4,784
Views
3
CrossRef citations to date
0
Altmetric
Research Papers

Juggling the management of everyday life activities in persons living with chronic obstructive pulmonary disease

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 3410-3421 | Received 23 Mar 2020, Accepted 07 Dec 2020, Published online: 20 Jan 2021

References

  • Global Initiative for Chronic Obstructive Lung Disease (GOLD) [Internet]. Global Strategy for the Diagnosis, Management and Prevention of COPD; 2019 [cited 2020 Jan 8]. Available from: http://www.goldcopd.ord/
  • Spruit MA, Singh SJ, Garvey C, et al.; ATS/ERS Task Force on Pulmonary Rehabilitation. An official American Thoracic Society/European respiratory society statement: key concepts and advances in pulmonary rehabilitation. Am J Respir Crit Care Med. 2013;188(8):e13–e64.
  • Cruz J, Marques A, Jácome C, et al. Global functioning of COPD patients with and without functional balance impairment: an exploratory analysis based on the ICF framework. COPD J Chronic Obstr Pulm Dis. 2015;12(2):207–216.
  • Desveaux L, Beauchamp M, Goldstein R, et al. Community-based exercise programs as a strategy to optimize function in chronic disease: a systematic review. Med Care. 2014;52(3):216–226.
  • Nyberg A, Lindström B, Wadell K. Assessing the effect of high-repetitive single limb exercises (HRSLE) on exercise capacity and quality of life in patients with chronic obstructive pulmonary disease (COPD): study protocol for randomized controlled trial. Trials. 2012;13(1):114.
  • Pomidori L, Contoli M, Mandolesi G, et al. A simple method for home exercise training in patients with chronic obstructive pulmonary disease. J Cardpulm Rehabil Prev. 2012;32(1):53–57.
  • Annegarn J, Meijer K, Passos VL, et al.; Ciro + Rehabilitation Network. Problematic activities of daily life are weakly associated with clinical characteristics in COPD. J Am Med Dir Assoc. 2012;13(3):284–290.
  • Bendixen HJ, Waehrens EE, Wilcke JT, et al. Self-reported quality of ADL task performance among patients with COPD exacerbations. Scand J Occup Ther. 2014;21(4):313–320.
  • Lungerehabilitering [Pulmonary Rehabilitation] [Clinical Guideline] [Internet]. Copenhagen: Danish Society of Respiratory Medicine; 2018 [cited 2019 Nov 12]. Available from: https://www.lungemedicin.dk/fagligt/318-kol-lungerehabilitering.html
  • Occupational therapy practice framework: Domain and process (3rd). FRAMEWORK: domail and process. Am J Occup Ther. 2014;68(Suppl 1):S1–S51.
  • Global Initiative for Chronic Obstructive Lung Disease (GOLD). Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease, (2020 Report) [Internet]. Fontana, USA: GOLD; 2020 [cited 2020 May 17]. Available from: https://goldcopd.org/gold-reports/
  • Blinderman CD, Homel P, Andrew Billings J, et al. Symptom distress and quality of life in patients with advanced chronic obstructive pulmonary disease. J Pain Symptom Manage. 2009;38(1):115–123.
  • Danish Health Authority [Internet]. Telemedicinsk understøttelse af behandlingstilbud til mennesker med KOL - anbefalinger for målgruppe, sundhedsfagligt indhold samt ansvar og samarbejde [Telemedicin support of treatment options for people with COPD - recommendations for target group, health professional content and responsibility and collaboration]; 2017 [cited 2019 Apr 12]. Available from: https://www.sst.dk/da/udgivelser/2017/telemedicinsk-understoettelse-af-behandlingstilbud-til-mennesker-med-kol
  • Nakken N, Janssen DJA, Van Den Bogaart EHA, et al. Informal caregivers of patients with copd: Home sweet home? Eur Respir Rev. 2015;24(137):498–504.
  • Nakken N, Spruit MA, van den Bogaart EHA, et al. Identifying causes of perceptual differences in problematic activities of daily life between patients with COPD and proxies: a qualitative study. Aust Occup Ther J. 2019;66(1):44–51.
  • Kaplan RM, Ries AL. Quality of life: concept and definition. COPD J Chronic Obstr Pulm Dis. 2007;4(3):263–271.
  • Hu J, Meek P. Health-related quality of life in individuals with chronic obstructive pulmonary disease. Hear Lung. 2005;34(6):415–422.
  • Paddison JS, Cafarella P, Frith P. Use of an Australian quality of life tool in patients with COPD. COPD J Chronic Obstr Pulm Dis. 2012;9(6):589–595.
  • Tupper OD, Gregersen TL, Ringbaek T, et al. Effect of tele–health care on quality of life in patients with severe COPD: a randomized clinical trial. COPD. 2018;13:2657–2662.
  • Lacasse Y, Wong E, Guyatt G, et al. Meta-analysis of respiratory rehabilitation in chronic obstructive pulmonary disease. Eurpoa Medicophysica. 1996;348(9035):1115–1119.
  • Horvat N, Locatelli I, Kos M, et al. Medication adherence and health-related quality of life among patients with chronic obstructive pulmonary disease. Acta Pharm. 2018;68(1):117–125.
  • Office of Disease Prevention and Health Promotion [Internet]. Healthy People 2020. Health-related quality of life & Well-being; 2020 [cited 2020 Mar 2]. Available from: https://www.healthypeople.gov/2020/topics-objectives/topic/health-related-quality-of-life-well-being
  • Christiansen CH. The 1999 eleanor clarke slagle lecture. Defining lives: occupation as identity: an essay on competence, coherence, and the creation of meaningAm J Occup Ther. 1999;53(6):547–558.
  • Taylor RR. Kielhofner’s model of human occupation 5th ed. Philadelphia: Wolters Kluwer; 2017.
  • Nikoletou D, Man WD-C, Mustfa N, et al. Evaluation of the effectiveness of a home-based inspiratory muscle training programme in patients with chronic obstructive pulmonary disease using multiple inspiratory muscle tests. Disabil Rehabil. 2016;38(3):250–259.
  • Meshe OF, Claydon LS, Bungay H, et al. The relationship between physical activity and health status in patients with chronic obstructive pulmonary disease following pulmonary rehabilitation. Disabil Rehabil. 2017;39(8):746–756.
  • Sundhedsstyrelsen [Danish Health Authority] [Internet]. Nationale kliniske retningslinjer for rehabilitering af patienter med KOL. [National Clinical Guidelines for Rehabilitation of Patients with COPD]; 2018 [cited 2019 Dec 5]. Available from: https://www.sst.dk/da/udgivelser/2018/nkr-rehabilitering-af-patienter-med-kol
  • Rochester CL, Vogiatzis I, Holland AE, et al.; ATS/ERS Task Force on Policy in Pulmonary Rehabilitation. An official American thoracic society/European respiratory society policy statement: enhancing implementation, use, and delivery of pulmonary rehabilitation. Am J Respir Crit Care Med. 2015;192(11):1373–1386.
  • Martinsen U, Bentzen H, Holter MK, et al. The effect of occupational therapy in patients with chronic obstructive pulmonary disease: a randomized controlled trial. Scand J Occup Ther. 2017;24(2):89–97.
  • Morgan DD, White KM. Occupational therapy interventions for breathlessness at the end of life. Curr Opin Support Palliat Care. 2012;6(2):138–143.
  • Norweg A, Bose P, Snow G, et al. A pilot study of a pulmonary rehabilitation programme evaluated by four adults with chronic obstructive pulmonary disease. Occup Ther Int. 2008;15(2):114–132.
  • Maekura R, Hiraga T, Miki K, et al. Personalized pulmonary rehabilitation and occupational therapy based on cadiopulmonary exercise testing for patients with advanced chronic obstructive pulmonary disease. Int J Chronic Obstr Pulm Dis. 2015;10:1787–1800.
  • Wasterlain E, Reychler G, Caty G. Occupational therapy (OT) and pulmonary rehabilitation (PR) of COPD patients [abstract]. Ann Phys Rehabilitation Med. 2013;56 (supp 1):e169–e174.
  • Petersen AK, Larsen SM. Occupational therapy intervention for patients with COPD rehabilitation at home [abstract]. Int J Integr Care. 2011;11(7):11.
  • Barusso-Grünninger M, Gianjoppe-Santos J, Sentanin A, et al. Do London chest activity of daily living scale and St George’s respiratory questionnaire reflect limitations during activities of daily living in patients with COPD? J Cardiopulm Rehabil Prev. 2019;07(39):274–280.
  • Barusso MS, Gianjoppe-Santos J, Basso-Vanelli RP, et al. Limitation of activities of daily living and quality of life based on COPD combined classification. Respir Care. 2015;60(3):388–398.
  • Ozsoy I, Kahraman BO, Acar S, et al. Factors influencing activities of daily living in subjects with COPD. Respir Care. 2019;64(2):189–195.
  • American Thoracic Society. ATS statement: guidelines for the six-minute walk test. Am J Respir Crit Care Med. 2002;166(1):111–117.
  • Bossenbroek L, de Greef MHG, Wempe JB, et al. Daily physical activity in patients with chronic obstructive pulmonary disease: a systematic review. COPD J Chronic Obstr Pulm Dis. 2011;8(4):306–319.
  • Remoortel HV, Hornikx M, Demeyer H, et al. Daily physical activity in subjects with newly diagnosed COPD. Thorax. 2013;68(10):962–963.
  • Bülow C. Development and evaluation of an adaptational program [dissertation]. Odense (Denmark): University of Southern Denmark; 2015.
  • Fisher AG. Assessment of motor and process skills. Volume 1: Development, Standardization, and Administration Manual. 7th ed. Revised. Fort Collins: Three Star Press; 2011.
  • Waehrens EE. Measuring quality of occupational performance based on relf-report and observation: development and validation of instruments to evaluate ADL task performance [dissertation]. Umeå, (Sweden): Umeå University; 2010.
  • The World Federation of Occupational Therapists. Definition of occupational therapy [Internet]. 2020 [cited 2020 Apr 7]. Available from: https://www.wfot.org/about/about-occupational-therapy
  • Lindenmeyer A, Greenfield SM, Greenfield C, et al. How do people with COPD value different activities? An adapted meta-ethnography of qualitative research. Qual Health Res. 2017;27(1):37–50.
  • Genoe MR, Zimmer C. “At First I Couldn't Catch My Breath”: process and strategies for managing chronic obstructive pulmonary disease. Int J Aging Hum Dev. 2018;86(2):191–214.
  • Genoe MR, Zimmer C. Breathing easier? The contradictory experience of leisure among people living with COPD. Activities, Adaptation Aging. 2017;41(2):138–160.
  • Williams V, Bruton A, Ellis-Hill C, et al. The effect of pulmonary rehabilitation on perceptions of breathlessness and activity in COPD patients: a qualitative study. Prim Care Respir J. 2010;19(1):45–51.
  • Halding AG, Aarsheim EI, Dolmen NM, et al. COPD transitions in health and self-management: service users' experiences from everyday life. Int J Chron Obstruct Pulmon Dis. 2018;13:2075–2088.
  • Kerr A, Ballinger C. Living with chronic lung disease: an occupational perspective. Journal of Occupational Science. 2010;17(1):34–39.
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112.
  • Graneheim UH, Lindgren B-M, Lundman B. Methodological challenges in qualitative content analysis: A discussion paper. Nurse Educ Today. 2017;56:29–34.
  • Kaptain RJ, Helle T, Patomella AH, et al. Association between everyday technology use, activities of daily living and health-related quality of life in chronic obstructive pulmonary disease. COPD. 2020;15:89–98.
  • DePoy E, Gitlin LN. Introduction to research: understanding and applying multiple strategies. 4th ed. St. Louis: Elsevier; 2011.
  • Palinkas LA, Horwitz SM, Green CA, et al. Purposeful sampling for qualitative data collection and analysis in mixed Method Implementation Research. Adm Policy Ment Health. 2015;42(5):533–544.
  • Gustafsson S, Eklund K, Wilhelmson K, et al. Long-term outcome for ADL following the health-promoting RCT-elderly persons in the risk zone. Gerontologist. 2013;53(4):654–663.
  • Krippendorff K. Content analysis – an introduction to its methodology. Thousand Oads: Sage Publications Inc; 2004.
  • Udsen FW, Lilholt PH, Hejlesen O, et al. Effectiveness and cost-effectiveness of telehealthcare for chronic obstructive pulmonary disease: Study protocol for a cluster randomized controlled trial. Trials. 2014;15:178–178.
  • Kvale S, Brinkmann S. Interview Det kvalitative forskningsinterview som håndvaerk [Interview. The craft of qualitative research interview]. 3rd ed. Hans Reitzels forlag, Copenhagen 2015.
  • Bengtsson M. How to plan and perform a qualitative study using content analysis. NursingPlus Open. 2016;2:8–14.
  • Van Nes F, Abma T, Jonsson H, et al. Language differences in qualitative research: is meaning lost in translation? Eur J Ageing. 2010;7(4):313–316.
  • World Medical Association. Declaration of Helsinki – Ethical Principles for Medical Research Involving Human Subjects [Internet]. 2018 [2020 Jun 1]. Available from: https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/
  • Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation) [Internet]. Official Journal of the European Union. 2016 [cited 2019 May 7]. Available from: https://eur-lex.europa.eu/legal-content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=EN
  • The Danish Data Protection Agency. Danish Data Potection Act No. 502 of 23 May 2018. [Internet] 2018 [cited 2020 May 1]. Available from: https://www.datatilsynet.dk/english/legislation
  • National Committee on Health Research Ethics. Act on research ethics review of health research projects, part 4, section 14, number 1-3. [Internet] 2017 [cited 2020 May 1]. Available from: https://www.nvk.dk/forsker/naar-du-anmelder
  • Wilcock AA. Occupation and health: are they one and the same? J Occup Sci. 2007;14(1):3–8.
  • McHorney CA, Ware JE, Raczek AE. The MOS 36-item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care. 1993;31(3):247–263.
  • Walder K, Molineux M, Bissett M. Occupational adaptation – analyzing the maturity and understanding of the concept through concept analysis. Scand J Occup Ther. 2019. DOI:10.1080/11038128.2019.1695931
  • Habraken JM, Pols J, Bindels PJE, et al. The silence of patients with end-stage COPD: a qualitative study. Br J Gen Pract. 2008;58(557):844–849.
  • Katz PP, Gregorich S, Eisner M, et al. Disability in valued life activities among individuals with COPD and other respiratory conditions. J Cardiopulm Rehabil Prev. 2010;30(2):126–136.
  • Torres-Sánchez I, Valenza MC, Cebriá I Iranzo MDÀ, et al. Effects of different physical therapy programs on perceived health status in acute exacerbation of chronic obstructive pulmonary disease patients: a randomized clinical trial. Disabil Rehabil. 2018;40(17):2025–2031.
  • Nielsen KT. Occupational therapy for persons living with chronic conditions – Development and feasibility of the ABLE program [dissertation]. Odense (Denmark): University of Southern Denmark; 2018.
  • Giné-Garriga M, Roqué-Fíguls M, Coll-Planas L, et al. Physical exercise interventions for improving performance-based measures of physical function in community-dwelling, frail older adults: a systematic review and meta-analysis . Arch Phys Med Rehabil. 2014;95(4):753–769.
  • Crocker T, Young J, Forster A, et al. The effect of physical rehabilitation on activities of daily living in older residents of long-term care facilities: systematic review with meta-analysis. Age Ageing. 2013;42(6):682–688.
  • D. Rehabilitation – a new aproach [editorial]. Part Two: the underlying theories. Clin Rehabil. 2015;29(12):1145–1154.
  • Lütze U, Archenholtz B. The impact of arthritis on daily life with the patient perspective in focus. Scand J Caring Sci. 2007;21(1):64–70.
  • Wilcock A, Hocking C. An occupational perspective of health. 3rd ed. Thorofare (NJ): Slack Inc; 2015.
  • Williams V, Bruton A, Ellis-Hill C, et al. What really matters to patients living with chronic obstructive pulmonary disease? An exploratory study. Chron Respir Dis. 2007;4(2):77–85.
  • Chopik WJ. The benefits of social technology use among older adults are mediated by reduced loneliness. Cyberpsychol Behav Soc Netw. 2016;19(9):551–556.