conceptual framework of implementability. Implement Sci. 2011;6:26.
   PubMed Web of Science ®Google Scholar
• Dearing JW. Applying diffusion of innovation theory to intervention development. Res Soc Work Pract. 2009;19(5):503–518.
   PubMed Web of Science ®Google Scholar
• Gagliardi AR, Brouwers MC. Integrating guideline development and implementation: analysis of guideline development manual instructions for generating implementation advice. Implement Sci. 2012;7:67.
   PubMed Web of Science ®Google Scholar
• Hull L, Goulding L, Khadjesari Z, et al. Designing high-quality implementation research: development, application, feasibility and preliminary evaluation of the implementation science research development (ImpRes) tool and guide. Implement Sci. 2019;14(1):80.
   PubMed Web of Science ®Google Scholar
• Nilsen P. Making sense of implementation theories, models and frameworks. Implement Sci. 2015;10:53.
   PubMed Web of Science ®Google Scholar
• May CR, Cummings A, Girling M, et al. Using Normalization Process Theory in feasibility studies and process evaluations of complex healthcare interventions: a systematic review. Implement Sci. 2018;13(1):80.
   PubMedGoogle Scholar
• May C, Finch T. Implementation, embedding, and integration: an outline of Normalization Process Theory. Sociology. 2009;43(3):535–554.
   Google Scholar
• May CR, Finch T, Ballini L, et al. Evaluating complex interventions and health technologies using normalization process theory: development of a simplified approach and web-enabled toolkit. BMC Health Serv Res. 2011;11:245.
   PubMed Web of Science ®Google Scholar
• O'Connor CM, Poulos CJ, Gresham M, et al. Supporting independence and function in people living with dementia: a technical guide to the evidence supporting reablement interventions. 2nd ed. Sydney: HammondCare; 2019.
   Google Scholar
• Bahar-Fuchs A, Clare L, Woods B. Cognitive training and cognitive rehabilitation for mild to moderate Alzheimer's disease and vascular dementia. Cochrane Database Syst Rev. 2013;(6):CD003260.
   Google Scholar
• Woods B, Aguirre E, Spector AE, et al. Cognitive stimulation to improve cognitive functioning in people with dementia. Cochrane Database Syst Rev. 2012;(15):CD005562.
   Google Scholar
• Clare L. Goal-oriented cognitive rehabilitation of memory in early-stage Alzheimer's disease: Single-blind randomized controlled trial of clinical efficacy. Alzheimers Dement. 2011;7:S493.
   PubMedGoogle Scholar
• Tchalla AE, Lachal F, Cardinaud N, et al. Preventing and managing indoor falls with home-based technologies in mild and moderate Alzheimer's disease patients: pilot study in a community dwelling. Dement Geriatr Cogn Disord. 2013;36(3–4):251–261.
   PubMed Web of Science ®Google Scholar
• Wesson J, Clemson L, Brodaty H, et al. A feasibility study and pilot randomised trial of a tailored prevention program to reduce falls in older people with mild dementia. BMC Geriatr. 2013;13:89.
   PubMed Web of Science ®Google Scholar
• NHMRC National Health and Medical Research Council. NHMRC levels of evidence and grades for recommendations for developers of guidelines. Canberra: NHMRC; 2009.
   Google Scholar
• Shea BJ, Grimshaw JM, Wells GA, et al. Development of AMSTAR: a measurement tool to assess the methodological quality of systematic reviews. BMC Med Res Methodol. 2007;7:10.
   PubMed Web of Science ®Google Scholar
• Higgins JP, Altman DG, Gøtzsche PC, Cochrane Statistical Methods Group, et al. The Cochrane collaboration's tool for assessing risk of bias in randomised trials. BMJ. 2011;343:d5928.
   PubMed Web of Science ®Google Scholar
• Peters DH, Adam T, Alonge O, et al. Implementation research: what it is and how to do it. BMJ. 2013;347:f6753.
   PubMed Web of Science ®Google Scholar
• Proctor EK, Landsverk J, Aarons G, et al. Implementation research in mental health services: an emerging science with conceptual, methodological, and training challenges. Adm Policy Ment Health. 2009;36(1):24–34.
   PubMed Web of Science ®Google Scholar
• Wood P. Overcoming the problem of embedding change in educational organizations: a perspective from normalization process theory. Management Education. 2017;31(1):33–38.
   Google Scholar
• Bethell J, Commisso E, Rostad HM, et al. Patient engagement in research related to dementia: a scoping review. Dementia (London). 2018;17(8):944–975.
   PubMedGoogle Scholar
• Delbecq AL, Van de Ven AH, Gustafson DH. Group techniques for program planning: a guide to nominal group and Delphi processes. Glenview, Illinois: Foresman and Company; 1975.
   Google Scholar
• McMillan SS, King M, Tully MP. How to use the nominal group and Delphi techniques. Int J Clin Pharm. 2016;38(3):655–662.
   PubMed Web of Science ®Google Scholar
• Rogers EM. Diffusions of innovations. 5th ed. New York: Free Press; 2003.
   Google Scholar
• Sanson-Fisher RW. Diffusion of innovation theory for clinical change. Med J Aust. 2004;180(S6):S55–S6.
   PubMedGoogle Scholar
• Proctor E, Silmere H, Raghavan R, et al. Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda. Adm Policy Ment Health. 2011;38(2):65–76.
   PubMed Web of Science ®Google Scholar
• Gresham M, Poulos C, Poulos R, et al., ed. Supporting independence and function in people living with dementia: an information booklet of reablement programs for people impacted by dementia. 2nd Ed. Sydney: HammondCare; 2019.
   Google Scholar
• Draper B, Low LF, Withall A, et al. Translating dementia research into practice. Int Psychogeriatr. 2009;21(S1):S72–S80.
   PubMedGoogle Scholar
• Dwyer D. Experiences of registered nurses as managers and leaders in residential aged care facilities: a systematic review. Int J Evid Based Healthc. 2011;9(4):388–402.
   PubMedGoogle Scholar
• Nilsen ES, Myrhaug HT, Johansen M, et al. Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database Syst Rev. 2006;(3):CD004563.
   Google Scholar
• Rogers EM. Diffusion of innovations. New York: Free Press; 1995.
   Google Scholar
• Higgins JPT, Altman DG. Assessing risk of bias in included studies. In: Higgins JPT, Green S, editors. Cochrane handbook for systematic reviews of interventions. West Sussex: John Wiley & Sons Ltd; 2008. p. 187–241.
   Google Scholar
• Dwan K, Gamble C, Williamson PR, Reporting Bias Group, et al. Systematic review of the empirical evidence of study publication bias and outcome reporting bias – an updated review. PLOS One. 2013;8(7):e66844.
   PubMed Web of Science ®Google Scholar
• Egger M, Smith GD. Meta-analysis: bias in location and selection of studies. BMJ. 1998;316(7124):61–66.
   PubMed Web of Science ®Google Scholar
• Lundblad J. A review and critique of Rogers’ diffusion of innovation theory as it applies to organizations. Org Develop J. 2003;21:50–64.
   Google Scholar
• Clarke DJ, Godfrey M, Hawkins R, et al. Implementing a training intervention to support caregivers after stroke: a process evaluation examining the initiation and embedding of programme change. Implement Sci. 2013;8:96.
   PubMed Web of Science ®Google Scholar
• May CR, Johnson M, Finch T. Implementation, context and complexity. Implement Sci. 2016;11(1):141.
   PubMed Web of Science ®Google Scholar
• Damschroder LJ, Aron DC, Keith RE, et al. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4:50.
   PubMed Web of Science ®Google Scholar
• Lewin S, Glenton C, Oxman AD. Use of qualitative methods alongside randomised controlled trials of complex healthcare interventions: methodological study. BMJ. 2009;339:b3496.
   PubMed Web of Science ®Google Scholar
• Pratt R, Clare L, Kirchner V. 'It's like a revolving door syndrome': professional perspectives on models of access to services for people with early-stage dementia. Aging Ment Health. 2006;10(1):55–62.
   PubMed Web of Science ®Google Scholar