Creating therapeutic relationships through communication: a qualitative metasynthesis from the perspectives of people with communication impairment after stroke

References

• Kayes NM, McPherson KM, Kersten P. Therapeutic connection in neurorehabilitation: theory, evidence and practice. In: Demaerschalk B, Wingerchuk D, Uitdehaag B, editors. Evidence-based neurology. 2nd ed. Chichester (UK): John Wiley & Sons; 2014. p. 303–318.
   Google Scholar
• Kayes NM, Mudge S, Bright FAS, et al. Whose behaviour matters? Rethinking practitioner behaviour and its influence on rehabilitation outcomes. In: McPherson K, Gibson B, LePlege A, editors. Rethinking rehabilitation. Boca Raton (FL): CRC Press; 2015. p. 249–271.
   Google Scholar
• Hall AM, Ferreira PH, Maher CG, et al. The influence of the therapist-patient relationship on treatment outcome in physical rehabilitation: a systematic review. Phys Ther. 2010;90(8):1099–1110.
   PubMed Web of Science ®Google Scholar
• Kayes NM, McPherson KM. Human technologies in rehabilitation: 'Who' and 'How' we are with our clients. Disabil Rehabil. 2012;34(22):1907–1911.
   PubMed Web of Science ®Google Scholar
• Worrall L, Davidson B, Hersh D, et al. The evidence for relationship-centred practice in aphasia rehabilitation. JIRCD. 2011;1(2):277–300.
   Google Scholar
• Bordin ES. The generalizability of the psychoanalytic concept of the working alliance. Psychother Theor Res Pract. 1979;16(3):252–260.
   Google Scholar
• Bishop M, Kayes N, McPherson K. Understanding the therapeutic alliance in stroke rehabilitation. Disabil Rehabil. 2019. DOI:https://doi.org/10.1080/09638288.2019.1651909
   Google Scholar
• Miciak M, Mayan M, Brown C, et al. The necessary conditions of engagement for the therapeutic relationship in physiotherapy: an interpretive description study. Arch Physiother. 2018;8:3.
   PubMedGoogle Scholar
• Lawton M, Haddock G, Conroy P, et al. Therapeutic alliances in stroke rehabilitation: a meta-ethnography. Arch Phys Med Rehabil. 2016;97(11):1979–1993.
   PubMed Web of Science ®Google Scholar
• Kayes NM, Cummins C, Theadom A, et al., editors. What matters most to the therapeutic relationship in neurorehabilitation? European Health Psychology Society. Aberdeen (Scotland): The European Health Psychologist; 2016.
   Google Scholar
• Bright FAS, Kayes NM, McPherson KM, et al. Engaging people experiencing communication disability in stroke rehabilitation: a qualitative study. Int J Lang Commun Disord. 2018;53(5):981–994.
   PubMed Web of Science ®Google Scholar
• Lawton M, Haddock G, Conroy P, et al. People with aphasia’s perception of the therapeutic alliance in aphasia rehabilitation post stroke: a thematic analysis. Aphasiology. 2018;32(12):1321–1397.
   Web of Science ®Google Scholar
• Dickey L, Kagan A, Lindsay P, et al. Incidence and profile of inpatient stroke-induced aphasia in Ontario, Canada. Arch Phys Med Rehabil. 2010;91(2):196–202.
   PubMed Web of Science ®Google Scholar
• Hemsley B, Georgiou A, Hill S, et al. An integrative review of patient safety in studies on the care and safety of patients with communication disabilities in hospital. Patient Educ Couns. 2016;99(4):501–511.
   PubMed Web of Science ®Google Scholar
• Carragher M, Steel G, O’Halloran R, et al. Aphasia disrupts usual care: the stroke team’s perceptions of delivering healthcare to patients with aphasia. Disabil Rehabil. 2020. DOI:https://doi.org/10.1080/09638288.2020.1722264
   Web of Science ®Google Scholar
• Hersh D, Godecke E, Armstrong E, et al. Ward talk": nurses' interaction with people with and without aphasia in the very early period poststroke. Aphasiology. 2016;30(5):609–628.
   Web of Science ®Google Scholar
• Gordon C, Ellis-Hill C, Ashburn A. The use of conversational analysis: nurse-patient interaction in communication disability after stroke. J Adv Nurs. 2009;65(3):544–553.
   PubMed Web of Science ®Google Scholar
• Lawton M, Haddock G, Conroy P, et al. People with aphasia's perspectives of the therapeutic alliance during speech-language intervention: a Q methodological approach. Int J Speech Lang Pathol. 2020;22(1):59–69.
   PubMed Web of Science ®Google Scholar
• Kagan A. Revealing the competence of aphasic adults through conversation: a challenge to health professionals. Top Stroke Rehabil. 1995;2(1):15–28.
   PubMedGoogle Scholar
• Pound C, Jensen LR. Humanising communication between nursing staff and patients with aphasia: potential contributions of the Humanisation Values Framework. Aphasiology. 2018;32(10):1225–1249.
   Web of Science ®Google Scholar
• Nyström M. Professional aphasia care trusting the patient's competence while facing existential issues. J Clin Nurs. 2009;18(17):2503–2510.
   PubMed Web of Science ®Google Scholar
• Fourie RJ. Qualitative study of the therapeutic relationship in speech and language therapy: perspectives of adults with acquired communication and swallowing disorders. Int J Lang Commun Disord. 2009;44(6):979–999.
   PubMed Web of Science ®Google Scholar
• Berg K, Askim T, Balandin S, et al. Experiences of participation in goal setting for people with stroke-induced aphasia in Norway. A qualitative study. Disabil Rehabil. 2017;39(11):1122–1130.
   PubMed Web of Science ®Google Scholar
• Boutin-Lester P, Gibson RW. Patients' perceptions of home health occupational therapy. Aust Occup Ther J. 2002;49(3):146–154.
   Google Scholar
• Brady MC, Clark AM, Dickson S, et al. Dysarthria following stroke: the patient's perspective on management and rehabilitation . Clin Rehabil. 2011;25(10):935–952.
   PubMed Web of Science ®Google Scholar
• Thorne SE. Metasynthetic madness: what kind of monster have we created? Qual Health Res. 2017;27(1):3–12.
   PubMed Web of Science ®Google Scholar
• Thorne SE. Qualitative metasynthesis: a technical exercise or a source of new knowledge? Psychooncology. 2015;24(11):1347–1348.
   PubMed Web of Science ®Google Scholar
• Levack WMM. The role of qualitative metasynthesis in evidence-based physical therapy. Phys Ther Rev. 2012;17(6):390–397.
   Google Scholar
• Greenhalgh T, Thorne S, Malterud K. Time to challenge the spurious hierarchy of systematic over narrative reviews? Eur J Clin Invest. 2018;48(6):e12931–e12931.
   PubMed Web of Science ®Google Scholar
• Levack WMM, Kayes NM, Fadyl JK. Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research. Disabil Rehabil. 2010;32(12):986–999.
   PubMed Web of Science ®Google Scholar
• Hammell W. K. Quality of life after spinal cord injury: a meta-synthesis of qualitative findings. Spinal Cord. 2007;45(2):124–139.
   PubMed Web of Science ®Google Scholar
• Beverley CA, Booth A, Bath PA. The role of the information specialist in the systematic review process: a health information case study. Health Info Libr J. 2003;20(2):65–74.
   PubMedGoogle Scholar
• Clancy L, Povey R, Rodham K. "Living in a foreign country": experiences of staff-patient communication in inpatient stroke settings for people with post-stroke aphasia and those supporting them. Disabil Rehabil. 2020;42(3):324–334.
   PubMed Web of Science ®Google Scholar
• Terry G, Hayfield N, Clarke V, et al. Thematic analysis. In: Willig C, Stainton Rogers W, editors. The SAGE handbook of qualitative research in psychology. 2nd ed. London (UK): SAGE; 2017. p. 17–37.
   Google Scholar
• Bright FAS, Kayes NM, McCann CM, et al. Hope in people with aphasia. Aphasiology. 2013;27(1):41–58.
   Web of Science ®Google Scholar
• Tomkins B, Siyambalapitiya S, Worrall L. What do people with aphasia think about their health care? Factors influencing satisfaction and dissatisfaction. Aphasiology. 2013;27(8):972–991.
   Web of Science ®Google Scholar
• Bright FAS, Kayes NM, Cummins C, et al. Co-constructing engagement in stroke rehabilitation: a qualitative study exploring how practitioner engagement can influence patient engagement. Clin Rehabil. 2017;31(10):1396–1405.
   PubMed Web of Science ®Google Scholar
• McNamee S, Gergen KJ. Introduction. In: McNamee S, Gergen KJ, editors. Therapy as social construction. Newbury Park (CA): SAGE Publications; 1992.
   Google Scholar
• Burns M, Baylor C, Dudgeon BJ, et al. Asking the stakeholders: perspectives of individuals with aphasia, their family members, and physicians regarding communication in medical interactions. Am J Speech Lang Pathol. 2015;24(3):341–357.
   PubMed Web of Science ®Google Scholar
• Hjelmblink F, Bernsten CB, Uvhagen H, et al. Understanding the meaning of rehabilitation to an aphasic patient through phenomenological analysis – a case study. Int J Qual Stud Health Well-Being. 2007;2(2):93–100.
   Google Scholar
• Young A, Gomersall T, Bowen A. Trial participants' experiences of early enhanced speech and language therapy after stroke compared with employed visitor support: a qualitative study nested within a randomized controlled trial. Clin Rehabil. 2013;27(2):174–182.
   PubMed Web of Science ®Google Scholar
• Hersh D, Wood P, Armstrong E. Informal aphasia assessment, interaction and the development of the therapeutic relationship in the early period after stroke. Aphasiology. 2018;32(8):876–901.
   Web of Science ®Google Scholar
• Mackay R. Tell them who i was’[1]: the social construction of aphasia. Disabil Soc. 2003;18(6):811–826.
   Web of Science ®Google Scholar
• Dickson S, Barbour RS, Brady M, et al. Patients' experiences of disruptions associated with post-stroke dysarthria. Int J Lang Commun Disord. 2008;43(2):135–153.
   PubMed Web of Science ®Google Scholar
• Stans SEA, Dalemans R, de Witte L, et al. Challenges in the communication between 'communication vulnerable' people and their social environment: an exploratory qualitative study. Patient Educ Couns. 2013;92(3):302–312.
   PubMed Web of Science ®Google Scholar
• Bright FAS, Kayes NM, Worrall L, et al. A conceptual review of engagement in healthcare and rehabilitation. Disabil Rehabil. 2015;37(8):643–654.
   PubMed Web of Science ®Google Scholar
• Stagg K, Douglas J, Iacono T. A scoping review of the working alliance in acquired brain injury rehabilitation. Disabil Rehabil. 2019;41(4):489–497.
   PubMed Web of Science ®Google Scholar
• Douglas J, Drummond M, Knox L, et al. Rethinking social-relational perspectives in rehabilitation: Traumatic brain injury as a case study. In: McPherson K, Gibson B, LePlege A, editors. Rethinking rehabilitation. Boca Raton (FL): CRC Press; 2015. p. 137–161.
   Google Scholar
• Nolan MR, Davies S, Brown J, et al. Beyond person-centred care: a new vision for gerontological nursing. J Clin Nurs. 2004;13(3a):45–53.
   PubMed Web of Science ®Google Scholar
• Loft MI, Martinsen B, Esbensen BA, et al. Call for human contact and support: an interview study exploring patients' experiences with inpatient stroke rehabilitation and their perception of nurses' and nurse assistants' roles and functions. Disabil Rehabil. 2019;41(4):396–404.
   PubMed Web of Science ®Google Scholar
• Lincoln NB, Kneebone II, Macniven JAB, et al. Psychological management of stroke. Chichester (UK): John Wiley & Sons; 2012.
   Google Scholar
• Satink T, Cup EH, Ilott I, et al. Patients' views on the impact of stroke on their roles and self: a thematic synthesis of qualitative studies. Arch Phys Med Rehabil. 2013;94(6):1171–1183.
   PubMed Web of Science ®Google Scholar
• Salter K, Hellings C, Foley N, et al. The experience of living with stroke: a qualitative meta-synthesis. J Rehabil Med. 2008;40(8):595–602.
   PubMed Web of Science ®Google Scholar
• Mitchell AJ, Sheth B, Gill J, et al. Prevalence and predictors of post-stroke mood disorders: a meta-analysis and meta-regression of depression, anxiety and adjustment disorder. Gen Hosp Psychiatry. 2017;47:48–60.
   PubMed Web of Science ®Google Scholar
• Feo R, Kitson A. Promoting patient-centred fundamental care in acute healthcare systems. Int J Nurs Stud. 2016;57:1–11.
   PubMed Web of Science ®Google Scholar
• Kitson AL, Dow C, Calabrese JD, et al. Stroke survivors' experiences of the fundamentals of care: a qualitative analysis. Int J Nurs Stud. 2013;50(3):392–403.
   PubMed Web of Science ®Google Scholar
• Davidson B, Worrall L, Hickson L. Exploring the interactional dimension of social communication: a collective case study of older people with aphasia. Aphasiology. 2008;22(3):235–257.
   Web of Science ®Google Scholar
• Cruice M, Blom Johansson M, Isaksen J, et al. Reporting interventions in communication partner training: a critical review and narrative synthesis of the literature. Aphasiology. 2018;32(10):1135–1166.
   Web of Science ®Google Scholar
• Kagan A. Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology. 1998;12(9):816–830.
   Web of Science ®Google Scholar
• Priebe S, McCabe R. Therapeutic relationships in psychiatry: the basis of therapy or therapy in itself? Int Rev Psychiatry. 2008;20(6):521–526.
   PubMed Web of Science ®Google Scholar
• Gergen KJ. Relational being: beyond self and community. Oxford (UK): Oxford University Press; 2009.
   Google Scholar
• Sorin-Peters R, McGilton KS, Rochon E. The development and evaluation of a training programme for nurses working with persons with communication disorders in a complex continuing care facility. Aphasiology. 2010;24(12):1511–1536.
   Web of Science ®Google Scholar
• Horton S, Pound C. Communication partner training: re-imagining community and learning. Aphasiology. 2018;32(10):1250–1265.
   Web of Science ®Google Scholar
• Hiller A, Guillemin M, Delany C. Exploring healthcare communication models in private physiotherapy practice. Patient Educ Couns. 2015;98(10):1222–1228.
   PubMed Web of Science ®Google Scholar
• Lawton M, Sage K, Haddock G, et al. Speech and language therapists' perspectives of therapeutic alliance construction and maintenance in aphasia rehabilitation post-stroke. Int J Lang Commun Disord. 2018;53(3):550–563.
   PubMed Web of Science ®Google Scholar
• Ball JE, Murrells T, Rafferty AM, et al. Care left undone' during nursing shifts: associations with workload and perceived quality of care. BMJ Qual Saf. 2014;23(2):116–125.
   PubMed Web of Science ®Google Scholar
• Foster A, O’Halloran R, Rose M, et al. Communication is taking a back seat": speech pathologists’ perceptions of aphasia management in acute hospital settings. Aphasiology. 2016;30(5):585–608.
   Web of Science ®Google Scholar
• Bright FAS. Reconceptualising engagement: a relational practice with people experiencing communication disability after stroke. Auckland: Auckland University of Technology; 2016.
   Google Scholar
• Feo R, Conroy T, Jangland E, et al. Towards a standardised definition for fundamental care: a modified Delphi study. J Clin Nurs. 2018;27(11–12):2285–2299.
   PubMed Web of Science ®Google Scholar
• McCormack B, McCance T. Person-centred practice in nursing and healthcare: Theory and practice. Newark (UK): John Wiley & Sons; 2016.
   Google Scholar
• Byng S, Cairns D, Duchan J. Values in practice and practicing values. J Commun Disord. 2002;35(2):89–106.
   PubMed Web of Science ®Google Scholar
• Kirkevold M, Bronken BA, Martinsen R, et al. Promoting psychosocial well-being following a stroke: developing a theoretically and empirically sound complex intervention. Int J Nurs Stud. 2012;49(4):386–397.
   PubMed Web of Science ®Google Scholar