Barriers and facilitators linked to discharge destination following inpatient rehabilitation after traumatic brain injury in older adults: a qualitative study

References

• Whiteneck GG, Cuthbert JP, Corrigan JD, et al. Prevalence of self-reported lifetime history of traumatic brain injury and associated disability: a statewide population-based survey. J Head Trauma Rehabil. 2016;31(1):E55–E62.
   PubMed Web of Science ®Google Scholar
• Taylor CA, Bell JM, Breiding MJ, et al. Traumatic brain injury–related emergency department visits, hospitalizations, and deaths – United States, 2007 and 2013. MMWR Surveill Summ. 2017;66(9):1–16.
   PubMed Web of Science ®Google Scholar
• Harvey LA, Close JCT. Traumatic brain injury in older adults: characteristics, causes and consequences. Injury. 2012;43(11):1821–1826.
   PubMed Web of Science ®Google Scholar
• Osborn AJ, Mathias JL, Fairweather-Schmidt AK, et al. Anxiety and comorbid depression following traumatic brain injury in a community-based sample of young, middle-aged and older adults. J Affect Disord. 2017;213:214–221.
   PubMed Web of Science ®Google Scholar
• Thompson HJ, Rivara FP, Wang J. Effect of age on longitudinal changes in symptoms, function, and outcome in the first year after mild-moderate traumatic brain injury. J Neurosci Nurs. 2020;52(2):46–52.
   PubMed Web of Science ®Google Scholar
• Kinsella GJ. What are the characteristics of traumatic brain injury in older adults? Brain Impair. 2011;12(1):71–75.
   Web of Science ®Google Scholar
• McIntyre A, Mehta S, Aubut JA, et al. Mortality among older adults after a traumatic brain injury: a meta-analysis. Brain Inj. 2013;27(1):31–40.
   PubMed Web of Science ®Google Scholar
• Mosenthal AC, Livingston DH, Lavery RF, et al. The effect of age on functional outcome in mild traumatic brain injury: 6-month report of a prospective multicenter trial. J Trauma Inj Infect Crit Care. 2004;56(5):1042–1048.
   PubMedGoogle Scholar
• Ramanathan DM, McWilliams N, Schatz P, et al. Epidemiological shifts in elderly traumatic brain injury: 18-year trends in Pennsylvania. J Neurotrauma. 2012;29(7):1371–1378.
   PubMed Web of Science ®Google Scholar
• Albrecht JS, Al Kibria GM, Greene CR, et al. Post‐discharge mortality of older adults with traumatic brain injury or other trauma. J Am Geriatr Soc. 2019;67(11):2382–2386.
   PubMed Web of Science ®Google Scholar
• de Guise E, LeBlanc J, Dagher J, et al. Traumatic brain injury in the elderly: a level 1 trauma centre study. Brain Inj. 2015;29(5):558–564.
   PubMed Web of Science ®Google Scholar
• Chen AY, Zagorski B, Parsons D, et al. Factors associated with discharge destination from acute care after acquired brain injury in Ontario. BMC Neurol. 2012;12(1):16.
   PubMed Web of Science ®Google Scholar
• Everink IHJ, van Haastregt JCM, van Hoof SJM, et al. Factors influencing home discharge after inpatient rehabilitation of older patients: a systematic review. BMC Geriatr. 2016;16(1):5.
   PubMedGoogle Scholar
• Yap SGM, Chua KSG. Rehabilitation outcomes in elderly patients with traumatic brain injury in Singapore. J Head Trauma Rehabil. 2008;23(3):158–163.
   PubMed Web of Science ®Google Scholar
• Meijer R, Ihnenfeldt DS, van Limbeek J, et al. Prognostic factors in the subacute phase after stroke for the future residence after six months to one year. A systematic review of the literature. Clin Rehabil. 2003;17(5):512–520.
   PubMed Web of Science ®Google Scholar
• van Almenkerk S, Smalbrugge M, Depla MFIA, et al. What predicts a poor outcome in older stroke survivors? A systematic review of the literature. Disabil Rehabil. 2013;35(21):1774–1782.
   PubMed Web of Science ®Google Scholar
• Turner BJ, Fleming J, Cornwell P, et al. Profiling early outcomes during the transition from hospital to home after brain injury. Brain Inj. 2009;23(1):51–60.
   PubMed Web of Science ®Google Scholar
• Kratz AL, Sander AM, Brickell TA, Lange RT, et al. Traumatic brain injury caregivers: a qualitative analysis of spouse and parent perspectives on quality of life. Neuropsychol Rehabil. 2017;27(1):16–37.
   PubMed Web of Science ®Google Scholar
• Doser K, Norup A. Caregiver burden in Danish family members of patients with severe brain injury: the chronic phase. Brain Inj. 2016;30(3):334–342.
   PubMed Web of Science ®Google Scholar
• Sander AM, Hanks RA, Ianni PA, et al. Sociocultural factors influencing caregiver appraisals following traumatic brain injury. Arch Phys Med Rehabil. 2019;100(4):S58–S64.
   PubMed Web of Science ®Google Scholar
• Bayen E, Jourdan C, Ghout I, et al. Objective and subjective burden of informal caregivers 4 years after a severe traumatic brain injury: results from the PariS-TBI study. J Head Trauma Rehabil. 2016;31(5):E59–E67.
   PubMed Web of Science ®Google Scholar
• Turner BJ, Fleming JM, Ownsworth TL, et al. The transition from hospital to home for individuals with acquired brain injury: a literature review and research recommendations. Disabil Rehabil. 2008;30(16):1153–1176.
   PubMed Web of Science ®Google Scholar
• Gagnon E, Voyer M, Terreau P, et al. Autonomie et expérience de la dépendance chez les personnes âgées ayant subi un traumatisme craniocérébral. Serv Social. 2017;62(2):49–63.
   Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357.
   PubMed Web of Science ®Google Scholar
• Blanchet A, Gotman A. Série «L’enquête et ses méthodes»: L’entretien. Paris: Armand Collin; 2010.
   Google Scholar
• Braun V, Clarke V. Successful qualitative research: a practical guide for beginners. 1st ed. Los Angeles (CA): Sage Publications; 2013. 382. p.
   Google Scholar
• Schreier M. Qualitative content analysis in practice. Los Angeles (CA): Sage Publications; 2012. p. 272.
   Google Scholar
• Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment with data saturation and variability. Field Methods. 2006;18(1):59–82.
   Web of Science ®Google Scholar
• Kim DY, Pyun S-B. Prediction of functional outcome and discharge destination in patients with traumatic brain injury after post-acute rehabilitation. Int J Rehabil Res. 2019;42(3):256–262.
   PubMed Web of Science ®Google Scholar
• Hershkovitz A, Kalandariov Z, Hermush V, et al. Factors affecting short-term rehabilitation outcomes of disabled elderly patients with proximal hip fracture. Arch Phys Med Rehabil. 2007;88(7):916–921.
   PubMed Web of Science ®Google Scholar
• Chin RPH, Ng BHP, Cheung LPC. Factors predicting rehabilitation outcomes of elderly patients with hip fracture. Hong Kong Med J. 2008;14(3):209–215.
   PubMedGoogle Scholar
• Siebens HC, Sharkey P, Aronow HU, et al. Outcomes and weight-bearing status during rehabilitation after arthroplasty for hip fractures. Phys Med Rehabil. 2012;4(8):548–555.
   Google Scholar
• Yan K, Pogoda T. Orthopaedic patient outcomes following interdisciplinary inpatient rehabilitation. Int J Ther Rehabil. 2013;20(7):361–366.
   Google Scholar
• Collie A, Prang K-H. Patterns of healthcare service utilisation following severe traumatic brain injury: an idiographic analysis of injury compensation claims data. Injury. 2013;44(11):1514–1520.
   PubMed Web of Science ®Google Scholar
• Willemse-van Son AHP, Ribbers GM, Stam HJ, et al. Is there equity in long-term healthcare utilization after traumatic brain injury? J Rehabil Med. 2009;41(1):59–65.
   PubMed Web of Science ®Google Scholar
• Thompson HJ, Weir S, Rivara FP, et al. Utilization and costs of health care after geriatric traumatic brain injury. J Neurotrauma. 2012;29(10):1864–1871.
   PubMed Web of Science ®Google Scholar
• Branco BC, Mobily M, Rhee P, et al. Does money matter? Relationship between household income and mortality after trauma. Panam J Trauma Crit Care Emerg Surg. 2019;8(2):91–95.
   Google Scholar
• Fisher F, Andrews S, Churchyard A, et al. Home or residential care? The role of behavioral and psychosocial factors in determining discharge outcomes for inpatients with Huntington’s disease. J Huntingt Dis. 2012;1(2):187–193.
   PubMedGoogle Scholar
• Ponsford J, Schönberger M. Family functioning and emotional state two and five years after traumatic brain injury. J Int Neuropsychol Soc. 2010;16(2):306–317.
   PubMed Web of Science ®Google Scholar
• Anderson MI, Simpson GK, Morey PJ. The impact of neurobehavioral impairment on family functioning and the psychological well-being of male versus female caregivers of relatives with severe traumatic brain injury: multigroup analysis. J Head Trauma Rehabil. 2013;28(6):453–463.
   PubMed Web of Science ®Google Scholar
• Chan J, Parmenter T, Stancliffe R. The impact of traumatic brain injury on the mental health outcomes of individuals and their family carers. Aust E-J Adv Ment Health. 2009;8(2):155–164.
   Google Scholar
• Harding R, Gao W, Jackson D, et al. Comparative analysis of informal caregiver burden in advanced cancer, dementia, and acquired brain injury. J Pain Symptom Manage. 2015;50(4):445–452.
   PubMed Web of Science ®Google Scholar
• Jackson D, Turner-Stokes L, Murray J, et al. Acquired brain injury and dementia: a comparison of carer experiences. Brain Inj. 2009;23(5):433–444.
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Rapport LJ, Marwitz JH, et al. Caregivers’ well-being after traumatic brain injury: a multicenter prospective investigation. Arch Phys Med Rehabil. 2009;90(6):939–946.
   PubMed Web of Science ®Google Scholar
• Turner B, Fleming J, Parry J, et al. Caregivers of adults with traumatic brain injury: the emotional impact of transition from hospital to home. Brain Impair. 2010;11(3):281–292.
   Web of Science ®Google Scholar
• Bergés I-M, Kuo Y-F, Ostir GV, et al. Gender and ethnic differences in rehabilitation outcomes after hip-replacement surgery. Am J Phys Med Rehabil. 2008;87(7):567–572.
   PubMed Web of Science ®Google Scholar
• Chang P-FJ, Ostir GV, Kuo Y-F, et al. Ethnic differences in discharge destination among older patients with traumatic brain injury. Arch Phys Med Rehabil. 2008;89(2):231–236.
   PubMed Web of Science ®Google Scholar
• Kurichi JE, Ripley DC, Xie D, et al. Factors associated with home discharge after rehabilitation among male veterans with lower extremity amputation. Phys Med Rehabil. 2013;5(5):408–417.
   Google Scholar
• Kellaher L, Peace S, Holland C. Environment, identity and old age: quality of life or a life of quality. In: Walker A, Hagan Hennessy C, editors. Growing older: quality of life in old age. Maidenhead (Berkshire): Open University Press; 2004. p. 60–80.
   Google Scholar
• Chapman DW, Lombard JR. Determinants of neighborhood satisfaction in fee-based gated and nongated communities. Urban Aff Rev. 2006;41(6):769–799.
   Web of Science ®Google Scholar
• Dekker K, de Vos S, Musterd S, et al. Residential satisfaction in housing estates in European cities: a multi-level research approach. Hous Stud. 2011;26(04):479–499.
   Web of Science ®Google Scholar
• Burholt V. ‘Adref’: theoretical contexts of attachment to place for mature and older people in rural North Wales. Environ Plan A. 2006;38(6):1095–1114.
   Web of Science ®Google Scholar
• Kahana E, Lovegreen L, Kahana B, et al. Person, environment, and person-environment fit as influences on residential satisfaction of elders. Environ Behav. 2003;35(3):434–453.
   Web of Science ®Google Scholar
• Peace S, Hans-Werner W, Mollenkopf H, et al. Environment and ageing. In: Bond J, Peace S, Dittmann-Kohli F, Westerhof G, editors. Ageing in society European perspectives on gerontology. 3rd ed. London: Sage Publications; 2007.
   Google Scholar
• Johnston K, Barras S, Grimmer-Somers K. Relationship between pre-discharge occupational therapy home assessment and prevalence of post-discharge falls: pre-discharge home assessments and falls. J Eval Clin Pract. 2010;16(6):1333–1339.
   PubMed Web of Science ®Google Scholar
• Lannin NA, Clemson L, McCluskey A, et al. Feasibility and results of a randomised pilot-study of pre-discharge occupational therapy home visits. BMC Health Serv Res. 2007; Dec7(1):42.
   PubMedGoogle Scholar
• Lockwood K, Taylor N, Harding K. Pre-discharge home assessment visits in assisting patients’ return to community living: a systematic review and meta-analysis. J Rehabil Med. 2015;47(4):289–299.
   PubMed Web of Science ®Google Scholar
• Bivona U, Costa A, Contrada M, et al. Depression, apathy and impaired self-awareness following severe traumatic brain injury: a preliminary investigation. Brain Inj. 2019;33(9):1245–1256.
   PubMed Web of Science ®Google Scholar
• Rigon J, Burro R, Guariglia C, et al. Self-awareness rehabilitation after traumatic brain injury: a pilot study to compare two group therapies. RNN. 2017;35(1):115–127.
   Google Scholar
• Bivona U, Formisano R, De Laurentiis S, et al. Theory of mind impairment after severe traumatic brain injury and its relationship with caregivers’ quality of life. RNN. 2015;33(3):335–345.
   Google Scholar
• Mihaljcic T, Haines TP, Ponsford JL, et al. Investigating the relationship between reduced self-awareness of falls risk, rehabilitation engagement and falls in older adults. Arch Gerontol Geriatr. 2017;69:38–44.
   PubMed Web of Science ®Google Scholar
• Suppes A, Fins JJ. Surrogate expectations in severe brain injury. Brain Inj. 2013;27(10):1141–1147.
   PubMed Web of Science ®Google Scholar
• Jordan JL. Defining shared decision making and concordance: are they one and the same? Postgrad Med J. 2002;78(921):383–384.
   PubMed Web of Science ®Google Scholar
• Holm AL, Berland AK, Severinsson E. Older patients’ involvement in shared decision-making: a systematic review. OJN. 2016;06(03):170–185.
   Google Scholar
• Levinson W, Kao A, Kuby A, et al. Not all patients want to participate in decision making: a national study of public preferences. J Gen Intern Med. 2005;20(6):531–535.
   PubMed Web of Science ®Google Scholar