An exploration of perceived social isolation among persons with spinal cord injury in Ontario, Canada: a qualitative study

References

• House JS, Landis KR, Umberson D. Social relationships and health. Science. 1988;241(4865):540–545.
   PubMed Web of Science ®Google Scholar
• Holt-Lunstad J, Smith TB, Layton JB. Social relationships and mortality risk: a meta-analytic review. PLoS Med. 2010;7(7):e1000316.
   PubMed Web of Science ®Google Scholar
• De Jong Gierveld J, Kamphuls F. The development of a rasch-type loneliness scale. App Psychol Measure. 1985;9(3):289–299.
   Web of Science ®Google Scholar
• Hawkley LC, Thisted RA, Masi CM, et al. Loneliness predicts increased blood pressure: 5-year cross-lagged analyses in middle-aged and older adults. Psychol Aging. 2010;25(1):132–141.
   PubMed Web of Science ®Google Scholar
• LeRoy AS, Murdock KW, Jaremka LM, et al. Loneliness predicts self-reported cold symptoms after a viral challenge. Health Psychol. 2017;36(5):512–520.
   PubMed Web of Science ®Google Scholar
• Kiecolt-Glaser JK, Gouin JP, Hantsoo L. Close relationships, inflammation, and health. Neurosci Biobehav Rev. 2010;35(1):33–38.
   PubMed Web of Science ®Google Scholar
• Cacioppo JT, Hawkley LC, Thisted RA. Perceived social isolation makes me sad: 5-year cross-lagged analyses of loneliness and depressive symptomatology in the Chicago Health, Aging, and Social Relations Study. Psychol Aging. 2010;25(2):453–463.
   PubMed Web of Science ®Google Scholar
• van Baarsen B, Snijders TAB, Smit JH, et al. Lonely but not alone: emotional isolation and social isolation as two distinct dimensions of loneliness in older people. Educ Psychol Measure. 2001;61(1):119–135.
   Web of Science ®Google Scholar
• Valtorta NK, Kanaan M, Gilbody S, et al. Loneliness, social isolation and risk of cardiovascular disease in the English Longitudinal Study of Ageing. Eur J Prev Cardiol. 2018;25(13):1387–1396.
   PubMed Web of Science ®Google Scholar
• Kurina LM, Knutson KL, Hawkley LC, et al. Loneliness is associated with sleep fragmentation in a communal society. Sleep. 2011;34(11):1519–1526.
   PubMed Web of Science ®Google Scholar
• Hackett RA, Hamer M, Endrighi R, et al. Loneliness and stress-related inflammatory and neuroendocrine responses in older men and women. Psychoneuroendocrinology. 2012;37(11):1801–1809.
   PubMed Web of Science ®Google Scholar
• Steptoe A, Shankar A, Demakakos P, et al. Social isolation, loneliness, and all-cause mortality in older men and women. Proc Natl Acad Sci USA. 2013;110(15):5797–5801.
   PubMed Web of Science ®Google Scholar
• Luo Y, Hawkley LC, Waite LJ, et al. Loneliness, health, and mortality in old age: a national longitudinal study. Soc Sci Med. 2012;74(6):907–914.
   PubMed Web of Science ®Google Scholar
• Beller J, Wagner A. Loneliness, social isolation, their synergistic interaction, and mortality. Health Psychol. 2018;37(9):808–813.
   PubMed Web of Science ®Google Scholar
• Zavaleta D, Samuel K, Mills C. Social isolation: a conceptual and measurement proposal. Oxford (UK): University of Oxford; 2014. (OPHI Working Papers).
   Google Scholar
• Shanouda F, Walsh S, Mathieson MS. Aging with a disability. Toronto (Canada): Access Independent Living Services; 2015.
   Google Scholar
• Hammel J, Magasi S, Heinemann A, et al. Environmental barriers and supports to everyday participation: a qualitative insider perspective from people with disabilities. Arch Phys Med Rehabil. 2015;96(4):578–588.
   PubMed Web of Science ®Google Scholar
• Bezyak JL, Sabella SA, Gattis RH. Public transportation: an investigation of barriers for people with disabilities. J Disabil Policy Stud. 2017;28(1):52–60.
   Web of Science ®Google Scholar
• Frier A, Barnett F, Devine S, et al. Understanding disability and the ‘social determinants of health’: how does disability affect peoples’ social determinants of health? Disabil Rehabil. 2018;40(5):538–547.
   PubMed Web of Science ®Google Scholar
• Holanda CM, De Andrade FL, Bezerra MA, et al. Support networks and people with physical disabilities: social inclusion and access to health services. Cien Saude Colet. 2015;20(1):175–184.
   PubMed Web of Science ®Google Scholar
• Guilcher SJT, Craven BC, Bassett-Gunter RL, et al. An examination of objective social disconnectedness and perceived social isolation among persons with spinal cord injury/dysfunction: a descriptive cross-sectional study. Disabil Rehabil. 2019. DOI:10.1080/09638288.2019.1616328
   Web of Science ®Google Scholar
• Santino N, Larocca V, Hitzig SL, et al. Physical activity and life satisfaction among individuals with spinal cord injury: exploring loneliness as a possible mediator. J Spinal Cord Med. 2020;7:1–7.
   Google Scholar
• Whelen-Robinson S, Taylor HB, Feltz M, et al. Loneliness among people with Spinal Cord Injury: exploring the psychometric properties of the 3-Item Loneliness Scale. Arch Phys Med Rehabil. 2016;97(10):1728–1734.
   PubMed Web of Science ®Google Scholar
• Hughes ME, Waite LJ, Hawkley LC, et al. A Short Scale for measuring loneliness in large surveys: results from two population-based studies. Res Aging. 2004;26(6):655–672.
   PubMed Web of Science ®Google Scholar
• Tsai IHG, Chan W, Darkoh C, et al. Environmental barriers and social participation in individuals with spinal cord injury. Rehabil Psychol. 2017;62(1):36–44.
   PubMed Web of Science ®Google Scholar
• Barclay L, McDonald R, Lentin P, et al. Facilitators and barriers to social and community participation following spinal cord injury. Aust Occup Ther J. 2016;63(1):19–28.
   PubMed Web of Science ®Google Scholar
• Barclay L, Lentin P, McDonald R, et al. Understanding the factors that influence social and community participation as perceived by people with non-traumatic spinal cord injury. Br J Occupational Ther. 2017;80(10):577–586.
   Web of Science ®Google Scholar
• Braaf S, Lennox A, Nunn A, et al. Social activity and relationship changes experienced by people with bowel and bladder dysfunction following spinal cord injury. Spinal Cord. 2017;55(7):679–686.
   PubMed Web of Science ®Google Scholar
• Barclay L, Lentin P, Bourke-Taylor H, et al. The experiences of social and community participation of people with non-traumatic spinal cord injury. Aust Occup Ther J. 2019;66(1):61–67.
   PubMed Web of Science ®Google Scholar
• Hay-Smith EJ, Dickson B, Nunnerley J, et al. “The final piece of the puzzle to fit in”: an interpretative phenomenological analysis of the return to employment in New Zealand after spinal cord injury. Disabil Rehabil. 2013;35(17):1436–1446.
   PubMed Web of Science ®Google Scholar
• Dickson A, Ward R, O’Brien G, et al. Difficulties adjusting to post-discharge life following a spinal cord injury: an interpretative phenomenological analysis. Psychol Health Med. 2011;16(4):463–474.
   PubMed Web of Science ®Google Scholar
• Newman SD, Li C, Krause JS. Social isolation after spinal cord injury: indicators from the Longitudinal Aging Study. Rehabil Psychol. 2016;61(4):408–416.
   PubMed Web of Science ®Google Scholar
• Thorne S, Kirkham SR, MacDonald-Emes J. Interpretive description: a noncategorical qualitative alternative for developing nursing knowledge. Res Nurs Health. 1997;20(2):169–177.
   PubMed Web of Science ®Google Scholar
• Craven C, Hitzig SL, Mittmann N. Impact of impairment and secondary health conditions on health preference among Canadians with chronic spinal cord injury. J Spinal Cord Med. 2012;35(5):361–370.
   PubMed Web of Science ®Google Scholar
• Hitzig SL, Campbell KA, McGillivray CF, et al. Understanding age effects associated with changes in secondary health conditions in a Canadian spinal cord injury cohort. Spinal Cord. 2010;48(4):330–335.
   PubMed Web of Science ®Google Scholar
• Noonan VK, Kwon BK, Soril L, et al. The Rick Hansen Spinal Cord Injury Registry (RHSCIR): a national patient-registry. Spinal Cord. 2012;50(1):22–27.
   PubMed Web of Science ®Google Scholar
• Patton MQ. Qualitative research & evalutation. Thousand Oaks (CA): SAGE Publications; 2002.
   Google Scholar
• Barbour RS. Checklists for improving rigour in qualitative research: a case of the tail wagging the dog? BMJ. 2001;322(7294):1115–1117.
   PubMed Web of Science ®Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357.
   PubMed Web of Science ®Google Scholar
• Wrzus C, Hanel M, Wagner J, et al. Social network changes and life events across the life span: a meta-analysis. Psychol Bull. 2013;139(1):53–80.
   PubMed Web of Science ®Google Scholar
• Hitzig SL, Eng JJ, Miller WC, et al. An evidence-based review of aging of the body systems following spinal cord injury. Spinal Cord. 2011;49(6):684–701.
   PubMed Web of Science ®Google Scholar
• Guilcher SJT, Casciaro T, Lemieux-Charles L, et al. Social networks and secondary health conditions: the critical secondary team for individuals with spinal cord injury. J Spinal Cord Med. 2012;35(5):330–342.
   PubMed Web of Science ®Google Scholar
• Sweet SN, Michalovic E, Latimer-Cheung AE, et al. Spinal cord injury peer mentorship: applying self-determination theory to explain quality of life and participation. Arch Phys Med Rehabil. 2018;99(3):468–476.
   PubMed Web of Science ®Google Scholar
• Patacchini E, Engelhardt GV. Work, retirement and social networks at older ages. Chestnut Hill (MA): Center for Retirement Research at Boston College; 2016. (Crr WP 2016-15).
   Google Scholar
• Siebers T. Disability and the theory of complex embodiment – for identity politics in a new register. In: Davis LJ, editor. The disability studies reader. 5th ed. New York (NY): Routledge; 2016.
   Google Scholar
• Piatt JA, Nagata S, Zahl M, et al. Problematic secondary health conditions among adults with spinal cord injury and its impact on social participation and daily life. J Spinal Cord Med. 2016;39(6):693–698.
   PubMed Web of Science ®Google Scholar
• Glennie RA, Batke J, Fallah N, et al. Rural and urban living in persons with spinal cord injury and comparing environmental barriers, their health, and quality-of-life outcomes. J Neurotrauma. 2017;34(20):2877–2882.
   PubMed Web of Science ®Google Scholar
• Mattar AA, Hitzig SL, McGillivray CF. A qualitative study on the use of personal information technology by persons with spinal cord injury. Disabil Rehabil. 2015;37(15):1362–1371.
   PubMed Web of Science ®Google Scholar
• Roberts TT, Leonard GR, Cepela DJ. Classifications in brief: American Spinal Injury Association (ASIA) Impairment Scale. Clin Orthop Relat Res. 2017;475(5):1499–1504.
   PubMed Web of Science ®Google Scholar