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Research Papers

Experiences and perceived outcomes of persons with multiple sclerosis from participating in a randomized controlled trial testing implementation of the Canadian Physical Activity Guidelines for Adults with MS: an embedded qualitative study

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Pages 4663-4671 | Received 14 May 2020, Accepted 05 Apr 2021, Published online: 04 Jun 2021

References

  • Kister I, Bacon TE, Chamot E, et al. Natural history of multiple sclerosis symptoms. Int J MS Care. 2013;15(3):146–158.
  • Williams AE, Vietri JT, Isherwood G, et al. Symptoms and association with health outcomes in relapsing-remitting multiple sclerosis: results of a US patient survey. Mult Scler Int. 2014;2014:203183.
  • Benedict RH, Wahlig E, Bakshi R, et al. Predicting quality of life in multiple sclerosis: accounting for physical disability, fatigue, cognition, mood disorder, personality, and behavior change. J Neurol Sci. 2005;231(1–2):29–34.
  • Benito-León J, Morales JM, Rivera-Navarro J. Health-related quality of life and its relationship to cognitive and emotional functioning in multiple sclerosis patients. Eur J Neurol. 2002;9(5):497–502.
  • Motl RW, Sandroff BM, Kwakkel G, et al. Exercise in patients with multiple sclerosis. Lancet Neurol. 2017;16(10):848–856.
  • Motl RW, Pilutti L. The benefits of exercise training in multiple sclerosis. Nat Rev Neurol. 2012;8(9):487–497.
  • Marrie R, Horwitz R, Cutter G, et al. High frequency of adverse health behaviors in multiple sclerosis. Mult Scler. 2009;15(1):105–113.
  • Motl RW, Mcauley E, Sandroff BM, et al. Descriptive epidemiology of physical activity rates in multiple sclerosis. Acta Neurol Scand. 2015;131(6):422–425.
  • Learmonth YC, Adamson BC, Balto JM, et al. Multiple sclerosis patients need and want information on exercise promotion from healthcare providers: a qualitative study. Health Expect. 2017;20(4):574–583.
  • Canadian Society for Exercise Physiology (CSEP); Canadian Physical Activity Guidelines for Adults with Multiple Sclerosis. 2012. Ottawa, Canada. Available from: https://csepguidelines.ca/wp-content/uploads/2018/10/CSEP_MS_PAGuidelines_adults_en.pdf
  • Latimer-Cheung AE, Martin Ginis KA, Hicks AL, et al. Development of evidence-informed physical activity guidelines for adults with multiple sclerosis. Arch Phys Med Rehabil. 2013;94(9):1829–1836.
  • Latimer-Cheung AE, Pilutti LA, Hicks AL, et al. Effects of exercise training on fitness, mobility, fatigue, and health-related quality of life among adults with multiple sclerosis: a systematic review to inform guideline development. Arch Phys Med Rehabil. 2013;94(9):1800–1828.
  • Canning KL, Hicks AL. Physician referral improves adherence to the physical activity guidelines for adults with MS: a randomized controlled trial. Mult Scler Relat Disord. 2020;37:101441.
  • Canning KL, Hicks AL. Benefits of adhering to the physical activity guidelines for adults with multiple sclerosis go beyond aerobic fitness and strength. Int J MS Care. 2020;22(1):15–21.
  • Martin Ginis KA, Evans MB, Mortenson WB, et al. Broadening the conceptualization of participation of persons with physical disabilities: a configurative review and recommendations. Arch Phys Med Rehabil. 2017;98(2):395–402.
  • Shirazipour CH, Evans MB, Leo J, et al. Program conditions that foster quality physical activity participation experiences for people with a physical disability: a systematic review. Disabil Rehabil. 2020;42(2):147–155.
  • Stennett A, De Souza L, Norris M. The meaning of exercise and physical activity in community dwelling people with multiple sclerosis. Disabil Rehabil. 2020;42(3):317–323.
  • Smith M, Neibling B, Williams G, et al. A qualitative study of active participation in sport and exercise for individuals with multiple sclerosis. Physiother Res Int. 2019;24(3):e1776.
  • Clarke R, Coote S. Perceptions of participants in a group, community, exercise programme for people with multiple sclerosis. Rehabil Res Pract. 2015;2015:123494–123497.
  • Lee CJG. Reconsidering constructivism in qualitative research. Educ Philos Theory. 2012;44(4):403–412.
  • Labonte R, Robertson A. Delivering the goods, showing our stuff: the case for a constructivist paradigm for health promotion research and practice. Heal Educ Behav. 1996;23:431–447.
  • Creswell JW. Research design: Qualitative, quantitative, and mixed methods approaches. 3rd ed. Thousand Oaks (CA): SAGE; 2009.
  • Guba EG. Criteria for assessing the trustworthiness of naturalistic inquiries. Educ Commun Technol. 1982;29:75–91.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Pshychology. 2006;3(2):77–101.
  • Curtin M, Fossey E. Appraising the trustworthiness of qualitative studies: guidelines for occupational therapists. Aust Occ Ther J. 2007;54(2):88–94.
  • Krefting L. Rigor in qualitative research: the assessment of trustworthiness. Am J Occup Ther. 1991;45(3):214–222.
  • Bandura A. Self-efficacy mechanism in human agency. Am Psychol. 1982;37(2):122–147.
  • Learmonth YC, Marshall-Mckenna R, Paul L, et al. A qualitative exploration of the impact of a 12-week group exercise class for those moderately affected with multiple sclerosis. Disabil Rehabil. 2013;35(1):81–88.
  • Dodd KJ, Taylor NF, Denisenko S, et al. A qualitative analysis of a progressive resistance exercise programme for people with multiple sclerosis. Disabil Rehabil. 2006;28(18):1127–1134.
  • Kasser SL, Kosma M. Social cognitive factors, physical activity, and mobility impairment in adults with multiple sclerosis. Behav Med. 2018;44(4):306–313.
  • Christensen ME, Brincks J, Schnieber A, et al. The intention to exercise and the execution of exercise among persons with multiple sclerosis-a qualitative metasynthesis. Disabil Rehabil. 2016;38(11):1023–1033.
  • Wood V, Kasser SL. Spousal support and self-determined physical activity in individuals with multiple sclerosis: a theory-informed qualitative exploration. Disabil Health J. 2020;13(1):100835.
  • Dlugonski D, Joyce RJ, Motl RW. Meanings, motivations, and strategies for engaging in physical activity among women with multiple sclerosis. Disabil Rehabil. 2012;34(25):2148–2157.
  • Kasser S. Exercising with multiple sclerosis: insights into meaning and motivation. Adapt Phys Activ Q. 2009;26(3):274–289.
  • Bandura A. Human agency in social cognitive theory. Am Psychol. 1989;44(9):1175–1184.
  • Bandura A. Social cognitive theory: an agentic perspective. Annu Rev Psychol. 2001;52:1–26.
  • Learmonth YC, Kinnett-Hopkins D, Motl RW. Capitalising on the opinions of persons with multiple sclerosis to inform the main trial - participant opinions from participation in a feasibility study, a qualitative extension study. Disabil Rehabil. 2019;41(25):3071–3078.
  • Dahl TH. International Classification of Functioning, Disability and Health: an introduction and discussion of its potential impact on rehabilitation services and research. J Rehabil Med. 2002;34(5):201–204.
  • Paul L, Coote S, Crosbie J, et al. Core outcome measures for exercise studies in people with multiple sclerosis: recommendations from a multidisciplinary consensus meeting. Mult Scler. 2014;20(12):1641–1650.
  • Prochaska JO, Velicer WF. The transtheoretical change model of health behavior. Am J Health Promot. 1997;12(1):38–48.
  • Ploughman M. Breaking down the barriers to physical activity among people with multiple sclerosis – a narrative review. Phys Ther Rev. 2017;3196:1–9.
  • Learmonth YC, Adamson BC, Balto JM, et al. Investigating the needs and wants of healthcare providers for promoting exercise in persons with multiple sclerosis: a qualitative study. Disabil Rehabil. 2017;8288:1–9.

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