Transitioning from hurting to healing: self-management after distal radius fracture

References

• Sebbag E, Felten R, Sagez F, et al. The world-wide burden of musculoskeletal diseases: a systematic analysis of the World Health Organization burden of diseases database. Ann Rheum Dis. 2019;78(6):844–848.
   PubMed Web of Science ®Google Scholar
• United States Bone and Joint Initiative. The burden of musculoskeletal diseases in the United States. 4th ed. Rosemont (IL); 2020. Available from: http://www.boneandjointburden.org
   Google Scholar
• Cieza A, Causey K, Kamenov K, et al. Global estimates of the need for rehabilitation based on the global burden of disease study 2019: a systematic analysis for the global burden of disease study 2019. Lancet. 2021;396(10267):2006–2017.
   PubMed Web of Science ®Google Scholar
• Porter ME, Lee TH. The strategy that will fix health care. Harv Bus Rev. 2013;90(10):50–70.
   Google Scholar
• Ayers DC, Franklin PD, Ring DC. The role of emotional health in functional outcomes after orthopaedic surgery: extending the biopsychosocial model to orthopaedics: AOA critical issues. J Bone Joint Surg Am. 2013;95(21):e165.
   PubMed Web of Science ®Google Scholar
• Ring D, Miller M, Corral C. American Academy of Orthopaedic Surgeons appropriate use criteria: psychosocial risk and protective factors. J Am Acad Orthop Surg. 2021.
   Google Scholar
• World Health Organization. Constitution of the World Health Organization, basic documents. 45th ed.; 2006. Available from: http://www.who.int/governance/eb/who_constitution_en.pdf
   Google Scholar
• Jayakumar P, Overbeek C, Lamb S, et al. What factors are associated with disability after upper extremity injuries? A systematic review. Clin Orthop Relat Res. 2018;476(11):2190–2215.
   PubMed Web of Science ®Google Scholar
• Stern BZ. Expanding self-management support from chronic to acute care: implications for value. Am J Occup Ther. 2019;73(3):7303347010p1–7303347010p6.
   PubMed Web of Science ®Google Scholar
• Lorig KR, Holman HR. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26(1):1–7.
   PubMed Web of Science ®Google Scholar
• Van de Velde D, De Zutter F, Satink T, et al. Delineating the concept of self-management in chronic conditions: a concept analysis. BMJ Open. 2019;9(7):e027775.
   PubMed Web of Science ®Google Scholar
• Ryan P, Sawin KJ. The Individual and Family Self-Management Theory: background and perspectives on context, process, and outcomes. Nurs Outlook. 2009;57(4):217–225.e6.
   PubMed Web of Science ®Google Scholar
• Hutting N, Johnston V, Staal JB, et al. Promoting the use of self-management strategies for people with persistent musculoskeletal disorders: the role of physical therapists. J Orthop Sports Phys Ther. 2019;49(4):212–215.
   PubMed Web of Science ®Google Scholar
• Bonafede M, Espindle D, Bower AG. The direct and indirect costs of long bone fractures in a working age US population. J Med Econ. 2013;16(1):169–178.
   PubMedGoogle Scholar
• Huetteman HE, Zhong L, Chung KC. Cost of surgical treatment for distal radius fractures and the implications of episode-based bundled payments. J Hand Surg Am. 2018;43(8):720–730.
   PubMed Web of Science ®Google Scholar
• MacIntyre NJ, Dewan N. Epidemiology of distal radius fractures and factors predicting risk and prognosis. J Hand Ther. 2016;29(2):136–145.
   PubMed Web of Science ®Google Scholar
• Modarresi S, Suh N, Walton DM, et al. Depression affects the recovery trajectories of patients with distal radius fractures: a latent growth curve analysis. Musculoskelet Sci Pract. 2019;43:96–102.
   PubMed Web of Science ®Google Scholar
• Landgren M, Teurneau V, Abramo A, et al. Intermediate-term outcome after distal radius fracture in patients with poor outcome at 1 year: a register study with a 2- to 12-year follow-up. J Hand Surg Am. 2019;44(1):39–45.
   PubMed Web of Science ®Google Scholar
• Ydreborg K, Engstrand C, Steinvall I, et al. Hand function, experienced pain, and disability after distal radius fracture. Am J Occup Ther. 2015;69(1):6901290030.
   PubMedGoogle Scholar
• Yoon AP, Wang C, Speth KA, et al. Modifiable factors associated with chronic pain 1 year after operative management of distal radius fractures: a secondary analysis of a randomized clinical trial. JAMA Netw Open. 2020;3(12):e2028929.
   PubMed Web of Science ®Google Scholar
• Jayakumar P, Teunis T, Vranceanu AM, et al. Early psychological and social factors explain the recovery trajectory after distal radial fracture. J Bone Joint Surg Am. 2020;102(9):788–795.
   PubMed Web of Science ®Google Scholar
• Bandura A. Social foundations of thought and action: a social cognitive theory. Englewood (NJ): Prentice-Hall; 1986.
   Google Scholar
• VanderKaay S, Moll SE, Gewurtz RE, et al. Qualitative research in rehabilitation science: opportunities, challenges, and future directions. Disabil Rehabil. 2018;40(6):705–713.
   PubMed Web of Science ®Google Scholar
• Creswell JW, Plano Clark VL. Designing and conducting mixed methods research. 3rd ed. Thousand Oaks (CA): SAGE Publications; 2018.
   Google Scholar
• Stern BZ. Self-management in adults after distal radius fracture: a mixed methods exploration [dissertation]. New York (NY): New York University; 2020.
   Google Scholar
• Yvonne Feilzer M. Doing mixed methods research pragmatically: implications for the rediscovery of pragmatism as a research paradigm. J Mix Methods Res. 2010;4(1):6–16.
   Web of Science ®Google Scholar
• Lincoln YS, Guba EG. Naturalistic inquiry. Newbury Park (UK): SAGE Publications; 1985.
   Google Scholar
• Charmaz K. Constructing grounded theory. 2nd ed. London (UK): SAGE Publications; 2014.
   Google Scholar
• Foley G, Timonen V. Using grounded theory method to capture and analyze health care experiences. Health Serv Res. 2015;50(4):1195–1210.
   PubMed Web of Science ®Google Scholar
• Patton MQ. Qualitative research and evaluation methods. 4th ed. Thousand Oaks (CA): SAGE Publications; 2015.
   Google Scholar
• Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753–1760.
   PubMed Web of Science ®Google Scholar
• Rundgren J, Bojan A, Mellstrand Navarro C, et al. Epidemiology, classification, treatment and mortality of distal radius fractures in adults: an observational study of 23,394 fractures from the national Swedish fracture register. BMC Musculoskelet Disord. 2020;21(1):88.
   PubMed Web of Science ®Google Scholar
• Salive ME. Multimorbidity in older adults. Epidemiol Rev. 2013;35:75–83.
   PubMed Web of Science ®Google Scholar
• Rubin HJ, Rubin IS. Qualitative interviewing: the art of hearing data. 3rd ed. Thousand Oaks (CA): SAGE Publications; 2012.
   Google Scholar
• Chan J, Spencer J. Adaptation to hand injury: an evolving experience. Am J Occup Ther. 2004;58(2):128–139.
   PubMed Web of Science ®Google Scholar
• Smith-Forbes EV, Howell DM, Willoughby J, et al. Adherence of individuals in upper extremity rehabilitation: a qualitative study. Arch Phys Med Rehabil. 2016;97(8):1262–1268.e1.
   PubMed Web of Science ®Google Scholar
• Huetteman HE, Shauver MJ, Nasser JS, et al. The desired role of health care providers in guiding older patients with distal radius fractures: a qualitative analysis. J Hand Surg Am. 2018;43(4):312–320.e4.
   PubMed Web of Science ®Google Scholar
• Sandford FM, Sanders TAB, Lewis JS. Exploring experiences, barriers, and enablers to home- and class-based exercise in rotator cuff tendinopathy: a qualitative study. J Hand Ther. 2017;30(2):193–199.
   PubMed Web of Science ®Google Scholar
• Kaskutas V, Powell R. The impact of flexor tendon rehabilitation restrictions on individuals' independence with daily activities: implications for hand therapists. J Hand Ther. 2013;26(1):22–29.
   PubMed Web of Science ®Google Scholar
• Saldaña J. The coding manual for qualitative researchers. 3rd ed. London (UK): SAGE Publications; 2016.
   Google Scholar
• VERBI Software. MAXQDA 2018 Analytics Pro for Windows. Berlin (Germany): VERBI Software; 2017.
   Google Scholar
• Ashwood M, Jerosch-Herold C, Shepstone L. Learning to live with a hand nerve disorder: a constructed grounded theory. J Hand Ther. 2019;32(3):334–344.e1.
   PubMed Web of Science ®Google Scholar
• Goudie S, Dixon D, McMillan G, et al. Is use of a psychological workbook associated with improved disabilities of the arm, shoulder and hand scores in patients with distal radius fracture? Clin Orthop Relat Res. 2018;476(4):832–845.
   PubMed Web of Science ®Google Scholar
• Eppler SL, Kakar S, Sheikholeslami N, et al. Defining quality in hand surgery from the patient's perspective: a qualitative analysis. J Hand Surg Am. 2019;44(4):311–320.e4.
   PubMed Web of Science ®Google Scholar
• Stenner R, Palmer S, Hammond R. What matters most to people in musculoskeletal physiotherapy consultations? A qualitative study. Musculoskelet Sci Pract. 2018;35:84–89.
   PubMed Web of Science ®Google Scholar
• Turesson C, Kvist J, Krevers B. Patients' needs during a surgical intervention process for Dupuytren's disease. Disabil Rehabil. 2019;41(6):666–673.
   PubMed Web of Science ®Google Scholar
• Watson NJ, Martin SA, Keating JL. The impact of wrist fracture, surgical repair and immobilization on patients: a qualitative study. Clin Rehabil. 2018;32(6):841–851.
   PubMed Web of Science ®Google Scholar
• van der Horst AY, Trompetter HR, Pakvis DFM, et al. Between hope and fear: a qualitative study on perioperative experiences and coping of patients after lumbar fusion surgery. Int J Orthop Trauma Nurs. 2019;35:100707.
   PubMed Web of Science ®Google Scholar
• McCormick KM. A concept analysis of uncertainty in illness. J Nurs Scholarsh. 2002;34(2):127–131.
   PubMed Web of Science ®Google Scholar
• Arnold CL, Coran JJ, Hagen MG. Revisiting patient communication training: an updated needs assessment and the AGENDA model. Patient Educ Couns. 2012;88(3):399–405.
   PubMed Web of Science ®Google Scholar
• McAllister M, Dunn G, Payne K, et al. Patient empowerment: the need to consider it as a measurable patient-reported outcome for chronic conditions. BMC Health Serv Res. 2012;12:157.
   PubMed Web of Science ®Google Scholar
• Small N, Bower P, Chew-Graham CA, et al. Patient empowerment in long-term conditions: development and preliminary testing of a new measure. BMC Health Serv Res. 2013;13:263.
   PubMed Web of Science ®Google Scholar
• Merleau-Ponty M. Phenomenology of perception. Milton Park (UK): Routledge; 1945.
   Google Scholar
• Fitzpatrick N, Finlay L. “Frustrating disability”: the lived experience of coping with the rehabilitation phase following flexor tendon surgery. Int J Qual Stud Health Well-Being. 2008;3(3):143–154.
   Google Scholar
• MacKay C, Badley EM, Jaglal SB, et al. "We're all looking for solutions": a qualitative study of the management of knee symptoms. Arthritis Care Res. 2014;66(7):1033–1040.
   Web of Science ®Google Scholar
• Hibbard JH, Stockard J, Mahoney ER, et al. Development of the patient activation measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res. 2004;39(4 Pt 1):1005–1026.
   PubMed Web of Science ®Google Scholar
• Gruber JS, Hageman M, Neuhaus V, et al. Patient activation and disability in upper extremity illness. J Hand Surg Am. 2014;39(7):1378–1383.e3.
   PubMed Web of Science ®Google Scholar
• Jayakumar P, Teunis T, Vranceanu AM, et al. The impact of a patient’s engagement in their health on the magnitude of limitations and experience following upper limb fractures. Bone Joint J. 2020;102-B(1):42–47.
   PubMedGoogle Scholar
• Bot AGJ, Ring DC. Recovery after fracture of the distal radius. Hand Clin. 2012;28(2):235–243.
   PubMed Web of Science ®Google Scholar
• Alokozai A, Jayakumar P, Bozic KJ. Value-based healthcare: improving outcomes through patient activation and risk factor modification. Clin Orthop Relat Res. 2019;477(11):2418–2420.
   PubMed Web of Science ®Google Scholar
• Snyder CR, Irving LM, Anderson JR. Hope and health. In: Snyder CR, Forsyth DR, editors. The handbook of social and clinical psychology: the health perspective. Elmsford (NY): Pergamon Press; 1991. p. 285–305.
   Google Scholar
• Turner A, Martin F. Spreading HOPE: the development of a hope-based self-management intervention. In: Martz E, editor. Promoting self-management of chronic health conditions. New York (NY): Oxford University Press; 2018. p. 58–79.
   Google Scholar
• Donthula D, Kortlever JTP, Ring D, et al. Does intolerance of uncertainty affect the magnitude of limitations or pain intensity? Clin Orthop Relat Res. 2020;478(2):381–388.
   PubMed Web of Science ®Google Scholar
• Bamford R, Walker D-M. A qualitative investigation into the rehabilitation experience of patients following wrist fracture. Hand Ther. 2010;15(3):54–61.
   Google Scholar
• MacKay C, Jaglal SB, Sale J, et al. A qualitative study of the consequences of knee symptoms: 'It's like you're an athlete and you go to a couch potato'. BMJ Open. 2014;4(10):e006006.
   PubMed Web of Science ®Google Scholar
• Nyvang J, Hedström M, Gleissman SA. It's not just a knee, but a whole life: a qualitative descriptive study on patients' experiences of living with knee osteoarthritis and their expectations for knee arthroplasty. Int J Qual Stud Health Well-Being. 2016;11:30193.
   PubMed Web of Science ®Google Scholar
• Lennox Thompson B, Gage J, Kirk R. Living well with chronic pain: a classical grounded theory. Disabil Rehabil. 2020;42(8):1141–1152.
   PubMed Web of Science ®Google Scholar
• Charmaz K. Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illn. 1983;5(2):168–195.
   PubMedGoogle Scholar
• Corbin JM, Strauss A. Unending work and care: managing chronic illness at home. San Francisco (CA): Jossey-Bass Publishers; 1988.
   Google Scholar
• Claydon JH, Robinson L, Aldridge SE. Patients' perceptions of repair, rehabilitation and recovery after major orthopaedic trauma: a qualitative study. Physiotherapy. 2017;103(3):322–329.
   PubMed Web of Science ®Google Scholar
• Collis JM, Mayland EC, Wright-St Clair V, et al. “The more I do, the more I can do”: perspectives on how performing daily activities and occupations influences recovery after surgical repair of a distal radius fracture. Disabil Rehabil. 2021.
   Google Scholar
• Hudak PL, McKeever P, Wright JG. Unstable embodiments: a phenomenological interpretation of patient satisfaction with treatment outcome. J Med Humanit. 2007;28(1):31–44.
   PubMedGoogle Scholar
• Schier JS, Chan J. Changes in life roles after hand injury. J Hand Ther. 2007;20(1):57–69.
   PubMed Web of Science ®Google Scholar
• Lööf H, Johansson U-B, Henriksson EW, et al. Body awareness in persons diagnosed with rheumatoid arthritis. Int J Qual Stud Health Well-Being. 2014;9:24670.
   PubMed Web of Science ®Google Scholar
• Teunis T, Thornton ER, Guitton TG, et al. Coaching of patients with an isolated minimally displaced fracture of the radial head immediately increases range of motion. J Hand Ther. 2016;29(3):314–319.
   PubMed Web of Science ®Google Scholar
• Korbus H, Schott N. Does mental practice or mirror therapy help prevent functional loss after distal radius fracture? A randomized controlled trial. J Hand Ther. 2020.
   Google Scholar
• Takata SC, Hardison ME, Roll SC. Fostering holistic hand therapy: emergent themes of client experiences of mind-body interventions. OTJR (Thorofare N J). 2020;40(2):122–130.
   PubMed Web of Science ®Google Scholar
• Adams J, Lowe W, Protheroe J, et al. Self-management of a musculoskeletal condition for people from harder to reach groups: a qualitative patient interview study. Disabil Rehabil. 2019;41(25):3034–3042.
   PubMed Web of Science ®Google Scholar
• Kendall E, Ehrlich C, Sunderland N, et al. Self-managing versus self-management: reinvigorating the socio-political dimensions of self-management. Chronic Illn. 2011;7(1):87–98.
   PubMedGoogle Scholar