Environmental factors associated with participation and its related concepts among children and youth with cerebral palsy: a rapid review

References

• World Health Organization. International classification of functioning, disability and health. Geneva (Switzerland): World Health Organization; 2001.
   Google Scholar
• Omura J, Fuentes M, Bjornson K. Participation in daily life: influence on quality of life in ambulatory children with cerebral Palsy. Am J P M R. 2018;10(11):1185–1191.
   Google Scholar
• Imms C, Granlund M, Wilson PH, et al. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59(1):16–25.
   PubMed Web of Science ®Google Scholar
• Imms C. Children with cerebral palsy participate: a review of the literature. Disabil Rehabil. 2008;30(24):1867–1884.
   PubMed Web of Science ®Google Scholar
• Tan SS, van der Slot WMA, Ketelaar M, et al. Factors contributing to the longitudinal development of social participation in individuals with cerebral palsy. Res Dev Disabil. 2016;57:125–135.
   PubMed Web of Science ®Google Scholar
• Pratt B, Baker KW, Gaebler-Spira DJ. Participation of the child with cerebral palsy in the home, school, and community: a review of the literature. J Pediatr Rehabil Med. 2008;1:101–111.
   PubMedGoogle Scholar
• Shikako-Thomas K, Majnemer A, Law M, et al. Determinants of participation in leisure activities in children and youth with cerebral palsy: systematic review. Phys Occup Ther Pediatr. 2008;28(2):155–169.
   PubMedGoogle Scholar
• Wintels SC, Smits DW, van Wesel F, et al. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expect. 2018;21(6):1024–1034.
   PubMed Web of Science ®Google Scholar
• Majnemer A, Shikako-Thomas K, Chokron N, et al. Leisure activity preferences for 6- to 12-year-old children with cerebral palsy. Dev Med Child Neurol. 2010;52(2):167–173.
   PubMed Web of Science ®Google Scholar
• Law M. Participation in the occupations of everyday life. Am J Occup Ther. 2002;56(6):640–649.
   PubMed Web of Science ®Google Scholar
• Anaby D, Avery L, Gorter JW, et al. Improving body functions through participation in community activities among young people with physical disabilities. Dev Med Child Neurol. 2020;62(5):640–646.
   PubMed Web of Science ®Google Scholar
• Badia M, Longo E, Orgaz MB, et al. The influence of participation in leisure activities on quality of life in Spanish children and adolescents with cerebral palsy. Res Dev Disabil. 2013;34(9):2864–2871.
   PubMed Web of Science ®Google Scholar
• Vella SA, Magee CA, Cliff DP. Trajectories and predictors of health-related quality of life during childhood. J Pediatr. 2015;167(2):422–427.
   PubMed Web of Science ®Google Scholar
• Moeijes J, van Busschbach JT, Bosscher RJ, et al. Sports participation and health-related quality of life: a longitudinal observational study in children. Qual Life Res. 2019;28(9):2453–2469.
   PubMed Web of Science ®Google Scholar
• Colver A, Thyen U, Arnaud C, et al. Association between participation in life situations of children with cerebral palsy and their physical, social, and attitudinal environment: a cross-sectional multicenter European study. Arch Phys Med Rehabil. 2012;93(12):2154–2164.
   PubMed Web of Science ®Google Scholar
• Espín-Tello SM, Colver A, SPARCLE group. How available to European children and young people with cerebral palsy are features of their environment that they need? Res Dev Disabil. 2017;71:1–10.
   PubMed Web of Science ®Google Scholar
• Fauconnier J, Dickinson HO, Beckung E, et al. Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study. Br Med J Int Ed. 2009;338:1116–1121.
   Google Scholar
• Hammal D, Jarvis SN, Colver AF. Participation of children with cerebral palsy is influenced by where they live. Dev Med Child Neurol. 2007;46(5):292–298.
   Google Scholar
• Amini M, Saneii SH, Pashmdarfard M. Factors affecting social participation of Iranian children with cerebral palsy. Occup Ther Heal Care. 2018;32(3):290–305.
   PubMed Web of Science ®Google Scholar
• Bult MK, Verschuren O, Lindeman E, et al. Predicting leisure participation of school-aged children with cerebral palsy: longitudinal evidence of child, family and environmental factors. Child Care Health Dev. 2013;39(3):374–380.
   PubMed Web of Science ®Google Scholar
• Chiarello LA, Bartlett DJ, Palisano RJ, et al. Determinants of participation in family and recreational activities of young children with cerebral palsy. Disabil Rehabil. 2016;38(25):2455–2468.
   PubMed Web of Science ®Google Scholar
• Furtado SRC, Sampaio RF, Kirkwood RN, et al. Moderating effect of the environment in the relationship between mobility and school participation in children and adolescents with cerebral palsy. Braz J Phys Ther. 2015;19(4):311–319.
   PubMed Web of Science ®Google Scholar
• Imms C, Reilly S, Carlin J, et al. Characteristics influencing participation of Australian children with cerebral palsy. Disabil Rehabil. 2009;31(26):2204–2215.
   PubMed Web of Science ®Google Scholar
• Kang LJ, Palisano RJ, Orlin MN, et al. Determinants of social participation—with friends and others who are not family members—for youths with cerebral palsy. Phys Ther. 2010;90(12):1743–1757.
   PubMed Web of Science ®Google Scholar
• Longo E, Badia M, Orgaz BM. Patterns and predictors of participation in leisure activities outside of school in children and adolescents with cerebral palsy. Res Dev Disabil. 2013;34(1):266–275.
   PubMed Web of Science ®Google Scholar
• Palisano RJ, Orlin M, Chiarello LA, et al. Determinants of intensity of participation in leisure and recreational activities by youth with cerebral palsy. Arch Phys Med Rehabil. 2011;92(9):1468–1476.
   PubMed Web of Science ®Google Scholar
• Adair B, Ullenhag A, Keen D, et al. The effect of interventions aimed at improving participation outcomes for children with disabilities: a systematic review. Dev Med Child Neurol. 2015;57(12):1093–1104.
   PubMed Web of Science ®Google Scholar
• Adair B, Ullenhag A, Rosenbaum P, et al. Measures used to quantify participation in childhood disability and their alignment with the family of participation-related constructs: a systematic review. Dev Med Child Neurol. 2018;60(11):1101–1116.
   PubMed Web of Science ®Google Scholar
• Arksey H, O’Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol Theory Pract. 2005;8(1):19–32.
   Google Scholar
• Levac D, Colquhoun H, O’Brien KK. Scoping studies: advancing the methodology. Implement Sci. 2010;5:1–18.
   PubMed Web of Science ®Google Scholar
• Colquhoun HL, Levac D, O'Brien KK, et al. Scoping reviews: time for clarity in definition, methods, and reporting. J Clin Epidemiol. 2014;67(12):1291–1294.
   PubMed Web of Science ®Google Scholar
• Tricco AC, Antony J, Zarin W, et al. A scoping review of rapid review methods. BMC Medn. 2015;13:224.
   PubMed Web of Science ®Google Scholar
• Khangura S, Polisena J, Clifford TJ, et al. Rapid review: an emerging approach to evidence synthesis in health technology assessment. Int J Technol Assess Health Care. 2014;30(1):20–27.
   PubMed Web of Science ®Google Scholar
• World Health Organization. Rapid reviews to strength health policy and systems: a practical guide. 2017. [cited 2019 Nov 7]. https://www.who.int/alliance-hpsr/resources/publications/rapid-review-guide/en/
   Google Scholar
• Covidence systematic review software. n.d. www.covidence.org.
   Google Scholar
• Arakelyan S, Maciver D, Rush R, et al. Family factors associated with participation of children with disabilities: a systematic review. Dev Med Child Neurol. 2019;61(5):514–522.
   PubMed Web of Science ®Google Scholar
• Chiarello LA, Palisano RJ, Orlin MN, et al. Understanding participation of preschool-age children with cerebral palsy. J. Early Interv. 2012;34(1):3–19.
   Web of Science ®Google Scholar
• King G, Imms C, Palisano R, et al. Geographical patterns in the recreation and leisure participation of children and youth with cerebral palsy: a CAPE international collaborative network study. Dev. Neurorehabil. 2013;16(3):196–206.
   PubMed Web of Science ®Google Scholar
• Maher CA, Williams MT, Olds T, et al. Physical and sedentary activity in adolescents with cerebral palsy. Dev Med Child Neurol. 2007;49:50–457.
   Web of Science ®Google Scholar
• Majnemer A, Shikako-Thomas K, Schmitz N, et al. Stability of leisure participation from school-age to adolescence in individuals with cerebral palsy. Res Dev Disabil. 2015;47:73–79.
   PubMed Web of Science ®Google Scholar
• Majnemer A, Shevell M, Law M, et al. Participation and enjoyment of leisure activities in school-aged children with cerebral palsy. Dev Med Child Neurol. 2008;50(10):751–758.
   PubMed Web of Science ®Google Scholar
• Michelsen SI, Flachs EM, Uldall P, et al. Frequency of participation of 8-12-year-old children with cerebral palsy: a multi-centre cross-sectional European study. Eur J Paediatr Neurol. 2009;13(2):165–177.
   PubMed Web of Science ®Google Scholar
• Morris C, Kurinczuk JJ, Fitzpatrick R, et al. Do the abilities of children with cerebral palsy explain their activities and participation. Dev Med Child Neurol. 2006;48(12):954–961.
   PubMed Web of Science ®Google Scholar
• Schenker R, Coster W, Parush S. Personal assistance, adaptations and participation in students with cerebral palsy mainstreamed in elementary schools. Disabil Rehabil. 2006;28(17):1061–1069.
   PubMed Web of Science ®Google Scholar
• Schenker R, Coster W, Parush S. Participation and activity performance of students with cerebral palsy within the school environment. Disabil Rehabil. 2005;27(10):539–552.
   PubMed Web of Science ®Google Scholar
• Schenker R, Coster W, Parush S. Neuroimpairments, activity performance, and participation in children with cerebral palsy mainstreamed in elementary schools. Dev Med Child Neurol. 2005;47(12):808–814.
   PubMed Web of Science ®Google Scholar
• Shikako-Thomas K, Shevell M, Lach L, et al. Picture me playing-a portrait of participation and enjoyment of leisure activities in adolescents with cerebral palsy. Res Dev Disabil. 2013;34(3):1001–1010.
   PubMed Web of Science ®Google Scholar
• Shikako-Thomas K, Shevell M, Schmitz N, et al. Determinants of participation in leisure activities among adolescents with cerebral palsy. Res Dev Disabil. 2013;34(9):2621–2634.
   PubMed Web of Science ®Google Scholar
• Bartlett DJ, Chiarello LA, McCoy SW, et al. Determinants of self-care participation of young children with cerebral palsy. Dev Neurorehabil. 2014:17:403–413.
   Google Scholar
• Dang VM, Colver A, Dickinson HO, et al. Predictors of participation of adolescents with cerebral palsy: a European multi-centre longitudinal study. Res Dev Disabil. 2015;36:551–564.
   Web of Science ®Google Scholar
• Donkervoort M, Roebroeck M, Wiegerink D, et al. Determinants of functioning of adolescents and young adults with cerebral palsy. Disabil Rehabil. 2007;29:453–463.
   PubMed Web of Science ®Google Scholar
• Imms C, King G, Majnemer A, et al. Leisure participation-preference congruence of children with cerebral palsy: a Children’s Assessment of Participation and Enjoyment International Network descriptive study. Dev Med Child Neurol. 2017;59(4):380–387.
   PubMed Web of Science ®Google Scholar
• Parkes J, McCullough N, Madden A. To what extent do children with cerebral palsy participate in everyday life situations? Health Soc Care Community. 2010;18:304–315.
   PubMed Web of Science ®Google Scholar
• Ramstad K, Jahnsen R, Skjeldal OH, et al. Parent-reported participation in children with cerebral palsy: the contribution of recurrent musculoskeletal pain and child mental health problems. Dev Med Child Neurol. 2012;54(9):829–835.
   PubMed Web of Science ®Google Scholar
• Shikako-Thomas K, Shevell M, Lach L, et al. Are you doing what you want to do? Leisure preferences of adolescents with cerebral palsy. Dev Neurorehabil. 2015;18(4):234–240.,
   PubMed Web of Science ®Google Scholar
• Van Schie PEM, Siebes RC, Dallmeijer AJ, et al. Development of social functioning and communication in school-aged (5–9 years) children with cerebral palsy. Res Dev Disabil. 2013;34(12):4485–4494.
   PubMed Web of Science ®Google Scholar
• Voorman JM, Dallmeijer AJ, Van Eck M, et al. Social functioning and communication in children with cerebral palsy: association with disease characteristics and personal and environmental factors. Dev Med Child Neurol. 2009;52(5):441–447.
   PubMed Web of Science ®Google Scholar
• King GA, Law M, King S, et al. Children’s assessment of participation and enjoyment (CAPE) and preferences for activities of children (PAC). San Antonio (TX): Harcourt Assessment Inc; 2004.
   Google Scholar
• Noreau L, Lepage C, Boissiere L, et al. Measuring participation in children with disabilities using the Assessment of Life Habits. Dev Med Child Neurol. 2007;49(9):666–671.
   PubMed Web of Science ®Google Scholar
• Coster W, Deeney T, Haltiwanger J, et al. School Function Assessment, user’s manual. San Antonio (TX): Psychological Corporation; 1998.
   Google Scholar
• Sparrow SS, Balla D, Cicchetti DV. Vineland adaptive behavior Scales: survey form manual. Circle pines (MN): American Guidance Service; 1984.
   Google Scholar
• Fiss AL, Chiarello LA, Bartlett D, et al. Family ecology of young children with cerebral palsy. Child Care Health Dev. 2014;40(4):562–571.
   PubMed Web of Science ®Google Scholar
• Anaby D, Hand C, Bradley L, et al. The effect of the environment on participation of children and youth with disabilities: a scoping review. Disabil Rehabil. 2. 2013;35(19):1589–1598.
   PubMed Web of Science ®Google Scholar
• Whiteneck GG, Harrison-Felix CL, Mellick DC, et al. Quantifying environmental factors: a measure of physical, attitudinal, service, productivity, and policy barriers. Arch Phys Med Rehabil. 2004;85:324–1335.
   PubMed Web of Science ®Google Scholar
• Dickinson H, Colver A. Quantifying the physical, social and attitudinal environment of children with cerebral palsy. Disabil Rehabil. 2011;33(1):36–50.
   PubMed Web of Science ®Google Scholar
• Moos RH, Insel PM, Humphrey B. Preliminary manual for Family Environment Scale, Work Environment Scale, Group Environment Scale. Palo Alto (CA): Consulting Psychologists Press; 1974.
   Google Scholar
• Coster W, Bedell G, Law M, et al. Psychometric evaluation of the participation and environment measure for children and youth. Dev Med Child Neurol. 2011;53(11):1030–1037.
   PubMed Web of Science ®Google Scholar
• Khetani MA, Graham JE, Davies PL, et al. Psychometric properties of the young children’s participation and environment measure. Arch Phys Med Rehabil. 2015;96(2):307–316.
   PubMed Web of Science ®Google Scholar
• Rosenbaum P, Gorter JW. The ‘F‐words’ in childhood disability: I swear this is how we should think! Child Care Health Dev. 2012;38:457–463.
   PubMed Web of Science ®Google Scholar