Soy diferente: a qualitative study on the perceptions of recovery following traumatic brain injury among Spanish-speaking U.S. immigrants

References

• U.S. Census Bureau PD. Annual estimates of the resident population by sex, age, race, and Hispanic origin for the United States and States: April 1, 2010 to July 1, 2018. 2019 [updated June 2019; cited 2019 Nov 19].
   Google Scholar
• Dismuke CE, Gebregziabher M, Yeager D, et al. Racial/ethnic differences in combat- and non-combat-associated traumatic brain injury severity in the veterans health administration: 2004–2010. Am J Public Health. 2015;105:1696–1702.
   PubMed Web of Science ®Google Scholar
• Arango-Lasprilla JC, Ketchum JM, Lewis AN, et al. Racial and ethnic disparities in employment outcomes for persons with traumatic brain injury: a longitudinal investigation 1–5 years after injury. Pm R. 2011;3:1083–1091.
   PubMedGoogle Scholar
• Sander AM, Pappadis MR, Davis LC, et al. Relationship of race/ethnicity and income to community integration following traumatic brain injury: investigation in a non-rehabilitation trauma sample. NRE. 2009;24:15–27.
   Google Scholar
• Gary KW, Arango-Lasprilla JC, Stevens LF. Do racial/ethnic differences exist in post-injury outcomes after TBI? A comprehensive review of the literature. Brain Inj. 2009;23:775–789.
   PubMed Web of Science ®Google Scholar
• Arango-Lasprilla JC, Kreutzer JS. Racial and ethnic disparities in functional, psychosocial, and neurobehavioral outcomes after brain injury. J Head Trauma Rehabil. 2010;25:128–136.
   PubMed Web of Science ®Google Scholar
• Sander AM, Pappadis MR, Clark AN, et al. Perceptions of community integration in an ethnically diverse sample. J Head Trauma Rehabil. 2011;26:158–169.
   PubMed Web of Science ®Google Scholar
• Fernandez A, Rodriguez RA. Undocumented immigrants and access to health care. JAMA Intern Med. 2017;177:536–537.
   PubMed Web of Science ®Google Scholar
• Bazarian JJ, Pope C, McClung J, et al. Ethnic and racial disparities in emergency department care for mild traumatic brain injury. Acad Emerg Med. 2003;10:1209–1217.
   PubMed Web of Science ®Google Scholar
• Cuthbert JP, Corrigan JD, Harrison-Felix C, et al. Factors that predict acute hospitalization discharge disposition for adults with moderate to severe traumatic brain injury. Arch Phys Med Rehabil. 2011;92:721–730.e3.
   PubMed Web of Science ®Google Scholar
• Meagher AD, Beadles CA, Doorey J, et al. Racial and ethnic disparities in discharge to rehabilitation following traumatic brain injury. J Neurosurg. 2015;122:595–601.
   PubMed Web of Science ®Google Scholar
• Arango-Lasprilla JC, Rosenthal M, Deluca J, et al. Functional outcomes from inpatient rehabilitation after traumatic brain injury: how do Hispanics fare? Arch Phys Med Rehabil. 2007;88:11–18.
   PubMed Web of Science ®Google Scholar
• Alban RF, Berry C, Ley E, et al. Does health care insurance affect outcomes after traumatic brain injury? Analysis of the National Trauma Databank. Am Surg. 2010;76:1108–1111.
   PubMed Web of Science ®Google Scholar
• Englum BR, Villegas C, Bolorunduro O, et al. Racial, ethnic, and insurance status disparities in use of posthospitalization care after trauma. J Am Coll Surg. 2011;213:699–708.
   PubMed Web of Science ®Google Scholar
• Jm K, Lopez M. Use of Spanish declines among Latinos in major U.S. metros.Pew Research Center; 2017 [updated 2017 Oct 31; cited 2020 Feb 27]. Available from: https://www.pewresearch.org/fact-tank/2017/10/31/use-of-spanish-declines-among-latinos-in-major-u-s-metros/
   Google Scholar
• Ortega AN, Fang H, Perez VH, et al. Health care access, use of services, and experiences among undocumented Mexicans and other Latinos. Arch Intern Med. 2007;167:2354–2360.
   PubMed Web of Science ®Google Scholar
• Knowlton LM, Morris AM, Tennakoon L, et al. Financial stability of level I trauma centers within safety-net hospitals. J Am Coll Surg. 2018;227:172–180.
   PubMed Web of Science ®Google Scholar
• Beck TL, Le TK, Henry-Okafor Q, et al. Medical care for undocumented immigrants: national and international issues. Prim Care. 2017;44:e1–e13.
   PubMedGoogle Scholar
• Callaghan T, Washburn DJ, Nimmons K, et al. Immigrant health access in Texas: policy, rhetoric, and fear in the Trump era. BMC Health Serv Res. 2019;19:342.
   PubMed Web of Science ®Google Scholar
• Arango-Lasprilla JC. Traumatic brain injury in Spanish-speaking individuals: research findings and clinical implications. Brain Inj. 2012;26:801–804.
   PubMed Web of Science ®Google Scholar
• Jamison L, Kolakowsky-Hayner SA, Wright J. Preliminary investigation of longitudinal sociodemographic, injury and psychosocial characteristics in a group of non-English speaking Latinos with brain injury. Brain Inj. 2012;26:805–813.
   PubMed Web of Science ®Google Scholar
• Lequerica AH, Botticello A, Oʼneill J, et al. Relationship between Hispanic nativity, residential environment, and productive activity among individuals with traumatic brain injury: a TBI model systems study. J Head Trauma Rehabil. 2019;34:E46–E54.
   PubMed Web of Science ®Google Scholar
• Pappadis MR, Sander AM, Struchen MA, et al. Common misconceptions about traumatic brain injury among ethnic minorities with TBI. J Head Trauma Rehabil. 2011;26:301–311.
   PubMed Web of Science ®Google Scholar
• Beadle EJ, Ownsworth T, Fleming J, et al. The impact of traumatic brain injury on self-identity: a systematic review of the evidence for self-concept changes. J Head Trauma Rehabil. 2016;31:E12–E25.
   PubMed Web of Science ®Google Scholar
• Polinder S, Haagsma JA, van Klaveren D, et al. Health-related quality of life after TBI: a systematic review of study design, instruments, measurement properties, and outcome. Popul Health Metr. 2015;13:4.
   PubMed Web of Science ®Google Scholar
• Stocchetti N, Zanier ER. Chronic impact of traumatic brain injury on outcome and quality of life: a narrative review. Crit Care. 2016;20:148.
   PubMed Web of Science ®Google Scholar
• Vickery CD, Gontkovsky ST, Caroselli JS. Self-concept and quality of life following acquired brain injury: a pilot investigation. Brain Inj. 2005;19:657–665.
   PubMed Web of Science ®Google Scholar
• Levack WM, Kayes NM, Fadyl JK. Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research. Disabil Rehabil. 2010;32:986–999.
   PubMed Web of Science ®Google Scholar
• Glaser BG, Strauss AL. The discovery of grounded theory: strategies for qualitative research. New York (NY): Aldine Transaction; 1967.
   Google Scholar
• Bernard HR, Wutich A, Ryan GW. Analyzing qualitative data: systematic approaches. Thousand Oaks (CA): Sage Publications; 2016.
   Google Scholar
• NVivo qualitative data analysis software. 10. QSR International Pty Ltd.; 2012.
   Google Scholar
• Lincoln YS, Guba EG. But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Dir Prog Eval. 1986;1986:73–84.
   Google Scholar
• Teasdale G, Jennett B. Assessment of coma and impaired consciousness. A practical scale. Lancet. 1974;2:81–84.
   PubMed Web of Science ®Google Scholar
• Pastorek NJ, Hannay HJ, Contant CS. Prediction of global outcome with acute neuropsychological testing following closed-head injury. J Int Neuropsychol Soc. 2004;10:807–817.
   PubMed Web of Science ®Google Scholar
• Shahin H, Gopinath SP, Robertson CS. Influence of alcohol on early Glasgow Coma Scale in head-injured patients. J Trauma. 2010;69:1176–1181; discussion 1181.
   PubMed Web of Science ®Google Scholar
• Rundhaug NP, Moen KG, Skandsen T, et al. Moderate and severe traumatic brain injury: effect of blood alcohol concentration on Glasgow Coma Scale score and relation to computed tomography findings. JNS. 2015;122:211–218.
   PubMed Web of Science ®Google Scholar
• Attride-Stirling J. Thematic networks: an analytic tool for qualitative research. Qual Res. 2001;1:385–405.
   Google Scholar
• Taylor P, Lopez M, Martinez J, et al. When labels don’t fit: Hispanics and their views of identity. V. Politics, values and religion. Washington (DC): Pew Research Center; 2012.
   Google Scholar
• Smart JF, Smart DW. Acceptance of disability and the Mexican American culture. Rehabil Couns Bull. 1991;34:357–367.
   Web of Science ®Google Scholar
• Clark AN, Sander AM, Pappadis MR, et al. Caregiver characteristics and their relationship to health service utilization in minority patients with first episode stroke. NeuroRehabilitation. 2010;27:95–104.
   PubMed Web of Science ®Google Scholar
• Waldron-Perrine B, Rapport LJ, Hanks RA, et al. Religion and spirituality in rehabilitation outcomes among individuals with traumatic brain injury. Rehabil Psychol. 2011;56:107–116.
   PubMed Web of Science ®Google Scholar
• Philippus A, Mellick D, O'Neil-Pirozzi T, et al. Impact of religious attendance on psychosocial outcomes for individuals with traumatic brain injury: a NIDILRR funded TBI Model Systems study. Brain Inj. 2016;30:1605–1611.
   PubMed Web of Science ®Google Scholar
• McColl MA, Bickenbach J, Johnston J, et al. Spiritual issues associated with traumatic-onset disability. Disabil Rehabil. 2000;22:555–564.
   PubMed Web of Science ®Google Scholar
• Polinder S, Haagsma JA, van Klaveren D, et al. Health-related quality of life after TBI: a systematic review of study design, instruments, measurement properties, and outcome. Population Health Metrics. 2015;13:4.
   PubMed Web of Science ®Google Scholar
• Dijkers MP. Quality of life after traumatic brain injury: a review of research approaches and findings. Arch Phys Med Rehabil. 2004;85:21–35.
   PubMed Web of Science ®Google Scholar
• Nochi M. Struggling with the labeled self: people with traumatic brain injuries in social settings. Qual Health Res. 1998;8:665–681.
   PubMed Web of Science ®Google Scholar
• Nochi M. Reconstructing self-narratives in coping with traumatic brain injury. Soc Sci Med. 2000;51:1795–1804.
   PubMed Web of Science ®Google Scholar
• Wyrick JM, Kalosza BA, Coritsidis GN, et al. Trauma care in a multiethnic population: effects of being undocumented. J Surg Res. 2017;214:145–153.
   PubMed Web of Science ®Google Scholar
• Marquez de la Plata C, Hewlitt M, de Oliveira A, et al. Ethnic differences in rehabilitation placement and outcome after TBI. J Head Trauma Rehabil. 2007;22:113–121.
   PubMed Web of Science ®Google Scholar
• Gao S, Kumar RG, Wisniewski SR, et al. Disparities in health care utilization of adults with traumatic brain injuries are related to insurance, race, and ethnicity: a systematic review. J Head Trauma Rehabil. 2018;33:E40–E50.
   PubMed Web of Science ®Google Scholar
• Budnick HC, Tyroch AH, Milan SA. Ethnic disparities in traumatic brain injury care referral in a Hispanic-majority population. J Surg Res. 2017;215:231–238.
   PubMed Web of Science ®Google Scholar
• Kuruvilla R, Raghavan R. Health care for undocumented immigrants in Texas: past, present, and future. Tex Med. 2014;110:e1.
   PubMedGoogle Scholar
• Zuckerman S, Waidmann TA, Lawton E. Undocumented immigrants, left out of health reform, likely to continue to grow as share of the uninsured. Health Aff (Millwood). 2011;30:1997–2004.
   PubMed Web of Science ®Google Scholar
• Timmins CL. The impact of language barriers on the health care of Latinos in the United States: a review of the literature and guidelines for practice. J Midwifery Womens Health. 2002;47:80–96.
   PubMed Web of Science ®Google Scholar
• Ram P, Miah FT, Wyrick JM, et al. Outcomes in critically ill patients with traumatic brain injury: ethnicity, documentation, and insurance status. Crit Care Med. 2020;48:31–40.
   PubMed Web of Science ®Google Scholar
• Fuentes A, Schoen C, Kulzer RR, et al. Impact of racial-ethnic minority status and systemic vulnerabilities on time to acute TBI rehabilitation admission in an urban public hospital setting. Rehabil Psychol. 2019;64:229–236.
   PubMed Web of Science ®Google Scholar