532
Views
1
CrossRef citations to date
0
Altmetric
Assessment Procedures

Measure of Early Vision Use: initial validation with parents of children with cerebral palsy

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 4066-4074 | Received 25 Sep 2020, Accepted 10 Feb 2021, Published online: 02 Mar 2021

References

  • Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy. April 2006. Dev Med Child Neurol. 2007;49(s109):8–14.
  • Fazzi E, Signorini SG, La Piana R, et al. Neuro-ophthalmological disorders in cerebral palsy: ophthalmological, oculomotor, and visual aspects. Dev Med Child Neurol. 2012;54(8):730–736.
  • Dutton GN, Bowman R, Fazzi E, et al. Visual function. In: Dan B, Mayston M, Paneth N, editors. Cerebral palsy: science and clinical practice. London (UK): MacKeith Press; 2014.
  • Borgestig M, Sandqvist J, Ahlsten G, et al. Gaze-based assistive technology in daily activities in children with severe physical impairments-an intervention study. Dev Neurorehabil. 2017;20(3):129–141.
  • Ryan JL, Wright FV, Levac DE. Exploring physiotherapists' use of motor learning strategies in gait-based interventions for children with cerebral palsy. Phys Occup Ther Pediatr. 2020;40(1):79–92.
  • Schiariti V, Selb M, Cieza A, et al. International classification of functioning, disability and health core sets for children and youth with cerebral palsy: a consensus meeting. Dev Med Child Neurol. 2015;57(2):149–158.
  • Deramore Denver B, Froude E, Rosenbaum P, et al. Measurement of visual ability in children with cerebral palsy: a systematic review. Dev Med Child Neurol. 2016;58(10):1016–1029.
  • Chorna OD, Guzzetta A, Maitre NL. Vision assessments and interventions for infants 0–2 years at high risk for cerebral palsy: a systematic review. Pediatr Neurol. 2017;76:3–13.
  • Williams C, Northstone K, Borwick C, et al. How to help children with neurodevelopmental and visual problems: a scoping review. Br J Ophthalmol. 2014;98(1):6–12.
  • Deramore Denver B, Froude E, Rosenbaum P, et al. Measure of early vision use: development of a new assessment tool for children with cerebral palsy. Disabil Rehabil. 2020. DOI:10.1080/09638288.2021.1890241
  • Deramore Denver B, Adolfsson M, Froude E, et al. Methods for conceptualising 'visual ability' as a measurable construct in children with cerebral palsy. BMC Med Res Methodol. 2017;17(1):46.
  • Mokkink LB, Prinsen CA, Patrick DL, et al. COSMIN Study Design checklist for Patient-reported outcome measurement instruments; 2019. Available from: www.cosmin.nl.
  • Streiner DL, Norman GR, Cairney J. Health measurement scales: a practical guide to their development and use. 5th ed. Oxford (UK): Oxford University Press; 2015.
  • DeVellis RF. Scale development: theory and applications. 4th ed. Thousand Oaks (CA): SAGE Publications; 2017.
  • Laver Fawcett A. Principles of assessment and outcome measurement for occupational therapists and physiotherapists: theory, skills and application. Chichester (UK): Wiley; 2007.
  • Streiner DL, Kottner J. Recommendations for reporting the results of studies of instrument and scale development and testing. J Adv Nurs. 2014;70(9):1970–1979.
  • Harris PA, Taylor R, Thielke R, et al. Research electronic data capture (REDCap)-a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42(2):377–381.
  • Jewell AT, Stokes A, Bartlett D. Correspondence of classifications between parents of children with cerebral palsy aged 2 to 6 years and therapists using the Gross Motor Function Classification System. Dev Med Child Neurol. 2011;53(4):334–337.
  • Coster W, Bedell G, Law M, et al. Psychometric evaluation of the participation and environment measure for children and youth. Dev Med Child Neurol. 2011;53(11):1030–1037.
  • Pueyo V, García-Ormaechea I, González I, et al. Development of the Preverbal Visual Assessment (PreViAs) questionnaire. Early Hum Dev. 2014;90(4):165–168.
  • Ortibus E, Laenen A, Verhoeven J, et al. Screening for cerebral visual impairment: value of a CVI questionnaire. Neuropediatrics. 2011;42(4):138–147.
  • García-Ormaechea I, González I, Duplá M, et al. Validation of the Preverbal Visual Assessment (PreViAs) questionnaire. Early Hum Dev. 2014;90(10):635–638.
  • Gorrie F, Goodall K, Rush R, et al. Towards population screening for cerebral visual impairment: validity of the five questions and the CVI questionnaire. PLoS One. 2019;14(3):e0214290.
  • Ben Itzhak N, Vancleef K, Franki I, et al. Visuoperceptual profiles of children using the Flemish cerebral visual impairment questionnaire. Dev Med Child Neurol. 2020;62(8):969–976.
  • Terwee CB, Bot SD, de Boer MR, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60(1):34–42.
  • Tabachnick BG, Fidell LS. Using multivariate statistics. 5th ed. Boston (MA): Pearson Education; 2007.
  • Horn JL. A rationale and test for the number of factors in factor analysis. Psychometrika. 1965;30(2):179–185.
  • Watkins MW. Monte Carlo PCA for parallel analysis [computer software]. State College (PA): Eduction and Psychological Associates; 2000.
  • Bland JM, Altman DG. Statistics notes: Cronbach's alpha. BMJ. 1997;314(7080):572.
  • Prinsen CAC, Mokkink LB, Bouter LM, et al. COSMIN guideline for systematic reviews of patient-reported outcome measures. Qual Life Res. 2018;27(5):1147–1157.
  • Ferziger NB, Nemet P, Brezner A, et al. Visual assessment in children with cerebral palsy: implementation of a functional questionnaire. Dev Med Child Neurol. 2011;53(5):422–428.
  • Katsumi O, Chedid SG, Kronheim JK, et al. Correlating preferential looking visual acuity and visual behavior in severely visually handicapped children. Acta Ophthalmol Scand. 1995;73(5):407–413.
  • Ghasia F, Brunstrom J, Gordon M, et al. Frequency and severity of visual sensory and motor deficits in children with cerebral palsy: gross motor function classification scale. Invest Ophthalmol Vis Sci. 2008;49(2):572–580.
  • Delacy MJ, Reid SM, Australian Cerebral Palsy Register G. Profile of associated impairments at age 5 years in Australia by cerebral palsy subtype and Gross Motor Function Classification System level for birth years 1996 to 2005. Dev Med Child Neurol. 2016;58(s2):50–56.
  • Krumlinde-Sundholm L, Ek L, Sicola E, et al. Development of the hand assessment for infants: evidence of internal scale validity. Dev Med Child Neurol. 2017;59(12):1276–1283.
  • Sharma A, Cockerill H. Mary Sheridan's from birth to five years: children's developmental progress. 4th ed. London (UK): Routledge; 2014.
  • Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288.
  • Prinsen CAC, Vohra S, Rose MR, et al. How to select outcome measurement instruments for outcomes included in a “Core Outcome Set” - a practical guideline. Trials. 2016;17(1):449–410.
  • Pallant JF. SPSS survival manual: a step by step guide to data analysis using IBM SPSS. 6th ed. Sydney (AU): Allen & Unwin; 2016.
  • Holmefur MM, Krumlinde-Sundholm L. Psychometric properties of a revised version of the Assisting Hand Assessment (Kids-AHA 5.0). Dev Med Child Neurol. 2016;58(6):618–624.
  • Russell D, Rosenbaum P, Wright M, et al. Gross Motor Function Measure (GMFM-66 & GMFM-88) User's Manual. 2nd ed. London (UK): Mac Keith Press; 2013.
  • Beckung E, Carlsson G, Carlsdotter S, et al. The natural history of gross motor development in children with cerebral palsy aged 1 to 15 years. Dev Med Child Neurol. 2007;49(10):751–756.
  • Bartlett DJ, Palisano RJ. Physical therapists' perceptions of factors influencing the acquisition of motor abilities of children with cerebral palsy: implications for clinical reasoning. Phys Ther. 2002;82(3):237–248.
  • Vancleef K, Janssens E, Petré Y, et al. Assessment tool for visual perception deficits in cerebral visual impairment: development and normative data of typically developing children. Dev Med Child Neurol. 2020;62(1):111–117.
  • Novak I, Hines M, Goldsmith S, et al. Clinical prognostic messages from a systematic review on cerebral palsy. Pediatrics. 2012;130(5):e1–e28.
  • Cunningham BJ, Hidecker MJC, Thomas-Stonell N, et al. Moving research tools into practice: the successes and challenges in promoting uptake of classification tools. Disabil Rehabil. 2018;40(9):1099–1107.
  • Baranello G, Signorini S, Tinelli F, et al. Visual function classification system for children with cerebral palsy: development and validation. Dev Med Child Neurol. 2020;62(1):104–110.
  • O’Connor B, Kerr C, Shields N, et al. Steering towards collaborative assessment: a qualitative study of parents’ experiences of evidence-based assessment practices for their child with cerebral palsy. Disabil Rehabil. 2019. DOI:10.1080/09638288.2019.1629652

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.