Understanding transitions in care for people with major lower limb amputations from inpatient rehabilitation to home: a descriptive qualitative study

References

• Horgan O, MacLachlan M. Psychosocial adjustment to lower-limb amputation: a review. Disabil Rehabil. 2004;26(14–15):837–850.
   PubMed Web of Science ®Google Scholar
• Imam B, Miller WC, Finlayson HC, et al. Incidence of lower limb amputation in Canada. Can J Public Health. 2017;108(4):374–380.
   PubMed Web of Science ®Google Scholar
• Narres M, Kvitkina T, Claessen H, et al. Incidence of lower extremity amputations in the diabetic compared with the non-diabetic population: a systematic review. Plos One. 2017;12(8):e0182081.
   PubMed Web of Science ®Google Scholar
• Ziegler‐Graham K, MacKenzie EJ, Ephraim PL, et al. Estimating the prevalence of limb loss in the United States: 2005 to 2050. Arch Phys Med Rehabil. 2008;89(3):422–429.
   PubMed Web of Science ®Google Scholar
• Hussain MA, Al-Omran M, Salata K, et al. Population-based secular trends in lower-extremity amputation for diabetes and peripheral artery disease. Can Med Assoc J. 2019;191(35):955–961.
   PubMed Web of Science ®Google Scholar
• Kayssi A, de Mestral C, Forbes TL, et al. A Canadian population-based description of the indications for lower-extremity amputations and outcomes. Can J Surg. 2016;59(2):99–106.
   PubMed Web of Science ®Google Scholar
• Lazzarini PA, Pacella RE, Armstrong DG, et al. Diabetes-related lower-extremity complications are a leading cause of the global burden of disability. Diabet Med. 2018;35(9):1297–1299.
   Web of Science ®Google Scholar
• Klarich J, Brueckner I. Amputee rehabilitation and preprosthetic care. Phys Med Rehabil Clin N Am. 2014;25(1):75–91.
   PubMed Web of Science ®Google Scholar
• Kayssi A, Dilkas S, Dance DL, et al. Rehabilitation trends after lower extremity amputations in Canada. Am J Phys Med Rehabil. 2017;9(5):494–501.
   Google Scholar
• Dillingham TR, Pezzin LE. Rehabilitation setting and associated mortality and medical stability among persons with amputations. Arch Phys Med Rehabil. 2008;89(6):1038–1045.
   PubMed Web of Science ®Google Scholar
• Stineman MG, Kwong PL, Kurichi JE, et al. The effectiveness of inpatient rehabilitation in the acute postoperative phase of care after transtibial or transfemoral amputation: study of an integrated health care delivery system. Arch Phys Med Rehabil. 2008;89(10):1863–1872.
   PubMed Web of Science ®Google Scholar
• Imam B, Miller WC, Finlayson HC, et al. Lower limb prosthetic rehabilitation in Canada: a survey study. Physiother Can. 2019;71(1):11–21.
   PubMed Web of Science ®Google Scholar
• Deathe B, Miller WC, Speechley M. The status of outcome measurement in amputee rehabilitation in Canada. Arch Phys Med Rehabil. 2002;83(7):912–918.
   PubMed Web of Science ®Google Scholar
• Henry AJ, Hevelone ND, Hawkins AT, et al. Factors predicting resource utilization and survival after major amputation. J Vasc Surg. 2013;57(3):784–790.
   PubMed Web of Science ®Google Scholar
• MacKenzie EJ, Castillo RC, Jones AS, et al. Health-care costs associated with amputation or reconstruction of a limb-threatening injury. J Bone Joint Surg Am. 2007;89(8):1685–1692.
   PubMedGoogle Scholar
• Mitchell SE, Laurens V, Weigel GM, et al. Care transitions from patient and caregiver perspectives. Ann Fam Med. 2018;16(3):225–231.
   PubMed Web of Science ®Google Scholar
• Piccenna L, Lannin NA, Gruen R, et al. The experience of discharge for patients with an acquired brain injury from the inpatient to the community setting: a qualitative review. Brain Inj. 2016;30(3):241–251.
   PubMed Web of Science ®Google Scholar
• Wegener ST, Mackenzie EJ, Ephraim P, et al. Self-management improves outcomes in people with limb loss. Arch Phys Med Rehabil. 2009;90(3):373–380.
   PubMed Web of Science ®Google Scholar
• Fan L, Sidani S. Effectiveness of diabetes self-management education intervention elements: a meta-analysis. Can J Diabetes. 2009;33(1):18–26.
   Web of Science ®Google Scholar
• Kayssi A, de Mestral C, Forbes TL, et al. Predictors of hospital readmissions after lower extremity amputations in Canada. J Vasc Surg. 2016;63(3):688–695.
   PubMed Web of Science ®Google Scholar
• Guest R, Craig A, Tran Y, et al. Factors predicting resilience in people with spinal cord injury during transition from inpatient rehabilitation to the community. Spinal Cord. 2015;53(9):682–686.
   PubMed Web of Science ®Google Scholar
• Gustafsson L, Bootle K. Client and carer experience of transition home from inpatient stroke rehabilitation. Disabil Rehabil. 2013;35(16):1380–1386.
   PubMed Web of Science ®Google Scholar
• Doyle C, Lennox L, Bell D. A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open. 2013;3(1):e001570.
   PubMed Web of Science ®Google Scholar
• Sandelowski M. Whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334–340.
   PubMed Web of Science ®Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357.
   PubMed Web of Science ®Google Scholar
• Tongco MD. Purposive sampling as a tool for informant selection. Ethnobot Res App. 2007;5:147–158.
   Google Scholar
• Naderifar M, Goli H, Ghaljaie F. Snowball sampling: a purposeful method of sampling in qualitative research. Stride Dev Med Educ. 2017;14(3):e67670.
   Google Scholar
• Behr J, Friedly J, Molton I, et al. Pain and pain-related interference in adults with lower-limb amputation: Comparison of knee-disarticulation, transtibial, and transfemoral surgical sites. J Rehabil Res Dev. 2009;46(7):963–972.
   PubMedGoogle Scholar
• Hirsh AT, Dillworth TM, Ehde DM, et al. Sex differences in pain and psychological functioning in persons with limb loss. J Pain. 2010;11(1):79–86.
   PubMed Web of Science ®Google Scholar
• Ostler C, Ellis-Hill C, Donovan-Hall M. Expectations of rehabilitation following lower limb amputation: A qualitative study. Disabil Rehabil. 2014;36(14):1169–1175.
   PubMed Web of Science ®Google Scholar
• Holt A. Using the telephone for narrative interviewing: a research note. Qual Res. 2010;10(1):113–121.
   Web of Science ®Google Scholar
• Moira C, Lynne M. The telephone medium and semi-structured interviews: a complementary fit. Qual Res Organ Manag. 2011;6(3):265–277.
   Google Scholar
• Hennink MM, Kaiser BN, Marconi VC. Code saturation versus meaning saturation: How many interviews are enough? Qual Health Res. 2017;27(4):591–608.
   PubMed Web of Science ®Google Scholar
• de Casterlé BD, Gastmans C, Bryon E, et al. QUAGOL: a guide for qualitative data analysis. Int J Nurs Stud. 2012;49(3):360–371.
   PubMed Web of Science ®Google Scholar
• QSR International. NVivo qualitative data analysis software [software]. Version 12. Australia: QSR International Pty Ltd; 2020.
   Google Scholar
• Reichmann JP, Bartman KR. An integrative review of peer support for patients undergoing major limb amputation. J Vasc Nurs. 2018;36(1):34–39.
   PubMed Web of Science ®Google Scholar
• Valizadeh S, Dadkhah B, Mohammadi E, et al. The perception of trauma patients from social support in adjustment to lower-limb amputation: a qualitative study. Indian J Palliat Care. 2014;20(3):229–238.
   PubMedGoogle Scholar
• Hammell KW. Experience of rehabilitation following spinal cord injury: a meta-synthesis of qualitative findings. Spinal Cord. 2007;45(4):260–274.
   PubMed Web of Science ®Google Scholar
• Luker J, Lynch E, Bernhardsson S, et al. Stroke survivors' experiences of physical rehabilitation: a systematic review of qualitative studies. Arch Phys Med Rehabil. 2015;96(9):1698–1708.
   PubMed Web of Science ®Google Scholar
• Miranda J, Underwood D, Kuepfer-Thomas M, et al. Exploring transitions in care from pulmonary rehabilitation to home for persons with chronic obstructive pulmonary disease: a descriptive qualitative study. Health Expect. 2020;23(2):414–422.
   PubMed Web of Science ®Google Scholar
• Clark AM, Barbour RS, McIntyre PD. Preparing for change in the secondary prevention of coronary heart disease: a qualitative evaluation of cardiac rehabilitation within a region of Scotland. J Adv Nurs. 2002;39(6):589–598.
   PubMed Web of Science ®Google Scholar
• Cheng Y, Liu C, Mao C, et al. Social support plays a role in depression in Parkinson's disease: a cross-section study in a Chinese cohort. Parkinsonism Relat Disord. 2008;14(1):43–45.
   PubMed Web of Science ®Google Scholar
• Desmond DM, MacLachlan M. Affective distress and amputation-related pain among older men with long-term, traumatic limb amputations. J Pain Symptom Manage. 2006;31(4):362–368.
   PubMed Web of Science ®Google Scholar
• Williams RM, Ehde DM, Smith DG, et al. A two-year longitudinal study of social support following amputation. Disabil Rehabil. 2004;26(14–15):862–874.
   PubMed Web of Science ®Google Scholar
• Moxey PW, Gogalniceanu P, Hinchliffe RJ, et al. Lower extremity amputations-a review of global variability in incidence. Diabet Med. 2011;28(10):1144–1153.
   PubMed Web of Science ®Google Scholar
• Kratz AL, Williams RM, Turner AP, et al. To lump or to split? Comparing individuals with traumatic and nontraumatic limb loss in the first year after amputation. Rehabil Psychol. 2010;55(2):126–138.
   PubMed Web of Science ®Google Scholar
• Torbjörnsson E, Ottosson C, Boström L, et al. Health-related quality of life and prosthesis use among patients amputated due to peripheral arterial disease–a one-year follow-up. Disabil Rehabil. 2020;24:1–9.
   Google Scholar