A systematic review of self-determination interventions for children and youth with disabilities

References

• Catalano R, Berglund M, Ryan J, et al. Positive youth development in the United States: research findings on evaluations of positive youth development programs. Ann Am Acad Polit Soc Sci. 2004;591(1):98–124.
   Web of Science ®Google Scholar
• Shogren KA. A social–ecological analysis of the self-determination literature. Intellect Dev Disabil. 2013;51(6):496–511.
   PubMed Web of Science ®Google Scholar
• Wehmeyer M. Self-determination and individuals with significant disabilities: examining meanings and misinterpretations. Res Pract Pers Severe Disabil. 1998;23:5–16.
   Web of Science ®Google Scholar
• Wehmeyer M, Kelchner K. The arc's self-determination scale. Silver Spring (MD): The Arc of the United States; 1995.
   Google Scholar
• Wehmeyer M. Self-determination in adolescents and adults with intellectual and developmental disabilities. Curr Opin Psychiatry. 2020;33:81–85.
   PubMed Web of Science ®Google Scholar
• Bergman D, Rasmussen L, Chang KW, et al. Assessment of self-determination in adolescents with neonatal brachial plexus palsy. PM R. 2018;10(1):64–71.
   PubMedGoogle Scholar
• Burke KM, Raley SK, Shogren KA, et al. A meta-analysis of interventions to promote self-determination for students with disabilities. Remed Spec Educ. 2020;41(3):176–188.
   Web of Science ®Google Scholar
• Shogren K, Wehmeyer M, Palmer S, et al. Relationships between self-determination and post school outcomes for youth with disabilities. J Spec Educ. 2015;48(4):256–267.
   Web of Science ®Google Scholar
• Test D, Fowler C, Brewer D, et al. A content and methodological review of self-advocacy intervention studies. Except Child. 2005;72(1):101–125.
   Web of Science ®Google Scholar
• Lachapelle Y, Wehmeyer M, Haelewyck M, et al. The relationship between quality of life and self-determination: an international study. J Intellect Disabil Res. 2005;49(10):740–744.
   PubMed Web of Science ®Google Scholar
• Wehmeyer ML, Powers LE. Self-determination. Exceptionality. 2007;15(1):1–2.
   Google Scholar
• Stajkovic A, Luthans F. Self-efficacy and work-related performance: a meta analysis. Psychol Bull. 1998;124(2):240–261.
   Web of Science ®Google Scholar
• Lindsay S, Kosareva P, Sukhai M, et al. Evaluation protocol of an online self-determination toolkit for youth with disabilities. J Med Internet Res Protoc. 2021;10(1):e20463.
   PubMed Web of Science ®Google Scholar
• Dahlbeck D, Lightsey O. Generalized self-efficacy, coping and self-esteem as predictors of psychological adjustment among children with disabilities or chronic illnesses. Child Health Care. 2008;37(4):293–315.
   Web of Science ®Google Scholar
• Abery B, Rudrud L, Arndt K, et al. Evaluating a multicomponent program for enhancing the self-determination of youth with disabilities. Interv Sch Clin. 1995;30(3):170–179.
   Web of Science ®Google Scholar
• Betz C. Core curriculum for specializing in intellectual and developmental disability: a resource for nurses and other health care professionals. In: Nehring W, editor. Transition to adulthood. Sudbury (MA): Jones and Bartlett; 2005.
   Google Scholar
• Sowers J, Powers L. Enhancing the participating and independence of students with severe physical and multiple disabilities in performing community activities. Ment Retard. 1995;33(4):209–220.
   PubMedGoogle Scholar
• Wehmeyer ML, Lattimore J, Jorgensen JD, et al. The self-determined career development model: a pilot study. J Vocation Rehabil. 2003;19:79–87.
   Google Scholar
• Chao P, Chou Y, Cheng S. Self-determination and transition outcomes of youth with disabilities: findings from the special needs education longitudinal study. Adv Neurodev Disord. 2019;3(2):129–137.
   Google Scholar
• Cobb B, Lehmann J, Newman-Gonchar R, et al. Self-determination for students with disabilities: a narrative meta synthesis. Career Dev Except Individ. 2009;32(2):108–114.
   Google Scholar
• Mumbardo-Adam C, Guardia-Olmos J, Adam-Alcocer A, et al. Self-determination, intellectual disability and context: a meta-analytic study. Intellect Dev Disabil. 2017;55(5):303–314.
   PubMed Web of Science ®Google Scholar
• Wood W, Fowler C, Uphold N, et al. A review of self-determination interventions with individuals with severe disabilities. Res Pract Pers Severe Disabil. 2005;30(3):121–146.
   Web of Science ®Google Scholar
• Carter E, Lane K, Bruhn K, et al. Self-determination interventions for students with and at risk for emotional and behavioural disorders mapping the knowledge base. Behav Disord. 2011;36(2):100–116.
   Web of Science ®Google Scholar
• Lindsay S, Kosareva P, Sukhai M, et al. Online self-determination toolkit for youth with disabilities: mixed method evaluation protocol. J Med Internet Res Protoc. 2021;10(1):e20463.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Munson M. Mentoring for youth with disabilities. Boston: National Mentoring Resource Centre; 2018.
   Google Scholar
• Tsybina I, Kingsnorth S, Maxwell J, et al. Longitudinal evaluation of transition services ("LETs study"): outcome evaluation protocol. BMC Pediatr. 2012;12:51.
   PubMed Web of Science ®Google Scholar
• Maggin D, O'Keeffe B, Johnson A. A quantitative synthesis of methodology in the meta-analysis of single-subject research for students with disabilities: 1985–2009. Exceptionality. 2011;19(2):109–135.
   Web of Science ®Google Scholar
• World Health Organization. Disabilities. Geneva: World Health Organization; 2015. Available from: http://www.who.int/topics/disabilities/en/.
   Google Scholar
• Schunemann H, Tugwell P, Reeves B, et al. Non-randomized studies as a source of complementary, sequential or replacement evidence for randomized controlled trials in systematic reviews. Res Synth Methods. 2013;4:49–62.
   PubMed Web of Science ®Google Scholar
• Liberati A, Altman D, Tetzlaff J, et al. The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration. PLoS Med. 2009;6(7):e1000100.
   PubMed Web of Science ®Google Scholar
• Petticrew M, Roberts H. Systematic reviews in the social sciences: a practical guide. Oxford: Blackwell Publishing; 2006.
   Google Scholar
• Sterne J, Hernan M, Reeves B, et al. ROBINS-I: a tool for assessing risk of bias in non-randomized studies of interventions. Br Med J. 2016;355:i4919.
   PubMed Web of Science ®Google Scholar
• Higgins J, Altman D, Gotzche P, et al. The Cochrane collaboration's tool for assessing risk of bias in randomized trials. Br Med J. 2011;343:d5928.
   PubMed Web of Science ®Google Scholar
• Getchius T, Moses L, French J. AAN guidelines: a benefit to the neurologist. Neurology. 2009;75(13):1126–1127.
   Web of Science ®Google Scholar
• Blakeslee J, Powers L, Geenen S, et al. Evaluating the my life self-determination model for older youth in foster care: establishing efficacy and exploring moderation of response to intervention. Child Youth Serv Rev. 2020;119:105419.
   PubMed Web of Science ®Google Scholar
• Dattilo J, Guerin N, Cory L, et al. Effects of computerized leisure education on self-determination of youth with disabilities. J Spec Educ Technol. 2000;16(1):5–17.
   Google Scholar
• Doren B, Lombardi AR, Clark J, et al. Addressing career barriers for high risk adolescent girls: the PATHS curriculum intervention. J Adolesc. 2013;36(6):1083–1092.
   PubMed Web of Science ®Google Scholar
• Dryden E. Effectiveness of IMPACT:Ability to improve safety and self-advocacy skills in students with disabilities-follow-up study. J Sch Health. 2014;87(2):83–89.
   Google Scholar
• Garrels V, Palmer SB. Student-directed learning: a catalyst for academic achievement and self-determination for students with intellectual disability. J Intellect Disabil. 2020;24(4):459–473.
   PubMed Web of Science ®Google Scholar
• Geenen S, Powers L, Powers J, et al. Experimental study of a self-determination intervention for youth in foster care. Career Dev Transit Except Individ. 2013;36(2):84–95.
   Google Scholar
• Geenen S, Powers L, Phillips L. Better futures: a randomized field test of a model for supporting young people in foster care with mental health challenges to participate in higher education. J Behav Health Serv Res. 2015;42(2):150–171.
   PubMed Web of Science ®Google Scholar
• Grenwelge C, Zhang D. The effects of the Texas Youth Leadership Forum Summer Training on the self-advocacy abilities of high school students with disabilities. J Disabil Policy Stud. 2013;24(3):158–169.
   Web of Science ®Google Scholar
• Hagner D, Kurtz A, Cloutier H, et al. Outcomes of a family-centered transition process for students with autism spectrum disorders. Focus Autism Other Dev Disabil. 2012;27(1):42–50.
   Web of Science ®Google Scholar
• Hatfield M, Falkmer M, Falkmer T, et al. Effectiveness of the BOOST-A online transition planning program for adolescents on the autism spectrum: a quasi-randomized controlled trial. Child Adolesc Psychiatry Ment Health. 2017;11:54.
   PubMed Web of Science ®Google Scholar
• Ipsen C, Kurth N, McCormick S, et al. Exploring the PROMISE of transition services for youth with disabilities receiving SSI. J Vocation Rehabil. 2019;50(1):95–108.
   Web of Science ®Google Scholar
• Kramer J, Helfrich C, Levin M, et al. Initial evaluation of the effects of an environmental-focused problem-solving intervention for transition-age young people with developmental disabilities: project TEAM. Dev Med Child Neurol. 2018;60:801–809.
   PubMed Web of Science ®Google Scholar
• Lee A. A comparison of postsecondary science, technology, engineering, and mathematics (STEM) enrollment for students with and without disabilities. Career Dev Except Individ. 2011;34(2):72–82.
   Google Scholar
• Lindsay S, Cagliostro E, Leck J, et al. A 12-week electronic mentoring employment preparation intervention for youth with physical disabilities: pilot feasibility randomized controlled trial. JMIR Pediatr Parent. 2019;2(1):e12088.
   PubMedGoogle Scholar
• Lindsay S, Cagliostro E, Leck J, et al. A 4-week electronic employment mentoring intervention for youth with disabilities: a pilot randomized control trial. J Med Internet Res Pediatr Parent. 2019;2(1):e12653.
   PubMedGoogle Scholar
• Lindstrom L, DeGarmo D, Khurana A, et al. Paths 2 the future: evidence for the efficacy of a career development intervention for young women with disabilities. Except Child. 2020;87(1):1–20.
   Web of Science ®Google Scholar
• Mishna F. The effects of a school-based program on the reported self-advocacy knowledge of students with learning disabilities. Alberta J Educ Res. 2011;57(2):185–203.
   Google Scholar
• Nadig A, Flanagan T, White K, et al. Results of a RCT on a transition support program for adults with ASD: effects on self-determination and quality of life. Autism Res. 2018;11(12):1712–1728.
   PubMed Web of Science ®Google Scholar
• Powers LE, Turner A, Westwood D, et al. TAKE CHARGE for the future: a controlled field-test of a model to promote student involvement in transition planning. Career Dev Except Individ. 2001;24(1):89–104.
   Google Scholar
• Powers LE, Geenen S, Powers J, et al. My life: effects of a longitudinal, randomized study of self-determination enhancement on the transition outcomes of youth in foster care and special education. Child Youth Serv Rev. 2012;34(11):2179–2187.
   Web of Science ®Google Scholar
• Seong Y, Wehmeyer ML, Palmer SB, et al. Effects of the self-directed individualized education program on self-determination and transition of adolescents with disabilities. Career Dev Transit Except Individ. 2015;38(3):132–141.
   Web of Science ®Google Scholar
• Shogren KA, Burke KM, Anderson MH, et al. Evaluating the differential impact of interventions to promote self-determination and goal attainment for transition-age youth with intellectual disability. Res Pract Pers Severe Disabil. 2018;43(3):165–180.
   Web of Science ®Google Scholar
• Shogren K, Hicks T, Burke K, et al. Examining the impact of the SDLMI and whose future is it? Over a two-year period with students with intellectual disability. Am J Intellect Dev Disabil. 2020;125(3):217–229.
   PubMedGoogle Scholar
• Test DW, Neale M. Using the self-advocacy strategy to increase middle graders’ IEP participation. J Behav Educ. 2004;13(2):135–145.
   Google Scholar
• Wehmeyer M, Palmer S, Lee Y, et al. A randomized-trial evaluation of the effect of whose future is it anyway? On self-determination. Career Dev Except Individ. 2011;34(1):45–56.
   Google Scholar
• Wehmeyer M, Palmer S, Williams-Diehm K, et al. Technology and self-determination in transition planning: the impact of technology use in transition planning on student self-determination. J Spec Educ Technol. 2011;25(1):13–24.
   Google Scholar
• Wehmeyer M, Shogren KA, Palmer S, et al. The impact of the self-determined learning model of instruction on student self-determination. Except Child. 2012;78(2):135–153.
   PubMed Web of Science ®Google Scholar
• Zhang D. The effect of next S.T.E.P. instruction on the self-determination skills of high school students with learning disabilities. Career Dev Except Individ. 2001;24(2):121–132.
   Google Scholar
• Palmer SB, Wehmeyer ML, Shogren K, et al. An evaluation of the Beyond High School model on the self-determination of students with intellectual disability. Career Dev Transit Except Individ. 2012;35(2):76–84.
   PubMedGoogle Scholar
• Test DW, Algozzine B. From the Editors. Career Dev Transit Except Individ. 2012;35(1):3.
   Google Scholar
• Wehmeyer ML, Palmer SB, Shogren K, et al. Establishing a causal relationship between interventions to promote self-determination and enhanced student self-determination. J Spec Educ. 2013;46(4):195–210.
   PubMed Web of Science ®Google Scholar
• Sheppard L, Unsworth C. Developing skills in everyday activities and self-determination in adolescents with intellectual and developmental disabilities. Remed Spec Educ. 2011;32(5):393–405.
   Web of Science ®Google Scholar
• Powers L. A multi-component intervention to promote adolescent self-determination. J Rehabil. 2001;67(4):13–19.
   Web of Science ®Google Scholar
• Lindsay S, Cagliostro E, Stinson J, et al. A 4-week electronic-mentoring employment intervention for youth with physical disabilities: pilot randomized controlled trial. JMIR Pediatr Parent. 2019;2(1):e12653.
   PubMedGoogle Scholar
• Lee Y, Wehmeyer ML, Palmer SB, et al. The effect of student-directed transition planning with a computer-based reading support program on the self-determination of students with disabilities. J Spec Educ. 2011;45(2):104–117.
   Web of Science ®Google Scholar
• Deci E, Ryan R. Self-determination theory: a macro theory of human motivation, development and health. Can Psychol. 2008;49(3):182–185.
   Web of Science ®Google Scholar
• Morgan R, Alexander M. The employer's perception: employment of individuals with developmental disabilities. J Vocation Rehabil. 2005;23(1):39–49.
   Google Scholar
• Eisenman L. Self-determination interventions: building a foundation for school competition. Remed Spec Educ. 2007;28(1):2–8.
   Web of Science ®Google Scholar
• Wehmeyer M, Palmer S. Adult outcomes for students with cognitive disabilities three years after high school: the impact of self-determination. Educ Train Dev Disabil. 2003;38:131–144.
   Web of Science ®Google Scholar
• Mumbardó-Adam C, Shogren KA, Guàrdia-Olmos J, et al. Contextual predictors of self-determined actions in students with and without intellectual disability. Psychol Sch. 2017;54(2):183–195.
   Web of Science ®Google Scholar
• Wilder LK, Jackson AP, Smith TB. Secondary transition of multicultural learners: lessons from the Navajo Native American experience. Prev Sch Fail. 2001;45(3):119–124.
   Google Scholar
• Miller JG. Bringing culture to basic psychological theory – beyond individualism and collectivism: comment on Oyserman et al. (2002). Psychol Bull. 2002;128(1):97–109.
   PubMed Web of Science ®Google Scholar
• Fellin M, Desmarais C, Lindsay S. An examination of clinicians' experiences of collaborative culturally competent service delivery to immigrant families raising a child with a disability. Disabil Rehabil. 2015;37(21):1946–1954.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Tetrault S, Desmaris C, et al. Social workers as cultural brokers in providing culturally sensitive care to immigrant families raising a child with a physical disability. Health Soc Work. 2014;39(2):e10–e20.
   Web of Science ®Google Scholar
• Lindsay S, Tetrault S, Desmaris C, et al. The cultural brokerage work of occupational therapists in providing culturally sensitive care. Can J Occup Ther. 2014;81(2):114–123.
   PubMed Web of Science ®Google Scholar
• King G, McPherson AC, Kingsnorth S, et al. Opportunities, experiences, and outcomes of residential immersive life skills programs for youth with disabilities. Disabil Rehabil. 2020;1–11.
   Web of Science ®Google Scholar
• Lindsay S, Cagliostro E, Albarico M, et al. Gender matters in the transition to employment for young adults with physical disabilities. Disabil Rehabil. 2018;41(3):319–332.
   Web of Science ®Google Scholar